Measuring Progress: Understanding TKV in PKD Management
PKD Chronicles: Navigating Life with Polycystic Kidney Disease
Release Date: 08/13/2025
Family Planning and PKD: What to Know at Every Stage
PKD Chronicles: Navigating Life with Polycystic Kidney Disease
What does family planning look like with PKD? In this episode, we’ll cover the essential information every PKD patient should know before, during, and after pregnancy. We’ll share expert insights on managing PKD during pregnancy, navigating childbirth, and handling postnatal care. Plus, you’ll discover helpful resources and support networks designed to assist patients and overcome the unique challenges they may face throughout their family-planning journey. Whether you’re considering parenthood or already expecting, this episode offers an invaluable guide for individuals...
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Exploring Genetic Testing in PKD
PKD Chronicles: Navigating Life with Polycystic Kidney Disease
Genetic testing is transforming how we understand and manage polycystic kidney disease (PKD). In our latest episode of PKD Chronicles, we dive deep into the science and significance of genetic testing for PKD patients. Discover why genetic testing is a crucial step in understanding and managing PKD. Explore how genetic insights are shaping personalized treatment strategies, and what you need to know about the potential challenges and limitations. Tune in as we navigate the complexities of genetic testing for PKD, shedding light on its role in shaping the future of patient care. For more...
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What You Should Know About Tolvaptan
PKD Chronicles: Navigating Life with Polycystic Kidney Disease
Unravel the story behind tolvaptan, a medication revolutionizing the treatment landscape for polycystic kidney disease (PKD), in this episode of PKD Chronicles. We’ll give a brief of the history of this drug. Also, learn how tolvaptan works and how it specifically targets the underlying causes of PKD. Then, we will explore the nuances of using tolvaptan in PKD treatment, including its effectiveness and potential side effects.
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Understanding Clinical Trials and Registries in PKD Research
PKD Chronicles: Navigating Life with Polycystic Kidney Disease
In this episode, listeners are invited to explore the world of clinical trial participation and registry involvement in PKD research. Diving into the significance of these initiatives, the episode sheds light on why participation is crucial for advancing scientific understanding and developing effective treatments for PKD. Additionally, it addresses common concerns and misconceptions surrounding clinical trials and registries, empowering listeners with the knowledge needed to make informed decisions about participation. Special mention is made of the PKD Foundation's registry,...
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Measuring Progress: Understanding TKV in PKD Management
PKD Chronicles: Navigating Life with Polycystic Kidney Disease
Listeners are invited to delve into the intricacies of Total Kidney Volume (TKV) and its role in tracking the progression of PKD. Discover how TKV is measured, what it signifies for disease progression, and its implications for treatment decisions. The episode explores treatments that impact TKV measurements and offers guidance on how patients and caregivers can effectively communicate with their healthcare team about treatment options. Listeners will gain expert advice and empowering insights on engaging with healthcare professionals to navigate the complexities of managing PKD and monitoring...
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Empowerment, Support, and Connection While Navigating PKD – Part 2
PKD Chronicles: Navigating Life with Polycystic Kidney Disease
In this episode, we continue our conversation with Lisa Smallwood Belk and Alix Piccirilli, on how PKD has impacted their lives and families. In part two, Lisa and Alix dive into practical, actionable ways people with PKD and their loved ones can make a difference, including: Connecting with the PKD community online Participating in clinical trials that are both valuable and rewarding Advocating to ensure lawmakers hear and support the PKD community’s needs Don’t miss this inspiring conversation filled with tools, encouragement, and...
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Empowerment, support, and connection while navigating PKD - Part I
PKD Chronicles: Navigating Life with Polycystic Kidney Disease
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PKD and Emotions: Real Talk for Young Warriors
PKD Chronicles: Navigating Life with Polycystic Kidney Disease
This episode speaks directly to young people living with PKD, addressing the profound emotional challenges that come with the territory. From dealing with a new diagnosis to navigating feelings of loss and uncertainty, we tackle the mental health aspects of PKD head-on. Join us for honest conversations about grief, resilience, and the mental hurdles unique to young adults on their PKD journey. Through real stories and expert advice, we provide comfort, understanding, and practical strategies to help young PKD warriors cope with the emotional toll. Tune in for a supportive and empowering...
info_outlineListeners are invited to delve into the intricacies of Total Kidney Volume (TKV) and its role in tracking the progression of PKD. Discover how TKV is measured, what it signifies for disease progression, and its implications for treatment decisions. The episode explores treatments that impact TKV measurements and offers guidance on how patients and caregivers can effectively communicate with their healthcare team about treatment options. Listeners will gain expert advice and empowering insights on engaging with healthcare professionals to navigate the complexities of managing PKD and monitoring TKV effectively.