Episode 3: EDS, Medical Research & Neurodivergence
EDS Unplugged
In this episode, Cassandra and Marcia speak with Jan Groh, fellow EDSer, advocate, creator of the Oh Twist blog and co-author of the EDS Toolkit. Transcript: Links to Resources shared in this episode: OH Twist X (Twitter) FB Patreon ORGS/PROJECTS Ehlers-Danlos Support UK https://www.ehlers-danlos.org/ EDS Toolkit Dr Emma Reinhold X (Twitter) Medical University of South Carolina (MUSC) The Ehlers Danlos Society (TEDS) HEDGE study Norris Lab Kallikrein Gene Study Dr Byers University of Washington Mast Cell Diseases Society (TMS) ...
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Episode 2: Medically Complex Children
EDS Unplugged
In this episode we’re so excited to be joined by Donna Sullivan, advocate and filmmaker behind the powerful documentary “Complicated.” Donna’s work shines a light on the lived experiences of those living with EDS and chronic pain, especially children — and she’s using film as a tool for empathy and understanding. Transcript: Links to Resources shared in this episode: Donna M. Sullivan, Director, Patient Advocacy: Pathways To Trust: https://www.pathwaystotrust.org Additional Board Positions: The Coalition Against Pediatric Pain The Connective Tissue...
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Episode 1: Invisible Disability Awareness
EDS Unplugged
We are very pleased to announce the first episode of the EDS Unplugged podcast, brought to you by Chronic Pain Partners. In this episode, hosts Cassandra and Marcia speak with Kate Schultz about what we do here at Chronic Pain Partners and living with EDS in the run up to Invisible Disabilities Week. Episode Transcript:
info_outlineWe are very pleased to announce the first episode of the EDS Unplugged podcast, brought to you by Chronic Pain Partners.
In this episode, hosts Cassandra and Marcia speak with Kate Schultz about what we do here at Chronic Pain Partners and living with EDS in the run up to Invisible Disabilities Week.
Episode Transcript: https://www.chronicpainpartners.com/eds-unplugged-podcast-episode-1-invisible-disabilities-awareness-with-kate-schultz/