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If I Had Known This at 15... Lipedema

Dear body, I’m listening

Release Date: 06/26/2025

How Trauma Rewrites Pain Part 3—When Trauma Turns on the Immune System show art How Trauma Rewrites Pain Part 3—When Trauma Turns on the Immune System

Dear body, I’m listening

“Trauma doesn't just live in your memories, your fascia, or your nervous system. It can also reshape your immune system, especially when no one helped you feel safe. That doesn't mean it's your fault, and that doesn't mean your body isn't on your side. It means that your body has been on your side this whole time, trying to protect you the only way it knew how.” —Donna Piper   Some days your body throws signals you cannot ignore, but no one seems to hear them. The swelling, the exhaustion, the crashes that make no sense on paper start to feel like a secret only you and your body...

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Thermal Imaging for Health: Early Answers, Less Guesswork with Dr. Robert Kane show art Thermal Imaging for Health: Early Answers, Less Guesswork with Dr. Robert Kane

Dear body, I’m listening

 "It's a balance between getting information and trusting experts. It's really important that as a patient, you have to be your own advocate." —Robert Kane   When it comes to our body, uncertainty can be the hardest symptom to treat. Worry sets in when answers are fuzzy, and bouncing between specialists leaves us more confused than before. The real question is: how can we know what’s happening inside before a health crisis begins?   After doubting conventional answers and searching for tools that deliver real clarity, Dr. Robert Kane turned a career in health into a...

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Chronic Pain & Trauma: Gently Breaking The Invisible Link with Science show art Chronic Pain & Trauma: Gently Breaking The Invisible Link with Science

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  "The body's intelligent. We just have to show up. I equate it to a dance where the body leads and I follow." —Peter Stuart   You can run from nagging pain, but it keeps showing up in new ways—wrecking sleep, fouling up moods, and shutting down energy. The worst part? Real answers are rare, and the world keeps telling you to just “push through” or “try harder.” Maybe it’s not about willpower at all—it’s about listening to the actual story your body’s been trying to tell for years. Peter Stuart spent decades fighting through his own injuries, dismissed symptoms,...

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How Real Connection Supports Healing (Even When You’re Exhausted) with Heather Nelson show art How Real Connection Supports Healing (Even When You’re Exhausted) with Heather Nelson

Dear body, I’m listening

“Push your life to be the life that you want and not accept that it's just the way it is. Every choice that you make should be toward loving the life that you have.” —Heather Nelson     Connection isn’t just a feel-good extra. It’s a lifeline when the world feels heavy and invisible battles make us want to shut down. Isolation, overwhelm, and invisible struggles don’t need to be our whole story; even small acts of reaching out can reshape everything. The truth is, connecting with the right people and sharing our messy middle is stronger than any secret solution. Heather...

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The Science of Rest— What the Lipkin Study Taught Us About ME/CFS show art The Science of Rest— What the Lipkin Study Taught Us About ME/CFS

Dear body, I’m listening

“Pace first, safety builds capacity.” —Donna Piper   There’s a kind of tired that sleep can’t fix, a crash that feels invisible to everyone but you. You push, you pace, you try to “do all the right things,” yet your body still calls a timeout. Maybe it’s not weakness or lack of willpower. Maybe your body’s simply working harder than anyone realizes. In this episode, Donna unpacks a revolutionary study on chronic fatigue, the real science behind “the crash,” and why pacing, rest, and nervous system care are the new power moves for healing. Expect myth-busting,...

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Beyond the Diagnosis: Reclaiming Life and Purpose With Lipedema with Hiba Hamati show art Beyond the Diagnosis: Reclaiming Life and Purpose With Lipedema with Hiba Hamati

Dear body, I’m listening

  "Trust your instinct… Our bodies sound an alarm bell that something isn’t right, and we ignore it for years. Don’t ignore it. Don't accept the bare minimum answer.  Just because your labs are normal does not mean that your body is functioning optimally." —Hiba Hamati   Going to doctor after doctor, trying every tip, and still wondering why your pain and swelling never make sense. You know there’s something happening that nobody else seems to see, and not getting answers just wears you down. This chat right here puts a name to all that frustration.  Hiba Hamati...

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If Only I Were Skinny… show art If Only I Were Skinny…

Dear body, I’m listening

 "Your body is not the enemy—the world's impossible standards are. And every time you name that truth out loud, you don't just free yourself, you also free someone else.” —Donna Piper    Some lies are so loud they start to sound like truth—like the idea that confidence waits on the other side of weight loss. And the hardest part? The shame of not being skinny can at times feel heavier than our own weight, turning every step forward into a fight against an invisible anchor. Donna spent years believing her size erased her gifts. It wasn’t until she uncovered her...

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How Trauma Rewrites Pain, Part 2: When Fight or Flight Gets Stuck show art How Trauma Rewrites Pain, Part 2: When Fight or Flight Gets Stuck

Dear body, I’m listening

  "If trauma rewrote the wiring one way, that means safety relationship and somatic practices can rewrite it the other way— it is the long game; there is no quick fix.” —Donna Piper Sometimes you do everything right, but your body keeps sending SOS signals no one else can see. Doubt creeps in—is this real, or is something deeper going on? You’re not alone; your body’s story matters, and what you feel makes perfect sense. For years, Donna felt invisible, questioned, and let down by quick fixes and dismissive answers. Her experience battling chronic pain, trauma, and...

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Dollars and Cents: The Real Financial Stress of Being Sick show art Dollars and Cents: The Real Financial Stress of Being Sick

Dear body, I’m listening

 "I'm not my bills. I'm not my debt. I am worthy of care." —Donna Piper   Being sick isn’t just exhausting—it’s expensive in ways nobody warns you about. The stress of medical bills, insurance denials, and endless receipts can weigh just as heavily as the symptoms themselves. If you’re tired of feeling like your wallet is as worn out as your body, you’re not alone. In this episode, Donna opens up about the real price tag of chronic illness, sharing her journey through misdiagnoses, out-of-pocket treatments, and the emotional toll of fighting for care. She breaks down the...

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How Trauma Rewrites Pain, Part 1: My Body Kept Score show art How Trauma Rewrites Pain, Part 1: My Body Kept Score

Dear body, I’m listening

“Moving is medicine. There's something with moving that you don't need to know why or how, or how it relates to your emotions or trauma. And just like how trauma rewrites pain, it is also the opposite when you feel safe, embodied, and in a compassionate relationship with yourself, you can rewrite your story for safety.” —Donna Piper   Sometimes pain isn’t just in your head—it’s woven deep into your body, shaping how you move, feel, and even how you see yourself. When life keeps telling you to “push through” but your body keeps shutting down, it’s easy to wonder if...

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More Episodes

"If at 15, I had known what I know now, I think I would have a huge change in perspective about how I looked at my body in my whole life." —Donna Piper

 

What if your 'normal weight gain' was actually a medical condition everyone missed? At 15, Donna thought she just needed to try harder. Thirty years later, she learned the shocking truth.

Donna reveals how lipedema symptoms masqueraded as simple body insecurities—from ballet teachers shaming her thighs to doctors dismissing her pain. With raw honesty, she unpacks the genetic reality of lipedema, the crushing weight of misdiagnosis, and why even her "perfect" healthy lifestyle couldn't stop the progression.

Tune in to discover the 3 red flags of lipedema every woman should know—and how to advocate for your body when no one else does.

 

Connect with Donna: 

Website: https://www.donnapiper.com/  

LinkedIn: https://www.linkedin.com/in/donnapiper

Instagram: https://www.instagram.com/lipedema_donna 

Facebook: https://www.facebook.com/thedonnapiper 

YouTube: https://www.youtube.com/@thedonnapiper

 

Episode Highlights:

01:30 Body Image Struggles

05:17 Lymphedema vs Lipedema vs Obesity

11:43 The Impact of Misdiagnosis 

14:53 Dealing with the Grief of Misdiagnosis

21:27 The Feel Good Flow for Lymphatic Support System

23:05 Practical Tips for Lymphatic Support

 

Resources: 

🔗Links

Lipedema: https://my.clevelandclinic.org/health/diseases/17175-lipedema

Big Six: https://youtu.be/lT_wW5pNHa4?si=ojNI2dnWsl1mfjP7

 

X:

“Ballerinas don’t have thighs like that.”  At 15, Donna Piper believed her ballet teacher. At 45, she learned the truth: lipedema. Her story will change how you see ‘stubborn weight. Tune in!  

#DearBodyImListeningPodcast #LipedemaAwareness #ChronicIllness #BodyShaming #WeightGain #BigThighs #GeneticDiseases

 

Quotes: 

01:38 "If at 15, I had known what I know now, I think I would have a huge change in perspective about how I looked at my body in my whole life." —Donna Piper

02:05 "Even though I moved every day, I still had thick thighs. And I also ate really clean food... but my legs were always thicker." —Donna Piper

03:26 "One of my ballet teachers came up to me, and she touched my thighs, and she said, ‘ballerinas don't have thighs like that.’ And I know that she was trying to be motivating... but that was not the case at all, and that just reinforced my self-consciousness about my thighs." —Donna Piper

04:18 "If I had known that lipedema was a thing, this is just genetics...  It's not laziness, it's not a lack of trying. It's not a certain food. It's just, this might happen to you for whatever reason." —Donna Piper

04:56 "This misunderstanding of my body and thinking that it was more in my control has messed with me for decades, and it still messes with me to this day." —Donna Piper

13:54 "Maybe just knowing this (lipedema) now, you could stop blaming yourself. You could stop thinking that you're not doing enough." —Donna Piper

15:29 "By learning some of this information earlier, I would not have been down all these rabbit holes that I have been. I probably would have been able to find something that actually was going to help me, and it would have definitely saved me years of confusion and shame." —Donna Piper

16:01 "How do you deal with the grief of being misdiagnosed for so long? That was really, really tough, and I'm still in the process of all of the five stages of grief." —Donna Piper

16:33 "It's expensive to have these diagnoses because the specialists that you find want to be paid out of pocket... and the kicker is there's no clear cut diagnosis or a pathway like, do these things and you'll improve." —Donna Piper

17:53 "My kind of wisdom... is to stick with it, take it easy and give yourself the time that you need to actually deal with the anger and the upset feelings and all of the doctors saying it was not a big deal." —Donna Piper

20:44 "The paradox of living with these kinds of illnesses is that I don't always look sick, but I feel horrible, and I'm in a lot of pain, and I can't really function." —Donna Piper

21:07 "You're not alone. It's a real thing to be giving 100% and only running on 30% of fuel." —Donna Piper

 

Meet Your Host: 

Donna Piper is a Relationship Coach, Trauma Expert, and Akashic Records Healer dedicated to empowering successful single women to transform their love lives and attract fulfilling partnerships without sacrificing their professional ambitions.

With a holistic approach blending therapeutic coaching, trauma-informed techniques, and Akashic Records wisdom, she guides clients to release limiting beliefs, heal emotional blocks, and cultivate unshakable self-trust. Her work focuses on aligning mind, body, and spirit to create lasting change—helping clients refine communication, deepen self-worth, and build the foundation for healthy, loving relationships.

Donna’s sessions are a safe haven for those ready to break cycles, embrace vulnerability, and design a love life that harmonizes with their thriving careers. For women committed to both personal and professional fulfillment, she offers tailored strategies to unlock their full potential and step into the relationship of their dreams.