Finding Hope Beyond Your Diagnosis
CareCast: The CLL Society Podcast
In the first episode of the second season of CareCast: The CLL Society Podcast, our moderator, Doreen Zetterlund, is joined by Rabbi Rebecca Kamil—a chaplain with over 10 years of experience—to discuss the emotional and spiritual challenges faced by CLL/SLL patients throughout their journey. During the conversation, Rabbi Kamil reflects on her own experiences supporting those affected by CLL/SLL.
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Lifestyle, Mindset, and Community: A Holistic Approach to CLL
CareCast: The CLL Society Podcast
In this discussion with CLL patient Peter Titlebaum, we explore the connection between lifestyle choices and non-medical approaches to managing chronic lymphocytic leukemia (CLL), with a particular focus on their impact on mental health. Peter is a lifelong athlete, college professor at the University of Dayton, an active member of a CLL Society Support Group, and has been living with CLL since 2018. Peter reflects on his personal experience, highlighting how physical activity has positively influenced his mental health. He also shares how cultivating the right mindset and...
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Supporting Loved Ones Through CLL: A Care Partner’s Journey
CareCast: The CLL Society Podcast
Approximately 53 million Americans serve as care partners to a loved one, with about 6 million of them providing care to individuals diagnosed with cancer. Susan Bottega is one of these dedicated care partners, supporting her husband since his diagnosis of chronic lymphocytic leukemia (CLL) in 2010. She reflects on the emotional impact of the initial diagnosis, the importance of becoming well-informed about CLL as a care partner, and how advocating for her husband has shaped their journey with the disease. Susan also touches on the vital role of mental health and having a strong support...
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Coping with Watch and Wait and the Delay in Starting Treatment for CLL
CareCast: The CLL Society Podcast
It is estimated that between 75% and 95% of people diagnosed with CLL do not immediately start treatment. Instead, they follow the standard of care approach known as Active Observation, also called Watch and Wait, Watch and Worry, or Active Surveillance. When receiving a diagnosis of cancer, it can be confusing and a source of anxiety to hear that you will not be given treatment right away. This is where the emotional rollercoaster with CLL begins for many patients. In this episode, Dr. Brian Koffman is joined by guest Rick Conner, who has been on Active Observation since receiving...
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Our Founder's Emotional Journey
CareCast: The CLL Society Podcast
In this inaugural episode of CLL Society’s CareCast Podcast, Executive Director, Carly Harrington is joined by Dr. Brian Koffman, Co-Founder, Chief Medical Officer and Executive Vice President of CLL Society, to discuss his emotional journey with CLL. Dr. Koffman reflects on his initial diagnosis and the impact of having a strong support system and community to help him cope with the emotions he encountered. Listen to Dr. Koffman share insights from his 20-year journey living with CLL, including emotional highs and lows he has experienced, his treatment journey, relapse, and how he has...
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Sneak Peek: Getting into the Treatment Mindset w/Dr. Brian Koffman
CareCast: The CLL Society Podcast
Entering treatment for chronic lymphocytic leukemia (CLL) can be an emotional time. In this clip, Dr. Brian Koffman shares the importance of having an optimistic mindset while also setting realistic expectations. The full episode is coming on September 17.
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Welcome to CareCast
CareCast: The CLL Society Podcast
Welcome to CareCast! In this introductory message, Executive Director Carly Harrington invites listeners to our new podcast, CareCast: The CLL Society Podcast. Receiving a diagnosis of chronic lymphocytic leukemia (CLL) can evoke a range of emotions, but here at CLL Society, we want you to know that you never have to face it alone. Throughout the podcast, we will explore living with CLL through real-life stories. CareCast debuts September 2024.
info_outlineIn this inaugural episode of CLL Society’s CareCast Podcast, Executive Director, Carly Harrington is joined by Dr. Brian Koffman, Co-Founder, Chief Medical Officer and Executive Vice President of CLL Society, to discuss his emotional journey with CLL. Dr. Koffman reflects on his initial diagnosis and the impact of having a strong support system and community to help him cope with the emotions he encountered. Listen to Dr. Koffman share insights from his 20-year journey living with CLL, including emotional highs and lows he has experienced, his treatment journey, relapse, and how he has navigated the complex emotions cancer has brought into his life.