001 Shaping a Data Access Framework for Population Health
Release Date: 04/29/2021
BC Platforms Podcast
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Welcome to the BC Platforms Podcast! BC Platforms is the global leader in providing a powerful data discovery and analytics platform, as well as data science solutions for personalized health care. BC Platforms enables cross-functional collaboration with our global federated network of data partners. This episode is an open discussion with three key leaders in the healthcare data industry. Tõnu Esko is the Professor of Human Genomics at the University of Tartu, and the longtime leader and member of the Senior Management Board for the Estonian Biobank. Sirpa Soini is...
info_outlineBC Platforms Podcast
Welcome to the first episode of the BC Platforms podcast! BC Platforms is the global leader in providing a powerful data discovery and analytics platform, as well as data science solutions for personalized health care. BC Platforms enables cross-functional collaboration with our global federated network of data partners. In today’s episode we are discussing shaping a data access framework for population health. We will shed light on industry challenges and expectations, as well as innovative approaches to collaboration. This episode is hosted by Tõnu Esko, BC Patforms SAB Chairman and Vice...
info_outlineWelcome to the first episode of the BC Platforms podcast!
BC Platforms is the global leader in providing a powerful data discovery and analytics platform, as well as data science solutions for personalized health care. BC Platforms enables cross-functional collaboration with our global federated network of data partners.
In today’s episode we are discussing shaping a data access framework for population health. We will shed light on industry challenges and expectations, as well as innovative approaches to collaboration.
This episode is hosted by Tõnu Esko, BC Patforms SAB Chairman and Vice Director at the Institute of Genomics at the University of Tartu. He also holds a Professor of Human Genomics Position, and is the Head of the Estonian Biobank Innovation Center focusing on public-private partnerships and innovation transfer. Dr. Esko is a research scientist at the Broad Institute of Harvard and MIT. He acts as one of the senior leaders of the Estonian Personalized Medicine Program, and served as a scientific advisor for several companies.
Our guest today is Gerry Reilly, Chief Technology Officer at Health Data Research UK. Having joined HDR UK in 2018, Gerry is now a Technologist in Residence focusing on the development of HDR UK's international work and long term technology strategy. Gerry is a fellow of the British Computer Society, Chartered Engineer and Chartered IT professional. He's an academic assessor for the British Computer Society, and a member of the industrial advisory board for the School of Electronic, Engineering and Computer Science at QMUL.
What Is Covered:
- The burning problems and the obstacles for data sharing in the global health data research community
- The three key areas HDR UK focuses on and the role of HDR UK Innovation Gateway
- How the health data research ecosystem currently works in the UK
- The cultural shifts needed in order to harmonise data access management across the health sector
- How the COVID pandemic has accelerated the work on data access and data quality harmonisation
- The steps towards a broad international collaboration in health data research
Links and Resources Mentioned in This Episode:
- Health Data Research UK https://www.hdruk.ac.uk/
- Health Data Research Innovation Gateway https://www.healthdatagateway.org/
- UK Health Data Research Alliance https://ukhealthdata.org/
- UK Biobank https://www.ukbiobank.ac.uk/
- Genomics England https://www.genomicsengland.co.uk/
- Dublin Core Metadata Initiative https://dublincore.org/
- International COVID-19 Data Alliance https://icoda-research.org/
- The Estonian Biobank https://genomics.ut.ee/en
Connect with Gerry Reilly:
- https://www.linkedin.com/in/gerry-reilly-7290681/
Connect with Dr. Tõnu Esko:
- https://www.linkedin.com/in/tõnu-esko-24511524/
Connect with BC Platforms: