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Tourette syndrome community and research - with Dr. Daniel P. Jones

Beyond 6 Seconds: Neurodiversity stories from neurodivergent people

Release Date: 05/10/2025

Schizoaffective disorder – with Sonido Reyes show art Schizoaffective disorder – with Sonido Reyes

Beyond 6 Seconds: Neurodiversity stories from neurodivergent people

Sonido Reyes is an award-winning and bestselling author who is best known for tackling difficult topics through a hopeful lens. They write stories celebrating their own queer and Mexican identities, including The Lesbiana's Guide to Catholic School, The Luis Ortega Survival Club, The Broposal, and The Golden Boy's Guide to Bipolar. They also have contributed short stories to the anthologies Transmogrify! and For the Rest of Us. Sonido is also the vice-president of My Galvanized Friend, a nonprofit focused on providing access to and amplifying LGBTQ+ writing, art, and creators. During this...

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Beyond 6 Seconds: Neurodiversity stories from neurodivergent people

This episode is a special collaboration between Beyond 6 Seconds and the Living with FASD podcast hosted by Patti Kasper. Fetal alcohol spectrum disorders (FASD) are lifelong conditions caused by prenatal alcohol exposure that can impact physical, cognitive, and behavioral development. FASD is a type of neurodivergence, but it’s often left out of conversations about neurodivergence. This episode is part of a series that Patti is doing on her podcast to help bring FASD into those conversations. We discuss what communication differences can feel like for people with certain types of...

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Disability Community for Democracy – with Nieta Greene show art Disability Community for Democracy – with Nieta Greene

Beyond 6 Seconds: Neurodiversity stories from neurodivergent people

Nieta Greene is the Chief Executive Officer and Founder of Disability Community for Democracy, Inc., an organization focused on safeguarding the rights of individuals within the disability community and providing a platform for political engagement founded on intersectional disability justice. She is a resilient and proud Disabled Puerto Rican, Black, gender non-conforming, gay woman. Nieta openly champions her identity as she advocates for inclusivity and belonging on behalf of those unable to voice their concerns. During this episode, Nieta talks about: Her experience growing up with...

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2025 year-end episode show art 2025 year-end episode

Beyond 6 Seconds: Neurodiversity stories from neurodivergent people

In this year-end solo episode, I celebrate some big milestones that Beyond 6 Seconds achieved in 2025, highlight the variety of topics that my guests and I discussed on my podcast, and share what podcasting-related things I’ve been up to this year! I also reflect on several challenges that the neurodivergent and disability communities are facing in the United States, and share my focus for the year ahead. , which also contains links to some of the other podcasts and resources I mention in this episode. Support or sponsor this podcast at ! *Disclaimer: The views, guidance, opinions, and...

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The Introverted Misfit – with Caroline Smith show art The Introverted Misfit – with Caroline Smith

Beyond 6 Seconds: Neurodiversity stories from neurodivergent people

Caroline Smith founded her business, The Introverted Misfit, to help shy, awkward introverts become socially confident versions of themselves so they can have healthy, manageable social lives. Because of her experience with being autistic, which was the source of many social difficulties and major social anxiety for her, she knows what it's like to build self-acceptance, self-improvement, and a life that works for individualized needs. Now Caroline helps fellow introverts (whether they are autistic or not) learn how to connect with others, create fruitful relationships, and have a manageable...

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Deafness, Disability and Mental Health – with Kellina Powell show art Deafness, Disability and Mental Health – with Kellina Powell

Beyond 6 Seconds: Neurodiversity stories from neurodivergent people

Kellina Powell, known as the Deaf Queen Boss, is a podcast speaker, best-selling author, and passionate advocate for the deaf and disability communities. She empowers young adults with disabilities to chase their dreams, breaks down barriers around mental health, and educates others about deaf culture and inclusion.   During this episode, you will hear Kellina talk about: What it was like for her to grow up deaf from an early age, and her exposure to deaf culture How she educates people about the deaf community and mental health issues The coaching work that she does for people with...

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A Day with No Words – Nonspeaking autism representation with Tiffany Hammond show art A Day with No Words – Nonspeaking autism representation with Tiffany Hammond

Beyond 6 Seconds: Neurodiversity stories from neurodivergent people

Tiffany Hammond is a New York Times bestselling author, speaker, and disability advocate. She is the author of A Day with No Words, a picture book about a Black mother and son who use a tablet to communicate with each other and the world around them. A Day With No Words successfully normalizes communication methods outside of verbal speech and provides representation of neurodiversity and autism in a way that affirms and celebrates. Through Tiffany’s platform, Fidgets and Fries, she shares stories about autism, identity, and the fullness of Black and disabled family life. She is the proud...

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Advocating for dyslexic students – with Sabrina Fandell show art Advocating for dyslexic students – with Sabrina Fandell

Beyond 6 Seconds: Neurodiversity stories from neurodivergent people

As a dyslexic child, Sabrina Fandell had to sit in her school's book closet for her reading lessons. Now she sits on the Board of Directors of the International Dyslexia Association - Dallas Branch. She is passionate about fostering inclusive environments and advocating for neurodivergent students in school. During this episode, Sabrina talks about: Her experience growing up as a child with dyslexia, and as a parent of children who have dyslexia How advancements in technology and teaching methodologies can help students with dyslexia succeed in school Why she got involved with the...

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Ava N. Simmons — STEM entrepreneur and toy designer with dyslexia and dysgraphia show art Ava N. Simmons — STEM entrepreneur and toy designer with dyslexia and dysgraphia

Beyond 6 Seconds: Neurodiversity stories from neurodivergent people

Ava N. Simmons, also known as Ava The S.T.E.M. Princess®, is a 12-year-old S.T.E.M. Ambassador, Entrepreneur, Toy Designer, Author, and the creator of educational toy brand Team Genius Squad. Diagnosed with dyslexia and dysgraphia in 2021, Ava used S.T.E.M. (Science, Technology, Engineering and Mathematics) and S.T.E.A.M. (Science, Technology, Engineering, Art, and Mathematics) and entrepreneurial activities to help overcome her academic challenges and build her confidence.  To share her learning journey and encourage others, Ava creates engaging S.T.E.M.-based educational videos,...

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Deaf and OCD representation in audio drama — with Caroline Mincks of Seen and Not Heard show art Deaf and OCD representation in audio drama — with Caroline Mincks of Seen and Not Heard

Beyond 6 Seconds: Neurodiversity stories from neurodivergent people

Caroline Mincks is a writer, director, and voice actor who is best known for their audio drama “Seen and Not Heard,” which is about navigating hearing loss as an adult. Seen and Not Heard features disability representation, including deaf, obsessive-compulsive disorder (OCD) and autistic characters. Caroline also works as a consultant, assisting other creators in making their shows accessible to as many people as possible. During this episode, you will hear Caroline talk about: How their own experience with hearing loss inspired them to create “Seen and Not Heard” How they use sound...

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Dr. Daniel P. Jones is a Creative Practitioner, Disability Scholar, and Postdoctoral Research Associate at the University of Sheffield in the UK. Daniel specializes in inclusive research methodologies, focusing on the embodied experiences of public spaces, kinship, and solidarity within Tourette syndrome communities. As someone who has lived experience of Tourette syndrome himself, he has been actively engaged in community facilitation and Tourette syndrome activism in the UK for over a decade. 

During this episode, you will hear Daniel talk about:

  • How he realized he had Tourette syndrome – years after he had been diagnosed
  • What was it like for him growing up with Tourette's in a religious household
  • How his PhD thesis research focuses on the experiences that adults with Tourette's have in both public physical spaces and digital spaces
  • What he learned about how the experiences of BIPOC and queer people with Tourette's are different in these spaces
  • His work to lead and promote inclusive research 

Follow Daniel on Bluesky: @danielpjones.bsky.social
Visit Daniel's website: DanielPJones.com

Watch the video of this interview on YouTube.

Read the episode transcript.

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*Disclaimer: The views, guidance, opinions, and thoughts expressed in Beyond 6 Seconds episodes are solely mine and/or those of my guests, and do not necessarily represent those of my employer or other organizations. These episodes are for informational purposes only and do not substitute for professional medical advice. Consult a medical professional or healthcare provider if you are seeking medical advice, diagnoses, or treatment.*