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Ep. 27: August 20, 2018 - w/ Wheels for the World

BloodStream

Release Date: 08/20/2018

Gene Therapy Around the World show art Gene Therapy Around the World

BloodStream

Do you ever wonder who’s actually getting gene therapy around the world? So have we! Dr. Hank Greely from Stanford and Simon Fletcher, a nurse and PhD Candidate from Oxford, break it down in a way that’s eye-opening and real. Then stick around for Dr. Radek Kaczmarek’s update on the latest game-changing research. Two fascinating chats, one episode, this is BloodStream you don’t want to miss!   Presenting Sponsor: Takeda, visit to learn more.   It’s a Whole New World Gene Therapy Segment brought to you by CSL Behring, which now has a first-of-its-kind hemophilia B...

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Actress Sami Rappoport’s short film, VIII. Plus Jeff & Barb with Dr. Joanna Davis show art Actress Sami Rappoport’s short film, VIII. Plus Jeff & Barb with Dr. Joanna Davis

BloodStream

What do a heartfelt short film, a Hollywood actress, and a powerful community story all have in common? This week’s BloodStream Podcast. Actress Sami Rappoport shares how her grandfather’s life with hemophilia inspired her latest project, and Dr. Joanna Davis sits down with Barb Forss and Jeffrey Moualim for a conversation you won’t want to miss. Jeffrey Moualim, Barbara Forss and Joanna Davis, M.D., discussion is in conjunction with /   Presenting Sponsor: Takeda, visit to learn more. Show Notes: Subscribe:   Connect with BloodStream Media:    

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Bleeding Disorders Conference preview with NBDF’s Phil Gattone show art Bleeding Disorders Conference preview with NBDF’s Phil Gattone

BloodStream

Phil Gattone joins the latest BloodStream Podcast to preview NBDF’s upcoming Bleeding Disorders Conference, coming mid-August. Plus, Amy and Patrick take a trip down camp memory lane, sharing summer stories from their days at hemophilia camp. Tune in for a mix of updates and nostalgia.   Presenting Sponsor: Takeda, visit to learn more. Segment is brought to you by Genentech: Visit to watch the short film. Show Notes:   Subscribe: Connect with BloodStream Media:    

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Hemophiliac of Love with Max Feinstein (!!) show art Hemophiliac of Love with Max Feinstein (!!)

BloodStream

Our bud, Max Feinstein, is back with us to share the outcome of his elbow surgery and he surprises us with a cover of Hemophiliac of Love (!!). Plus, the most pressing question when it comes to gene therapy for hemophilia B: How long does it last? Hanna does a deep dive into that very question with guest, Dr. Andrew Davidoff.   Presenting Sponsor: Takeda, visit to learn more.   It’s a Whole New World Gene Therapy Segment brought to you by CSL Behring, which now has a first-of-its-kind hemophilia B treatment. Visit or download B SUPPORT wherever you get your apps for more...

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Type 3 vWD, growing up and out with Rick Lindfors show art Type 3 vWD, growing up and out with Rick Lindfors

BloodStream

Rick Lindfors is cool. He lives with Type 3 von Willebrand and is in the Minnesota Search and Rescue Dog Association. He sits down with Patrick to chat about how he saw it as an opportunity to give back to his younger self, who, for a time, didn't have anyone coming to rescue them. Listen in to his inspiring story - only on BloodStream!   Presenting Sponsor: Takeda, visit to learn more. Show Notes:   Subscribe:   Connect with BloodStream Media:      

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Dr. Erik Berntorp (the best-kept secret in vWD) and cancer podcasting legend, Matthew Zachary show art Dr. Erik Berntorp (the best-kept secret in vWD) and cancer podcasting legend, Matthew Zachary

BloodStream

Dr. Erik Berntorp (medical doctor, researcher, and professor at Lund University in Sweden) joins us to discuss something special related to von willebrand disease and Matthew Zachary, award-winning Cancer Maverick, Keynote Speaker, and Pioneering Podcaster sits down with Patrick to chat all things advocacy and media!   Presenting Sponsor: Takeda, visit to learn more. Show Notes:   Subscribe:   Connect with BloodStream Media:      

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New Treatment Options and Trials show art New Treatment Options and Trials

BloodStream

New treatment options are here for the hemophilia community! Learn more in Patrick’s conversation with Craig Benson and our latest Gene therapy segment that focuses on the psychological impact of gene therapy. Plus, we share news about the Genentech and Spark integration.   Presenting Sponsor: Takeda, visit to learn more.   It’s a Whole New World Gene Therapy Segment brought to you by CSL Behring, which now has a first-of-its-kind hemophilia B treatment. Visit or download B SUPPORT wherever you get your apps for more information.   Segment is brought to you by Genentech:...

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Stop the Bleeding!, a retrospective show art Stop the Bleeding!, a retrospective

BloodStream

Stop the Bleeding! is celebrating 14 seasons of using comedy and entertainment to raise awareness and educate about hemophilia and other bleeding disorders. Join creator, director, and star, Patrick James Lynch, in a retrospective with director and writer Jim Fagan as they reminisce about the show’s characters and conflicts, and how entertainment & digital media was used to engage, educate, and inspire people with chronic conditions.   Presenting Sponsor: Takeda, visit to learn more. Watch the trailer for the latest season! AWARDS & HONORS   2018 LA Web Fest - Best...

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Aging with a Bleeding Disorder show art Aging with a Bleeding Disorder

BloodStream

Join us for an episode dedicated to aging with hemophilia, with several stories from our community. We hear from Jeffrey Moualim & Barb Forss, and Patrick sits down with Prisilla Oren, while Hanna chats with Walter Justus. It’s a special episode to celebrate the strength of our community. Presenting Sponsor: Takeda, visit to learn more.   Segment is brought to you by Genentech: Visit to watch the short film. Show Notes: Subscribe:   Connect with BloodStream Media:      

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NBDF CEO weighs in on current events show art NBDF CEO weighs in on current events

BloodStream

NBDF CEO, Phil Gattone, is back on the show to share his thoughts on the current events happening in our bleeding disorder community. Plus, Hanna speaks with Stanford law professor Dr. Hank Greely and legendary hematologist Dr. Margaret Ragni about how we know when gene therapy is the right choice—and is our system ready to support it? And, an interview with the founder of Hope Runs Red, Breana Sinkfield. All this and more!   Presenting Sponsor: Takeda, visit to learn more.   It’s a Whole New World Gene Therapy Segment brought to you by CSL Behring, which now has a...

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More Episodes

 This month on The BloodStream Podcast, Shari Luckey shares her “Living in the Shadows with Mild Hemophilia story, Natalie presents an article on the things you need to know before purchasing CBD oil, we bring to you updates on the legal dispute between Roche/Genentech, and we hear from participants and organizers of the Wheels For The World Barry Haarde Memorial Bike Ride. All that and more on Episode 27 of The BloodStream Podcast!

 

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Latest Ask The Expert Podcast: Ep. 17: Mental Health - w/ Debbie de la Riva - July 23, 2018

Latest Powering Through Podcast: Ep. 19 - Idaho w/ Preston Bowling, Skyler Openshaw, & Allie Cashel

 

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Share Segment: Shari Luckey - Living in the shadows with Mild Hemophilia

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Update on Shire Injunction Filing on Roche/Genentech

Court Rules on Shire/Roche Preliminary Injunction

 

Interview Segment: Laurie Kelley

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