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Ep. 27: August 20, 2018 - w/ Wheels for the World

BloodStream

Release Date: 08/20/2018

AAV in Dogs, ACA in Jeopardy + Mental Health Talk w/ Kim Phelan show art AAV in Dogs, ACA in Jeopardy + Mental Health Talk w/ Kim Phelan

BloodStream

Dogs with hemophilia on gene therapy show troubling results in liver studies; The ACA is threatened; mental illness claims another; Breaking Through! is enrolling, Journeys is casting, and Kim Phelan from the Coalition for Hemophilia B joins. Subscribe to and rate The BloodStream Podcast Subscribe to and rate The Ask The Expert Podcast Subscribe to and rate BloodStream Journeys Subscribe to and rate Cheat Codes: A Sickle Cell Podcast Presenting Sponsor:  Takeda:  http://bleedingdisorders.com   Segment Sponsor: Genentech: https://www.youtube.com/challengeacceptedshow Like...

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Ep. 43b - ACA Special Episode show art Ep. 43b - ACA Special Episode

BloodStream

Health Insurance Update! Confusion remains about the ACA’s coverage deadlines nationwide, so we put together this short special episode to help! Tons of important updates and links (1 in 5 Americans can STILL access coverage for 2020)!   Subscribe to and rate The BloodStream Podcast Subscribe to and rate The Ask The Expert Podcast Subscribe to and rate BloodStream Journeys Subscribe to and rate Cheat Codes: A Sickle Cell Podcast Presenting Sponsor:  Takeda:  http://bleedingdisorders.com Subscribe to and rate The BloodStream Podcast Subscribe to and rate The Ask The Expert...

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Ep. 43a - Special Episode show art Ep. 43a - Special Episode

BloodStream

SPECIAL EPISODE: BloodStream's interview with actor/producer Katy Wright-Mead, whose short film sometimes, i think about dying premiered at Sundance in 2019 and has been shortlisted for the 2020 Academy Awards!  Listen then watch #SITAD at: https://bit.ly/36wEmKG

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Ep. 43: December 16, 2019 - w/ Alex Borstein show art Ep. 43: December 16, 2019 - w/ Alex Borstein

BloodStream

Alex Borstein joins BloodStream from the promo tour of The Marvelous Mrs. Maisel, Patrick covers highlights from a recent PEN article on gene therapy and clinical trials, and Natalie presents a piece on managing depression during the holidays. All that, plus a teaser from BloodStream Media’s latest pod BloodStream Journeys, and more, coming up on Episode 43 of The BloodStream Podcast.   Subscribe to and rate The BloodStream Podcast Subscribe to and rate The Ask The Expert Podcast Subscribe to and rate BloodStream Journeys Subscribe to and rate Cheat Codes: A Sickle Cell Podcast  ...

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Ep. 42: November 18, 2019 - w/ Cazandra Campos-MacDonald show art Ep. 42: November 18, 2019 - w/ Cazandra Campos-MacDonald

BloodStream

Patrick shares moments from DISORDER: The Rare Disease Film Festival, author & advocate Cazandra Campos-MacDonald joins to discuss her new book Dear Hemophilia, we discuss Open Enrollment’s closing on December 15th, provide you a first-hand account of living with depression during A Moment for Mental Health, hear entertainment recs from Mama Sue, and more, on Episode 42 of The BloodStream Podcast.   Subscribe to and rate The BloodStream Podcast Subscribe to and rate The Ask The Expert Podcast   Presenting Sponsor:  Takeda:  http://bleedingdisorders.com   Segment...

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Ep. 41: October 21, 2019 - w/ Daniel DeFabio from the Rare Disease Film Festival show art Ep. 41: October 21, 2019 - w/ Daniel DeFabio from the Rare Disease Film Festival

BloodStream

Natalie interviews attendees of NHF’s 71st Bleeding Disorders Conference, Amy & Debbie recap a mental health session from the conference, and we preview a brand new podcast series featuring an incredible community story from Vanessa Flora.  Then, DISORDER: The Rare Disease Film Festival co-founder Daniel DeFabio joins Patrick to preview the 2019 festival and its films! All that, plus, safety updates from NHF & HFA, streaming recs from Mama Sue, and more on Episode 41 of The BloodStream Podcast. Presenting Sponsor:  Takeda:  http://bleedingdisorders.com   Segment...

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Ep. 40: September 15, 2019 - w/ Dr. Katherine High show art Ep. 40: September 15, 2019 - w/ Dr. Katherine High

BloodStream

NHF’s 71st Bleeding Disorders Conference (BDC) is just weeks away, the stress of back-to-school season is in full effect, and might Tai Chi be, “An Ancient Remedy for Modern Times” that we all need?  Rick Starks says so! Nutrition consultant student Delisa O’Brien and Hong Kong-based singer/songwriter Kashy Keegan join the pod to talk about Sickle Cell Disease (SCD) and Charcot-Marie Tooth Disease (CMT), as September is an awareness month for both, and Spark Therapeutics Co-Founder & President Dr. Katherine High joins us to discuss her journey in gene therapy and the launch of...

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Ep. 39: August 19, 2019 - w/ Dr. Austin Chiang, MD MPH show art Ep. 39: August 19, 2019 - w/ Dr. Austin Chiang, MD MPH

BloodStream

Is gun control a healthcare issue?  Why is CBD everywhere? What new assistive device did Patrick buy?  We discuss it all, plus, Association for Healthcare Social Media Founder and President Dr. Austin Chiang joins to discuss his mission, Debbie de la Riva’s back to talk about National Suicide Prevention Month, and Mama Sue helps us wind down with her latest streaming recommendations. All that, plus a community share from Meredith Meyers- and so much more- on Episode 39 of The BloodStream Podcast.   Presenting Sponsor:  Takeda.  Visit http://bleedingdisorders.com to...

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Ep. 38: July 15, 2019 - w/ Special Infusion Segment show art Ep. 38: July 15, 2019 - w/ Special Infusion Segment

BloodStream

This month on The BloodStream Podcast host Natalie infuses host/husband Patrick for the first time, on mic (and video)!  Listen to the discussion around first infusions, infusion anxieties, and more on our Special Infusion Segment. A new Mental Health Resource Guide is the focus of our Moment For Mental Health Segment with Debbia de la Riva; headlines out of ISTH will come during our Comment Segment; “Is Medicare’s position on pain management changing?” is the central question of our Like Segment, and Ivon Giron shares his powerful Finding My Purpose piece during our Community Share...

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Hemophilia and Young Adulthood, Part 3 - Dating & Intimacy, Family, and Hope show art Hemophilia and Young Adulthood, Part 3 - Dating & Intimacy, Family, and Hope

BloodStream

In Part 3 of the Hemophilia and Young Adulthood podcast series presented by BloodStream Stories, members of the Hemophilia Association of New Jersey (HANJ) give their perspectives on DATING & INTIMACY, how hemophilia plays a role in a young adult’s FAMILY, and what they HOPE for the future of the hemophilia community. This conversation was recorded live on January 17th, 2018 at the Madison Hotel in Morristown, New Jersey and was co-hosted by BloodStream Media’s Natalie and Patrick Lynch. Series originally made possible by Takeda.   BloodStream Media is a podcast network built by...

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More Episodes

 This month on The BloodStream Podcast, Shari Luckey shares her “Living in the Shadows with Mild Hemophilia story, Natalie presents an article on the things you need to know before purchasing CBD oil, we bring to you updates on the legal dispute between Roche/Genentech, and we hear from participants and organizers of the Wheels For The World Barry Haarde Memorial Bike Ride. All that and more on Episode 27 of The BloodStream Podcast!

 

Exclusive Sponsor: Shire

 

Latest Ask The Expert Podcast: Ep. 17: Mental Health - w/ Debbie de la Riva - July 23, 2018

Latest Powering Through Podcast: Ep. 19 - Idaho w/ Preston Bowling, Skyler Openshaw, & Allie Cashel

 

TeenImpactAwards.com

 

BreakingThroughHemophilia.com

 

STBhemo.com (Stop The Bleeding!)

 

Leave us a review on iTunes!  Help others from BloodStream!

 

Community News In 60 Seconds

Like Segment: Before You Buy CBD Oil Online, Ask These Questions

 

Share Segment: Shari Luckey - Living in the shadows with Mild Hemophilia

Comment Segment:

Update on Shire Injunction Filing on Roche/Genentech

Court Rules on Shire/Roche Preliminary Injunction

 

Interview Segment: Laurie Kelley

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