Libsyn Directory

S4 E6 – Rare Diseases and AI/Digital Technologies with Emily Lewis (Digital Transformation Project Lead)

Release Date: 02/22/2024

S5 E3 – “You Are not Alone” – World Diabetes Day 2024 (November 14) with Konstantina Boumaki

Karger - The Waiting Room

For this episode of Karger’s The Waiting Room Podcast, we spoke with Konstantina Boumaki. She is a medical doctor with 19 years of experience in patient advocacy. Since her diagnosis with type 1 diabetes in 2005, she has been a passionate advocate, leading numerous projects to improve patient engagement and health outcomes. With regard to this year’s we talked about her patient journey and her work as a patient advocate. For more podcast episodes from Karger visit .

S5 E2 – Breast Cancer Awareness Month 2024 with Abby Match

Karger - The Waiting Room

For this episode of Karger’s The Waiting Room Podcast, we spoke with Abby Match. She was diagnosed with triple-negative breast cancer at the age of 35 in 2020. After the diagnosis she became a breast cancer advocate as well as a board member of the US-based non-profit organization in 2023. We spoke about her patient journey with breast cancer, her work as a patient advocate as well as in October. For more podcast episodes from Karger visit .

S5 E1 – “Nobody Knows Your Condition Better Than You”: Blood Cancer Awareness Month 2024 with Alastair Boyle

Karger - The Waiting Room

For the first episode of season 5 of Karger’s The Waiting Room Podcast, we spoke with Alastair Boyle. He was diagnosed with myelodysplasia, a type of blood cancer, in 2008 and eventually had to retire from his work as a firefighter in 2014. Ally then focused on patient and public involvement and providing input to charities, research studies and committees, for example, by serving as a Trustee for . We spoke about his experiences with blood cancer, his work as a patient advocate and trustee as well as Blood Cancer Awareness Month in September. If you are looking for more detailed...

S4 E10 – “The Importance of Early and Correct Diagnosis”: Sarcoma Awareness Month 2024 with Roger Wilson

Karger - The Waiting Room

For this episode of Karger’s The Waiting Room Podcast, we spoke with Roger Wilson. He is a sarcoma patient, patient advocate, founder of , as well as Honorary President and active Board member of the . We talked about his patient journey with soft tissue sarcoma, his work as a patient advocate as well as Sarcoma Awareness Month in July, with this year’s motto being “The importance of early and correct diagnosis”. Since being diagnosed with a soft tissue sarcoma in 1999, Roger has undergone ten operations, chemotherapy and radiotherapy. He currently works with a range of...

S4 E9 – World Continence Week 2024 with Mary Lynne Van Poelgeest-Pomfret

Karger - The Waiting Room

For this episode of Karger’s The Waiting Room Podcast, we spoke with Mary Lynne Van Poelgeest-Pomfret. She is the President of the , the World Federation of Incontinence and Pelvic Problems. We discussed incontinence/leakage and pelvic problems, the aspect of quality of life, stigma and mental health, as well as the upcoming , which is held from June 17–23, 2024. Lynne is also a long-time international patient advocate and a member of various scientific advisory committees and panels. Furthermore, she is a member of several patient advocacy movements and organizations such...

S4 E8 – Skin Cancer Awareness Month 2024 with Naniki Seboni

Karger - The Waiting Room

For this episode of Karger’s The Waiting Room Podcast, we spoke with cancer survivor and patient advocate Naniki Seboni about her experiences of being diagnosed with stage 3 malignant melanoma at the age of 25. We also discussed what should be done regarding prevention, screening and awareness of skin cancer – not only in her native country of South Africa, via the , but also in the rest of the world. Please note that Skin Cancer Awareness Month is held in May each year. For more podcast episodes from Karger visit .

S4 E7 – Colorectal Cancer Awareness Month 2024 with Jessica Settle

Karger - The Waiting Room

For this episode of Karger’s The Waiting Room Podcast, we spoke with Jessica Settle about her experience of being diagnosed with colorectal cancer at the age of 28. Jessica is the dedicated mother of a 12-year-old daughter. She is advocating for colon cancer awareness and spreading hope wherever she goes. Please note that is held in March each year. Published in February 2024, Karger’s latest patients’ resource on colorectal cancer is freely available . For more podcast episodes from Karger visit .

S4 E6 – Rare Diseases and AI/Digital Technologies with Emily Lewis (Digital Transformation Project Lead)

Karger - The Waiting Room

For this episode of Karger’s The Waiting Room Podcast, we spoke with Emily Lewis about Rare Disease Day on February 29, and how artificial intelligence (AI) and digital technologies could help patients living with a rare disease. Emily (Kunka) Lewis, MS, CCRP, CHES is an opinion leader in the digital transformation of healthcare. She is driven by a desire for the democratization of modern medicine. Emily received a Master of Science in Clinical Research from Northwestern University. She is currently working as a Digital Transformation Project Lead at UCB. For more podcast episodes from...

S4 E5 – Wellbeing after Gynecological Cancer with Bernie Price (Patient Advocate)

Karger - The Waiting Room

For this episode of Karger’s The Waiting Room Podcast, we spoke with Bernie Price about her patient journey, her experiences after a gynecological cancer and hysterectomy, as well as the healthcare system as such. Bernie is an endometrial cancer survivor. She is a Transformational Mindset and Life coach, Tai Chi instructor and athlete. Furthermore, she serves as an advocate for women going through menopause. The booklet “Fast Facts for Patients: Sexual and Reproductive Health After Gynaecological Cancer” mentioned in the podcast episode can be downloaded free of charge. For more podcast...

S4 E4 – Revision of the EU’s Pharmaceutical Legislation with Claudia Louati (European Patients’ Forum)

Karger - The Waiting Room

For this episode of Karger’s The Waiting Room Podcast, we spoke with Claudia Louati about the revision of the EU’s pharmaceutical legislation. Claudia Louati joined the as Head of Policy in May 2023. She leads EPF’s policy and advocacy work and steers EPF’s engagement with EU and international stakeholders on key policy issues. Before joining EPF, she worked at the Europe Office of the U.S. Food and Drug Administration in Brussels, where she promoted EU–U.S. regulatory collaboration on medical products. Claudia holds two master’s degrees in European Affairs from SciencesPo...

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Emily (Kunka) Lewis, MS, CCRP, CHES is an opinion leader in the digital transformation of healthcare. She is driven by a desire for the democratization of modern medicine. Emily received a Master of Science in Clinical Research from Northwestern University. She is currently working as a Digital Transformation Project Lead at UCB.

For more podcast episodes from Karger visit https://www.karger.com/pages/podcasts.

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