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Clinical Trials, Biomarkers and Cancer Astronauts with Fred Neubauer

The Cancering Show

Release Date: 05/22/2024

How to Read Your Results #3: Pathology Reports show art How to Read Your Results #3: Pathology Reports

The Cancering Show

Dr. JYP concludes a three-part series focused on understanding the most common medical reports received by Cancering patients. This episode delves into pathology reports and how patients can use them to better understand their condition. Dr. JYP describes the key elements of pathology reports and defines terms such as "benign," "malignant," “carcinoma,” and “sarcoma.” She discusses how detailed reports from biopsies aid in staging cancer and the implications for treatment options. She reminds listeners that pathology reports should always be discussed with a doctor, and that reviewing...

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How to Read Your Results #2: Blood Chemistry Tests show art How to Read Your Results #2: Blood Chemistry Tests

The Cancering Show

Dr. JYP continues a three-part series focused on understanding the most common medical reports received by Cancering patients. In this second episode, she discusses blood chemistry panels. She explains common abbreviations suck as BNP (basic metabolic panel) and CNP (comprehensive metabolic panel), guiding listeners through key components including sodium (NA), potassium (K), magnesium (MAG), kidney function tests (BUN and creatinine), and glucose levels. She discusses the importance of understanding normal ranges, the potential causes for abnormalities and the most common questions patients...

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How to Read Your Results #1: CBC Labs show art How to Read Your Results #1: CBC Labs

The Cancering Show

Dr. JYP kicks off a three-part series focused on understanding the most common medical reports received by Cancering patients. In the first episode, she discusses the basics of the Complete Blood Count, or CBC, which shows levels of white blood cells, red blood cells and platelets, highlighting the implications for high or low counts, especially for cancer patients. She also addresses treatments and precautions for those with low blood counts, urging listeners to feel empowered to understand their lab reports and to ask questions of their healthcare providers.   3 Key Episode Takeaways ...

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Men's Health and Prostate Cancer Prevention with Dr. Christopher Keel show art Men's Health and Prostate Cancer Prevention with Dr. Christopher Keel

The Cancering Show

In this episode, Dr. JYP talks with USA Health urologist about prostate cancer and men's health. They start by weighing the reasons for why some men avoid seeing a physician and discuss how the advent of Viagra for erectile dysfunction helped motivate many men to go to a doctor’s office. Dr. Keel highlights the importance of screening for prostate cancer starting at age 40 or 45 depending on family history. He explains how robotic surgery has improved treatment outcomes and reduced side effects. Dr. Keel also explores the usefulness of genetic testing for high-risk patients and how new...

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Staying Well During Cold And Flu Season show art Staying Well During Cold And Flu Season

The Cancering Show

In this episode of the Cancering podcast, Dr. JYP discusses how to avoid illnesses such colds, flu, and COVID while undergoing cancer treatment. She offers practical tips such as handwashing, using up-to-date hand sanitizer, and avoiding others who are ill. Dr. JYP gives advice on when to wear a medical mask and when to use an N95 to reduce the risk of infection. She also talks about the importance of home testing for COVID and flu, as well as when to call the doctor's office for certain symptoms.  This episode covers the usefulness of supplements such as vitamin D and zinc, which can...

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Advocating For Africatown with Rev. Christopher Williams show art Advocating For Africatown with Rev. Christopher Williams

The Cancering Show

In this episode, Dr. Jennifer Young Pierce interviews Rev. Christopher Williams Sr., pastor of Yorktown Missionary Baptist Church, about the struggles and resilience of  Africatown, Alabama. Rev. Williams highlights the powerful impact of community support and the opening of the Africatown Heritage House Museum. He discusses high rates of cancer in his congregation and the area, and environmental concerns related to a now-closed industrial plant. Despite frustrations, local advocacy has led to positive changes, including new community resources to improve the lives of residents. Rev....

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Overcoming Ocular Melanoma with Ashley McCrary show art Overcoming Ocular Melanoma with Ashley McCrary

The Cancering Show

In this episode, Dr. JYP talks with , a mother of four and survivor of ocular melanoma. Diagnosed in 2012, Ashley recalls that two of her college friends from Auburn University had also suffered from this rare eye cancer. She tells the story of having her right eye removed and how she later learned that the cancer had spread to her liver. Despite her devastating diagnosis, Ashley shares how she stays positive and finds purpose through her faith and intentional interactions with fellow eye cancer survivors and others. She talks about her foundation, , which helps fund travel for cancer...

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Meet Your Cancer Team show art Meet Your Cancer Team

The Cancering Show

In this episode, Dr. Jennifer Young Pierce focuses on the importance of building a strong cancer care team. She explains the roles of various medical team members, including medical oncologists, radiation oncologists, surgical oncologists, and different types of nurses and nurse practitioners. She also highlights nonmedical support staff like social workers, nutritionists, and counselors. Dr. JYP emphasizes the value of relying on your caregivers and fellow patients for support, and the need to inform primary care doctors and other specialists about your cancer diagnosis. She briefly...

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Summertime Cancering show art Summertime Cancering

The Cancering Show

In this episode of The Cancering Show, Dr. JYP discusses the importance of cancer patients taking extra precautions during summer activities. She explains the sensitivity of chemotherapy patients' skin to sunburns and advises using mineral sunscreen and protective clothing. Dr. JYP also highlights the risks of swimming in certain types of water, the importance of proper head and hair care, and the need for hydration and avoiding strenuous activities in the heat. She offers other practical tips for those who are traveling, gardening, fishing and picnicking. Don’t worry; cancer patients can...

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Clinical Trials, Biomarkers and Cancer Astronauts with Fred Neubauer show art Clinical Trials, Biomarkers and Cancer Astronauts with Fred Neubauer

The Cancering Show

In this episode, Fred Neubauer, a stage 4 cholangiocarcinoma survivor, shares his inspiring journey with Dr. JYP. Fred’s rare bile duct cancer was discovered during imaging for a kidney stone. Facing a challenging diagnosis, he explored advanced treatments, including chemotherapy, radiation, and innovative clinical trials, which helped shrink his tumors. Despite the difficulties, Fred remains hopeful and proactive in managing his cancer. Dr. JYP emphasizes the significance of biomarker testing, which helped Fred access treatments tailored specifically to his cancer's characteristics. Fred...

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In this episode, Fred Neubauer, a stage 4 cholangiocarcinoma survivor, shares his inspiring journey with Dr. JYP. Fred’s rare bile duct cancer was discovered during imaging for a kidney stone. Facing a challenging diagnosis, he explored advanced treatments, including chemotherapy, radiation, and innovative clinical trials, which helped shrink his tumors. Despite the difficulties, Fred remains hopeful and proactive in managing his cancer. Dr. JYP emphasizes the significance of biomarker testing, which helped Fred access treatments tailored specifically to his cancer's characteristics. Fred discusses his advocacy work, highlighting how helpful it is for patients to access their medical records easily and participate in clinical trials to find the best possible care and advance the science for others.

Throughout the episode, Fred talks about maintaining a positive outlook and staying active in his hobbies, such as DIY projects and car restoration. The episode highlights how personal determination, along with medical advancements, can transform cancer treatment, providing hope and improving the quality of life for those diagnosed with rare cancers.


3 Episode Key Takeaways


1. Importance of Biomarker Testing: Fred Neubauer's conversation with Dr. JYP highlights the crucial role of biomarker testing in accessing targeted therapies that have significantly impacted his treatment for cholangiocarcinoma, a rare bile duct cancer. He emphasizes the need for cancer patients to pursue such testing to tailor treatments specifically to their genetic cancer profiles, which can lead to more effective disease management and better outcomes.

2. Value of Clinical Trials: The episode underscores the value of participating in clinical trials, especially for patients with rare and advanced stage cancers. Clinical trials offer access to the latest treatments and technologies, such as histotripsy and other targeted therapies that are not yet widely available but can be life-saving.

3. Support and Advocacy: Fred Neubauer's journey from receiving a dire prognosis to becoming an expert in his own care and a patient advocate serves as a powerful testament to the importance of support, education, and advocacy. His story inspires those who are Cancering to be proactive in their healthcare, seek out resources like the Cholangiocarcinoma Foundation, and engage in community and mentorship programs to improve their health and quality of life.


Fred's Resources

https://www.ciitizen.com/
https://www.genomicfocus.com/
https://cholangiocarcinoma.org/

 

[email protected]

 

 

Show Overview


02:00 Fred, a five-year bile duct cancer survivor, shares his journey.

06:13 Stage 4 cancer, but tumors shrink.

08:02 Fred insists on biomarker testing for targeted treatment.

15:41 Genomic Focus helps find cancer clinical trials.

22:25 Fred values relationships with doctors and staff.

29:27 Fred's shares his hobbies as a DIYer, and celebrates his wife's birthday.