126: Jon Brent survived acute lymphoblastic leukemia | dexamethasone | methotrexate | prednisone
Release Date: 08/22/2024
152: erin bloodworth exercise oncologist | fitness assessment | individualized exercise program | lymphedema | neuropathy
Cancer Interviews
A clinical exercise physiologist by trade, Erin Bloodworth sought a career change and became an exercise oncologist. This enabled her to take her expertise and apply it to helping cancer patients, which she does through Northwestern Medicine Living Well. Erin says whether a patient is going through cancer treatment or is post-treatment, she puts the patient through an individualized exercise program. She assesses the patient's health with tests tied to their ability to grip objects and go from a sitting position to a standing position and...
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151: Stewart Greenfield survived stage IV bladder cancer | cisplatin | gemcidibine | novolumab | immunotherapy
Cancer Interviews
For Stewart Greenfield, the third time was the charm. After checking pictures of his bladder in 2016, two doctors told him he didn’t have long to live; a third doctor told him he had Stage IV metastatic bladder cancer, but insisted he needed to be treated. The cancer had burned a hole in his bladder and attacked lymph nodes from his groin to his neck. Treatment included a chemotherapy cocktail of cisplatin and gemcidibine, plus qualifying for an immunotherapy, novolumab. It was a smashing success. Stewart says his urinary function is normal and he is able to...
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150: Noelle Gatlin survived Stage II pancreatic cancer | Whipple procedure | pancreatic duodenectomy
Cancer Interviews
Noelle Gatlin had to endure a lengthy, multi-step process, but she survived Stage II pancreatic cancer. A visit to an emergency department revealed a mass near her pancreas. She was transferred to a hospital, where a second CT scan resulted in her diagnosis. Her care team placed a duodenal stent in Noelle, then a bile duct stent. She next underwent a 12-infusion chemotherapy regimen with folfirinox. Then she was ready for a Whipple procedure, a pancreatic duodenectomy, which was a success. Noelle says because she took care of herself before,...
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149: Laurie Adami survived follicular non-Hodgkin Lymphoma | Yescarta CAR-T Therapy | Bexxar | Gazvya
Cancer Interviews
Laurie Adami seemed to have it all. She was the president of her company, at age 40, she had just had a son and still found time to lead an active lifestyle. However, in 2003, her health took a turn for the worse. She felt a lump in her abdomen, experienced frequent, lengthy sinus infections and chronic fatigue. All this led to a diagnosis of Stage IV Follicular Non-Hodgkin Lymphoma. After six unsuccessful treatment regimens, she achieved complete remission on the seventh try, completing a battle that ran twelve years. When Laurie initially brought her...
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148: Nicole Scott Is A Kidney Cancer Caregiver | Partial Nephrectomy | Caregiver Burnout | Hernia
Cancer Interviews
Nicole Scott and her husband, Keith, worked at the same Ohio hospital. When Keith noticed abdominal pain in his left side, he thought it was muscle-related because of the physical nature of his job. The pain radiated to his groin, then what had been random occurrences of the pain became more frequent. Nicole urged Keith to seek urgent care. An emergency room doctor called for a CT scan, thinking Keith had at worst, a hernia. However, the CT scan revealed a mass on Keith’s kidney. An MRI and partial nephrectomy resulted in a diagnosis of papillary renal...
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147: Helinka Carr survived bowel cancer | ileostomy bag | pelvic radiation disease | colonoscopy
Cancer Interviews
When Helinka Carr experienced limited rectal bleeding, because it was limited, she never thought her problem could rise to the level of cancer. She also thought the bleeding might be diverticulitis, which had been suffered by members of her family. However, at the urging of her doctor, she underwent blood tests and a colonoscopy. The latter revealed that she had bowel cancer. Thanks to two surgical procedures, she achieved survivorship but has to wear an ileostomy bag. She tires easily, but had the energy to start a line of ostomy lingerie for bag-wearing women...
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146: Guy Nakoa survived Stage IV breast cancer | mastectomy | ibrance | letrozole | radiation treatment
Cancer Interviews
Guy Nakoa has survived two diagnoses of Stage IV breast cancer. He initially felt a lump in his breast while showering in 2000. Because it wasn’t causing him and because he didn’t think could not get a type of cancer associated with women, I went more than a decade before he chose to have the lump checked out. In 2014, he sought medical attention, he was diagnosed and in 2016, he had the lump removed; but in 2020, the cancer returned. He was hoping it could be removed with chemotherapy and radiation treatment, but over his initial objection, he...
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145: Sheila Romanski twice survived breast cancer | autologous stem cell transplant | lumpectomy | diep flap
Cancer Interviews
Sheila Romanski is with us today after overcoming two diagnoses of breast cancer and the removal of a tumor in her left shoulder thanks to an autologous stem cell transplant. She tells the @CancerInterviews podcast her initial of Stage 1A breast cancer in 1996 came after her doctor suggested a routine mammogram at age 36 when at the time mammograms were not performed on women that young. Radiation treatment successfully addressed that diagnosis, but the following year, the cancer had metastasized to her shoulder. That brought on the stem cell transplant, plus chemotherapy and...
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144: Daniel Garza, Anal Cancer Survivor – Laguna Beach, California, USA
Cancer Interviews
In 2015, Daniel Garza experienced bloating and difficulty completing a bowel movement. A subsequent digital rectal exam revealed a mass on his sphincter, which led to a diagnosis of anal cancer. A surgical procedure got rid of the cancer, but it also resulted in his losing half of his sphincter and the temporary presence of a fistula, a tear which was like a second anus. He underwent a chemotherapy regimen of 5-fluorouracil, followed by radiation treatment, but another major challenge awaited Daniel, as he had to wear an ostomy bag, which he does to this day. He deals...
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143: Rick Upchurch survived chronic myelogenous leukemia | oral chemotherapy | blood cancer | tasigna | nilotinib
Cancer Interviews
Former NFL star Rick Upchurch seemed to be in good health, but in 2010, he began to experience night sweats, fatigue and aches and pains. He saw his doctor, who ordered blood work. The test results revealed his white blood cell count was very high, and his general practitioner gave him the address of another doctor to see. Rick and his wife were shocked to learn the doctor they had been told to see was an oncologist. That doctor called for a bone marrow biopsy, which confirmed Rick had chronic myelogenous leukemia, a rare form of blood cancer that is tied to a genetic...
info_outlineJon Brent shares his story of surviving acute lymphoblastic leukemia, a type of blood cancer. He was diagnosed at age two. Jon had to undergo an aggressive chemotherapy regimen, which included vincristine, dexamethasone, methotrexate and prednisone; but that wasn’t enough, because he also had to face a bone marrow transplant. Between his diagnosis and his treatment, Jon has been in pain all his life, and expects to always be in pain. Nonetheless, he approaches life with a smile and happily takes part in ultimate Frisbee and playing the drums.
Jon Brent of Windsor, Ontario, Canada was an energetic toddler, then suddenly in 1995 he became unaccountably lethargic. His parents sought medical attention. Blood work revealed very high white blood cell counts, which led to his diagnosis of acute lymphblastic leukemia. Jon was told his type of cancer has a very low survival rate.
Doctors prescribed three years of experimental chemotherapy protocols. The medications he took included vincristine, dexamethasone, methotrexate and prenisone. Unfortunately, after those three years, Jon relapsed and had to undergo a bone marrow transplant. Jon was grateful that unlike bone marrow transplants from an earlier time, much of his procedure was executed with a pill. That said, byproducts of the transplant were shingles, chicken pox and Stage IV Graft Versus Host Disease, which affected his stomach, liver, skin and lungs.
As if cancer wasn’t tough enough, Jon Brent had to deal with it while going to elementary school, where kids can be cruel. However, Jon credits his mother with teaching him how to “self-regulate” and how to deflect the inevitable barbs from his classmates.
By way of advice, Jon Brent reminds anyone diagnosed with cancer that they are not alone. He says the grief from a cancer diagnosis is non-linear. It comes with sadness, some anger and a lot of questions. Jon says one doesn’t have to endure a setback and pretend it doesn’t hurt. He says everyone on a cancer journey can and should be on a team.
Additional Resources:
Support Groups:
Man Up to Cancer: https://www.manuptocancer.org
Childhood Cancer Canada: https://www.childhoodcancer.ca