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131: Cynthia Mitchell lives with Stage IV Bile Duct Cancer | Liver Resection | Oral Chemotherapy | Xelota

Cancer Interviews

Release Date: 11/14/2024

147: Helinka Carr survived bowel cancer | ileostomy bag | pelvic radiation disease | colonoscopy show art 147: Helinka Carr survived bowel cancer | ileostomy bag | pelvic radiation disease | colonoscopy

Cancer Interviews

When Helinka Carr experienced limited rectal bleeding, because it was limited, she never thought her problem could rise to the level of cancer.  She also thought the bleeding might be diverticulitis, which had been suffered by members of her family.  However, at the urging of her doctor, she underwent blood tests and a colonoscopy.  The latter revealed that she had bowel cancer.  Thanks to two surgical procedures, she achieved survivorship but has to wear an ileostomy bag.  She tires easily, but had the energy to start a line of ostomy lingerie for bag-wearing women...

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146: Guy Nakoa survived Stage IV breast cancer | mastectomy | ibrance | letrozole | radiation treatment show art 146: Guy Nakoa survived Stage IV breast cancer | mastectomy | ibrance | letrozole | radiation treatment

Cancer Interviews

      Guy Nakoa has survived two diagnoses of Stage IV breast cancer.  He initially felt a lump in his breast while showering in 2000.  Because it wasn’t causing him and because he didn’t think could not get a type of cancer associated with women, I went more than a decade before he chose to have the lump checked out.  In 2014, he sought medical attention, he was diagnosed and in 2016, he had the lump removed; but in 2020, the cancer returned.  He was hoping it could be removed with chemotherapy and radiation treatment, but over his initial objection, he...

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145: Sheila Romanski twice survived breast cancer | autologous stem cell transplant | lumpectomy | diep flap show art 145: Sheila Romanski twice survived breast cancer | autologous stem cell transplant | lumpectomy | diep flap

Cancer Interviews

Sheila Romanski is with us today after overcoming two diagnoses of breast cancer and the removal of a tumor in her left shoulder thanks to an autologous stem cell transplant.  She tells the @CancerInterviews podcast her initial of Stage 1A breast cancer in 1996 came after her doctor suggested a routine mammogram at age 36 when at the time mammograms were not performed on women that young.  Radiation treatment successfully addressed that diagnosis, but the following year, the cancer had metastasized to her shoulder.  That brought on the stem cell transplant, plus chemotherapy and...

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144: Daniel Garza, Anal Cancer Survivor – Laguna Beach, California, USA show art 144: Daniel Garza, Anal Cancer Survivor – Laguna Beach, California, USA

Cancer Interviews

In 2015, Daniel Garza experienced bloating and difficulty completing a bowel movement.  A subsequent digital rectal exam revealed a mass on his sphincter, which led to a diagnosis of anal cancer.  A surgical procedure got rid of the cancer, but it also resulted in his losing half of his sphincter and the temporary presence of a fistula, a tear which was like a second anus.  He underwent a chemotherapy regimen of 5-fluorouracil, followed by radiation treatment, but another major challenge awaited Daniel, as he had to wear an ostomy bag, which he does to this day.  He deals...

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143: Rick Upchurch survived chronic myelogenous leukemia | oral chemotherapy | blood cancer | tasigna | nilotinib show art 143: Rick Upchurch survived chronic myelogenous leukemia | oral chemotherapy | blood cancer | tasigna | nilotinib

Cancer Interviews

Former NFL star Rick Upchurch seemed to be in good health, but in 2010, he began to experience night sweats, fatigue and aches and pains.  He saw his doctor, who ordered blood work.  The test results revealed his white blood cell count was very high, and his general practitioner gave him the address of another doctor to see.   Rick and his wife were shocked to learn the doctor they had been told to see was an oncologist.  That doctor called for a bone marrow biopsy, which confirmed Rick had chronic myelogenous leukemia, a rare form of blood cancer that is tied to a genetic...

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142: Jeff Kallis survived renal cell carcinoma | kidney cancer | right kidney nephrectomy | diverticulosis | ct urogram show art 142: Jeff Kallis survived renal cell carcinoma | kidney cancer | right kidney nephrectomy | diverticulosis | ct urogram

Cancer Interviews

Jeff Kallis survived renal cell carcinoma, a form of kidney cancer.  When he experienced pain in his lower flank and saw blood in his urine, he sought medical attention.  A CT urogram revealed a stone in his left kidney and a mass in his right kidney.  A biopsy confirmed he had clear cell renal cell carcinoma.  Jeff underwent a radical nephrectomy on his right kidney.  The operation was painful, but a success.  Through exercise and a healthy diet, Jeff says he feels better than he did before his diagnosis.  He shares his story with the @CancerInterviews...

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141: John Morley survived T2 Muscle Invasive Bladder Cancer | cystectomy | prostatectomy | splenectomy show art 141: John Morley survived T2 Muscle Invasive Bladder Cancer | cystectomy | prostatectomy | splenectomy

Cancer Interviews

What John Morley originally thought was a urinary tract infection turned out to be a diagnosis of bladder cancer.  At first, he was told it was a mild form of the disease.  Then the diagnosis was upgraded to T2 Muscle Invasive Bladder Cancer, requiring a radical cystectomy meaning he would need to get his bladder removed.  His care team next told John he would also have to get his prostate taken out.  Next a mass was detected on his spleen, which meant that it, too, would have to be removed.  Treatment and recovery were tough, but he now urinates into a bag known as an...

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140: Jessica Wharton survived breast cancer | chemotherapy | taxol | super radiation | red devil | ptsd show art 140: Jessica Wharton survived breast cancer | chemotherapy | taxol | super radiation | red devil | ptsd

Cancer Interviews

    When Jessica Whorton discovered lumps on her left breast in 2011, she sought medical attention.  The doctors she spoke with said breast cancer was not indicated.  She walked around with the lumps for another nine months before seeking a second opinion.  Tests revealed she had Stage 3A invasive ductal carcinoma.  Doctors urged that she get a double mastectomy even though her right breast was still healthy.  After chemotherapy and radiation, Jessica achieved survivorship in 2013.   Jessica thought there was something wrong when she detected three lumps...

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139: Susan Svoboda survived hormone positive breast cancer | estrogen inhibitor | invasive ductal carcinoma | lumpectomy show art 139: Susan Svoboda survived hormone positive breast cancer | estrogen inhibitor | invasive ductal carcinoma | lumpectomy

Cancer Interviews

Susan Svoboda was accustomed to going in for her mammogram every November.  She enjoyed a healthy lifestyle, which included running 65 half marathons.  But in late 2021, after her mammogram, she was called to return to the doctor’s office.  After scans and a biopsy, she was diagnosed with Stage 1-2 invasive ductal carcinoma.   Given her healthy routine, Susan was shocked, but she quickly had to turn her attention to her treatment.  In 2022, she underwent a successful lumpectomy.  Because of the location of the lump, and her low Oncotype DX score, the oncologist...

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138: Albertina Dancy survived liver cancer | fatty liver disease | radiation treatment | chemotherapy show art 138: Albertina Dancy survived liver cancer | fatty liver disease | radiation treatment | chemotherapy

Cancer Interviews

In 2021, Albertina Dancy began to experience abdominal pain, but that wasn’t all.  She also had gastrointestinal issues, jaundice and other problems.  However, she didn’t take them seriously and thought they could be successfully addressed with over-the-counter remedies.  When that didn’t happen, she sought medical attention.   Albertina’s doctor said the symptoms, combined with her existing fatty liver disease, merited a trip to an oncologist.  A series of scans and tests, plus the stiffness of her liver, led to a diagnosis of liver cancer.   The...

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Cynthia Mitchell has been diagnosed with intraheptic cholangiocarcinoma, a type of bile duct cancer.  Her story is about how she, like many with such a diagnosis, never attained complete survivorship, but is living a rich, fruitful live.  In 2021, she experienced severe heartburn.  When it persisted, she underwent an ultrasound, which revealed a large mass on her liver.  Further tests determined Cynthia had cholangiocarcinoma just before Christmas Day, and she had a liver resection scheduled for January 2022.  The procedure was a success, but had a recurrence the following summer and it was Stage IV. Cynthia then went on a regimen of oral chemotherapy.  She took capecitabine, also known as xelota.  The regimen was very difficult.  Cynthia was told she will never achieve full-on survivorship, but she is able to do exercise on a limited basis and leads a happy life with her husband and two children.

 

Prior to her diagnosis, Cynthia enjoyed great health in Winnipeg, Manitoba, Canada.  She ran, engaged in aerobics and weight training.  However, in 2021, she began to experience severe heartburn, followed by acute right quadrant pain.  She saw her primary care physician who dismissed her pain as symptoms of menopause.  When the problems persisted, she went in for an ultrasound, which showed a large mass on her liver.  A subsequent CT scan confirmed what looked like a metastatic lesion.  Then just before Christmas that year, a liver surgeon examined an MRI, said it was cholangiocarcinoma, and scheduled a liver resection for the following month.  The surgery went well.  She had clean margins, no lymph node involvement, and at that time it was confirmed Cynthia had intrahepatic cholangiocarcinoma.

 

Her care team said she had a 20 percent chance of survival for five years, which under the circumstances was considered a high rate.  In March 2022, Cynthia went on a regimen of oral chemotherapy, with capecitabine.  Even though oral chemo is not supposed to be as traumatic as other types, she suffered all the side effects tied to chemotherapy, such as nausea, fatigue, cognitive issues and hair loss, all this while she trying to raise two children.

 

Cynthia got through that regimen and is now on a less difficult targeted therapy. If her health was 100 percent before her diagnosis, she says health is now between 85 and 90 percent.  She cannot exercise as strenuously as she once did, but says she can talk her dogs for a walk, sometimes as many as ten kilometers a day.  Cynthia knows that now and going forward, she will have certain limitations, but is very grateful to live what she calls a full life.

 

Additional Resources:

 

Support Group:

 

Canadian Cholangiocarcinoma Collaborative: https://www.cholangioma.ca