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136: Erin Cummings survived Stage 3B Hodgkin lymphoma | full body radiation | MOP chemotherapy | laetrile

Cancer Interviews

Release Date: 02/13/2025

147: Helinka Carr survived bowel cancer | ileostomy bag | pelvic radiation disease | colonoscopy show art 147: Helinka Carr survived bowel cancer | ileostomy bag | pelvic radiation disease | colonoscopy

Cancer Interviews

When Helinka Carr experienced limited rectal bleeding, because it was limited, she never thought her problem could rise to the level of cancer.  She also thought the bleeding might be diverticulitis, which had been suffered by members of her family.  However, at the urging of her doctor, she underwent blood tests and a colonoscopy.  The latter revealed that she had bowel cancer.  Thanks to two surgical procedures, she achieved survivorship but has to wear an ileostomy bag.  She tires easily, but had the energy to start a line of ostomy lingerie for bag-wearing women...

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146: Guy Nakoa survived Stage IV breast cancer | mastectomy | ibrance | letrozole | radiation treatment show art 146: Guy Nakoa survived Stage IV breast cancer | mastectomy | ibrance | letrozole | radiation treatment

Cancer Interviews

      Guy Nakoa has survived two diagnoses of Stage IV breast cancer.  He initially felt a lump in his breast while showering in 2000.  Because it wasn’t causing him and because he didn’t think could not get a type of cancer associated with women, I went more than a decade before he chose to have the lump checked out.  In 2014, he sought medical attention, he was diagnosed and in 2016, he had the lump removed; but in 2020, the cancer returned.  He was hoping it could be removed with chemotherapy and radiation treatment, but over his initial objection, he...

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145: Sheila Romanski twice survived breast cancer | autologous stem cell transplant | lumpectomy | diep flap show art 145: Sheila Romanski twice survived breast cancer | autologous stem cell transplant | lumpectomy | diep flap

Cancer Interviews

Sheila Romanski is with us today after overcoming two diagnoses of breast cancer and the removal of a tumor in her left shoulder thanks to an autologous stem cell transplant.  She tells the @CancerInterviews podcast her initial of Stage 1A breast cancer in 1996 came after her doctor suggested a routine mammogram at age 36 when at the time mammograms were not performed on women that young.  Radiation treatment successfully addressed that diagnosis, but the following year, the cancer had metastasized to her shoulder.  That brought on the stem cell transplant, plus chemotherapy and...

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144: Daniel Garza, Anal Cancer Survivor – Laguna Beach, California, USA show art 144: Daniel Garza, Anal Cancer Survivor – Laguna Beach, California, USA

Cancer Interviews

In 2015, Daniel Garza experienced bloating and difficulty completing a bowel movement.  A subsequent digital rectal exam revealed a mass on his sphincter, which led to a diagnosis of anal cancer.  A surgical procedure got rid of the cancer, but it also resulted in his losing half of his sphincter and the temporary presence of a fistula, a tear which was like a second anus.  He underwent a chemotherapy regimen of 5-fluorouracil, followed by radiation treatment, but another major challenge awaited Daniel, as he had to wear an ostomy bag, which he does to this day.  He deals...

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143: Rick Upchurch survived chronic myelogenous leukemia | oral chemotherapy | blood cancer | tasigna | nilotinib show art 143: Rick Upchurch survived chronic myelogenous leukemia | oral chemotherapy | blood cancer | tasigna | nilotinib

Cancer Interviews

Former NFL star Rick Upchurch seemed to be in good health, but in 2010, he began to experience night sweats, fatigue and aches and pains.  He saw his doctor, who ordered blood work.  The test results revealed his white blood cell count was very high, and his general practitioner gave him the address of another doctor to see.   Rick and his wife were shocked to learn the doctor they had been told to see was an oncologist.  That doctor called for a bone marrow biopsy, which confirmed Rick had chronic myelogenous leukemia, a rare form of blood cancer that is tied to a genetic...

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142: Jeff Kallis survived renal cell carcinoma | kidney cancer | right kidney nephrectomy | diverticulosis | ct urogram show art 142: Jeff Kallis survived renal cell carcinoma | kidney cancer | right kidney nephrectomy | diverticulosis | ct urogram

Cancer Interviews

Jeff Kallis survived renal cell carcinoma, a form of kidney cancer.  When he experienced pain in his lower flank and saw blood in his urine, he sought medical attention.  A CT urogram revealed a stone in his left kidney and a mass in his right kidney.  A biopsy confirmed he had clear cell renal cell carcinoma.  Jeff underwent a radical nephrectomy on his right kidney.  The operation was painful, but a success.  Through exercise and a healthy diet, Jeff says he feels better than he did before his diagnosis.  He shares his story with the @CancerInterviews...

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141: John Morley survived T2 Muscle Invasive Bladder Cancer | cystectomy | prostatectomy | splenectomy show art 141: John Morley survived T2 Muscle Invasive Bladder Cancer | cystectomy | prostatectomy | splenectomy

Cancer Interviews

What John Morley originally thought was a urinary tract infection turned out to be a diagnosis of bladder cancer.  At first, he was told it was a mild form of the disease.  Then the diagnosis was upgraded to T2 Muscle Invasive Bladder Cancer, requiring a radical cystectomy meaning he would need to get his bladder removed.  His care team next told John he would also have to get his prostate taken out.  Next a mass was detected on his spleen, which meant that it, too, would have to be removed.  Treatment and recovery were tough, but he now urinates into a bag known as an...

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140: Jessica Wharton survived breast cancer | chemotherapy | taxol | super radiation | red devil | ptsd show art 140: Jessica Wharton survived breast cancer | chemotherapy | taxol | super radiation | red devil | ptsd

Cancer Interviews

    When Jessica Whorton discovered lumps on her left breast in 2011, she sought medical attention.  The doctors she spoke with said breast cancer was not indicated.  She walked around with the lumps for another nine months before seeking a second opinion.  Tests revealed she had Stage 3A invasive ductal carcinoma.  Doctors urged that she get a double mastectomy even though her right breast was still healthy.  After chemotherapy and radiation, Jessica achieved survivorship in 2013.   Jessica thought there was something wrong when she detected three lumps...

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139: Susan Svoboda survived hormone positive breast cancer | estrogen inhibitor | invasive ductal carcinoma | lumpectomy show art 139: Susan Svoboda survived hormone positive breast cancer | estrogen inhibitor | invasive ductal carcinoma | lumpectomy

Cancer Interviews

Susan Svoboda was accustomed to going in for her mammogram every November.  She enjoyed a healthy lifestyle, which included running 65 half marathons.  But in late 2021, after her mammogram, she was called to return to the doctor’s office.  After scans and a biopsy, she was diagnosed with Stage 1-2 invasive ductal carcinoma.   Given her healthy routine, Susan was shocked, but she quickly had to turn her attention to her treatment.  In 2022, she underwent a successful lumpectomy.  Because of the location of the lump, and her low Oncotype DX score, the oncologist...

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138: Albertina Dancy survived liver cancer | fatty liver disease | radiation treatment | chemotherapy show art 138: Albertina Dancy survived liver cancer | fatty liver disease | radiation treatment | chemotherapy

Cancer Interviews

In 2021, Albertina Dancy began to experience abdominal pain, but that wasn’t all.  She also had gastrointestinal issues, jaundice and other problems.  However, she didn’t take them seriously and thought they could be successfully addressed with over-the-counter remedies.  When that didn’t happen, she sought medical attention.   Albertina’s doctor said the symptoms, combined with her existing fatty liver disease, merited a trip to an oncologist.  A series of scans and tests, plus the stiffness of her liver, led to a diagnosis of liver cancer.   The...

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Erin Cummings is still going strong despite being diagnosed with Hodgkin lymphoma in 1972.  At age 15, she noticed a lump on her throat and another on her chest.  That led to a diagnosis of Stage 3B Hodgkin lymphoma.  She was shocked at her diagnosis but initially had trouble putting into perspective just what she was up against because she cancer was something suffered by old people.  Even though she achieved survivorship, she still deals with residual side effects from her treatment regimen.  Nonetheless, Erin has gone on to compete in eight marathons and has established a nonprofit which seeks to aid long-term survivors who also deal with the late effects of cancer treatment.

 

Erin Cummings of Vineyard Haven, Massachusetts was a freshman in high school when she saw that she had a lump on her throat and on her chest.  She didn’t think much of them until her sister saw them and brought it to the attention of their mother.  Erin was taken to a nearby hospital and a week later, she was diagnosed with Stage 3B Hodgkin lymphoma.  She said she benefitted from not knowing much about cancer because she thought it was something by old people and wouldn’t pose a problem for her.

 

This was in 1972, and available treatment options were much different than those available today.  Those options included cobalt radiation treatment, surgery, and a new protocol still considered to be in an experimental phase called chemotherapy.  Erin’s parents didn’t want her having anything to do with chemotherapy and temporarily considered taking her to Mexico to be treated with laetrile.

 

Erin underwent a lymphangiogram to determine the exact location of the cancer.  After that came full body radiation, surgery to remove her appendix and a form of chemo called MOP chemotherapy.

 

She said the side effects of the radiation and the chemotherapy were nasty, but there was also a difficult emotion piece.  Erin said in those days, people thought that cancer was contagious.  As a result, her friends were told by their parents to neither touch her nor get near her.  This combined with Erin being a teenager made her demoralizing cancer experience ever worse.

 

However, Erin Cummings got through the treatment and became cancer-free five years later, in 1977.  At the ten-year mark, she decided it was time to take control of her body, trained for, and eventually ran in her first marathon.  Before she concluded her competitive running, Erin was in eight marathons in Boston and New York City.

 

Because she is still encountering the late effects of her cancer treatment and has met others in the same position, Erin established Hodgkin International, a nonprofit which provides help to people around the globe experiencing similar late effects.

 

Additional Resources:

 

Support Group:

 

Hodgkin International: https://www.hodgkinsinternational.org