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136: Erin Cummings survived Stage 3B Hodgkin lymphoma | full body radiation | MOP chemotherapy | laetrile

Cancer Interviews

Release Date: 02/13/2025

152: erin bloodworth exercise oncologist | fitness assessment | individualized exercise program | lymphedema | neuropathy show art 152: erin bloodworth exercise oncologist | fitness assessment | individualized exercise program | lymphedema | neuropathy

Cancer Interviews

          A clinical exercise physiologist by trade, Erin Bloodworth sought a career change and became an exercise oncologist.  This enabled her to take her expertise and apply it to helping cancer patients, which she does through Northwestern Medicine Living Well. Erin says whether a patient is going through cancer treatment or is post-treatment, she puts the patient through an individualized exercise program.  She assesses the patient's health with tests tied to their ability to grip objects and go from a sitting position to a standing position and...

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151: Stewart Greenfield survived stage IV bladder cancer | cisplatin | gemcidibine | novolumab | immunotherapy show art 151: Stewart Greenfield survived stage IV bladder cancer | cisplatin | gemcidibine | novolumab | immunotherapy

Cancer Interviews

For Stewart Greenfield, the third time was the charm.  After checking pictures of his bladder in 2016, two doctors told him he didn’t have long to live; a third doctor told him he had Stage IV metastatic bladder cancer, but insisted he needed to be treated.  The cancer had burned a hole in his bladder and attacked lymph nodes from his groin to his neck.  Treatment included a chemotherapy cocktail of cisplatin and gemcidibine, plus qualifying for an immunotherapy, novolumab.  It was a smashing success.  Stewart says his urinary function is normal and he is able to...

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150: Noelle Gatlin survived Stage II pancreatic cancer | Whipple procedure | pancreatic duodenectomy show art 150: Noelle Gatlin survived Stage II pancreatic cancer | Whipple procedure | pancreatic duodenectomy

Cancer Interviews

     Noelle Gatlin had to endure a lengthy, multi-step process, but she survived Stage II pancreatic cancer.  A visit to an emergency department revealed a mass near her pancreas. She was transferred to a hospital, where a second CT scan resulted in her diagnosis.  Her care team placed a duodenal stent in Noelle, then a bile duct stent.  She next underwent a 12-infusion chemotherapy regimen with folfirinox.  Then she was ready for a Whipple procedure, a pancreatic duodenectomy, which was a success.  Noelle says because she took care of herself before,...

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149: Laurie Adami survived follicular non-Hodgkin Lymphoma | Yescarta CAR-T Therapy | Bexxar | Gazvya show art 149: Laurie Adami survived follicular non-Hodgkin Lymphoma | Yescarta CAR-T Therapy | Bexxar | Gazvya

Cancer Interviews

Laurie Adami seemed to have it all.  She was the president of her company, at age 40, she had just had a son and still found time to lead an active lifestyle.  However, in 2003, her health took a turn for the worse.  She felt a lump in her abdomen, experienced frequent, lengthy sinus infections and chronic fatigue.  All this led to a diagnosis of Stage IV Follicular Non-Hodgkin Lymphoma.  After six unsuccessful treatment regimens, she achieved complete remission on the seventh try, completing a battle that ran twelve years.   When Laurie initially brought her...

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148: Nicole Scott Is A Kidney Cancer Caregiver | Partial Nephrectomy | Caregiver Burnout | Hernia show art 148: Nicole Scott Is A Kidney Cancer Caregiver | Partial Nephrectomy | Caregiver Burnout | Hernia

Cancer Interviews

Nicole Scott and her husband, Keith, worked at the same Ohio hospital.  When Keith noticed abdominal pain in his left side, he thought it was muscle-related because of the physical nature of his job.  The pain radiated to his groin, then what had been random occurrences of the pain became more frequent.   Nicole urged Keith to seek urgent care.  An emergency room doctor called for a CT scan, thinking Keith had at worst, a hernia.  However, the CT scan revealed a mass on Keith’s kidney.  An MRI and partial nephrectomy resulted in a diagnosis of papillary renal...

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147: Helinka Carr survived bowel cancer | ileostomy bag | pelvic radiation disease | colonoscopy show art 147: Helinka Carr survived bowel cancer | ileostomy bag | pelvic radiation disease | colonoscopy

Cancer Interviews

When Helinka Carr experienced limited rectal bleeding, because it was limited, she never thought her problem could rise to the level of cancer.  She also thought the bleeding might be diverticulitis, which had been suffered by members of her family.  However, at the urging of her doctor, she underwent blood tests and a colonoscopy.  The latter revealed that she had bowel cancer.  Thanks to two surgical procedures, she achieved survivorship but has to wear an ileostomy bag.  She tires easily, but had the energy to start a line of ostomy lingerie for bag-wearing women...

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146: Guy Nakoa survived Stage IV breast cancer | mastectomy | ibrance | letrozole | radiation treatment show art 146: Guy Nakoa survived Stage IV breast cancer | mastectomy | ibrance | letrozole | radiation treatment

Cancer Interviews

      Guy Nakoa has survived two diagnoses of Stage IV breast cancer.  He initially felt a lump in his breast while showering in 2000.  Because it wasn’t causing him and because he didn’t think could not get a type of cancer associated with women, I went more than a decade before he chose to have the lump checked out.  In 2014, he sought medical attention, he was diagnosed and in 2016, he had the lump removed; but in 2020, the cancer returned.  He was hoping it could be removed with chemotherapy and radiation treatment, but over his initial objection, he...

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145: Sheila Romanski twice survived breast cancer | autologous stem cell transplant | lumpectomy | diep flap show art 145: Sheila Romanski twice survived breast cancer | autologous stem cell transplant | lumpectomy | diep flap

Cancer Interviews

Sheila Romanski is with us today after overcoming two diagnoses of breast cancer and the removal of a tumor in her left shoulder thanks to an autologous stem cell transplant.  She tells the @CancerInterviews podcast her initial of Stage 1A breast cancer in 1996 came after her doctor suggested a routine mammogram at age 36 when at the time mammograms were not performed on women that young.  Radiation treatment successfully addressed that diagnosis, but the following year, the cancer had metastasized to her shoulder.  That brought on the stem cell transplant, plus chemotherapy and...

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144: Daniel Garza, Anal Cancer Survivor – Laguna Beach, California, USA show art 144: Daniel Garza, Anal Cancer Survivor – Laguna Beach, California, USA

Cancer Interviews

In 2015, Daniel Garza experienced bloating and difficulty completing a bowel movement.  A subsequent digital rectal exam revealed a mass on his sphincter, which led to a diagnosis of anal cancer.  A surgical procedure got rid of the cancer, but it also resulted in his losing half of his sphincter and the temporary presence of a fistula, a tear which was like a second anus.  He underwent a chemotherapy regimen of 5-fluorouracil, followed by radiation treatment, but another major challenge awaited Daniel, as he had to wear an ostomy bag, which he does to this day.  He deals...

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143: Rick Upchurch survived chronic myelogenous leukemia | oral chemotherapy | blood cancer | tasigna | nilotinib show art 143: Rick Upchurch survived chronic myelogenous leukemia | oral chemotherapy | blood cancer | tasigna | nilotinib

Cancer Interviews

Former NFL star Rick Upchurch seemed to be in good health, but in 2010, he began to experience night sweats, fatigue and aches and pains.  He saw his doctor, who ordered blood work.  The test results revealed his white blood cell count was very high, and his general practitioner gave him the address of another doctor to see.   Rick and his wife were shocked to learn the doctor they had been told to see was an oncologist.  That doctor called for a bone marrow biopsy, which confirmed Rick had chronic myelogenous leukemia, a rare form of blood cancer that is tied to a genetic...

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Erin Cummings is still going strong despite being diagnosed with Hodgkin lymphoma in 1972.  At age 15, she noticed a lump on her throat and another on her chest.  That led to a diagnosis of Stage 3B Hodgkin lymphoma.  She was shocked at her diagnosis but initially had trouble putting into perspective just what she was up against because she cancer was something suffered by old people.  Even though she achieved survivorship, she still deals with residual side effects from her treatment regimen.  Nonetheless, Erin has gone on to compete in eight marathons and has established a nonprofit which seeks to aid long-term survivors who also deal with the late effects of cancer treatment.

 

Erin Cummings of Vineyard Haven, Massachusetts was a freshman in high school when she saw that she had a lump on her throat and on her chest.  She didn’t think much of them until her sister saw them and brought it to the attention of their mother.  Erin was taken to a nearby hospital and a week later, she was diagnosed with Stage 3B Hodgkin lymphoma.  She said she benefitted from not knowing much about cancer because she thought it was something by old people and wouldn’t pose a problem for her.

 

This was in 1972, and available treatment options were much different than those available today.  Those options included cobalt radiation treatment, surgery, and a new protocol still considered to be in an experimental phase called chemotherapy.  Erin’s parents didn’t want her having anything to do with chemotherapy and temporarily considered taking her to Mexico to be treated with laetrile.

 

Erin underwent a lymphangiogram to determine the exact location of the cancer.  After that came full body radiation, surgery to remove her appendix and a form of chemo called MOP chemotherapy.

 

She said the side effects of the radiation and the chemotherapy were nasty, but there was also a difficult emotion piece.  Erin said in those days, people thought that cancer was contagious.  As a result, her friends were told by their parents to neither touch her nor get near her.  This combined with Erin being a teenager made her demoralizing cancer experience ever worse.

 

However, Erin Cummings got through the treatment and became cancer-free five years later, in 1977.  At the ten-year mark, she decided it was time to take control of her body, trained for, and eventually ran in her first marathon.  Before she concluded her competitive running, Erin was in eight marathons in Boston and New York City.

 

Because she is still encountering the late effects of her cancer treatment and has met others in the same position, Erin established Hodgkin International, a nonprofit which provides help to people around the globe experiencing similar late effects.

 

Additional Resources:

 

Support Group:

 

Hodgkin International: https://www.hodgkinsinternational.org