170: Jess survived myxopapillary ependymoma | pregabalin | duloxetine | spinal cord stimulator | lower lumbar
Release Date: 03/24/2026
170: Jess survived myxopapillary ependymoma | pregabalin | duloxetine | spinal cord stimulator | lower lumbar
Cancer Interviews
When Jess began to feel pain in her right leg in 2020, she thought it was sciatica. When extreme pain radiated to her lower back, a physical therapist thought she had a bulging disc. However, her condition worsened, she went in for an MRI, and it revealed a tumor originally thought to be on her spinal cord. Further tests indicated the tumor was inside her spinal cord and a diagnosis of myxopapillary ependymoma, a rare cancer. The tumor was surgically removed, but her post-treatment life was very difficult. There were prolonged instances in which she could not move...
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169: Adam Deans survived osteosarcoma | bone cancer | distal femur | prosthetic leg
Cancer Interviews
Adam Deans was an athletic teenager and had aspirations of becoming a professional athlete. However, all that changed when he fell down a flight of stairs at school. At first, doctors thought Adam had dislocated his left knee, but upon getting further medical attention, tests showed he had cancer, known as osteosarcoma in his distal femur. Doctors recommended chemotherapy, but when that was ineffective, the leg was amputated in 2005. In 2008, a friend introduced Adam to wheelchair basketball. Still with his athletic prowess, he learned the sport quickly and became...
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168: Kevin Donaghy twice survived skin cancer | immunotherapy | pembroluzimab | metastatic melanoma
Cancer Interviews
What began as a harmless looking spot on Kevin Donaghy’s forearm turned into a pair of diagnoses of skin cancer. The first was Stage II in 2018, but 18 months later, it returned and was diagnosed Stage IV metastatic melanoma BRAF+. The urologist said Kevin, an IT specialist from Melrose, Scotland, may have six months to live unless he underwent a newly-approved immunotherapy known as pembroluzimab. That was in 2020, and Kevin is still with us. The immunotherapy triggered a bout of ulcerative colitis, which left him bedridden for six months, but Kevin says his health...
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167: Bob Schreiber survived bladder cancer | Cystoscopy | BCG | Ileal Conduit | Replacement Bladder | Neobladder
Cancer Interviews
Blood detected in Bob Schreiber’s urine led to a diagnosis of Stage IV bladder cancer. This came after a cystoscopy, in which a tube is inserted into his urethra, taking a picture of the bladder. Twice without success, Bob hoped BCG treatment would address the cancer by instilling a set of chemicals inside the bladder to strengthen the immune system. As a result, he had to get his bladder removed. It was replaced with a neobladder, which was made from his small intestine. His recovery took close to a year, he has to deal with incontinence at night, but would his...
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166: Beth Lehman survived liver cancer | cirrhosis | heptacellular carcinoma | y-90 | hepatic encephalopathy | ascites
Cancer Interviews
Beth Lehman went through a tumultuous year in 2020. Thanks to heavy drinking, she was diagnosed with cirrhosis, then basal cell carcinoma, a type of skin cancer, followed by hepatocellular carcinoma, a form of liver cancer. She underwent radioactive embolization in order to get a liver transplant. Beth said the two-hour operation wasn’t so tough, but the after-effects were difficult, including nausea and vomiting. Then she experienced a procedure to get rid of the skin cancer on her right temple. She says between her physical and emotional recovery, she...
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165: Athena Porter survived cervical cancer | radical hysterectomy | endocervical adenocarcinoma | HPV+
Cancer Interviews
After close to a decade of abnormal pap smears, a Cone Biopsy indicated Athena Porter had cervical cancer. To make sure her diagnosis of endocervical adenocarcinoma didn’t spread, she opted for a radical hysterectomy. With the procedure, her cervix was not the only vital organ removed. A wife and mother to two daughters, Athena feels blessed that she can return to work on her Iowa farm. In 2012, she went in for an annual wellness exam. A pap smear indicated she was HPV+. Her doctor told Athena a worst-case scenario was cancer, but the virus would...
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164: Joshua Silva survived clear cell renal cell carcinoma | partial nephrectomy | appendectomy | kidney cancer
Cancer Interviews
Joshua Silva did not take lower back pains and gastrointestinal issues seriously until they worsened, forcing him to visit an emergency room. A CT scan revealed inflammation of his appendix, necessitating an appendectomy. A urologist said the scan also showed a problem in his left kidney, later diagnosed as clear cell renal cell carcinoma, a type of kidney cancer. Joshua underwent a partial nephrectomy knowing before the procedure he may lose the kidney. When he regained consciousness after the procedure, a nurse told him the kidney was spared. Post-treatment...
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163: Tessa Parry-Wingfield survived Ocular Melanoma | Eye Enucleation | Uveal Melanoma | Monocular Vision
Cancer Interviews
While jogging in 2023, Tessa Parry-Wingfield felt an unusual sensation in her left eye. It wasn’t painful but merited medical attention. She was seen by three doctors before learning she had ocular melanoma, a form of eye cancer. Because of the particulars of her diagnosis, she had to undergo an enucleation, the removal of her cancerous eye. With an acrylic implant taking the place of the cancerous eye, Tessa had an enormous amount of learning ahead of her, most notably what is known as monocular vision. Amazingly, Tessa has adjusted to...
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162: Bhavika Taunk cared for her son, diagnosed with leukemia | pediatric cancer
Cancer Interviews
For Bhavika Taunk, life took a radical turn in 2017 when her four-year-old son, Kabir, was diagnosed with acute lymphoblastic leukemia. After a bone marrow transplant, he went on an aggressive chemotherapy regimen for two years. Kabir relapsed twice, but has been in remission since 2020. Bhavika tells the story of how she cared for her son and how she reaches out to other parents of children diagnosed with cancer. Bhavika, her husband and two young sons returned from a Disney cruise in April 2017, and both sons felt sick. While her two-year-old son soon...
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161: Brian Vesall survived Stage 2A testicular cancer | orchiectomy | bleomycin | etopside | cisplatin | teratoma
Cancer Interviews
In 2021, Brian Vesall noticed some pain in one of his testicles when getting in his car. He sought medical attention, which led to his getting an ultrasound. After briefly looking at the scan, a urologist confirmed to Brian that he had Stage 2A testicular cancer. He underwent an orchiectomy to remove the cancerous testicle, followed by an aggressive chemotherapy regimen of bleomycin, etopiside and cisplatin. But he wasn’t done. Brian also underwent an additional surgical procedure to remove approximately 30 lymph nodes. As daunting as his treatment was,...
info_outlineWhen Jess began to feel pain in her right leg in 2020, she thought it was sciatica. When extreme pain radiated to her lower back, a physical therapist thought she had a bulging disc. However, her condition worsened, she went in for an MRI, and it revealed a tumor originally thought to be on her spinal cord. Further tests indicated the tumor was inside her spinal cord and a diagnosis of myxopapillary ependymoma, a rare cancer. The tumor was surgically removed, but her post-treatment life was very difficult. There were prolonged instances in which she could not move her legs, which brought her to tears not only from the pain, but the chilling thought of the rest of her being spent in bed or on the couch. Jess went through all sorts of medications from morphine to medical marijuana, but medical savior was a spinal cord stimulator. It has enabled her to maximize her movements with little or no pain.
In 2020, Jess led an active lifestyle. It included soccer and other activities with two young sons. But she started experiencing pain in her right leg. She thought it was sciatica but believed it would go away. When it didn’t, and pain radiated to her lower back, she saw a physical therapist, who thought Jess had a bulging disc. One night at home, Jess fell and said one of her sons looked her in the eye and told her she needed to see a doctor.
Jess underwent an MRI. It indicated she had a tumor on or near her spinal cord. Doctors were initially baffled because they could not pinpoint the tumor’s location, but additional tests showed the tumor was inside her spinal cord. A surgical procedure to remove the tumor was completed successfully. It was after the procedure when Jess was regaining consciousness in her hospital that she was informed she had Stage II myxopapillary ependymoma, a rare cancer. Ten days after surgery, Jess underwent a spinal tap at the location of the tumor to determine whether any tumor cells had been left behind. Thankfully, the results were clear and have remained clear ever since.
However, many challenges awaited Jess. There were instances in which she was immobilized, having to remain in bed. She felt pain from head to toe. Certain fabrics rubbing against caused pain. As did extreme temperatures or the wind. She was prescribed opioids, which she said did nothing to alleviate the pain. She was given morphine. Eventually doctors prescribed pregabalin and duloxetine, medications which were able to reduce the pain. Jess also tried medical marijuana, which reduced the pain.
The biggest development in her recovery was her working with a specialist in New Hampshire who performs spinal cord stimulator procedures. Jess completed a trial with a stimulator and when using it, much of her pain was gone and she regained much of her mobility.
Jess says her spinal cord will never be the same and neither will she, but she is grateful for the mobility she has. She adds that since October 2025, she has been sober from alcohol and cannabis.
Additional Resources:
Support Groups:
The CERN Foundation: https://www.cern-foundation.org
walk.talk.connect: https://walktalkconnect.org
Book:
ReConnected: Stories from Spinal Cord Tumor & Dawn Standera, available on Amazon
https://www.youtube.com/@reconnected-SCTtumorstories