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Episode 191 |[Repost] Shani’s Story-A child with a learning difference #ADHD #Anxiety #Dyslexia #Dysmorphia

Child Life On Call: Parents of children with an illness or medical condition share their stories with a child life specialist

Release Date: 10/11/2023

216: How to talk with Kids about Child Abuse - Jane's Story [Repost] show art 216: How to talk with Kids about Child Abuse - Jane's Story [Repost]

Child Life On Call: Parents of children with an illness or medical condition share their stories with a child life specialist

April is Child Abuse Prevention Awareness Month. We have reposted this episode to bring awareness and give you tangible tools to speak with your kids about child abuse. Today’s guest expert is Jane Donovan, who is a child abuse prevention advocate.  "And like we say in child life, you have to prepare. So you know what to expect and you know how to cope with what's going to happen next." - Katie Taylor, CLOC In this crucial episode, Katie Taylor is joined by a child abuse prevention advocate, Jane Donovan, to delve into the sensitive and vital topic of child protection within the...

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215: Ruptured Appendix: Emergent Surgery, 6 Days in the Hospital & Struggles to Discharge - Aspen's Story show art 215: Ruptured Appendix: Emergent Surgery, 6 Days in the Hospital & Struggles to Discharge - Aspen's Story

Child Life On Call: Parents of children with an illness or medical condition share their stories with a child life specialist

"I've learned so much in this whole process. It's like you have a depth inside of you that resurrects as an advocate and high alert, and it lives inside of you when you need it."   -Aspen, Willa's Mom In this episode of Child Life On Call, host Katie Taylor and guest Aspen share an intense and educational journey through pediatric appendicitis. Aspen recounts her daughter Willa's sudden illness, misdiagnosis, and the emotional rollercoaster of a ruptured appendix leading to urgent surgery. This story not only highlights the challenges and nuances of navigating pediatric healthcare,...

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214: Sacrifice, Advocacy, Joy: Raising a Son with End Stage Kidney Disease - The Ransome Family's Story show art 214: Sacrifice, Advocacy, Joy: Raising a Son with End Stage Kidney Disease - The Ransome Family's Story

Child Life On Call: Parents of children with an illness or medical condition share their stories with a child life specialist

"Sometimes it's really therapeutic though to remember all that you have gone through because I feel like there are times when we look at each other and I'm like how did we get here?" -Tayler Ransome We're grateful for our sponsor for this episode, Nestle Health Science, and are thrilled to share their incredible website, your go-to online resource for valuable information and support. In this episode, Katie Taylor welcomes the Ransome family, known to many as the , where they share their daily life and the challenges of managing their son Sully's end-stage kidney disease. From their initial...

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213: Parents, CCLS, Students: Show Up Exactly As You Are show art 213: Parents, CCLS, Students: Show Up Exactly As You Are

Child Life On Call: Parents of children with an illness or medical condition share their stories with a child life specialist

In This Episode: Katie Taylor goes off the beaten path in this special episode to share a profound moment of inspiration that struck her. This episode is a heartfelt message to child life specialists, students, and parents, emphasizing the importance of showing up as you are, without the burden of imposter syndrome. Key Highlights: A Different Kind of Episode: Katie shares her spontaneous thoughts that came from a moment of inspiration, promising that the usual stories from the field and parental perspectives will return in future episodes. Message of Empowerment: The core message is about...

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212: CCLS Story: 18 Years of Supporting Kidney Families -Julie's Story show art 212: CCLS Story: 18 Years of Supporting Kidney Families -Julie's Story

Child Life On Call: Parents of children with an illness or medical condition share their stories with a child life specialist

"As a child life specialist, watching my tiniest patients grow and accomplish so many things is my favorite part of the job." - Julie, Certified Child Life Specialist Episode Summary: In this heartfelt episode of Child Life On Call, we celebrate Child Life Month by diving deep into the dedicated world of child life specialists and the resilient families they support. Host Katie Taylor talks to Julie, a remarkable child life specialist with 18 years of experience in the renal service at Texas Children's Hospital in Houston, Texas. Julie shares her profound journey of supporting children with...

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211: A Son Born with End-Stage Kidney Disease (Part 1): Lyndsey's Story show art 211: A Son Born with End-Stage Kidney Disease (Part 1): Lyndsey's Story

Child Life On Call: Parents of children with an illness or medical condition share their stories with a child life specialist

"Having a medically complex child, it's like everything's fine. And then, you know, we have a morning where we've thrown up a lot or our blood pressure is too low, and it just doesn't look good. You just never know what you're going to get." - Lyndsey, Episode 211 In this deeply moving episode, we are joined by Lyndsey, who shares the compelling journey of her son James's battle with post-urethral valves before birth, leading to kidney issues and eventually a kidney transplant. Through her narrative, we learn about the rollercoaster of emotions, the challenges of navigating the healthcare...

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210: Connection, Healing, and Love: Insights from Patrice Karst, Author of The Invisible String show art 210: Connection, Healing, and Love: Insights from Patrice Karst, Author of The Invisible String

Child Life On Call: Parents of children with an illness or medical condition share their stories with a child life specialist

"Love is the most powerful force in the universe, and the invisible string is a testament to the connections that bind us all." - Patrice Karst In this special Child Life Month episode, Katie Taylor sits down with Patrice Karst, the beloved author of "The Invisible String" and several other impactful books. They explore Patrice's journey from personal challenges to becoming a source of comfort and connection for families worldwide. This conversation delves into the power of storytelling in addressing themes of separation, loss, and the enduring strength of love. Patrice shares her inspiration...

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209: Research on Parent Caregivers of Children with Medical Complexities - Elise's Story show art 209: Research on Parent Caregivers of Children with Medical Complexities - Elise's Story

Child Life On Call: Parents of children with an illness or medical condition share their stories with a child life specialist

Advocacy, Compassion, Innovation: Elise's Child Life Journey "Working with children with medical complexity and developmental differences isn't just a job; it's rooted in who I am." - Elise Cofer, CCLS In this captivating episode of Child Life On Call, Katie Taylor sits down with Elise, a Nashville-born child life specialist who brings her passion and dedication to the hematology oncology unit at Vanderbilt. Elise's journey into child life, driven by a background deeply embedded in caring for children with special needs, showcases her commitment to enhancing pediatric healthcare. Through her...

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208: Military Life, Pediatric Complex Care Abroad & Resiliency: Kat's Story show art 208: Military Life, Pediatric Complex Care Abroad & Resiliency: Kat's Story

Child Life On Call: Parents of children with an illness or medical condition share their stories with a child life specialist

In this profound episode, we join Katie Taylor as she delves into the inspiring journey of a military family navigating pediatric healthcare for their two medically complex children. Through the voice of the remarkable mother, Kat, we explore the unique challenges and triumphs of securing continuous, specialized care amidst the frequent relocations and complexities inherent to military life. Kat shares her experiences with advocacy, the importance of resilience, and the deep bonds forged through their family's journey, offering invaluable insights into the realities faced by military families...

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Healing Without Surgery: Umbilical Hernia Solutions from a Physical Therapist show art Healing Without Surgery: Umbilical Hernia Solutions from a Physical Therapist

Child Life On Call: Parents of children with an illness or medical condition share their stories with a child life specialist

What if we could prevent more kids from having to have invasive surgery? During this episode, we are joined by Katie Corrado, who invented a product that works as an alternative to surgery for babies and children. Tune in to hear how her first-hand experience of watching her child struggle with an umbilical hernia led her to an innovative solution that she now offers to other families facing the same challenge. You’ll also learn why Katie is an advocate for proactive rather than reactive medical solutions and how her passion for connecting with kids led her to work as a Physical Therapist...

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More Episodes

We wanted to repost this epsidoe to highlight that October is Learning Disabilities / Dyslexia / Attention Deficit Hyperactivity Disorder Awareness Month. 

In a world of unexpected twists, sometimes the greatest surprises lie within our own children. Child Life Specialist, Shani Thornton's journey with her son's learning differences took an unforeseen turn, unraveling a mystery that went beyond what anyone could have imagined. But what if this unexpected twist held the key to unlocking their hidden potential? Join us as we delve into the story of a mother's unwavering determination, and discover how engaging in activities outside of academics could be the missing piece to building confidence and self-esteem in children with learning differences. Get ready to embark on a journey of empowerment and endless possibilities...

In this episode, you will be able to:

  • Immerse in Shani's passionate crusade to ensure her children with learning differences receive the care they need.

  • Delve into the complex world of digital education amid a pandemic, and how this interplays with learning differences.

  • Grasp the significance and need for early dyslexia diagnosis and intervention, shaping successful learning paths.

  • Learn about the strategies to foster confidence in children with learning differences, touching upon areas beyond academics.

  • Grasp the role of 'self-care' for those caring for children with learning differences, shedding light on avoiding burnout and delivering effective support.

My special guest is Shani Thornton

Meet Shani Thornton, a seasoned Child Life specialist with nearly 14 years of experience in the field. Living in Northern California, Shani balances being a loving mom of two alongside running her private practice, Child Life Mommy. Typically offering a range of services including hospice care support for children of adult patients, workshops, and grief counseling, Shani's approach is marked by compassion and understanding. Known for her deep understanding of child development, she has a personal connection to this episode's theme: raising confident children with learning differences. Shani has navigated her own children's learning journey and excels in creating an environment that facilitates emotional growth beyond academics.

The key moments in this episode are:
00:01:14 - Introduction,

00:02:28 - Shani's Background,

00:06:04 - Challenges with Remote Learning,

00:07:59 - Individualized Education Plan (IEP),

00:10:26 - Diagnosis and Support,

00:15:42 - Early Interventions and Frustrations,

00:18:00 - Misdiagnosis and Advocacy,

00:19:22 - Individual Educational Evaluation and Interventions,

00:24:27 - Finding Support and Balancing Schoolwork,

00:26:18 - Explaining Learning Differences to the Child,

00:31:39 - The Nature of Dyslexia,

00:32:15 - Normalizing Dysgraphia,

00:33:44 - Supporting Children with Dyslexia in Online Learning,

00:36:03 - Supporting a Child with Dyslexia's Confidence,

00:39:53 - Identifying and Addressing Learning Differences

 

Connect with Shani here.

 

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It is the only course you'll ever need to be able to prepare, respond and support your child at any age and stage for immunizations. Evidenced-based tips from a child life specialist who has been supporting kids through painful procedures for 13+ years. This offer will only be available for a limited time. Pre-order your course today here!