loader from loading.io

Type 1 Diabetes: Finding Community and Humor After Diagnosis

Inside the Children's Hospital

Release Date: 10/22/2025

NICU, Trach and Home Care: One Family's Journey to Stability show art NICU, Trach and Home Care: One Family's Journey to Stability

Inside the Children's Hospital

What does it look like when life changes in an instant—and a family learns to navigate the unimaginable? In this episode of Inside the Children’s Hospital, Katie Taylor sits down with Marah, a mom of four, who shares her daughter Abigail’s journey after a cardiac arrest at just nine days old. What began as a healthy twin pregnancy quickly shifted into a complex medical path involving a NICU stay, life support, and long-term care needs. As Marah and her husband entered the world of medical parenting, they faced fear, uncertainty, and overwhelming decisions. Through it all, they leaned on...

info_outline
Meningitis in Children: When a Mother's Instinct Led to Life-Saving Answers show art Meningitis in Children: When a Mother's Instinct Led to Life-Saving Answers

Inside the Children's Hospital

What happens when your child seems sick, but everything keeps coming back normal? For a lot of parents, the scariest part isn’t the diagnosis. It’s the not knowing. It’s being told everything looks fine when your gut is telling you something is off. This week, Katie sits down with Kayleigh, a medical assistant and mom of three, to share the story of her daughter Kanessa. Almost a year after a freak eye injury that seemed to heal, Kanessa suddenly got sick. At first, it looked like a simple virus. But within days, things escalated fast. Kaylee shares what it was like trying to make sense...

info_outline
When a Parent Has Cancer: What Kids Understand Before We Say It show art When a Parent Has Cancer: What Kids Understand Before We Say It

Inside the Children's Hospital

What happens when your child already senses something life-changing—before anyone has found the words to say it out loud? When serious illness enters a family, children often understand more than we realize. And for caregivers, the challenge becomes not only navigating medical decisions, but also finding the right way to support their children through it all. This week, Katie sits down with Anna Lonon, founder of to share her family’s story of navigating cancer when her husband Michael was diagnosed with stage three head and neck cancer at just 29 years old. While raising a young son and...

info_outline
Spinal Muscular Atrophy (SMA): A Parent’s Journey from First Signs to Diagnosis show art Spinal Muscular Atrophy (SMA): A Parent’s Journey from First Signs to Diagnosis

Inside the Children's Hospital

What happens when your instincts tell you something is wrong—but you’re dismissed again and again? For many parents, the journey to a diagnosis begins with a gut feeling—and the courage to persist in seeking answers. This week, Katie sits down with Nikki McIntosh, author and advocate, to share the story of her son Miles, who was diagnosed with spinal muscular atrophy (SMA) at just 18 months old. After noticing delays in his ability to stand and bear weight, Nikki followed her instincts despite initial dismissal—ultimately leading to a life-changing diagnosis. Nikki shares what those...

info_outline
HIE at Birth: A Dad’s Story of Brain Injury, NICU Trauma, and Finding Purpose show art HIE at Birth: A Dad’s Story of Brain Injury, NICU Trauma, and Finding Purpose

Inside the Children's Hospital

Within minutes of arriving at the hospital, Brady and his wife were told their newborn daughter had suffered a severe brain injury. In this episode of Inside the Children's Hospital, Katie sits down with Brady Crandall, founder of Youth Crews, to share his family’s journey following a diagnosis of hypoxic ischemic encephalopathy (HIE). What began as a routine pregnancy quickly turned into an emergency delivery, NICU stay, and a new reality as parents of a medically complex child. Brady opens up about: The shock and uncertainty of those early days Navigating life as a “medical dad.” The...

info_outline
Preparing Your Child for Surgery: A Pediatric ENT Surgeon’s Honest Advice show art Preparing Your Child for Surgery: A Pediatric ENT Surgeon’s Honest Advice

Inside the Children's Hospital

How do you prepare a child for surgery and build trust with their medical team? This episode explores how families and healthcare providers can work together to support children through procedures like tonsillectomy and other medical challenges. This week’s guest, Dr. Tali Lando, shares her perspective as a pediatric ENT surgeon, author, and mom of three teenage daughters. She and Katie discuss what it’s really like for families navigating medical care with complex kids and how parents can advocate effectively while still building strong partnerships with their child’s care team. If...

info_outline
Life After Pediatric Kidney Transplant: A Mom’s Journey Through Dialysis, Surgery, and Recovery show art Life After Pediatric Kidney Transplant: A Mom’s Journey Through Dialysis, Surgery, and Recovery

Inside the Children's Hospital

What does life really look like after a child receives a kidney transplant? Many people think transplant is the end of the journey—but for families, it’s often just the beginning. This week’s guest, Lyndsey Fedorko, returns to the podcast to share the next chapter of her son James’s medical journey—life after a kidney transplant. After years of dialysis, hospitalizations, and uncertainty, James received a life-saving kidney transplant from his aunt, marking the beginning of a new season for their family. Lyndsey and Katie reflect on the intense months surrounding transplant surgery,...

info_outline
Healing After the NICU: Processing Trauma, Loss, and Your Family's Story show art Healing After the NICU: Processing Trauma, Loss, and Your Family's Story

Inside the Children's Hospital

This week’s guests, perinatal mental health therapists Emily Souder and Mahaley Patel, share the story behind their book Your NICU Story: Reflecting on Your Family’s Experience—a guided journal created to help families process the emotional impact of a NICU stay. Mahaley also opens up about her daughter, Sachi, who died after a NICU stay, and how storytelling and narrative healing became a lifeline in her grief. She and Emily talk with Katie about why so many NICU parents carry trauma long after discharge and how writing your story can help families reconnect with what they experienced....

info_outline
Trust, Grief, and Loving Your Child Through Big Identity Changes show art Trust, Grief, and Loving Your Child Through Big Identity Changes

Inside the Children's Hospital

What happens when your child shares something that shifts the future you thought you understood?   In this episode of Inside the Children’s Hospital, Katie sits down with Kelly Kemp — certified child life specialist of more than 30 years and mom of three — to talk about navigating trust, grief, advocacy, and love after her child was diagnosed with gender dysphoria and came out as transgender.   Kelly shares: The phone call that changed everything Navigating substance use and mental health concerns Grieving privately while choosing love publicly Rebuilding trust with her...

info_outline
Helping Kids Navigate Physical Differences: Child Life Strategies for Confidence, Curiosity & Resilience show art Helping Kids Navigate Physical Differences: Child Life Strategies for Confidence, Curiosity & Resilience

Inside the Children's Hospital

How do you help a child respond when someone asks about a scar, burn, or limb difference? This week’s guest, Abby Horton, opens up about her journey as a Child Life Specialist working across ICU, burn, surgical, rehab, and inpatient settings—and how those experiences shaped the way she supports families navigating physical differences. From sudden trauma and accidents to limb differences, burn injuries, surgical scars, and hair loss from chemotherapy, Abby shares how parents can gently empower their children to own their story with confidence. She and Katie discuss simple, age-appropriate...

info_outline
 
More Episodes

When Stacey’s toddler was diagnosed with Type 1 diabetes, her family’s world turned upside down. In this episode, she shares the early warning signs, the struggle of those first two weeks of injections, and how humor and community turned fear into resilience. Parents will gain hope, advocacy tips, and coping strategies for managing a chronic illness diagnosis.

 What You’ll Hear

  • How Stacey recognized the 4 Ts of diabetes: Thirsty, Tired, Thinner, Toilet

  • The reality of hospitalization, finger sticks, and injections with a toddler

  • Coping strategies: medical play, humor, and routines that work

  • The power of community and rejecting “perfect parenting”

  • Building advocacy through Diabetes Connections and The World’s Worst Diabetes Mom

About Stacey

Stacey Simms is an award-winning broadcaster, speaker, and author of The World’s Worst Diabetes Mom. Since 2015, she has hosted Diabetes Connections, offering real stories and resources for the Type 1 community.

🔗 Diabetes Connections
🔗 Instagram @staceysimms

Key Takeaways

  • Advocate for more than a finger stick when symptoms appear

  • Medical play & humor ease children’s anxiety about procedures

  • There’s no “perfect parent”—safe and happy is enough

  • Community matters, but it’s okay to choose your people wisely

Timestamps

00:00 – Introduction & Stacey’s background
02:00 – Early signs of Type 1 diabetes (the 4 Ts)
06:00 – Hospital stay and first injections
10:00 – The hardest two weeks: shots, tears, and routine
15:00 – Teaching kids about diabetes as they grow
18:00 – Humor, medical play, and coping strategies
22:00 – Building Diabetes Connections & Moms’ Night Out
25:00 – Lessons Stacey learned about herself
27:00 – The myth of perfect parenting

 

Support the Host & Show

If you found value in this conversation, please check out host Katie Taylor's work and community resources:

  • Join Katie Taylor's Substack for in-depth insights and articles: Join here

  • Get the SupportSpot App—a helpful tool to support your child through their healthcare journey: Check it out

  • Listen & Subscribe! 

 

🌟 Special Thank You for Our Listeners! 🎉

We’re giving you free access to our most popular pediatric masterclasses — How to Prepare, Support, and Respond to Your Child During Shots, Blood Draws, and Vaccines and How to Use Comfort Positioning in Pediatrics — a $250 value, completely free! All you have to do is leave a written review of the Child Life On Call podcast on Apple Podcasts or Spotify, then email a screenshot of your review to podcast@childlifeoncall.com. Once we receive it, you’ll get instant access to both courses — no strings attached. It’s our way of saying thank you for listening and helping more parents discover our show. 💛

The Child Life On Call Podcast is for informational and educational purposes only. The content shared in each episode, including stories, discussions, and interviews, is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay seeking it because of something you heard on this podcast. The views and opinions expressed by guests on the Child Life On Call Podcast are their own and do not necessarily reflect those of Child Life On Call. Child Life On Call does not endorse any specific medical treatments, procedures, or opinions shared in the podcast. If you or your child is experiencing a medical emergency, call 911 or seek immediate medical attention. By listening to this podcast, you acknowledge that Child Life On Call and its affiliates are not responsible for any decisions made based on the information provided.