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JDRF Children's Congress 2019 / Getting Diabetes Gear to Stick

Diabetes Connections with Stacey Simms Type 1 Diabetes

Release Date: 07/09/2019

DiabetesWise - A Consumer Reports for Diabetes Technology show art DiabetesWise - A Consumer Reports for Diabetes Technology

Diabetes Connections with Stacey Simms Type 1 Diabetes

Choosing your diabetes technology can be complicated. Wouldn’t it be nice if there was sort of a Consumer Reports for pumps and CGMs? We found out about Diabetes Wise from people who know it’s about more than the hardware. Check out Stacey's new book: The World's Worst Diabetes Mom! Stacey talks with Dr. Korey Hood who lives with type 1 and is with Stanford University as well as Laurel Koester, with the Helmsley Charitable Trust. Together, these two groups created Diabetes Wise. Stacey, Korey & Laurel talk about how it works and  why it’s needed. Stacey spoke to Korey on a...

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Minisode #4: Why We Went Minisode #4: Why We Went "Untethered"

Diabetes Connections with Stacey Simms Type 1 Diabetes

Using a shot of long-acting insulin along with an insulin pump sounds like a weird idea. But Stacey found when her son's insulin needs went way up around age 11, that it worked incredibly well for them. She explains the method of untethered, which is also sometimes called POLI (Pumping On Long-Acting Insulin), what led them to believe it would work, and why you don't always need to use a ton of insulin to benefit from it. More info on untethered here More info on Tresiba here  ------ Check out Stacey's new book: The World's Worst Diabetes Mom! Join the Diabetes Connections Facebook Group!...

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Competing on Food Network Kids Baking Championship With T1D show art Competing on Food Network Kids Baking Championship With T1D

Diabetes Connections with Stacey Simms Type 1 Diabetes

When 11 year old Elise Sammis applied for the Food Network's Kids Baking Championship, she didn’t think twice about telling them - right up front - that she lives with type 1 diabetes. She says she wanted everyone to know in order to show that diabetes wouldn't keep her from her love of baking, or anything else. Check out Stacey's new book: The World's Worst Diabetes Mom! Turns out, there's another young woman with type 1 on the show this season! You can learn more about Naima Winston here. Stacey met Elise & her mom, Natalie, at an event in South Carolina. They spoke about the show, the...

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Minisode #3: What I Want From Tandem's Control IQ show art Minisode #3: What I Want From Tandem's Control IQ

Diabetes Connections with Stacey Simms Type 1 Diabetes

  As we all wait for the release of the newest hybrid closed loop software, Stacey has some thoughts about what she hopes it'll bring to her family's experience. Transcription below! Check out Stacey's new book: The World's Worst Diabetes Mom! Join the Diabetes Connections Facebook Group! Sign up for our newsletter here ----- Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone      Click here for Android Episode...

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All About Babies and Toddlers with Type 1 Diabetes show art All About Babies and Toddlers with Type 1 Diabetes

Diabetes Connections with Stacey Simms Type 1 Diabetes

We're talking about the youngest people with type one diabetes: babies and toddlers. When you can't talk and you're barely eating solid food, the challenges of T1D rise to a new level. Stacey's guest is Pediatric Endocrinologist Henry Rodriguez, the clinical director of the University of South Florida Diabetes Center. Check out Stacey's new book: The World's Worst Diabetes Mom! The interview features everything from breast feeding, diluted insulin, pump and CGM use in babies and much more. Join the Diabetes Connections Facebook Group! Resources: Facebook groups: Learning to Thrive: Type 1...

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Minisode #2: Sleepovers & Type 1 Diabetes - What Worked For Us show art Minisode #2: Sleepovers & Type 1 Diabetes - What Worked For Us

Diabetes Connections with Stacey Simms Type 1 Diabetes

Are you worried about sleepovers? Wondering how to plan? Stacey answers a listener question and explained what worked for her and Benny. Check out Stacey's new book: The World's Worst Diabetes Mom! Join the Diabetes Connections Facebook Group! Sign up for our newsletter here ----- Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone      Click here for Android Episode Transcription Stacey Simms  0:00 This minisode of...

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Working at NASA's Mission Control With Type 1 Diabetes show art Working at NASA's Mission Control With Type 1 Diabetes

Diabetes Connections with Stacey Simms Type 1 Diabetes

Aerospace engineer April Blackwell works at NASA’s Mission Control. She dreamed of being an astronaut but her type 1 diabetes diagnosis at age 11 changed everything. Since that day, though, she has found ways to break down barriers and pursue her love of space. Check out Stacey's new book: The World's Worst Diabetes Mom! April calls herself a "rule-questioner" and shares where asking those questions got her. She and Stacey talk about everything from family – she has two young children – to what it’s like to work as part of history in the space program. Join the Diabetes Connections...

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Minisode #1: Stop Mindlessly Sharing All Your Diabetes Numbers! show art Minisode #1: Stop Mindlessly Sharing All Your Diabetes Numbers!

Diabetes Connections with Stacey Simms Type 1 Diabetes

Do you share your CGM graphs and A1Cs online? Why? Stacey talks about the trend of sharing everything on social media and wonders if what she learned in her radio career might help us all make sense of when and how to better share. Check out Stacey's new book: The World's Worst Diabetes Mom! In 2020 we're adding these mini-episodes to the weekly line up. Each Tuesday you'll hear the regular longer format interview shows. Thursdays will be these Stacey-solo shows. Join the Diabetes Connections Facebook Group! Sign up for our newsletter here ----- Use this link to get one free download and one...

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Control IQ Gets FDA Approval: All About Tandem's Hybrid Closed-Loop System show art Control IQ Gets FDA Approval: All About Tandem's Hybrid Closed-Loop System

Diabetes Connections with Stacey Simms Type 1 Diabetes

Tandem's Control-IQ system was approved by the US FDA in mid-December. In this episode, Stacey talks to Molly McElwey Malloy, Tandem's clinical outcomes manager with behavioral sciences. Check out Stacey's new book: The World's Worst Diabetes Mom! Control-IQ technology is an advanced hybrid closed-loop system that uses an algorithm to automatically adjust insulin in response to predicted glucose levels to help increase time in the American Diabetes Association-recommended target range (70-180 mg/dL).* Check out Tandem's YouTube channel, featuring new videos about Control IQ Join the Diabetes...

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Planes, Trains and Type 1 Diabetes: Catching up with Jason Viglione show art Planes, Trains and Type 1 Diabetes: Catching up with Jason Viglione

Diabetes Connections with Stacey Simms Type 1 Diabetes

With holiday travel gearing up, we decided to check in with someone who travels the world. Jason Viglione is always on a plane, train or car for business and has figured out his own best practices for pump, CGM and the whole routine Check out Stacey's new book: The World's Worst Diabetes Mom! Jason was diagnosed just last year.. his anniversary date is coming up in January. Like a lot of adults, he had trouble getting the right diagnosis. We’ll hear that story and a lot more.. Join the Diabetes Connections Facebook Group! In TMSG – a cameo in a Hallmark Christmas movie.. a diaversary...

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More Episodes

JDRF’s Children’s Congress kicks off this week and we’re talking to three really incredible delegates. Meet Jack, Hannah, and Kabir who will all tell their stories to legislators. You'll also hear from Stacey's local advocacy chair to find out what Children’s Congress is all about and how to apply next time around.

Join the Diabetes Connections Facebook Group! 

Our Community Connection this week is all about getting diabetes gear to stick in the hot sweaty summer. We’ve got advice from parents of little swimmers and adults who take hot yoga.

Scroll to the bottom to see a list of items/products mentioned during this episode.

In Tell Me Something Good, we’ll talk about a trip of a lifetime as a 16 year old travels to the remote Yukon with a school group. 

 Sign up for our newsletter here

This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider.

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Show Open/Tease

Stacey Welcome - Find out more about Project 50 in 50

JDRF Children's Congress Greater Western Carolinas Chapter Delegates

Community Connection Getting Gear to Stick:

TMSG: 

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Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! 

Get the App and listen to Diabetes Connections wherever you go!

Click here for iPhone      Click here for Android  

This list is full of brand name and generics. I’ve linked to a website when the brand has one. You may also want to try Amazon or ask your medical supply provider. Just as everyone’s skin is different, so is our health insurance. It’s possible that what works for you may actually be covered. Stranger things have happened.

I expect to edit & add to this list in the weeks and months to come. Hope it helps!

Sticky Wipes

These make the skin a bit tacky in order to give the material you put on top a better hold.

Skin Tac wipe or liquid

IV Prep wipe

Mastisol liquid

Stoma Care wipe w/aloe

Hollister skin gel

ReliaMed wipe

Tapes/Patches

Stay Put Medical Patches

Tegaderm film dressing

Opsite Flexifix transparent film

Hypafix dressing tape

RockaDex Dexcom patches

GrifGrips adhesive patch

Waterproof Bandaid

Wraps/Bands

Kinesiology Tape (Includes brand names KT Tape, Rock Tape, Vara Tape)

Vet Wrap

SleekSleeves

Bands4Life

Athletic Sleeves

Rash Guard/Swim shirt (cut to fit)

Misc.

EK Tools Tag Punch Classic (Dexcom-sized hole punch)

Dexcom & Libre Rash (Public Facebook Group)