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JDRF Children's Congress 2019 / Getting Diabetes Gear to Stick

Diabetes Connections with Stacey Simms Type 1 Diabetes

Release Date: 07/09/2019

"What is the Community Buzzing About?" D-Data Exchange 2020 with Amy Tenderich

Diabetes Connections with Stacey Simms Type 1 Diabetes

The DiabetesMine D-Data Exchange is a great time to catch up on the latest technology and get a sneak peek at what’s coming. This is the conference where #WeAreNotWaiting was coined in 2013, which almost seems like ancient history now! We talk to founder Amy Tenderich about what's new and take some time to focus on their effort to reach more diverse voices. In Tell Me Something Good, a big diaversary to celebrate.. Stacey's son marks 14 years of type 1 diabetes this week. This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care...

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"He's Why I Have My Vision" - Alecia & Marty Have a Friendship Forged in Diabetes History

Diabetes Connections with Stacey Simms Type 1 Diabetes

Clinical trials are incredibly important for research, but the people who take part don't usually get to meet anyone they've helped.  Marty & Alecia are a very special exception! Marty Drilling took part in a clinical trial in 1974 that later helped save Alecia Wesner’s eyesight! We’ll share their remarkable story and talk about how much progress has been made in treating diabetes eye issues. In Innovations this week.. a new partnership in the closed loop space. We'll talk about Lilly and Ypsomed This podcast is not intended as medical advice. If you have those kinds of...

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On The World Stage With T1D: Cellist Alisa Weilerstein show art On The World Stage With T1D: Cellist Alisa Weilerstein

Diabetes Connections with Stacey Simms Type 1 Diabetes

Alisa Weilerstein has been living with type 1 diabetes almost as long as she’s been making music. She debuted with the Cleveland Orchestra at age 13, played Carnegie Hall at 15, performed at the White House at 27, and at 29 was awarded the MacArthur Foundation “genius grant” fellowship. She was diagnosed with type 1 diabetes at age 9 and her first concern, of course, was for her fingertips! Alisa speaks to us from Berlin, where she and her family spend half their time. In Tell Me Something Good we share stories about girl scouts stepping up and hearing a Dexcom alarm at the Supreme...

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Staying in the Military After A T1D Diagnosis - Jason Cyr's Story show art Staying in the Military After A T1D Diagnosis - Jason Cyr's Story

Diabetes Connections with Stacey Simms Type 1 Diabetes

Staying in the US Military ater a type 1 diabetes diagnosis isn't easy, but it can be done. Meet Jason Cyr. Diagnosed in 2011 while deployed in Africa, he was able to return to the Army and retire on his own terms a few years later. Jason is an élite cyclist and now a cycling coach. Stacey mentions another veteran who was able to stay on active duty after a type 1 diabetes diagnosis. In Tell Me Something Good diabetes month stuff, a big milestone for the college diabetes network and This podcast is not intended as medical advice. If you have those kinds of questions, please contact your...

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“The Mission Hasn’t Changed At All” - JDRF CEO Aaron Kowalski on the Impact of COVID-19 show art “The Mission Hasn’t Changed At All” - JDRF CEO Aaron Kowalski on the Impact of COVID-19

Diabetes Connections with Stacey Simms Type 1 Diabetes

JDRF began this year by funding more research projects than ever before, but after COVID changed everything, what does the future hold?  We caught up with CEO Aaron Kowalski to ask what their mission to "cure, prevent & treat" type 1 diabetes look like in a time when fund raising is down and the future is unclear. In Tell Me Something Good find out about two contests Stacey is running. One in our FB group (see link below) and the other We're celebrating 1,000,000 downloads!! full of expert advice for managing insulin-dependent diabetes. Terrific for newly diagnosed families or...

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"It's Not Going To Go Away" - The Future of Telemedicine & Diabetes

Diabetes Connections with Stacey Simms Type 1 Diabetes

Have you seen your doctor remotely this year? Turns out that endocrinology is the number one specialty using telemedicine in 2020. We talk to Dr. Peter Alperin from that says about 20% of all medical visits will be conducted via telemedicine this year. We also talk about what this means going forward, how to get the most of a visit when you can't be in person and why the heck doctors' offices still use fax machines! ----- available to Diabetes Connections listeners! ----- Get the App and listen to Diabetes Connections wherever you go!        Episode Transcription...

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The Amazing Race: Leo Brown's Unique Diabetes Story show art The Amazing Race: Leo Brown's Unique Diabetes Story

Diabetes Connections with Stacey Simms Type 1 Diabetes

 Meet Leo Brown from this season of The Amazing Race! He lives with diabetes, but his story isn’t a typical one. Leo was born with congenital hyperinsulinism, where the body makes too much insulin, and had almost his entire pancreas removed. Leo will share his unique story and tell us about running the race with his girlfriend, Alana. In Tell Me Something Good, babies! Weddings! And a football first for someone who’s been kicking t1d every day for a long time. This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care...

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Diagnosed On Halloween: Kelly Kunik Marks Four Decades with T1D show art Diagnosed On Halloween: Kelly Kunik Marks Four Decades with T1D

Diabetes Connections with Stacey Simms Type 1 Diabetes

Halloween can be a challenge for many families touched by diabetes, but just imagine beng diagnosed ON Halloween. That's what happened to Kelly Kunik in 1977. In this "Classic" episode from 2017, Kelly shares her story, her family's unique experience with diabetes, and what led her to Listen to our ----- available to Diabetes Connections listeners! ----- Get the App and listen to Diabetes Connections wherever you go!        Episode transcription: Stacey Simms  0:00 This episode of Diabetes Connections is brought to you by the world's worst diabetes mom real life...

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Ask The D-Moms: Finding Reliable Diabetes News Sources show art Ask The D-Moms: Finding Reliable Diabetes News Sources

Diabetes Connections with Stacey Simms Type 1 Diabetes

This week Ask the D-Moms is back, answering a very different kind of question. How do you know what diabetes news is reliable? Moira McCarthy and Stacey both have backgrounds in professional news media. We’ll talk about medical studies, news sources and, community & social media info. In Tell Me Something Good what do prescription swim goggles have to do with diabetes? Nothing really, but it ties into a new realty tv contest where we spotted a Dexcom. This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider. ----- ...

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Get Insulin.org: A New Get Insulin.org: A New "One Stop Clearing House" For Insulin Access

Diabetes Connections with Stacey Simms Type 1 Diabetes

There's a new way to connect people with diabetes who take insulin with assistance programs. It's a new website from Beyond Type 1 and, of course, it's not without controversy. launched earlier this month, so we asked Thom Scher, the CEO of Beyond Type 1 to come on the podcast. Thom explains what the website is all about, why they started it and how it works. He also answers our questions about why Beyond Type 1 accepts money from insulin makers, what that means for this program and why they teamed up with groups like the NAACP to get the word out. ----- available to Diabetes Connections...

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More Episodes

JDRF’s Children’s Congress kicks off this week and we’re talking to three really incredible delegates. Meet Jack, Hannah, and Kabir who will all tell their stories to legislators. You'll also hear from Stacey's local advocacy chair to find out what Children’s Congress is all about and how to apply next time around.

Join the Diabetes Connections Facebook Group! 

Our Community Connection this week is all about getting diabetes gear to stick in the hot sweaty summer. We’ve got advice from parents of little swimmers and adults who take hot yoga.

Scroll to the bottom to see a list of items/products mentioned during this episode.

In Tell Me Something Good, we’ll talk about a trip of a lifetime as a 16 year old travels to the remote Yukon with a school group. 

 Sign up for our newsletter here

This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider.

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Show Open/Tease

Stacey Welcome - Find out more about Project 50 in 50

JDRF Children's Congress Greater Western Carolinas Chapter Delegates

Community Connection Getting Gear to Stick:

TMSG: 

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This list is full of brand name and generics. I’ve linked to a website when the brand has one. You may also want to try Amazon or ask your medical supply provider. Just as everyone’s skin is different, so is our health insurance. It’s possible that what works for you may actually be covered. Stranger things have happened.

I expect to edit & add to this list in the weeks and months to come. Hope it helps!

Sticky Wipes

These make the skin a bit tacky in order to give the material you put on top a better hold.

Skin Tac wipe or liquid

IV Prep wipe

Mastisol liquid

Stoma Care wipe w/aloe

Hollister skin gel

ReliaMed wipe

Tapes/Patches

Stay Put Medical Patches

Tegaderm film dressing

Opsite Flexifix transparent film

Hypafix dressing tape

RockaDex Dexcom patches

GrifGrips adhesive patch

Waterproof Bandaid

Wraps/Bands

Kinesiology Tape (Includes brand names KT Tape, Rock Tape, Vara Tape)

Vet Wrap

SleekSleeves

Bands4Life

Athletic Sleeves

Rash Guard/Swim shirt (cut to fit)

Misc.

EK Tools Tag Punch Classic (Dexcom-sized hole punch)

Dexcom & Libre Rash (Public Facebook Group)