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JDRF Children's Congress 2019 / Getting Diabetes Gear to Stick

Diabetes Connections with Stacey Simms Type 1 Diabetes

Release Date: 07/09/2019

Pushing for Diversity & Representation Within the Diabetes Community: Anita Nicole Brown show art Pushing for Diversity & Representation Within the Diabetes Community: Anita Nicole Brown

Diabetes Connections with Stacey Simms Type 1 Diabetes

This week.. a frank discussion about the type 1 diabetes community and inclusion. About race and diversity. Actress and model Anita Nicole Brown says people of color are being left behind Buy Stacey's Book: "The World's Worst Diabetes Mom" We talk about how to get more voices in the community.. and better representation at conferences and in leadership. We also talk about working on sets and getting booked for acting jobs with type 1. Join the Diabetes Connections Facebook Group! In Tell Me Something Good.. a bunch of ride and walk milestones to share. One of our TMSG mentions is Dennis who's...

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JDRF & Beyond Type 1 CEOs Explain Their New Alliance  (Bonus Episode) show art JDRF & Beyond Type 1 CEOs Explain Their New Alliance (Bonus Episode)

Diabetes Connections with Stacey Simms Type 1 Diabetes

What happens when two huge diabetes organizations decide to work together? We're all about to find out. Stacey talks to the CEOs of JDRF & Beyond Type 1 about their newly announced "alliance." Buy Stacey's Book - "The World's Worst Diabetes Mom" JDRF's Aaron Kowalski and Beyond Type 1's Thom Scher join Stacey for a talk about why these groups came together and what that means for the diabetes community. Join the Diabetes Connections Facebook Group! More info about the announcement here Sign up for our newsletter here ----- Use this link to get one free download and one free month of...

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"Everyone is an Athlete" - Erik Douds Talks T1D, Motivation & Extreme Sports

Diabetes Connections with Stacey Simms Type 1 Diabetes

Erik Douds has big plans for the next few weeks. First, a 100 mile bike ride through Death Valley next week and then the New York City Marathon. Douds says these events take on a new - unexpected layer when you have type 1: it becomes about community. Buy the Book! The World's Worst Diabetes Mom is on sale now! Erik is partnering with Scott Johnson on the JDRF Death Valley Ride, we'll talk about how the popular community leader got involved. Donate to Erik & Scott's JDRF Ride Plus.. tell me something good! Scholarships and new blogs! Join the Diabetes Connections Facebook Group! This...

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Ask the D-Moms: Managing Halloween With Type 1 Diabetes show art Ask the D-Moms: Managing Halloween With Type 1 Diabetes

Diabetes Connections with Stacey Simms Type 1 Diabetes

Halloween doesn't have to be scary for children with type 1 diabetes or their parents. Moira McCarthy & Stacey are back with Ask the DMoms. They answer your questions about all those bags of candy, lows while kids run around the neighborhood, pumps and d-tech under costumes and much more. Order Stacey's new book - The World's Worst Diabetes Mom In Tell Me Something Good: A good beat and a follow-up that lets us say yes to the question.. is there a doctor in the house? Join the Diabetes Connections Facebook Group! Listen to our previous episode with Kelly Kunik dignosed as a child on...

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Jeffrey Dachis & One Drop: More Than A Meter Company show art Jeffrey Dachis & One Drop: More Than A Meter Company

Diabetes Connections with Stacey Simms Type 1 Diabetes

One Drop made a name for itself with a beautiful design; this summer it became the only diabetes devices in Apple stores. But founder Jeff Dachis says that the mission goes far beyond looking good. Join the Diabetes Connections Facebook Group! Jeff explains all that One Drop does and shares his frightening diagnosis story. We also talk about his past as an early internet innovator. Order Stacey's Book - The World's Worst Diabetes Mom: Real Life Stories of Parenting a Child with Type 1 Diabetes ----- 00:00 What's on this week? Stacey welcome: Stacey mentions that two episodes ago she profiled...

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"Evidence-Based Hope" and Type 1 Diabetes: New Info, New Optimism

Diabetes Connections with Stacey Simms Type 1 Diabetes

Is the news about diabetes better than many of us believe? A deeper look into some important studies with two leaders in the diabetes community. Join the Diabetes Connections Facebook Group! Dr. Bill Polonski of the Behavioral Diabetes Institute and Dr. Steve Edelman, founder of TCOYD and an endocrinologist who lives with type 1, join Stacey to talk about how to go through the evidence that’s sort of hiding in plain sight.. to live well with diabetes. Sign up for our newsletter here Tell me something good: a young woman’s letter to a major clothing company sparks a change – it’s all...

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She Is Not Waiting: Carson & DIY Omnipod Loop:  / Baseball GM Dave Peterson show art She Is Not Waiting: Carson & DIY Omnipod Loop: / Baseball GM Dave Peterson

Diabetes Connections with Stacey Simms Type 1 Diabetes

Would you ask your teenage daughter to be the first to try a new DIY diabetes method? Carson's family did. She's been Looping with Omnipod since last fall; as far as we know, she's the first person to do so. Pre-order the World's Worst Diabetes Mom, Stacey's New Book! We’ll talk about being a loop guinea pig, how her parents are doing and more.  In our Community Connection this week, Stacey talks to Dave Peterson, the GM of the Worcester Bravehearts about his diagnoses with type 1 as an adult. Join the Diabetes Connections Facebook Group! Learn more about Open Omni Learn more about...

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Ask the D-Moms: Type 1 Diabetes at School show art Ask the D-Moms: Type 1 Diabetes at School

Diabetes Connections with Stacey Simms Type 1 Diabetes

This week, it's our Ask the D-Moms back to school edition. We talk about tech in school, schedules, 504s and when your kid only has twenty minutes for lunch. Stacey & Moira McCarthy answer your questions. Join the Diabetes Connections Facebook Group! Plus.. Tell me Something Good with a big brother who steps up, and a pageant appearance that makes a difference Pre-order Stacey's Book: The World's Worst Diabetes Mom! This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider. Sign up for our newsletter here   ----- Use...

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When Type 1 Diabetes Leads to Inspiration: Krishna Kaliannan & Catalina Crunch show art When Type 1 Diabetes Leads to Inspiration: Krishna Kaliannan & Catalina Crunch

Diabetes Connections with Stacey Simms Type 1 Diabetes

Krishna Kaliannan is the founder of Catalina Crunch, a low carb cereal company. But that wasn’t the path he thought he’d take when he was diagnosed with type 1 in high school. In fact, he was so angry about the diagnosis that for a while, he considered ignoring the whole thing: Join the Diabetes Connections Facebook Group! Krishna made his peace – he tells us how – and he wound up creating a line of low-carb crunchy cereals. He also lives with epilepsy.. and shares that story as well. Sign up for our newsletter here In our Community Connection: Sugar Surfing for your doctor, a new...

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Women and Type 1 Diabetes (Full Panel): Real Talk About Periods, Menopause & More (Bonus Episode) show art Women and Type 1 Diabetes (Full Panel): Real Talk About Periods, Menopause & More (Bonus Episode)

Diabetes Connections with Stacey Simms Type 1 Diabetes

This week, Stacey moderates a frank conversation about women’s issues and type 1 diabetes. This episode contains the full panel. Join the Diabetes Connections Facebook Group You'll hear about everything from periods to menopause to appearance issues with diabetes gear. The panel includes Elizabeth Forrest, the founder of Touched by Type 1, the conference where this panel took place, lawyer Risa Katz and Nicole Johnson, who is with JDRF now and was Miss America in 1999.  All the women live with type 1 diabetes. This is the full panel - an excerpt ran in the episode immediately preceding...

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More Episodes

JDRF’s Children’s Congress kicks off this week and we’re talking to three really incredible delegates. Meet Jack, Hannah, and Kabir who will all tell their stories to legislators. You'll also hear from Stacey's local advocacy chair to find out what Children’s Congress is all about and how to apply next time around.

Join the Diabetes Connections Facebook Group! 

Our Community Connection this week is all about getting diabetes gear to stick in the hot sweaty summer. We’ve got advice from parents of little swimmers and adults who take hot yoga.

Scroll to the bottom to see a list of items/products mentioned during this episode.

In Tell Me Something Good, we’ll talk about a trip of a lifetime as a 16 year old travels to the remote Yukon with a school group. 

 Sign up for our newsletter here

This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider.

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Show Open/Tease

Stacey Welcome - Find out more about Project 50 in 50

JDRF Children's Congress Greater Western Carolinas Chapter Delegates

Community Connection Getting Gear to Stick:

TMSG: 

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This list is full of brand name and generics. I’ve linked to a website when the brand has one. You may also want to try Amazon or ask your medical supply provider. Just as everyone’s skin is different, so is our health insurance. It’s possible that what works for you may actually be covered. Stranger things have happened.

I expect to edit & add to this list in the weeks and months to come. Hope it helps!

Sticky Wipes

These make the skin a bit tacky in order to give the material you put on top a better hold.

Skin Tac wipe or liquid

IV Prep wipe

Mastisol liquid

Stoma Care wipe w/aloe

Hollister skin gel

ReliaMed wipe

Tapes/Patches

Stay Put Medical Patches

Tegaderm film dressing

Opsite Flexifix transparent film

Hypafix dressing tape

RockaDex Dexcom patches

GrifGrips adhesive patch

Waterproof Bandaid

Wraps/Bands

Kinesiology Tape (Includes brand names KT Tape, Rock Tape, Vara Tape)

Vet Wrap

SleekSleeves

Bands4Life

Athletic Sleeves

Rash Guard/Swim shirt (cut to fit)

Misc.

EK Tools Tag Punch Classic (Dexcom-sized hole punch)

Dexcom & Libre Rash (Public Facebook Group)