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Diagnosed at Disney World: The Magic of Community

Diabetes Connections with Stacey Simms Type 1 Diabetes

Release Date: 07/16/2019

"I've Never Dwelled On It:" 66 Years of Living Well With Type 1 Diabetes

Diabetes Connections with Stacey Simms Type 1 Diabetes

Jeanne Martin was diagnosed with type 1 diabetes at age ten, in the 1950s. Technology was very different back then, of course, but so was the medical community's reaction. Jeanne was told she would never have children and if she did, she wouldn't live to see her children grow up. Today, Jeanne not only has a daughter, she's also a grandmother. She shares what she’s learned along the way. We also talk to Jeanne's daughter Jessica, who talks about growing up with a parent who has type 1. In Innovations, find out why when it comes to keeping track of long and short acting insulin, a CDE says...

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Learning From A T1D Sibling, Who's Now A Diabetes Educator show art Learning From A T1D Sibling, Who's Now A Diabetes Educator

Diabetes Connections with Stacey Simms Type 1 Diabetes

When Shaina Hatchell's little brother was diagnosed with type 1 at age nine, she knew her life - and her life's goals - had changed forever. She decided she would teach everyone about diabetes when she grew up. Now a registered nurse and certified diabetes educator, In this episode she shares her story and answers listeners questions about teaching kids with T1D all about acceptance. In Tell Me Something Good, cheerleaders and a lot to cheer about and.. our newest segment.. Innovations.. new studies and approval for the latest hybrid closed loop pump systems. .. This podcast is not...

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Minisode #11: Let's Stop Saying: Minisode #11: Let's Stop Saying: "Kid First, Diabetes Second"

Diabetes Connections with Stacey Simms Type 1 Diabetes

It didn't take long after my son was diagnosed for someone to tell us, "Kid first, diabetes second." Benny was diagnosed in 2006, but that phrase has been around a long time in the diabetes parenting community. I get it. We shouldn't take away all the things that make childhood fun and special, because of a diagnoses of T1D. We also don’t want diabetes to be the first thing people think about when they consider our children and we don’t want diabetes to dictate every decision we make. But the more I think about it, more I think that phrase misses the mark. ----- available to Diabetes...

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"Rip It Off and Squeeze It Out" - A New Way to Treat Lows

Diabetes Connections with Stacey Simms Type 1 Diabetes

What do you use to treat lows on the go? One of the newest options is a flexible necklace, filled with 15 grams of fast-acting glucose. The Thrive Glucose Gel Medical Alert Necklace is easy to take with you, rip off and open if you need it. The idea came to first responder Kris Maynard after his own severe low had to be treated by paramedics. His family had tried to use the "red box" emergency glucagon kit but missed a vital step. Kris also shares that one of his teen sons has been diagnosed with type 1 via TrialNet and explains how their family is coping with that knowledge. New segment...

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"Everything in Life Seems Like It's Connected to Food!" Celiac Mom Author Ann Campanella

Diabetes Connections with Stacey Simms Type 1 Diabetes

There's a lot of overlap between type 1 diabetes & celiac disease, including how hard it can be to get a diagnosis. People with T1D are thought to have ten times the risk of developing celiac and even more have a sensitivity to gluten.  Ann Campanella went for years knowing something was wrong with her little girl and being brushed aside until she finally found a doctor who took her seriously. Ann shares her story in and takes some time to talk to us about her story In Tell Me Something Good, The Renegade Run is back and we share a bunch of diaversaries, with some interesting ways...

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Bolus Maximus - Diabetic Men Talk Tough Stuff show art Bolus Maximus - Diabetic Men Talk Tough Stuff

Diabetes Connections with Stacey Simms Type 1 Diabetes

Have you heard of Bolus Maximus? Behind that great name are two men with type 1 looking to bring new resources to the community talk about the tough stuff. This week, Stacey talks to Brandon Denson and Matt Tarro. They share their stories and what they hope to achieve with In Tell Me Something Good, we have a few artists in our audience and some good news for the podcast. This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider. ----- available to Diabetes Connections listeners! ----- Get the App and listen to Diabetes...

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The Baby-Sitters Club & Type 1 Diabetes in Media show art The Baby-Sitters Club & Type 1 Diabetes in Media

Diabetes Connections with Stacey Simms Type 1 Diabetes

The Baby-Sitters Club comes to Netflix! The beloved series features a character who lives with type 1 diabetes. How did the show do portraying life for a 7th grader with T1D? We talk to New York Times Bestselling author and winner of the National Book Award Robin Benway. Robin loved the books as a child and was diagnosed with type 1 as an adult. Also this week, Mike Suarez turned his son’s story into an adorable picture book called In Tell Me Something Good – she had a huge goal for the JDRF rides this year – of course so much had to be cancelled this year but her story took a...

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"We're All Figuring This Out Together" - Improving School Care For Children With Type 1 Diabetes

Diabetes Connections with Stacey Simms Type 1 Diabetes

Back to school is stressful for families touched by diabetes, even without this year's incredible and unique challenges. There’s a new service in development to help make it just a little easier to let someone else take care of your child. Bob Weishar is the founder of a new company called Invincible. We’ll find out more about what he hopes to do and how this teaching and communication tool might help. In Tell Me Something Good.. graduations.. zip lining and sky diving! This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care...

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A Diabetes Game Show! The FFL-Wood Squares show art A Diabetes Game Show! The FFL-Wood Squares

Diabetes Connections with Stacey Simms Type 1 Diabetes

It's our annual game show episode! This year, because of all the Zoom calls, we decided to play the HollyWood Squares! Of course, since this is a show for the Friends for Life Conference (FFL, pronounced Fiffle) we're calling it The FFL-Wood Squares! Huge thanks to our panelists: Kerri Sparling, Edward Hawthorne, Dr. Henry Rodriguez, Chris "The Grumpy Pumper," Moira McCarthy, Renza Scibilia, Oren Liebermann & Cherise Shockley. ----- available to Diabetes Connections listeners! ----- Get the App and listen to Diabetes Connections wherever you go!       ...

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Hydroxychloroquine and Type 1 Diabetes?! Why TrialNet Is Looking Into It show art Hydroxychloroquine and Type 1 Diabetes?! Why TrialNet Is Looking Into It

Diabetes Connections with Stacey Simms Type 1 Diabetes

Before hydroxychloroquine was part of the national Covid conversation, it was being looked at in studies to see if it might help in the prevention of type 1 diabetes. Recently JDRF held a Facebook Live event with Dr. Jane Buckner, where she talked about TrialNet’s Hydroxychloroquine (HCQ) Prevention Study. JDRF was kind enough to share the audio with us for this week's show. ----- available to Diabetes Connections listeners! ----- Get the App and listen to Diabetes Connections wherever you go!        Episode Transcription:  Stacey Simms  0:00 Diabetes...

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More Episodes

It was supposed to be a vacation at the happiest place on earth, instead their daughter was diagnosed with type 1 diabetes at Disney world. But that’s when some unexpected good things started happening.

Join the Diabetes Connections Facebook Group! 

Jim tells us the story – it was July last year – and explains how Disney  and a very cool Disney community - went above and beyond to help this family from Canada when they needed a little magic.

Find out about Touring Plans here

Find out about the Lines app here

Our episode with Len Testa all about using Disney math for type 2 diabetes (and Len's great Disney advice)

Sign up for our newsletter here

In our Community Connection, Stacey talks about dropping her son off at a month-long sleep away camp. She shares how she needed a lift and got it from her local D-mom friends. 

And Tell Me Something Good! Scholarships for college students with type 1, a big thank you and a mountain milestone.

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Show open: What's on this week?

1:30 Welcome - Stacey talks about the Friends for Life Conferences and announces a limited presale of her book! Find out more here (and use promo code "earlybird" until July 23)

7:10 Interview with Jim about his family's experience when their daughter was diagnosed at Disney World

29:10 Community Connection: Stacey shares her experience dropping Benny off at "regular" sleep-away camp.

35:45 TMSG: Beyond Type 1 / Diabetes Scholars awards over 50 scholarships! Learn more here

A dad thanks the security guard that tracked down a diabetes bag left behind after a school trip. 

Follow Project 50 in 50 on their quest to summit the highest spot in all 50 states.


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