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Episode 70: The Gift of Patient Advocate Wisdom

DiepCJourney Podcast

Release Date: 12/11/2024

Episode 96: Breast Sensibility: The Mind/Body Connection show art Episode 96: Breast Sensibility: The Mind/Body Connection

DiepCJourney Podcast

On this episode of the my guest is Dr. Stefania Tuinder, a notable global expert in breast sensation for those undergoing mastectomy and breast reconstruction. Originally from Italy, she is now located in Maastricht in the south of the Netherlands and works at an academic hospital. Her main work there is microsurgery, not only breasts but for sure breasts is where she does the majority of her work. Dr. Tuinder does only autologous breast reconstruction using all kinds of flaps. She has an active research interest in breast sensibility. The word sensibility is often referred to as sensation in...

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Episode 95: Where Passion Meets Surgical Precision show art Episode 95: Where Passion Meets Surgical Precision

DiepCJourney Podcast

As part of my work at , I am able to meet in person, well-known board-certified surgeons across the world. My guest is one such surgeon I know. I have been anxious to interview her. Two words I find myself choosing to describe her are: Adaptable and compassionate. Each time I see her at a conference, the conversation is so easy and comfortable. I can’t think it would be any different with her patients. is a plastic surgeon at the at Magee Women’s Hospital. Topics she covers in our interview include: ·       How she developed her passion for...

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Episode 94: A Breast Reconstruction Journey Toward Clarity & Confidence show art Episode 94: A Breast Reconstruction Journey Toward Clarity & Confidence

DiepCJourney Podcast

Deciding which breast reconstruction path to take is rarely simple. Whether facing an active breast cancer diagnosis, navigating a high‑risk genetic mutation, or having a strong family history of cancer, the process demands research, planning, trust, and a strong circle of support. In this episode of the , we sit down with Marcy Goodman who is a wife, mother, and dedicated professional. She opens up about the many layers of her decision to pursue autologous (using her own tissue) breast reconstruction. Marcy shares how she evaluated her options, found the right surgical team, and ultimately...

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Episode 93: Navigating Healthcare as a Patient Advocate show art Episode 93: Navigating Healthcare as a Patient Advocate

DiepCJourney Podcast

Patient advocacy shows up in so many meaningful ways, and my guest on this episode of the  has been part of my own journey since the very beginning. We first connected back in 2015, when I was just starting to write my blog. She offered guidance, encouragement, and wisdom at a time when I was still finding my footing. I’ve followed her story ever since, and her voice has continued to inspire me and so many others. As a valued member of the DiepCJourney® community, it felt only natural to invite her to share her experience with all of you. I’m delighted to welcome Rebecca Hogue, Becky...

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Episode 92: Completion of  Prophylactic Surgeries show art Episode 92: Completion of Prophylactic Surgeries

DiepCJourney Podcast

Facing a genetic mutation that significantly increases the risk of breast cancer means making decisions that truly feel life‑defining. Today’s guest on the t, Emily Koellner, knows this experience intimately. With a strong family history of cancer, a mutation inherited from her father’s side, and the unwavering support of her two sisters and loved ones, Emily navigated her choices with courage and clarity. Many of you will remember my earlier interview with her sisters about their own prophylactic DIEP flap journeys. Now it’s Emily’s turn to share her perspective, her strength,...

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Episode 91: A Message of Kindness, Gratitude, and Courage show art Episode 91: A Message of Kindness, Gratitude, and Courage

DiepCJourney Podcast

Hi listeners. It’s that time of year when we all take a few of those precious moments between the holidays and starting the New Year to look back, plan ahead, and savor those moments before heading back to work. This is the final  of 2025 and I decided to go solo for the first time since beginning this podcast during the pandemic in January of 2021. Let’s take a look back at what we have provided courtesy of my outstanding guests. I always say, a podcast is only as good as its guests, and I am so lucky to have met them via my podcast and many I have met in person. When I had my in...

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Episode 90: Shared Decision-Making in Healthcare: Insights from Dr. C show art Episode 90: Shared Decision-Making in Healthcare: Insights from Dr. C

DiepCJourney Podcast

We are diving into a conversation that’s close to my heart and vital to the breast cancer community. On this episode of the are going to talk about the term, shared decision-making as it pertains to healthcare and take a deeper dive into its use in breast cancer surgery and breast reconstruction with a returning guest . Dr. C is the CEO of , Director of Professional Relations & Global Partnerships at ,  Founder, , and creator of the . You may have heard previous interviews on the topic of shared decision-making with me and my guest. You may also have seen via our that we are...

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Episode 89: A Holistic Approach to Breast Reconstruction show art Episode 89: A Holistic Approach to Breast Reconstruction

DiepCJourney Podcast

What does it mean to truly heal after breast cancer? In this episode of the , we sit down with of Tucson Plastic Surgery to explore a holistic approach to breast reconstruction—one that goes beyond surgical technique to embrace emotional well-being, shared decision-making, and compassionate care. From honoring each patient’s story to integrating wellness into recovery, Dr. Kurtovic offers insights that empower survivors to reclaim their bodies and their confidence with grace.  Dr. Silvia Kurtovic is part of the team of surgeons at . She works with performing a number of...

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Episode 88: PRMA's TruSense® in Breast Reconstruction for Sensate Breasts show art Episode 88: PRMA's TruSense® in Breast Reconstruction for Sensate Breasts

DiepCJourney Podcast

This  interview was conducted at the practice in San Antonio during Breast Reconstruction Awareness week. discusses PRMA’s and sensation to the breasts. With extensive background training and twenty-five years of experience with the , Dr. Nastala is particularly interested in the sensation of the breast, nerve repair, and optimizing outcomes for their breast reconstruction patients. They achieve this through ongoing research and improvement in surgical techniques at PRMA. He discusses the nerve anatomy of the breasts and some of the limitations of the body’s own ability to...

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Episode 87: The Other 50%: Marcylle Combs on Career, Cancer, And Courage show art Episode 87: The Other 50%: Marcylle Combs on Career, Cancer, And Courage

DiepCJourney Podcast

In the world of podcasting, you meet folks you feel like you’ve known for a while because of your connections, and you’ve only seen them through the lens of your laptop camera. This is the case for my guest on this episode of the , host of the podcast ! Marcylle Combs, MS, RN is an Entrepreneur, Leadership Expert, , Author, and Podcast Host committed to leveraging her experience in empowering individuals to realize their highest potential. She spent over 30 years leading a large healthcare organization, which she owned, operated, and grew from a small home health agency to a...

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More Episodes

This episode of the DiepCJourney podcast is our final edition in 2024. I share a discussion across continents with two women leaders I admire who engage in patient advocacy and the patient story.

Marie Ennis O’Connor is well known for “Journeying Beyond Breast Cancer” a platform where she gathers writers and bloggers sharing their stories across social media platforms. Her journey in patient advocacy began twenty years ago with a diagnosis of breast cancer. Marie poignantly tells us in the interview that,

"We find when we are diagnosed with a serious illness, something is missing. We look around and see who can fix this. I discovered the person who could fix it was me."

Sue Robins , whose patient experience started with a breast cancer diagnosis, has focused her healthcare advocacy based on her son, Erin’s down syndrome. Like Marie, her healthcare advocacy began about twenty years ago. She is a Senior Partner and Patient Consultant at Bird Comm.

I call them both my friends and they grace us with rich information in the realm of storytelling and patient engagement. We take a deep dive and share firsthand experiences, good and bad, about conference attendance, invitations to speak, and how important we feel it is to pass on the wisdom we have learned to the next generation of advocates.

We are filled with nostalgic hope of meeting in person some day in Ireland, Marie’s home country, on the Wild Atlantic Way, the western side of Ireland. It was my favorite area when I visited there in the fall of 2023 and was able to meet Marie in person in Dublin.

Enjoy the final 2024 episode and I look forward to seeing you on the DiepCJourney podcast in 2025 with more exciting guests and topics!! 

Connect with Marie across these platforms:

LinkedIn: https://www.linkedin.com/in/marieennisoconnor/

Facebook: https://www.facebook.com/beyondbreastcancer

Instagram: https://www.instagram.com/marie_ennis_oconnor/

Connect with Sue across these platforms:

LinkedIn: https://www.linkedin.com/in/sue--6609147/

Facebook: https://www.facebook.com/sue.squawk.9

Instagram: https://www.instagram.com/suework/

Books: Birds Eye View and Ducks in a Row