RFK Jr. Lyme Roundtable Follow Up from Lyme Disease Advocates

This is episode 72 of the Love, Hope, Lyme podcast.

To get your free pdf of "Love, Hope, Lyme: What Family Members, Partners, and Friends Who Love a Chronic Lyme Survivor Need to Know," reach out to Fred Diamond on social media.

[NOTE: This podcast does not replace medical treatment. If you struggle with Lyme care, please see a Lyme Literate Medical Doctor.]

Historic Moment for Lyme Advocacy. RFK Jr. Roundtable Reactions & What Comes Next

In this special episode of the Love, Hope, Lyme Podcast, host Fred Diamond, author of Love, Hope, Lyme: What Family Members, Partners, and Friends Who Love a Chronic Lyme Survivor Need to Know, convenes a powerful panel of Lyme advocates, researchers, and survivors to reflect on a pivotal week for the Lyme community.

Just days after the RFK Jr. Lyme Disease Roundtables in Washington, D.C., this episode captures real-time reactions to what many are calling a historic turning point when federal leadership publicly acknowledged chronic Lyme disease, condemned medical gaslighting, and outlined tangible steps toward research, funding, and accountability.

🎙️ Featured Panelists

Ali Moresco – Founder of Moresco PR, Board Chair of Project Lyme, longtime advocate and communications leader in the tick-borne illness space 

Nikki Schultek – Research leader, founder of multiple pathobiome initiatives, Lyme survivor, and board member of ILADEF

Meghan Bradshaw – Executive Director of the Center for Lyme Action, leading federal policy and funding advocacy efforts Together, they discuss:

💚 What made this week’s HHS and White House engagement different from past hearings

💚 Why statements like “Lyme patients will no longer be gaslit” matter—and what must follow

💚 Federal funding, diagnostics, Medicare coverage, and clinical trials

💚 The urgent need for collaboration between government, clinicians, researchers, and advocates

💚 How patients, caregivers, and supporters can turn momentum into lasting change

This conversation is both hopeful and grounded celebrating progress while emphasizing that advocacy, accountability, and action must continue.