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Dr. Kelly Nye-Lengerman on Disability Inclusion & Health Equity

Friends For Life Podcast

Release Date: 10/07/2024

Empowering Lives: Insights from DSP Kelley Shepherd on Advocacy and Personal Growth show art Empowering Lives: Insights from DSP Kelley Shepherd on Advocacy and Personal Growth

Friends For Life Podcast

In this episode of the IDD Health Matters Podcast, Dr. Craig Escudé welcomes Kelley Shepherd, a dedicated Direct Support Professional (DSP) with over 15 years of experience. Kelley shares her perspective on what it means to truly support individuals with intellectual and developmental disabilities (IDD) in living their best lives. From advocating for dignity of risk to respecting personal choices and supporting meaningful growth, Kelley emphasizes the importance of seeing every individual’s unique potential. She shares inspiring stories of empowerment, such as helping individuals explore...

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Ep 232: Empowering Inclusion: Nabil Shaheen on Advocacy and Community Impact show art Ep 232: Empowering Inclusion: Nabil Shaheen on Advocacy and Community Impact

Friends For Life Podcast

In this episode of the Friends for Life Podcast, we sit down with Nabil Shaheen, Community Outreach and Communications Manager for the Lucas County Board of Developmental Disabilities. Nabil shares his journey from journalism and marketing into a role that blends his professional passions with meaningful advocacy work. He discusses the rewarding challenges of shaping the board’s messaging, celebrating the achievements of individuals served, and breaking down stereotypes about government agencies and people with disabilities. Nabil also highlights upcoming events, including the quarterly...

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Deb Davis on Person-Centered Care and Advocacy for Individuals with IDD show art Deb Davis on Person-Centered Care and Advocacy for Individuals with IDD

Friends For Life Podcast

In this heartfelt episode of IDD Health Matters, Dr. Craig Escude sits down with Deb Davis, a dedicated nurse and advocate for individuals with intellectual and developmental disabilities (IDD). Deb shares her inspiring journey into the field of IDD support, reflecting on how she found her calling and became a champion for person-centered care. Deb discusses the challenges of working in this field, including her early experiences, the importance of person-centered thinking, and how she overcame feelings of being unprepared to become an expert through relentless learning and certification with...

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Ep 231: Supporting Caregivers of Individuals with IDD: Insights from Tony Stuart show art Ep 231: Supporting Caregivers of Individuals with IDD: Insights from Tony Stuart

Friends For Life Podcast

In this heartfelt episode of the Friends for Life Podcast, Tony Sttuart speaks directly to parents and guardians of individuals with intellectual or developmental disabilities (IDD). Tony highlights the unique challenges caregivers face—balancing long work hours, providing Direct Care at home, and dealing with unreliable resources—all while striving to ensure the best for their loved ones. Tony shares how Friends for Life goes beyond serving individuals with IDD by also supporting their families, addressing caregiver burnout, and fostering meaningful connections within the community. From...

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Ep 230: Addressing the DSP Workforce Crisis: Rising Wages, High Turnover & Barriers in Disability Services show art Ep 230: Addressing the DSP Workforce Crisis: Rising Wages, High Turnover & Barriers in Disability Services

Friends For Life Podcast

  In this episode of the Friends for Life Podcast, we explore the challenges facing the direct support professional (DSP) workforce, despite recent increases in hourly wages. Although DSPs saw an average hourly wage of $15.79 nationwide in 2022—a historic first—the high turnover rate of over 40% continues to strain disability service providers, who are struggling to maintain adequate staff. Many providers report having to refuse new referrals or reduce services, highlighting the urgent need for sustainable workforce solutions. Temporary support from the 2021 American Rescue...

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Julie Foster Hagan on Advancing Health Equity for Disabilities show art Julie Foster Hagan on Advancing Health Equity for Disabilities

Friends For Life Podcast

In this episode of the IDD Health Matters Podcast, host Dr. Craig Escudé is joined by Julie Foster Hagan, Louisiana’s State Director of Developmental Disability Services. Recorded live from the NASDDDS conference, Dr. Escudé and Julie discuss the vital work being done to enhance health equity and employment opportunities for individuals with intellectual and developmental disabilities. Julie shares insights into Louisiana’s health equity initiatives, including a strategic focus on data collection and the role of Health Equity Action Teams within the state’s Department of Health. She...

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Ep 229: Finding Purpose Through Direct Support: A DSP’s Journey of Care, Growth, and Music show art Ep 229: Finding Purpose Through Direct Support: A DSP’s Journey of Care, Growth, and Music

Friends For Life Podcast

In this episode of the Friends for Life Podcast, our guest shares a heartfelt journey into the world of Direct Support, highlighting the deep connections he’s built with those he cares for and the personal growth he’s experienced. Since starting his career nearly two years ago, he’s not only found joy in supporting others but has also received support himself, especially in pursuing his dream of becoming a radiology technician. He explains how the job has equipped him with resources for schooling and even scholarships, emphasizing the power of community and opportunity in his workplace....

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Ep 228: Rising Autism Diagnoses: Understanding the 175% Increase and Its Impact on Healthcare show art Ep 228: Rising Autism Diagnoses: Understanding the 175% Increase and Its Impact on Healthcare

Friends For Life Podcast

In this episode of the Friends for Life Podcast, we dive into recent research that reveals a striking rise in autism diagnoses across the United States, up by 175% over the last decade. This increase spans all age groups, but some groups are experiencing even higher rates, especially young adults and minority children. The study, published in JAMA Network Open, shows autism prevalence has more than doubled since 2011, underscoring the need for better awareness and support systems. Lead researcher Luke Grosvenor suggests that while universal developmental screenings may account for part of this...

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Mary Brogan on Advancing Developmental Disability Services and Medicaid Waiver Programs in Hawaii show art Mary Brogan on Advancing Developmental Disability Services and Medicaid Waiver Programs in Hawaii

Friends For Life Podcast

In this episode of IDD Health Matters, Dr. Craig Escudé welcomes Mary Brogan, the state director for developmental disability services in Hawaii. Mary shares her extensive experience managing programs that impact individuals with intellectual and developmental disabilities (IDD), including the oversight of the 1915(c) Medicaid Waiver and neurotrauma services. She highlights the unique challenges of providing dental care and the importance of accessible health services tailored to meet the needs of people with IDD in Hawaii. Mary and Dr. Escudé dive into the critical importance of...

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Ep 227: How Political Ads Impact the IDD Community show art Ep 227: How Political Ads Impact the IDD Community

Friends For Life Podcast

In this episode of the Friends for Life Podcast, Tony Stuart dives into the effects of political ads on the individuals within the IDD community. Drawing on his extensive experience as a Direct Support Professional (DSP), Tony reflects on how divisive messages in the media can impact those with intellectual and developmental disabilities, often causing confusion and frustration. He encourages a focus on humanity over politics, stressing the importance of helping individuals exercise their right to vote while maintaining a respectful, open-minded approach to differing beliefs. Tony shares...

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Join Dr. Craig Escudé on IDD Health Matters as he welcomes Dr. Kelly Nye-Lengerman, a seasoned social worker and the Director at the University of New Hampshire's Institute on Disability. In this episode, Dr. Nye-Lengerman delves into her work at the institute, focusing on increasing inclusion and belonging across the lifespan and experiences of disability. With a rich background in both direct support and academic leadership, she offers a unique perspective on the intersection of intellectual disability and mental health, emphasizing the importance of community-based support systems and professional education to improve the quality of life for people with disabilities.

Dr. Nye-Lengerman shares the challenges and strategies involved in enhancing health equity through her involvement with the START National Training Institute, which aims to advance practices that support individuals and families in the most inclusive and equitable ways possible. This conference, enriched by contributions from people with lived experiences and community partners, showcases the significant progress being made in the field. The conversation also touches on the common misinterpretations of behavioral symptoms as mental health issues, highlighting the necessity of recognizing underlying medical conditions which can be treated to prevent unnecessary suffering.

The episode concludes with a powerful discussion on the role of direct support professionals and the critical need for proper training and recognition of this workforce to achieve real inclusion and participation for people with intellectual and developmental disabilities. Dr. Nye-Lengerman's passionate advocacy for equitable health care and her belief in the transformative power of inclusive higher education shine through, offering valuable insights and inspiring listeners to consider the deep impact of educational and support systems in enhancing the lives of people with disabilities.