189. BRCA: Understanding Risk and Reclaiming Control (in partnership with JScreen)
Talking Away the Taboo with Dr. Aimee Baron
Release Date: 12/11/2025
Talking Away the Taboo with Dr. Aimee Baron
In this episode of Talking Away the Taboo, Dr. Baron is joined by Hadassah Eventsur, an occupational therapist and life coach, for a deeply needed conversation about neurodiversity in Jewish life, and how that contributes to a smaller family size. Hadassah reached out to name something many women feel but struggle to articulate: the pain of wanting a large family while knowing that undiagnosed ADHD or other neurodivergent traits make the day-to-day demands of parenting feel overwhelming or unsustainable. Dr. Baron names this experience as circumstantial infertility, where...
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In this episode of Talking Away the Taboo, Dr. Baron is joined again by Pam Krooth as they pick up right where their first conversation ended, the moment Pam received the call about a little boy available for adoption. Pam shares her experience adopting her son, David, from Ethiopia, including the emotional weight of the legal process, the heartbreak of separation during visa delays, and the realities of bringing a young child into a new country, culture, and family. She reflects on the importance of ethical adoption practices, thorough preparation, and honest self-assessment before choosing...
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In this episode, Aimee sits down with Amanda Bryk, a new IWSTHAB board member, to talk honestly about miscarriage, anxiety, and the complicated reality of building a family after loss. Amanda shares her first miscarriage and the shock of learning there was no heartbeat at an early ultrasound, navigating that moment without her husband Darren present due to residency, and the emotional weight of making decisions no one prepares you for. As her losses continued, Amanda opens up about how anxiety followed her into subsequent pregnancies and how grief doesn’t disappear just because you go on to...
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In this episode, Tamar and Giddy share their story - how they met, fell in love, and built a marriage shaped by multiple losses, 11 rounds of IVF, and the constant waiting that comes with not knowing what’s next. They talk openly about how infertility impacts a marriage, how they learned to support each other while grieving differently, and the role therapy, creativity, faith, and community played in helping them survive the most challenging moments. Tamar also shares how their Instagram page, Tales of Tamar, became a creative outlet and source of connection during COVID — and how telling...
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This episode brings together the science, the medicine, and the lived experience behind BRCA mutations. Emily Goldberg, JScreen’s Director of Genetic Counseling Services, breaks down what these mutations are, how they’re inherited, and what the actual cancer risks look like. Dr. Melissa Frey, a GYN oncologist at Cornell who works closely with high-risk families, walks us through what happens after someone tests positive — from screening to risk-reducing surgeries to the big conversations around fertility and timing. We also hear from Heather Boussi, who shares her powerful story of...
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Like so many, Pam Krooth, LCSW, spent years trying not to get pregnant, only to find herself aching for the thing she once assumed would come easily. What followed was a long, emotional road marked by pain, heartbreak, and the slow, painful shift between expectation and reality. Throughout Pam’s story, we see how the path to the family she hoped for looked nothing like what she once imagined, and how hard it was when the timing was out of her control. After infertility, postpartum depression, and a miraculous adoption, she found her way to a different kind of motherhood, which reminds...
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and More about Tamara Stein (J.D.): Tamara is originally from Sacramento, CA, but has been living on the East Coast and in the Midwest for well over a decade. She moved to the Upper West Side of New York City in 2023 to create Base UWS, a pluralistic, diverse, vibrant Jewish community for 20s and 30s out of her and her husband Danny's home. Tamara is a lawyer who received her J.D. from Suffolk University in Boston, MA. On top of helping to run Base UWS, Tamara currently works full-time as the Deputy Director at Mayday Health, a non-profit that educates folks on medication abortion and how...
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What happens when you have a profound loss, but no grave to visit? In this episode, Danielle shares her unique fertility journey — one that challenges our assumptions about what “fertility struggles” look like. From the joy of welcoming her third child to the unexpected trauma that followed, Danielle opens up about grief that doesn’t come with a funeral, the profound loss of her ability to have more children, and the moments when her pain felt invisible. We explore how her body carries memory and trauma, how medical care and community influenced her recovery, and the ways...
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Infertility isn’t only a women’s issue, though too often, it’s talked about like it is. In this episode, we’re digging into male factor infertility: what it means, how it’s diagnosed, and how it impacts couples emotionally, physically, and relationally. We’re joined by Paul Kassebaum, a quantum physicist, and his wife Julia Cohen, an economist, who live in Westchester, NY. In 2021, their family-building journey took an unexpected turn with a diagnosis of male factor infertility. They open up about the medical and emotional twists and turns of their path, and why they hope sharing...
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Briana Felsen’s path to motherhood was anything but straightforward. When she learned she was a BRCA carrier, everything changed—her sense of time, her plans for the future, and her relationship with her own body. Facing a 72% lifetime risk of breast cancer, she found herself racing against the clock to build her family before needing preventative surgery. What followed was a fertility journey deeply intertwined with Jewish time—the holidays marking both medical milestones and heartbreaks. From an ectopic pregnancy on the High Holidays to finally learning she was pregnant on...
info_outlineThis episode brings together the science, the medicine, and the lived experience behind BRCA mutations.
Emily Goldberg, JScreen’s Director of Genetic Counseling Services, breaks down what these mutations are, how they’re inherited, and what the actual cancer risks look like. Dr. Melissa Frey, a GYN oncologist at Cornell who works closely with high-risk families, walks us through what happens after someone tests positive — from screening to risk-reducing surgeries to the big conversations around fertility and timing.
We also hear from Heather Boussi, who shares her powerful story of living with both BRCA1 and BRCA2 mutations. She talks about diagnosis, surveillance, surgeries, and how this all shaped her family-building decisions.
Lastly, we look at what BRCA means for men, how that journey differs, and why PGT can still be an option.
If you or someone you love is navigating this, we close with places to turn for support: JScreen, Sharsheret, I Was Supposed To Have A Baby, and Stardust (links below). It’s a mix of expertise, honesty, and heart — the kind of conversation so many people wish they had heard earlier, especially when faced with such difficult decisions.
Note: This episode is the 4th of a series of 5 that we are collaborating on with Jscreen in 2025.
Take a look at our previous three episodes here :
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Episode 157: Introduction to Genetics and Infertility
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Episode 166: Fragile X Syndrome: A Silent Factor in Infertility
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Episode 185: It’s Not Just Her: Male Factor Fertility and Genetics Uncovered
Resources:
More about Emily Goldberg:
Emily Goldberg serves as the Director of Genetic Counseling Services at jscreen, where she is dedicated to helping individuals understand and manage their genetic health. With dual bachelor’s degrees in biology and psychology from Brandeis University and a master’s degree in Human Genetics from Sarah Lawrence College, Ms. Goldberg has been a certified genetic counselor since 2011. Prior to joining jscreen, she worked at Montefiore Medical Center in the Bronx, specializing in prenatal and cancer genetics. In addition to her role at jscreen, Ms. Goldberg is committed to education, serving as an Instructor at the Albert Einstein College of Medicine and adjunct faculty at Sarah Lawrence College, where she teaches and mentors future genetic counselors. Her expertise and dedication make her a key member of the jscreen team.
- visit their website here
- check out their Instagram
More about Melissa Frey, MD:
Dr. Melissa Frey is an Associate Professor of Obstetrics and Gynecology in the division of Gynecologic Oncology and the Director of the Genetics and Personalized Cancer Prevention Program at Weill Cornell Medicine / NewYork Presbyterian Hospital. Dr. Frey’s clinical care and research focus on the management of individuals with hereditary cancer syndromes (e.g. BRCA1, BRCA2, Lynch syndrome) and strong family history of breast and gynecologic cancers. She performs gynecologic cancer risk-reducing surgeries and is the principal investigator on several large trials aimed at cancer prevention among high-risk individuals. Dr. Frey has presented her research at national and international meetings and has more than 130 publications in peer-reviewed scientific journals.
Connect with Dr. Melissa Frey:
- check out her Instagram
- view the Genetics and Personalized Cancer Prevention Program website
More about Heather Boussi :
Heather grew up in Westchester, NY and now lives in Englewood, NJ with her husband and three children. Her personal experience with hereditary cancer risk and genetic testing has made her a passionate advocate for awareness, education, and empowerment in women’s health. Grounded in faith and family, Heather shares her story to help others approach life’s challenges with strength, perspective, and gratitude.
Connect with Heather:
- check out Heather’s Instagram and connect with her via email
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