Living with Multiple Myeloma: Updates on treatment approach for Multiple Myeloma, now and into the future.
Living with Multiple Myeloma podcast
Release Date: 06/28/2021
Behind the Blood: The Caregiver’s experience of blood cancer
Living with Multiple Myeloma podcast
In this podcast Orlaith Cormican a PhD student and Nurse chats with Maire Treasa and shares her findings from the research she undertook over the last number of years exploring psychosocial vulnerability in caregivers of individuals with a chronic blood cancer. She talks about the impact that caring for someone has on all aspects of a caregivers life, the life adjustment and the crucial role they play on the patient journey. She also talks about caregivers who are potentially more at risk of becoming psychosocially vulnerable and the need to include caregivers as part of the...
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Title – Living with Myeloma - A Spouse Perspective
Living with Multiple Myeloma podcast
In this engaging podcast, Marie Treasa Ni Cheallaigh chats to Ally Bryne, whose husband was diagnosed with Multiple Myeloma in 2021. Sharing her family's experience, they discuss everything from diagnosis to fundraising to spreading awareness and the impact of Michael’s diagnosis has had on their young family. Thanks for listening Multiple Myeloma Ireland:
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Living with Cardiac AL Amyloidosis, a personal journey from Michael Bond, Galway native, retired teacher and renowned Ex- Offaly hurling manager
Living with Multiple Myeloma podcast
In this podcast, legendary hurling manager Michael Bond, shares his experience of living for a number of years with cardiac AL amyloidosis. Chatting with our host MT, Michael outlines his previous cardiac health, and how he initially attributed his symptoms including shortness of breath to his underlying condition. Michael talks about the importance of advocating for one’s own health and pushing for further investigations when symptoms persist. He candidly shares his journey from diagnosis to treatment, and his visits to the Royal Free AL Amyloidosis centre, Uk. He explains how the treatment...
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The Family - Coping with Multiple Myeloma
Living with Multiple Myeloma podcast
In this podcast, Maire Treasa Ní Cheallaigh chats to sisters Rachel and Laura, whose mum was diagnosed with multiple myeloma in 2016. Sharing their experiences, they discuss everything from the initial shock of the diagnosis, to the limited information available for families of myeloma patients, touching on important issues such as patient autonomy, supporting someone close to you with myeloma, and the emotional impact that comes with a loved one receiving a multiple myeloma diagnosis. Thanks for listening. Multiple Myeloma Ireland:
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Living with Amyloidosis- Diagnostic & referral pathway for Irish patients to the National Amyloidosis Centre in the UK
Living with Multiple Myeloma podcast
In this podcast, Episode 1 of the 2nd Series and our second in the Living with Amyloidosis series, Darren Foard and Angelique Smit, nurse experts from the Royal Free Hospital in London, provide an excellent overview of Amyloidosis focussing on disease symptoms, the patient's journey and diagnostic investigations to confirm AL Amyloidosis. They discuss their role in assisting patient navigate their diagnosis and outline the referral pathway for Irish patients for further investigation at the National Amyloidosis Centre at the Royal Free Hospital in London. Amyloidosis management...
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An excellent overview of effective treatments in Multiple Myeloma - Prof O’ Dwyer
Living with Multiple Myeloma podcast
In this podcast Prof O’ Dwyer provides an excellent overview of effective treatments in Multiple Myeloma. He has seen the development of many new drugs leading to improved survival in MM patients over his career and he discusses these in detail. He highlights the role of the immune system and the development of immunomodulatory agents to treat Myeloma. Prof O’Dwyer explains the treatment options at diagnosis and the decision making process regarding treatments at relapse. Drugs discussed include Thalidomide, Lenalidomide and Pomalidomide , Bortezomib, Carfilzomib, Bi Specific antibodies...
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Amyloidosis a protein problem - Dr. John Quinn
Living with Multiple Myeloma podcast
In this podcast Dr John Quinn explains how AL Amyloidosis, a rare illness which is not fully understood, can often be tricky to diagnose. Early diagnosis, however, is key to minimise organ damage and treatments have improved over the past 10 years with high response rates piggybacking off myeloma treatments. There is no typical Amyloidosis patient and many may have been feeling unwell for 9-12 months before a diagnosis is made. Symptoms of Amyloidosis vary among patients and include generalised tiredness, weight loss, feeling lightheaded, numbness or a tingling feeling in hands or feet,...
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Living with Multiple Myeloma: Michael O’Regan, Journalist and Broadcaster personal journey of Living with Multiple Myeloma
Living with Multiple Myeloma podcast
In this final podcast of the series, Journalist, ex-Irish Times correspondent, Kerryman, and Multiple Myeloma patient Michael O’Regan discusses his experience of living with the condition.
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Living with Multiple Myeloma: Updates on treatment approach for Multiple Myeloma, now and into the future.
Living with Multiple Myeloma podcast
In this podcast Professor Siobhan Glavey, provides an update of the rapid developments in managing Multiple Myeloma.
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Living with Multiple Myeloma: Emotional Adjustment and Coping
Living with Multiple Myeloma podcast
In this podcast Dr Norma Jean Murphy, Chartered Senior Clinical and Counselling Psychologist, chats to Maire Treasa about overcoming the overwhelming reactions patients may feel at diagnosis of Multiple Myeloma from shock, disbelief, anger, sadness, loss and for some relief they finally have a diagnosis particularly as many patients may have been unwell for some time.
info_outlineIn this podcast Professor Siobhan Glavey, provides an update of the rapid developments in managing Multiple Myeloma.
Professor Glavey explains how the future has never been more hopeful as significant improvement in treatment options has resulted in unprecedented progression free survival (PFS).
Today not only are patients living longer, they have a healthier quality of life. Professor Glavey explains the many variables in managing myeloma and the importance of a personalised approach, using the right drugs with the right patient. In her discussion with Maire Treasa she outlines the many factors that influence the decision to treat a patient including patient related factors and treatment related factors.
She describes the findings from clinical trials and gives an overview of the results presented at the American Society of Haematology (ASH) annual conference. She explains how for patients who are transplant eligible the results at ASH confirm transplant is here to stay, as 3 year PFS was better in those who received a transplant.
In addition, Prof Glavey explains for transplant ineligible patients, effective treatments have also resulted in increased PFS. She explains how 3 drug combinations is standard today in Ireland for the majority of patients. However, in the future 4 drug combinations will be used with each drug having a different mechanism of action to treat the disease. No one size of treatment fits all and it is important to consider different drugs or different drug doses when treating individual patients and managing side effects.
She explains there is no wonder drug, she highlights the importance of availability of clinical trials for our patients and the importance of continually pushing the boundaries. Prof Glavey outlines how we have a good repertoire of drugs with many more still to come including antibody drug conjugates. The future is brighter as we work together to treat Multiple Myeloma.
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