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Overcoming MS Charity Updates with CEO Alex Holden | S6E2

Living Well with Multiple Sclerosis

Release Date: 01/24/2024

Webinar Highlights: Your opportunity to ask a qualified nutritional therapist about the Overcoming MS diet with Sam Josephs | S6E8 show art Webinar Highlights: Your opportunity to ask a qualified nutritional therapist about the Overcoming MS diet with Sam Josephs | S6E8

Living Well with Multiple Sclerosis

In this episode, we are sharing highlights from our webinar, ‘Your opportunity to ask a qualified nutritional therapist about the Overcoming MS diet’ with Sam Josephs. Sam is a qualified nutritional therapist and Overcoming MS facilitator. In this episode, she discusses fasting patterns, tips for Overcoming MS-friendly meals on a budget and how to prevent weight loss. Keep reading for the key episode takeaways. Topics and Timestamps: 02:40 Can fasting help you reduce inflammation? 05:58 How much calcium is safe for you with high doses of vitamin D3? 08:11 Comparing benefits: flax oil...

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Mindfulness with MS Nurse and Overcoming MS Facilitator, Sue Tibbles | S6E7 show art Mindfulness with MS Nurse and Overcoming MS Facilitator, Sue Tibbles | S6E7

Living Well with Multiple Sclerosis

Welcome to Living Well with MS, where we are pleased to welcome Sue Tibbles as our guest! Sue is an MS nurse and Overcoming MS facilitator who follows the Program. She is a qualified mindfulness teacher with a Master’s in Mindfulness from the University of Aberdeen. In this episode, she discusses tips for setting up a mindfulness practice, the role of stress and MS and shares some different mindfulness practices. Watch this episode on YouTube . Keep reading for the key episode takeaways. Topics and Timestamps: 01:19 Sue’s stress-related MS diagnosis. 05:59 Navigating the difficulties...

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Advanced cell therapy for progressive MS with Dr Stefano Pluchino | S6E06 show art Advanced cell therapy for progressive MS with Dr Stefano Pluchino | S6E06

Living Well with Multiple Sclerosis

Welcome to Living Well with MS, where we are pleased to welcome Dr Stefano Pluchino as our guest! Dr Pluchino is a Professor of Regenerative Neuroimmunology at Cambridge University and has been researching stem cell therapy for progressive MS. In this episode, Dr Pluchino speaks to Geoff about what advanced cell therapy is, the success of his phase one trial and what the future of DMTs looks like indicating what people with MS may experience. Watch this episode on YouTube . Keep reading for the key episode takeaways. Topics and Timestamps: 01:31 Dr Pluchino’s background and research...

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Change your life, for life with health coach Laura Crowder | S6E05 show art Change your life, for life with health coach Laura Crowder | S6E05

Living Well with Multiple Sclerosis

Welcome to Living Well with MS, where we are pleased to welcome Laura Crowder as our guest! Laura is a health coach and recently joined the Overcoming MS team as an Overcoming MS facilitator. In this episode, she talks to Geoff about what the ‘Change your life for life’ pillar means, how to make lifestyle changes easier to adopt and the importance of looking at your overall lifestyle. Watch this episode on YouTube . Keep reading for the key episode takeaways. Topics and Timestamps: 01:02 Intro: Laura’s MS diagnosis. 02:08 Laura’s new role as an Overcoming MS facilitator. 03:48...

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Webinar Highlights - Mental Health and Wellbeing with MS with Michelle Overton | S6E04 show art Webinar Highlights - Mental Health and Wellbeing with MS with Michelle Overton | S6E04

Living Well with Multiple Sclerosis

In this episode, we are sharing highlights from our webinar, ‘Mental Health and Wellbeing’ with Michelle Overton. Michelle is a qualified counsellor and Mental Health First Aid Instructor Trainer. She discusses the impact of life’s challenges on your mental health, coping mechanisms for stress and her top self-care tips. You can watch the original webinar . Keep reading for the key episode takeaways. Topics and Timestamps: 01:03 Michelle shares her own mental health journey. 06:05 How does mental health shape your self-esteem and confidence? 08:27 The impact of life's challenges on your...

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Career and Employment with MS with Yasmin Neves | S6E3 show art Career and Employment with MS with Yasmin Neves | S6E3

Living Well with Multiple Sclerosis

Welcome to Living Well with MS, where we are pleased to welcome Yasmin Neves as our guest! Yasmin is an HR professional and recently joined the Overcoming MS team as a facilitator through our ‘Train the Trainer’ programme. In this episode, she talks to Geoff about topics to help you with your work: navigating work with MS, how to talk to your employer about your MS, taking time off work for MS and the pros and cons of being self-employed after an MS diagnosis. Watch this episode on YouTube . Keep reading for the key episode takeaways. Topics and Timestamps: 01:11 Intro: Yasmin’s MS...

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Overcoming MS Charity Updates with CEO Alex Holden | S6E2 show art Overcoming MS Charity Updates with CEO Alex Holden | S6E2

Living Well with Multiple Sclerosis

Welcome to Living Well with MS, where we are thrilled to bring you our 150th episode! Donations make our podcasts possible – so we’d like to take the opportunity of this milestone to ask if you could . As we mark this significant milestone, we are pleased to welcome Overcoming MS CEO, Alex Holden as our guest. Alex joined Overcoming MS in March 2023 and, during her time at the Charity, has completed a lot! In this episode, she talks to Geoff about meeting the Overcoming MS community, her experience at the ECTRIMS conference (the world’s largest research meeting in multiple...

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Motivation to follow the Program with Claire and Nev Dean | S6E1 show art Motivation to follow the Program with Claire and Nev Dean | S6E1

Living Well with Multiple Sclerosis

Happy New Year! Welcome to season 6 of Living Well with MS. We are excited to kick off the new season with the musicians of our fantastic, brand-new theme tune, Claire and Nev Dean. Claire was diagnosed with MS in 1999 and has been following the Overcoming MS Program since 2008, her husband Nev also follows the Program even though he doesn’t have MS. They generously wrote a new theme tune just for the Living Well with MS podcast. We really enjoyed speaking with them about their experience following the Overcoming MS Program, Claire’s passion for physical activity and hearing from Nev about...

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Sophrology for MS with Audrey Zannese | S5E38 show art Sophrology for MS with Audrey Zannese | S5E38

Living Well with Multiple Sclerosis

Welcome to Living Well with MS, where we are pleased to welcome Audrey Zannese as our guest! Audrey is a mindfulness expert living with MS and specialises in the relaxation method, sophrology. This practice has helped her to live well with MS. She talks to Geoff about her MS journey, what sophrology is and the research behind it. At the end of the episode, Audrey gives a guided sophrology practice. Watch this episode on YouTube . Keep reading for the key episode takeaways. Topics and Timestamps 01:19 Audrey’s MS journey. 05:25 Managing stress. 08:19 The origins of sophrology. 11:22 The aims...

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Dying Well with filmmaker Krystina Christiansen | S5E37 show art Dying Well with filmmaker Krystina Christiansen | S5E37

Living Well with Multiple Sclerosis

Welcome to Living Well with MS, where we are pleased to welcome Krystina Christiansen as our guest! Krystina is a filmmaker who has recently finished a documentary about an end-of-life letter she found, written by a man with MS. Overcoming MS wants everyone to live a full and healthy life with MS, but it is inevitable that everyone, with or without MS, will pass away. It is therefore unhelpful that death is often a taboo subject. Krystina talks to Geoff about healthy ways to think about your own mortality, her new film, ‘Dear Brandon’ and planning ahead for your end of life,...

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More Episodes

Welcome to Living Well with MS, where we are thrilled to bring you our 150th episode! Donations make our podcasts possible – so we’d like to take the opportunity of this milestone to ask if you could support us.

As we mark this significant milestone, we are pleased to welcome Overcoming MS CEO, Alex Holden as our guest. Alex joined Overcoming MS in March 2023 and, during her time at the Charity, has completed a lot! In this episode, she talks to Geoff about meeting the Overcoming MS community, her experience at the ECTRIMS conference (the world’s largest research meeting in multiple sclerosis) and the exciting plans for the Overcoming MS charity!

Watch this episode on YouTube here. Keep reading for the key episode takeaways.

Topics and Timestamps:

01:17 Learn about Alex’s background, expertise and how she became CEO of Overcoming MS.

03:30 Alex’s view of the most compelling pillars of the Overcoming MS Program and changing your lifestyle based on evidence.

04:46 The mental and physical benefits of wild swimming.

05:56 Meeting the resilient and hopeful Overcoming MS community.

07:58 Abseil off the ArcelorMittal Orbit and other ways to support Overcoming MS.

10:22 How she keeps busy with her teenagers outside of work.

11:23 In-person Overcoming MS events taking place in 2024 you might like to attend.

14:15 Join the Live Well Hub – the Overcoming MS app – where over 2,000 community members are already sharing tips and advice.

17:43 Alex’s experience at the largest MS research conference in the world, the 2023 ECTRIMS conference (European and American Committees for Treatment and Research in Multiple Sclerosis).

21:06 Future plans for the Overcoming MS charity.

Selected Key Takeaways:

Put respect for individuals at the forefront.
02:32 “Everybody needs respect, no matter what struggles they have, no matter what they've gone through. Understanding people's situations are so individual to them, I think that's shaped where I've gone with the rest of my career.”

Your diet can contribute to your well-being and energy.
03:42 “I've always been very interested in nutrition. At one point I did consider training as a nutritional therapist. So that's something that I'm really passionate about the importance of diet and how that contributes to your wellbeing rather than taking things out of your diet, how you look at what's contributing to energy.”

One of the main reasons Alex was drawn to Overcoming MS was because of the community 
06:42 "It is such a strong community and a very giving community. People who have had really quite devastating news are managing to give each other so many levels of support, tips, positivity and hope. To be part of that community and amongst those people who have that mindset, I feel very fortunate.

As an organisation, we're really small. We are absolutely dependent on people who are in our Circles, our Ambassadors, and people fundraising for us. There are only twelve staff members, and most of us are part-time; the only way we can support a global community is through the community themselves.”

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