249: Changing the Narrative on Disabilities in Kenyan Society | Thitu Muiruri, Filmmaker, Writer, & Director
Parenting Impossible – The Special Needs Survival Podcast
Release Date: 09/19/2024
262: Patient vs. Profit: The Shooting That Exposed a Broken Healthcare System
Parenting Impossible – The Special Needs Survival Podcast
The healthcare system is a battleground where profits often triumph over patient needs. In this episode of Parenting Impossible, I take a closer look at our profit-driven healthcare system after the assassination of UnitedHealthcare CEO Brian Thompson. Financial goals often outweigh patient care, with rising denials for essential treatments and CEO compensation tied to profits—creating a troubling conflict of interest. As a mom who fought tirelessly for my daughter’s Medicaid support, I know firsthand how broken this system is for families just trying to get the care they need. It...
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261: Ending the Year Strong: Securing a Well-Managed Financial Future
Parenting Impossible – The Special Needs Survival Podcast
As the calendar year draws to a close, end-of-year planning becomes essential for individuals seeking to secure their personal and financial futures. In this episode of Parenting Impossible, I dive into the importance of taking control of your finances with a proactive mindset. Instead of getting stuck on setbacks, I encourage you to focus on celebrating your wins and using them as a foundation to move forward. I share practical tips on keeping your asset lists and important documents, like letters of intent, up to date—not just to avoid legal issues but to simplify life for you and your...
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260: The Impact of Authentic Representation of Disabilities in Hollywood | Jay Silverman, Filmmaker, Director, & Producer
Parenting Impossible – The Special Needs Survival Podcast
Filmmaking celebrates human connection and inclusiveness, with on-set moments of support and camaraderie often shining through on screen. Hollywood’s push to include actors with disabilities is opening doors to fresh stories and perspectives, making the industry more inclusive and inspiring. In this episode of Parenting Impossible, Annette Hines speaks with filmmaker Jay Silverman about his latest film, . Inspired by his journey as a parent to a child with disabilities, the poignant story follows a young mute child in a fishing village. Through its use of the camera as a metaphor for...
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259: Healing After Heartbreak: A Guide to Coping with Grief During the Holidays
Parenting Impossible – The Special Needs Survival Podcast
Grief is an unpredictable force that reshapes life, much like crashing waves. In this episode of Parenting Impossible, I open up about my journey through grief and coping with the profound loss of my daughter, Elizabeth. There is no "right" way to grieve—it’s a deeply personal journey, and being gentle with yourself is important as you work through the pain. During the holidays, grief can feel especially heavy. Finding ways to incorporate your loved one’s presence into your celebrations can bring a sense of connection and help you find moments of joy and peace amidst the sorrow. By...
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258: A Guide to Trustee Selection & Protectors
Parenting Impossible – The Special Needs Survival Podcast
Special needs trusts are an essential tool for families who want to ensure the long-term financial security of their loved ones with disabilities. However, I know firsthand how overwhelming and confusing navigating the world of trusts can be. In this episode of Parenting Impossible, I break down the essentials of special needs trusts in an accessible way. I share practical tips for choosing the right trustee and explain their responsibilities. Trustee’s are important—not just in managing the trust, but in making sure the beneficiary continues to receive the care and services they need. My...
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257: Why Caregiving Moms Deserve Community & Care | Jessica Patay, Author, Founder, & Executive Director at We Are Brave Together
Parenting Impossible – The Special Needs Survival Podcast
Being a caregiver can be tough and sometimes lonely. For caregiving moms, having a sense of community and connection is essential. Whether it's sharing tips on managing hectic schedules or simply lending an empathetic ear, having a supportive network of fellow moms can make all the difference in navigating the challenges of motherhood. In this episode of Parenting Impossible, Annette Hines sits down with Jessica Patay, founder of We Are Brave Together. Inspired by her journey as a special needs mom, Jessica established the nonprofit in 2017 to create a safe, judgment-free space where...
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256: How to Support Children in Times of Crisis | Celia Landman, Author, Nonviolent Communication Trainer, Mindfulness Educator & Counselor
Parenting Impossible – The Special Needs Survival Podcast
Parents often carry a heavy weight of shame and self-blame when their children face tough times. It's natural for them to feel responsible, but it's important to remember that not everything is within a parent’s control. By staying present and connecting with themselves, parents can let go of the burden of shame and find a more positive, hopeful way forward. In this episode of Parenting Impossible, Annette Hines sits down with Celia Landman, a mindfulness educator and author of When the Whole World Tips: Parenting through Crisis with Mindfulness and Balance. They share an honest and...
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255: All About Trustees: Navigating the Ins & Outs of Special Needs Trust Administration
Parenting Impossible – The Special Needs Survival Podcast
Understanding the administration of special needs trusts can make a world of difference for people with disabilities, providing them with financial stability and peace of mind. These trusts—like third-party and first-party trusts—come with specific rules that trustees must follow to ensure the beneficiary can keep accessing essential public benefits. In this episode of Parenting Impossible, I talk about the importance of building a solid relationship between trustees and beneficiaries. Understanding the basics of trust administration is valuable for everyone—not just those currently...
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254: Prioritizing Mental Well-being in the Modern Era | Lauren Perna, Writer, Speaker, & Advocate
Parenting Impossible – The Special Needs Survival Podcast
For longtime listeners, it’s clear this podcast covers a wide range of topics—from family discussions about kids to conversations on adult disabilities. This conversation focuses on the challenges of balancing health and work while living with a chronic illness. Practices like meditation, journaling, and cognitive behavioral therapy (CBT) are powerful tools for managing mental health, offering ways to create a more stable and fulfilling life despite these ongoing challenges. In this episode of Parenting Impossible, Annette Hines talks with Lauren Perna, leader of the Boston chapter of the...
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253: Finding Balance: The Dance of Advocacy & Parenting | Joanne De Simone, Author & Advocate
Parenting Impossible – The Special Needs Survival Podcast
Parenting is a rewarding journey filled with love, laughter, and joy. However, it also comes with its fair share of challenges. From sleepless nights to tantrums in the grocery store, every parent faces obstacles along the way. But what happens when those challenges are compounded by raising a child with disabilities? In this episode of Parenting Impossible, Annette Hines speaks with Joanne De Simone, a special education advocate, and author of “Fall and Recovery: Raising Children with Disabilities through Lessons Learned in Dance”, about the challenges of raising a child with disabilities...
info_outlineDisability is a topic often surrounded by stigma and misconceptions, particularly within Kenyan communities, where the burden can become a significant financial strain on families. In Kenya, parents of children with disabilities face not only a lack of acceptance and support but also the heavy weight of stigma, which exacerbates their struggles.
In this episode of Parenting Impossible, Annette Hines and Thitu Muiruri, an accomplished filmmaker, sheds light on the pervasive stigma surrounding disabilities in African communities. Muiruri's documentary work delves into the struggles faced by parents of children with disabilities, revealing the harsh realities of societal judgment, lack of support, and financial hardships. Through her documentaries and short films, she seeks to spark critical discussions and educate the public about the challenges individuals with disabilities face. It's through these conversations that people can truly understand different perspectives, learn from one another, and work towards positive change.
In this episode, you will hear:
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What challenges parents of children with disabilities in Kenya face.
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How societal attitudes add to the struggles of individuals with disabilities and their families.
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What role informal support networks among mothers play in the disabilities community.
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What efforts are needed to provide resources and support to mothers of children with disabilities.
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How to advocate for better accessibility in buildings and roads for individuals with disabilities and their families.
Resources from this Episode:
Website: https://thitu.art
Facebook: @thituproductions
Instagram:@thitu___
LinkedIn: @salthitumuiruri
Engage with us:
Join our community: Circle of Care
Visit: https://annettehines.com
Read Butterflies and Second Chances
LinkedIn: @annette-hines-snc
Instagram: @parentingimpossible
Facebook: @SpecialNeedsCompanies
Twitter: @SpecialNeedsCo
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