252:Empowering Parents with Practical Tips for Raising Deaf Kids | Alaine Jacobs, Founder & Advocate
Parenting Impossible – The Special Needs Survival Podcast
Release Date: 10/10/2024
Parenting Impossible – The Special Needs Survival Podcast
As many of you know, this time of year is always layered for me. Mother’s Day brings both sweet memories and aching absences. In this episode of Parenting Impossible, I open up about my own motherhood journey. I’ve lived through the joy of raising two incredible daughters, and I’ve lived through the unimaginable grief of losing one of them. I wanted to share a few things I’ve learned along the way—things I wish I’d known when I was in the thick of it. To those of you parenting children with disabilities, caring for aging parents, or simply doing your best to hold it all together: I...
info_outlineParenting Impossible – The Special Needs Survival Podcast
When it comes to protecting a loved one with disabilities, few decisions are as overwhelming as choosing the right trustee. But in a world of nonprofit pooled trusts, legal jargon, and alarming headlines about financial misconduct, how do you separate peace of mind from potential pitfalls? In this episode of Parenting Impossible, I break down everything you need to know about Pooled Special Needs Trusts, from how they work to when they make sense. I share hard-earned wisdom as both a lawyer and a special needs parent, guiding you through what questions to ask, how to vet your options, and why...
info_outlineParenting Impossible – The Special Needs Survival Podcast
Caring for a child with disabilities isn’t just a full-time job, it’s a deeply personal, emotional, and often isolating journey. What if the support parents need wasn’t just about filling a shift, but about building a relationship? In this episode of Parenting Impossible, Annette Hines sits down with Susan Asay, founder of Apex Social Exchange Foundation, to talk about what it really means to find care you can trust. Susan shares her own story of juggling a demanding career, raising young kids, and desperately trying to find someone who could not only help, but understand. That search...
info_outlineParenting Impossible – The Special Needs Survival Podcast
Workshops that equip educators to support children with disabilities and engage parents are essential in bridging knowledge gaps for better care. In this episode of Parenting Impossible, Annette Hines speaks with Jenny Nechvatal, an Early Childhood Teacher, Author, and devoted parent, who shares her journey raising three children, including twin boys diagnosed with level three autism. Their conversation explores the importance of accepting children's abilities and highlights the diverse support systems available in both Australia and the U.S. Embracing and celebrating a child's unique...
info_outlineParenting Impossible – The Special Needs Survival Podcast
Parenting can be a whirlwind of chaos and imperfections, but sometimes, it's in those messy moments that growth and learning truly happens. In this episode of Parenting Impossible, Annette Hines speaks with children's author, Cynthia Di Filippo Elomaa. Cynthia embraces imperfection and chaos in parenting, emphasizing that seeking support and tailored assistance is essential while recognizing that each child learns at their own unique pace. Her inclusive educational book series, "Nikki's Very Messy Room," centers on planning, collaboration, and involving children in chores to foster...
info_outlineParenting Impossible – The Special Needs Survival Podcast
Embracing culture is more than just a statement; it's a way of life. In this episode of Parenting Impossible, Annette Hines sat down with Christa Preston, founder of Embrace Kulture, to share her journey of fostering inclusion for children with developmental and cognitive disabilities in Uganda and East Africa. Inspired by her brother, Nick, and local Ugandan child, Olivia, Christa grew the organization into a fully Ugandan-led movement that has reached over a million people, influenced national policies, and transformed inclusive education. She also highlighted #NoMoreHiddenChildren, a...
info_outlineParenting Impossible – The Special Needs Survival Podcast
Being a fiduciary is like being a financial superhero with great power and great responsibility. In this episode of Parenting Impossible, I break down the critical role of fiduciary responsibilities and how to navigate them effectively. Acting as a fiduciary goes beyond managing finances; it requires transparency, organized documentation, and a deep understanding of beneficiaries' needs to make informed decisions. Fiduciaries wield the power to make decisions that significantly impact others' lives. It’s a role that demands not only expertise but also a strong sense of duty and ethics. By...
info_outlineParenting Impossible – The Special Needs Survival Podcast
Supporting the special needs community is crucial for creating an inclusive and welcoming world for individuals with disabilities. In this episode of Parenting Impossible, I talk about the importance of intentional planning to support the special needs community and ease the anxiety that often weighs on individuals with disabilities and their caregivers. I share my experiences and how thoughtful accommodations can make all the difference as a parent. Passion is important, but real change comes from purposeful actions and planning. It’s about creating a world where everyone feels...
info_outlineParenting Impossible – The Special Needs Survival Podcast
In the ever-evolving landscape of personal and financial circumstances, regularly updating your estate plan cannot be overstated. In this episode of Parenting Impossible, I talk about why it’s so important to keep your estate plan up to date. Life happens—families change, finances shift, and you might buy a new property or start a business in another state. That’s why I recommend reviewing your plan every year and doing a deeper dive every three years, or whenever a big life event happens. From my own experience, I’ve seen how essential it is to adapt your plan so it truly reflects...
info_outlineParenting Impossible – The Special Needs Survival Podcast
Individuals with disabilities often encounter significant hurdles in accessing quality healthcare due to limited accessibility options and a scarcity of available services. In this episode of Parenting Impossible, I address the challenges individuals with disabilities face in accessing quality healthcare, including limited services and barriers like Medicaid restrictions. I advocate for policy changes to enhance resources and emphasize the importance of building community to share experiences and solutions. By shifting from a scarcity mindset to one of abundance, focusing on strengths, and...
info_outlineParenting a child with hearing loss comes with its own unique challenges and families may find themselves grappling with isolation and communication barriers. In these moments, community support and shared knowledge can make a world of difference.
In this episode of Parenting Impossible, Annette Hines welcomes Alaine Jacobs, a passionate advocate for the deaf community. Drawing from her personal experience as a parent, Alaine guides and supports others facing similar challenges. With a background in education, she helps families navigate both medical and educational systems, offering practical advice through her website, RaisingDeafKids.com, and her “Raising Deaf Kids” podcast. During the conversation, she addresses the ongoing debate within the deaf community about hearing loss, emphasizing that many view it not as a disability but as a normal variation of human experience. Alaine encourages respect for diverse opinions and choices, urging parents to connect with local and online communities to empower themselves in making informed decisions that best suit their family’s needs.
In this episode, you will hear:
-
Learn about key resources for parents of children with hearing loss.
-
Discover the divisions in the hearing loss community regarding cochlear implants
-
The importance of early diagnosis and intervention for hearing loss.
-
How to create a personalized communication plan for children with hearing loss.
-
Why parents of children with hearing loss need to connect with local and online communities for support and information.
Resources from this Episode:
Website: http://raisingdeafkids.com/
Listen to the Raising Deaf Kids Podcast
Facebook: @raisingdeafkids
Engage with us:
Join our community: Circle of Care
Visit: https://annettehines.com
Read Butterflies and Second Chances
LinkedIn: @annette-hines-snc
Instagram: @parentingimpossible
Facebook: @SpecialNeedsCompanies
Twitter: @SpecialNeedsCo
Follow and Review:
We’d love for you to follow us if you haven’t yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We’d love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.