How Our Approach to Living With Parkinson’s Changes as It Gets Harder
The Parkinson's Podcast
In this episode of the Parkinson's Podcast Unfiltered, the group is joined by a special guest to respond to a listener’s question about how their relationship with Parkinson’s has changed over time. Together, they talk through the different ways they have named and understood Parkinson’s since diagnosis, including ideas of fighting, endurance, acceptance, and daily negotiation. The conversation moves between personal stories, practical coping strategies, and reflections on how identity, energy, and priorities shift as symptoms progress. Rather than settling on one way of framing...
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Parkinson’s Clinical Trials: Red Flags, Safety, and What to Consider
The Parkinson's Podcast
In this episode of the Parkinson’s Podcast, Chris Krueger talks with a clinical research team from University of Toronto about how the clinical trial process works, how participants can have the best experience in a trial, and why a team approach to trials is necessary and good. In this episode, you’ll hear from Dr. Alfonso Fasano, Dr. Arturo Abundes Corona, Sara Naghdlou, a clinical research coordinator with a background in biomedical engineering; and Yu-Yan Poon, a registered nurse who supports trials at the University of Toronto. This episode is sponsored by BlueRock Therapeutics. Sign...
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Home Independence and Safety in Parkinson’s: What to Plan for at Each Stage
The Parkinson's Podcast
Occupational therapist and aging-in-place expert Carol Chiang joins us to discuss her new book, Age in Place or Find a New Space. Carol explains why meaningful interactions—not just safety—belong at the center of planning for life with Parkinson’s, and how “the choices you make today become the consequences you live with tomorrow.” In this podcast episode, Carol discusses the importance of early-stage steps like decluttering and fall-prevention basics, practical visual cueing for freezing, how to break home updates into manageable pieces, and honest caregiver conversations. Carol...
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Parkinson's Related Exhaustion, Personal Care Challenges, and Why Exercise Helps
The Parkinson's Podcast
In this episode of the Parkinson's Podcast Unfiltered, hosts Heather Kennedy and Kat Hill, along with Chris Krueger, honor their late friend Wayne Gilbert and explore the challenging distinction between fatigue and apathy. They offer practical advice for managing energy levels, including the counterintuitive insight that more movement can actually reduce tiredness, and share tips for grandparents navigating visits with multiple grandchildren. The conversation also tackles personal grooming struggles, with candid solutions like wash-and-go haircuts, dry shampoo, and simplified self-care...
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Gene Therapy for Parkinson’s: Myths vs. Facts
The Parkinson's Podcast
In this episode of the Parkinson’s Podcast, learn about gene therapy for Parkinson’s, including common misunderstandings and ongoing research about it. This episode contains some technical terms and abbreviations. For your convenience, here is a short list of definitions that might be helpful. AADC – Aromatic L-Amino Acid Decarboxylase: An enzyme that helps make dopamine (not a rock and roll band) AAV – Adeno-Associated Virus: A harmless virus used to deliver gene therapy CDNF – Cerebral...
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Pickleball and Parkinson’s: Building Dexterity, Balance, and Community
The Parkinson's Podcast
In this episode of The Parkinson’s Podcast, Foundation Program Manager Beau Boughamer talks with neurologist Vanessa Hinson and Helen Power, a person living with Parkinson’s, about the sport that’s sweeping the country—and transforming life with Parkinson’s. Dr. Hinson, a movement disorder specialist at the Medical University of South Carolina, shares how pickleball supports balance, coordination, confidence, and connection through her eight-week program for people with Parkinson’s. Helen describes how the game brought her movement, joy, and community, proving that staying...
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ON-OFF Fluctuations in Parkinson’s: Why They Happen and What You Can Do
The Parkinson's Podcast
In this episode, we talk with Dr. Aaron Haug about what the terms ON and OFF mean in the context of Parkinson’s, what ON-OFF fluctuations are, and how to work with your doctor to help manage them. Dr. Haug is a movement disorder specialist based in Englewood, Colorado. Sign up for updates on webinars, events, and resources for the Parkinson’s community—delivered to your inbox. https://dpf.org/newsletter-signup Watch Aaron Haug's video about Tremors and Dyskinesias here: https://youtube.com/shorts/jcjNOnaA0as?feature=share This episode is sponsored by BlueRock Therapeutics. Learn...
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Confronting Cognitive and Emotional Challenges: The Neuropsychology of Parkinson's - Part 3
The Parkinson's Podcast
Sign up for updates on webinars, events, and resources for the Parkinson’s community—delivered to your inbox. https://dpf.org/newsletter-signup In the final episode of this three-part series, Connie Carpenter Phinney and Dr. Mark Mapstone explore the emotional and cognitive changes that can occur as Parkinson’s progresses. They talk openly about issues like apathy, anxiety, executive function decline, and how these changes can affect relationships, communication, safety, and daily life—including decisions around driving and independence. While the conversation acknowledges grief,...
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The Neuropsychology of Parkinson's - Part 2: What to Expect from a Neuropsych Evaluation
The Parkinson's Podcast
Sign up for updates on webinars, events, and resources for the Parkinson’s community—delivered to your inbox. In this episode, Connie and Dr. Mapstone dive into the role of neuropsychology in Parkinson’s care. They explain what a neuropsychological evaluation is, what to expect during an office or virtual visit, and how results can help guide treatment, daily planning, and care strategies. This episode also discusses why someone might be referred, how testing works, and what insights it can offer for both individuals and families. **This content is possible thanks to the generosity of...
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The Neuropsychology of Parkinson's - Part 1: Brain Changes and Impact
The Parkinson's Podcast
Sign up for updates on webinars, events, and resources for the Parkinson’s community—delivered to your inbox. https://dpf.org/newsletter-signup In the first episode of our three-part series about neuropsychology and Parkinson’s, Connie Carpenter Phinney and Dr. Mark Mapstone explore how brain chemistry, especially dopamine, relates to thinking, movement, and mood in Parkinson’s. They break down key terms like cognition and executive function and offer insights into how Parkinson’s affects brain systems beyond motor symptoms. This episode lays the groundwork for understanding how the...
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This episode of the Parkinon's Podcast features the full, unedited audio from a Live Well Today Webinar.
During this live webinar, Dr. Corcos, Professor of Physical Therapy and Human Movement Sciences, shared insights from decades of research focused on the benefits of exercise for people with Parkinson’s. Listen in as Dr. Corcos discusses the latest findings in Parkinson’s exercise science and offers practical takeaways for incorporating effective movement strategies into everyday life.
Some links discussed in this webinar:
SPARX Phase 2 Trial--https://jamanetwork.com/journals/jamaneurology/fullarticle/2664948
Dr. Corcos' Exercise Advice Article--https://journals.sagepub.com/doi/10.3233/JPD-230277
Cardio Pulmonary Exercise Test Article-https://journals.sagepub.com/doi/10.1177/1877718X251330814
Industrial Chemicals and Parkinson's Blog--
https://davisphinneyfoundation.org/industrial-chemicals-pesticides-and-parkinsons/
Climbing and Parkinson's Blog--
https://davisphinneyfoundation.org/stay-moving-with-parkinsons-tai-chi-ping-pong-and-rock-climbing/
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Speaker Bio
Daniel Corcos, PhD
Professor of Physical Therapy & Human Movement Sciences
Daniel Corcos obtained his PhD in Motor Control from the University of Oregon after obtaining his Master's Degree in Psychology. The primary research interests of Dr. Corcos are aimed at helping people with Parkinson’s disease improve their quality of life, improve their mobility and cognition, and slow down the rate at which their disease progresses. Integrating neuroscience and expertise in conducting clinical trials, the research of Dr. Corcos focuses on interventions (such as resistance exercise, endurance exercise, stretching and balance training) that aim to reduce the symptoms of the disease and delay the rate at which the disease progresses. Within this context, Dr. Corcos uses exercise interventions whose dose (frequency, intensity, time and type) can be precisely controlled to achieve these goals and thereby develops and integrates laboratory-based interventions that people with Parkinson’s disease can employ in their local community. His current research, published in JAMA Neurology suggests that high intensity endurance slows down the rate at which Parkinson’s disease progresses. These findings have been covered in the New York Times and the general press world-wide. Dr. Corcos lectures nationally and internationally to physicians, neuroscientists, and people with the disease on the benefits of exercise for those with Parkinson’s disease.