The Parkinson's Podcast
This podcast is for people with Parkinson's, Parkinson's care partners and Parkinson's providers. You'll hear from movement disorder specialists, neurologists, psychiatrists, physical and occupational therapists, complementary therapists, people with Parkinson's and Parkinson's care partners on how to live well with Parkinson's today.
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The Parkinson's Podcast Unfiltered: Grief
05/22/2024
The Parkinson's Podcast Unfiltered: Grief
This content is made possible through the generous support of listeners like you. In this episode of the Parkinson’s Podcast Unfiltered, Heather and Kat discuss how they approach the sadness, loss, and grief while still finding joy and productive ways to live well today. Season 5 Episode 13 (Unfiltered Episode 3)
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The Parkinson's Podcast: Louisiana Walks for the Davis Phinney Foundation
05/15/2024
The Parkinson's Podcast: Louisiana Walks for the Davis Phinney Foundation
This content is made possible through the generous support of listeners like you. In this episode, join us for an inspiring conversation with Michelle David Lane and Susan Sapir-Fields, the founders of Louisiana Walks (LA Walks) for Parkinson’s. Discover the heartwarming story behind this annual fundraiser benefiting the Davis Phinney Foundation. To learn more about the Louisiana Walks fundraiser, please visit: Season 5 Episode 12
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The Parkinson's Podcast Unfiltered: Sex
05/08/2024
The Parkinson's Podcast Unfiltered: Sex
The Parkinson's Podcast Unfiltered: Sex This content is made possible by the generous support of viewers and listeners like you. In this episode of The Parkinson’s Podcast Unfiltered, Heather Kennedy and Kat Hill dive deep into the importance and challenges of sexual health for people with Parkinson’s. Strap in for the ride: as always, with Heather and Kat and The Parkinson’s Podcast Unfiltered, nothing is off the table. Season 5 Episode 11 (Unfiltered Episode 2)
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Mobility Matters: NexStride and the Parkinson's Community
05/01/2024
Mobility Matters: NexStride and the Parkinson's Community
This content is made possible through the generous support of listeners like you. Mobility Matters: NexStride and the Parkinson's Community In this episode, we chat with Sidney Collin, the inventor of NexStride: a device transforming mobility for people with Parkinson's. Join us as Sidney shares the journey from idea to creation, offering insights about her innovative solution and overarching mission to empower people with confidence and independence. To learn more about NexStride and DeOro Devices, please visit: or email: To learn more about the Parkinson’s wellness fund, please visit: Season 5 Episode 10
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The Parkinson's Podcast Unfiltered: Stigma
04/24/2024
The Parkinson's Podcast Unfiltered: Stigma
This content is made possible through the generous support of listeners like you. In the debut episode of The Parkinson's Podcast: Unfiltered, hosts Heather Kennedy and Kat Hill explore the often overlooked stigma surrounding Parkinson's. Through personal stories and insights, they challenge misconceptions and explore how shifting narratives can empower minds and reshape perceptions. Tune in for a fresh perspective on living with Parkinson's. Season 5 Episode 9 (Unfiltered Episode 1)
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Disability and Changes of Ability in Parkinson’s
04/17/2024
Disability and Changes of Ability in Parkinson’s
This content is made possible through the generous support of listeners like you. In this episode, panelists discuss ways that Parkinson’s has affected their abilities and how they navigate these changes. As always, this panel doesn’t hold back, and we’re so fortunate to have them tell the hard truths and share their journeys with all of us.
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Advanced Parkinson's with Dr. Karunapuzha
04/03/2024
Advanced Parkinson's with Dr. Karunapuzha
This content is made possible through generous . In this episode, Dr. Karunapuzha discusses advanced Parkinson’s with Davis Phinney Foundation Executive Director Polly Dawkins. Dr. Karunapuzha covers multiple interpretations of what “advanced Parkinson’s” means, what symptoms are associated with advanced Parkinson’s, and possible ways to manage those symptoms. Are you loving the Parkinson's Podcast?
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The SteadyScrib Story: A Pen for Parkinson's
03/20/2024
The SteadyScrib Story: A Pen for Parkinson's
This content is made possible through generous . In this episode, discover the story behind Izzy Mokotoff and Alexis Chan's innovative pen for people living with Parkinson's: SteadyScrib. Learn about their journey and motivations--inspired by Izzy's grandfather--and the impending launch of SteadyScrib, set to publicly debut later this year. Want to learn more about SteadyScrib? Want to watch the video version of this podcast? Are you loving the Parkinson's Podcast?
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A Conversation About Clinical Trials
03/06/2024
A Conversation About Clinical Trials
This content is made possible through In this episode, Mark Stacy, MD, and Peter Schmidt, PhD, discuss participation in clinical trials for Parkinson’s. Dr. Stacy is currently a Professor of Neurology at the Medical University of South Carolina, and has been involved in Parkinson’s care and research for over 30 years. Dr. Schmidt, a Davis Phinney Foundation board member, is the Chief Scientific Officer for Rho: a company that supports clinical trial strategy, design, and operations. Want to read the article associated with this podcast? Want to watch the video version of this podcast? Are you loving the Parkinson's Podcast?
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A Special Episode with Davis Phinney and Kevin Kwok and the No Barriers Podcast
02/21/2024
A Special Episode with Davis Phinney and Kevin Kwok and the No Barriers Podcast
This content is made possible by the of viewers and listeners like you. This is a special edition of the Parkinson’s Podcast, presented by the No Barriers Podcast. Join us for a candid conversation with , co-founder of the Davis Phinney Foundation, and , a Foundation board member, as they share their compelling journeys with Parkinson’s. To learn more about the No Barriers Podcast, please visit: Are you loving the Parkinson's Podcast? This content includes information about Parkinson’s and insights from our Parkinson’s community. It is not intended as a substitute for treatment advice from your own medical providers.
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Music Therapy and Parkinson’s with Hadley Rentz
02/07/2024
Music Therapy and Parkinson’s with Hadley Rentz
This content is made possible by the generous support of viewers and listeners like you. In this episode, music therapist Hadley Rentz from Music Worx, Inc., explains the benefits of music therapy for people living with Parkinson’s. To learn more about Music Worx, Inc. and their AudAbility virtual music therapy class for people living with Parkinson's, visit You can subscribe to learn more about Music Worx, Inc. To learn more about the Davis Phinney Foundation programs in Spanish, please visit our Are you loving the Parkinson's Podcast? This content includes information about Parkinson’s and insights from our Parkinson’s community. It is not intended as a substitute for treatment advice from your own medical providers.
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OFF Time in Parkinson's
01/24/2024
OFF Time in Parkinson's
This content is made possible by the generous support of viewers and listeners like you. In this episode, Dr. Yasar Torres-Yaghi answers questions about OFF time in Parkinson's, including symptoms, medications, deep brain stimulation, and more. Are you loving the Parkinson's Podcast? Want to read the article associated with this podcast? Want to watch the video version of this podcast? This content includes information about Parkinson’s and insights from our Parkinson’s community. It is not intended as a substitute for treatment advice from your own medical providers.
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Nurturing Resilience Through Poetry with Wayne Gilbert
01/10/2024
Nurturing Resilience Through Poetry with Wayne Gilbert
This content is made possible by the generous support of viewers and listeners like you. If you would like to make a donation, Wayne Gilbert--a retired teacher and professor of English and educational psychology--was diagnosed with Parkinson's in 2005. Since his diagnosis, he has taken refuge in poetry, having written hundreds of "Parkie" poems, which he refers to as "metaphor medicine." In this episode, Wayne explains the importance of using metaphors in poetry to navigate the complexities of living with Parkinson's and performs a few of his favorite poems. Loving the Parkinson's Podcast? The information in this podcast is for general information purposes only. It includes information about Parkinson’s and insights from our Parkinson’s community. It is not intended as a substitute for treatment advice from your own medical providers.
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Parkinson's Pain Assessment & Management
12/27/2023
Parkinson's Pain Assessment & Management
This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: In this interview, Dr. Apurva Zawar, PT, DPT, discusses one of the most common non-motor symptoms of Parkinson’s, pain, the different types of pain, and where you can find tools and resources to manage it. Want to watch the video version of this podcast? Are you loving the Parkinson's Podcast? The information in this podcast is for general information purposes only. It includes information about Parkinson’s and insights from our Parkinson’s community. It is not intended as a substitute for treatment advice from your own medical providers. Relevant Links
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Sleep, Light, and Neurodegeneration
12/20/2023
Sleep, Light, and Neurodegeneration
This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: In this session from the Victory Summit Virtual Event: Sleep and Parkinson's, Dr. Aleksander Videnovic explains sleep attacks, RBD (REM Sleep Disorder), Restless Legs Syndrome (RLS), Insomnia, Daytime Sleepiness, Drowsiness, Fatigue, as well as how to manage these, the importance of understanding and attending to your circadian biology and using things like light and timing of exercise and medications to improve sleep. Want to read the article associated with this podcast? Want to watch the video version of this podcast? Are you loving the Parkinson's Podcast?
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People with Parkinson's Share Their Deep Brain Stimulation (DBS) Stories
12/13/2023
People with Parkinson's Share Their Deep Brain Stimulation (DBS) Stories
Deep Brain Stimulation (DBS) is a highly effective and reasonably safe treatment for Parkinson’s; however, it’s also frequently misunderstood by people who have been recently diagnosed. The success stories about how people are sometimes living symptom and medication-free as a result of getting DBS understandably lead many who’ve been newly diagnosed to want to get the treatment as soon as possible. In an earlier webinar, we invited an esteemed panel of experts to talk about Deep Brain Stimulation (DBS). In this episode of the Parkinson's Podcast, we spoke with six people with Parkinson’s who’ve had DBS. We discussed: How to begin the process How to talk to your family and friends about DBS and your hopes and concerns about it What to expect during the approval process What the surgery is really like (and do you have to shave your head) What recovery is like and what kind of support you might need The challenges of programming your device and the joy that comes when you get it right The myths, challenges, and victories of DBS And more! We hope you enjoy it! Want to read the article associated with this podcast? Want to watch the video version of this podcast? Are you loving the Parkinson's Podcast? Want to learn more about Deep Brain Stimulation? This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit:
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Mortality and Parkinson's: The Elephant in the Room
12/08/2023
Mortality and Parkinson's: The Elephant in the Room
In this episode, Dr. Bastiaan Bloem talks with Davis Phinney Foundation Executive Director, Polly Dawkins, about a recent article he co-authored, "." In the article, Dr. Bloem et al. write, "Although the survival of people with Parkinson's has improved over time, people with Parkinson's still live fewer years than their age- and sex-matched population comparators, albeit at older ages this difference can be small." Dr. Bloem and his co-authors also acknowledge that doctors and researchers "often emphasize the tremendous impact of [Parkinson's] on an individual’s life. However, in public awareness campaigns, we largely avoid discussions on the survival of people with Parkinson’s..." It's understandable: the topic of mortality and Parkinson's is often painful. However, in this episode of The Parkinson's Podcast, Dr. Bloem argues out that openly acknowledging that Parkinson's shortens lifespans is a good thing for people with Parkinson's for a multiple reasons. Listen to the episode to hear Dr. Bloem's perspective about multiple topics related to mortality and Parkinson's, including: The commonly held view that people die with Parkinson's, not from Parkinson's Pesticides, chemical exposure, and other environmental risks Reasons for hope, including specific advice about exercise and diet The policy and funding implications of candid discussion of mortality in Parkinson's Want to read the article associated with this podcast? Want to watch the video version of this podcast? Loving the Parkinson's Podcast? This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit:
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Fear and Shame Part 2
12/06/2023
Fear and Shame Part 2
A previous version of this podcast had sound issues. We apologize and hope you enjoy! During this episode of The Parkinson's Podcast, panelists from our Living with Parkinson's meetup discussed fear and Parkinson’s. They talked about the difference between shame, guilt, and embarrassment, and they shared the various ways shame shows up for them. Again, this panel doesn’t hold back, and we’re so fortunate to have them tell the hard truth and share their journeys with all of us. In this episode, topics discussed include: Feeling a loss of relevance Shame when I was diagnosed Shame around impulse control Side-effects of medications and shame Importance of community to overcome shame and more! We hope you enjoy! Want to read the article associated with this podcast? Want to watch the video version of this podcast? Loving the Parkinson's Podcast? Want to come to the next Living with Parkinson's Meetup? This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit:
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Fear and Shame Part 1
11/22/2023
Fear and Shame Part 1
During this episode of The Parkinson's Podcast, panelists from our Living with Parkinson's meetup discussed fear and Parkinson’s. We addressed kids, relationships, progression, falling, loss of identity, cognition, and more. In this episode, topics discussed include: How to address fear and shame in yourself and with others How to handle the fear of being marginalized What is the biggest fear you have of the unknown? Dealing with the fear and grief of missing out Handling the fear of being alone and dating with Parkinson's How fear has evolved in our panelists from their diagnosis to the present and more! We hope you enjoy! Want to read the article associated with this podcast? Want to watch the video version of this podcast? Loving the Parkinson's Podcast? Want to come to the next Living with Parkinson's Meetup? This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit:
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Managing Depression and Anxiety in Parkinson's
11/15/2023
Managing Depression and Anxiety in Parkinson's
On September 17, 2021, we held The Victory Summit® Virtual Event: Mental Health and Wellness, shining the spotlight on how to manage the symptoms you can’t see in Parkinson’s. During this event, Dr. Gregory Pontone spoke to us about managing depression and anxiety in Parkinson's. Topics discussed include: What are the statistics on how many people are currently dealing with depression? Wellness vs. Wellbeing What is mental illness? What is the impact of mental illness on Parkinson's? What are the differences between depression and anxiety? Different types of anxiety medicine and how they impact Parkinson's symptoms The effect of anxiety on dystonia Dealing with compulsive thoughts What are some strategies for families dealing with anxietyand depression at home? What is apathy? and more! We hope you enjoy! Want to see other videos from our Victory Summit on Mental Health? Want to watch the video version of this podcast? Loving the Parkinson's Podcast? This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit:
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A Conversation with Brian Grant and Davis Phinney
11/09/2023
A Conversation with Brian Grant and Davis Phinney
Brian Grant had a long and successful 12-year career in basketball. In 2008, at age 36, Brian was diagnosed with Parkinson's. Davis Phinney was an Olympic Bronze medalist and Tour de France stage winner who claimed the most victories of any cyclist in American history. In 2000, at age 40, Davis was diagnosed with Parkinson’s. Since being diagnosed, both of these athletes have made it their mission to do everything they can to thrive not just survive with Parkinson's, and inspire others to do the same. In this genuine, inspiring, and relatable conversation, Brian and Davis talk about their experiences as athletes receiving a Parkinson's diagnosis, their difficulties in accepting the physical and mental challenges that have occurred with the progression of their Parkinson's, and how and why they are passionate about living well with Parkinson's each and every day. We hope you enjoy it! Want to read the article associated with this podcast? Want to watch the video version of this podcast? Loving the Parkinson's Podcast? This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit:
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Living with Parkinson's from a Cultural Context
11/01/2023
Living with Parkinson's from a Cultural Context
During this episode of the Parkinson's Podcast, Dr. Gregory Pontone and Dr. Indu Subramanian discuss how cultural context can impact what living well with Parkinson's looks like, including nutrition, exercise, community, and more. Topics discussed include: What does "cultural context" mean? Holistic health in cultural context The importance of community in a cultural context How to help address the divide between clinical care and cultural context as a care partner/care giver Acceptance of Parkinson's symptoms by family and cultural community Feeling culturally "separated" by your diagnosis Finding new community How to create safer spaces as advocates and allies and more! We hope you enjoy! Want to read the article associated with this podcast? Want to watch the video version of this podcast? Loving the Parkinson's Podcast? This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit:
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Dopamine Nation with Anna Lembke
10/25/2023
Dopamine Nation with Anna Lembke
In this episode, Dr. Anna Lembke, an internationally recognized expert in addiction and dopamine, discusses addiction, dopamine's role in pain and pleasure, dopamine agonists, and more. **Please note, taking regular carbidopa/levodopa alone very rarely leads to someone experiencing impulse control disorders, so please do not delay taking these Parkinson’s medications because of a fear of developing an impulse control disorder. If your symptoms are getting in the way of your daily activities and quality of life, work with your doctor to find the right dose for you. Dopamine agonists, on the other hand, which are more commonly prescribed in the early stages of Parkinson’s, are the types of medication that put people at greater risk. Still, it’s not a given. Each person responds to medication differently, and whatever side effects you do experience are almost always duration and dose-dependent. To learn more about Parkinson’s medication, read For more on impulse control disorders and dopamine agonists, read Topics discussed include: Can you define pleasure and pain and the role dopamine plays in them? How has our drive for pleasure changed over time? Does being low on dopamine contribute to the pain many with Parkinson’s experience? How is the pain/pleasure cycle disrupted in the absence of naturally produced dopamine? What is a dopamine precursor, and what does it have to do with impulse control disorders (ICDs) in people with Parkinson’s? Are there any early warning signs that someone may be experiencing negative side effects such as impulse control disorders from taking their medication? What is addiction, and how does it work in someone with Parkinson’s? What is the value of truth-telling for someone who is struggling with an impulse control disorder or any other addiction? Is it possible that Parkinson’s meds can expose a preexisting addiction or propensity for addiction? Is there a link between head trauma and addiction? and more! We hope you enjoy! Want to watch the video version of this podcast? Loving the Parkinson's Podcast? This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit:
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Living Alone with Parkinson's
10/18/2023
Living Alone with Parkinson's
During this episode, we talked to five people, Michael S. Fitts, , , Gerrie Blavat, and , who are living alone with Parkinson’s, some by choice and others not. They shared their stories and offered ideas and advice on how to live alone and well with Parkinson’s. Topics discussed include: Why are you living alone with Parkinson's? How does a service dog help in living alone with Parkinson's? What is the hardest part of living alone with Parkinson's? Finding more important things to worry about Accepting your limits while living alone with Parkinson's What different tools make living alone with Parkinson's easier? How to get around when you physically can't drive and more. We hope you enjoy! Want to read the article associated with this podcast? Want to watch the video version of this podcast? Loving the Parkinson's Podcast? Addtional Resources: This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit:
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Questions and Answers
10/11/2023
Questions and Answers
During this session, panelists from the Living with Parkinson's meetup answered questions from the chat on everything Parkinson’s. Topics discussed include: Why is it important to work with experts in Parkinson’s? What is a biomarker? Why does it take so long to develop a drug for Parkinson’s? What are the challenges with diagnosing Parkinson’s? What are the potential impacts of surgery on Parkinson’s symptoms? How do you make sure all medical providers have critical information? What is brain fog? How do you balance having Parkinson’s and caring for others? What is speech therapy for Parkinson’s? How do you get out of being frozen? and more. We hope you enjoy! Want to join us at the next Living with Parkinson's Meetup? Want to read the article associated with this podcast? Loving the Parkinson's Podcast? This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit:
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Urinary Dysfunction and Parkinson's
10/04/2023
Urinary Dysfunction and Parkinson's
In this episode, Dr. Arun Mathur, a urologist with specialized knowledge of Parkinson's, explains the symptoms, causes, and treatments of urinary dysfunction in people with Parkinson's. Topics we discuss include: What are the differences between urinary dysfunction in different neurological diseases? What is urinary dysfunction? Urinary dysfunction can be a precursor to a Parkinson's diagnosis How does urinary dysfunction affect a person with Parkinson's quality of life? When should you seek treatment? Urinary dysfunction is more prevalent in Later Onset Parkinson’s Non-pharmacological and surgical treatments DBS and Urinary Dysfunction Carbidopa/Levodopa’s effect on urinary dysfunction Pharmacological treatments Catheterization Prostate symptoms versus Parkinson’s symptoms When will non-pharmacological treatments show results? and more! We hope you enjoy! Want to watch the video recording of this audio? To view the show notes and related resources for this webinar, This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit:
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What I Wish I Knew Then
09/27/2023
What I Wish I Knew Then
In this episode, panelists discussed what they wish they knew when they were diagnosed with Parkinson's and what advice they would give now to those who are newly diagnosed. Topics we discuss include: What do you wish you had known when you were first diagnosed with Parkinson’s? Being kind, listening to elders, and seeking help Take things seriously, but not too seriously Don't ignore your symptoms Medications The moment when you are first diagnosed Having a movement disorder specialist Support groups Importance of exercise Socializing, being with people, and getting out of your head and more! We hope you enjoy! Want to watch the video recording of this audio? Want to join the Living With Parkinson's Meetup? This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit:
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Demoralization, Meaning, and Parkinson's
09/20/2023
Demoralization, Meaning, and Parkinson's
In this episode of The Parkinson's Podcast, Greg Pontone, MD, Indu Subramanian, MD, and Bradley McDaniels, PhD, discuss how symptoms of depression begin and how to combat them. In this episode, we talk about: How Dr. Subramanian, Dr. McDaniels, and Dr. Pontone are working on What clinicians can do to make your symptoms better How Dr. Subramanian combines Eastern and Western medicine The impact of demoralization on people with Parkinson's The importance of normalizing diagnosing depression The difference between demoralization in people with early-onset versus late-onset Parkinson's Changes in patient care since this panel started researching demoralization Dr. McDaniels' mother's journey with demoralization and Parkinson's The signs of depression and how to know when to see a doctor and more. We hope you enjoy! Want to read the article associated with this podcast? Want to watch a video of this podcast? This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit:
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Vulnerability with the Living with Parkinson's Meetup
09/12/2023
Vulnerability with the Living with Parkinson's Meetup
During this episode, our Living with Parkinson's Meetup panelists discussed physical, social, and emotional vulnerability in Parkinson’s. They offered their thoughts about how to adapt to changes that arise as Parkinson’s progresses. As always, this panel doesn’t hold back, and we’re so fortunate to have them tell the hard truth and share their journeys with all of us. In today's episode, we talk about: Start of discussion on vulnerability Vulnerability vs. danger Social vulnerability Adapting to difficult situations Going to the worst-case scenario Community as a source of strength Impact of stories, beliefs and finding community and more! We hope you enjoy it! Want to come to our next Living with Parkinson's Meetup? Want to watch a video of this podcast? This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit:
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2023 Emerging Therapies and Parkinson’s
09/06/2023
2023 Emerging Therapies and Parkinson’s
In this episode, Dr. Soania Mathur interviews Dr. Michael Okun to discuss the latest therapies for Parkinson’s, including RT-QUIC (Parkinson’s biomarker), subcutaneous dopamine pumps, vibrating gloves, rescue medications, DBS, and more. Dr. Mathur and Dr. Okun discuss: New discoveries in diagnosing Parkinson’s What do certain biological markers mean for diagnosis? What’s new on the horizon for Parkinson’s treatments? The subcutaneous delivery of dopamine replacement Transdermal treatment Microbiome in Parkinson’s Vibration therapy The importance of individualized care plans How to sort through all the information about Parkinson’s and more. We hope you enjoy! Want to read the article associated with this podcast? Want to watch the YouTube video of this podcast? Are you loving the Parkinson's Podcast? This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit:
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