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Gastroparesis and J-Tubes

PodcastDX

Release Date: 11/17/2020

EDS Ehlers Danlos Syndrome show art EDS Ehlers Danlos Syndrome

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On this week's show we are speaking with Kristine Hoestermann, the founder of "" and she will be explaining how she was diagnosed with HEDS and where that diagnosis took her! Heeeeere's Kristine!   Allow me to introduce myself🦓My name is Kristine (kk). I am the CEO of RARE.™ A brand that was born from my own frustrations following the onset of my symptoms in 2016. It never occurred to me I could wake up sick and never get better. That I would lose everything I knew without noticing. In the beginning of getting sick I experienced extreme isolation. I felt like I didn’t fit in...

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Food Allergies show art Food Allergies

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Food allergy is an immune system reaction that occurs soon after eating a certain food. Even a tiny amount of the allergy-causing food can trigger signs and symptoms such as digestive problems, hives or swollen airways. In some people, a food allergy can cause severe symptoms or even a life-threatening reaction known as anaphylaxis. Food allergy affects an estimated 6 to 8 percent of children under age 3 and up to 3 percent of adults. While there's no cure, some children outgrow their food allergy as they get older. It's easy to confuse a food allergy with a much more common reaction known as...

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This week we will be discussing stroke awareness. More than 800,000 strokes happen each year in the United States. Stroke is the fifth leading cause of death in the U.S. and is a major cause of serious disability for adults. A stroke is caused by blocked blood flow to the brain and can affect a person’s speech, movement, memory, and more. It’s important to know the signs of a stroke and get help quickly. Some of the warning signs include: Weakness in the face, arm, or leg Difficulty speaking Vision loss Dizziness Brief loss of consciousness

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Dr. Eugenie Hsu is a clinical psychologist by profession and lives in the San Francisco Bay Area with her husband and two children. In 2011 when her son was 8, he was diagnosed and treated for a craniopharyngioma brain tumor: Grateful for his survival but distressed by the many challenges he suffered in the aftermath of the tumor and surgery, Eugenie became focused upon finding solutions and treatments to improve his and other survivors’ quality of life. [One particular condition, hypothalamic obesity, was especially daunting and she was compelled to figure out a treatment for this...

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Fabry's Lysosomal Storage Disease show art Fabry's Lysosomal Storage Disease

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Brandi McAlexander was born and raised in Kirtland, New Mexico, a small town ten miles from the Navajo Native American Reservation. She is both Oglala Sioux and White Stick Creek. She is happily married to a veteran of two tours to Iraq. Together they have a happy full house with seven children; four girls and three boys. She worked in healthcare as a C-Suite executive for twenty years before deciding to change careers to a Juris doctorate. After receiving her JD in 2019 she opened up her own business "Pass the baby bar". Dedicating her time providing free education to college students...

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CVID Common Variable Immunodeficiency show art CVID Common Variable Immunodeficiency

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Today, we have with us today, Sheila Ames a registered nurse in Northern California who has been diagnosed with a rare type of a primary immunodeficiency known as common variable immunodeficiency or CVID for short.  At the time of her diagnosis she was working as an ICU nurse and her first doctors order was: no more exposure to infectious patients.  This diagnosis not only changed her career dramatically, it led her to following her life's purpose in opening her own health & wellness online coaching business to help others continue to find and work towards their life's purpose...

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Sturge Weber Syndrome show art Sturge Weber Syndrome

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A mother of two from Alberta, Canada, Chelsey Peat was born with a rare condition called Sturge Weber Syndrome. She was born with a large portwine stain birthmark on the left side of her face and has glaucoma in her left eye. She has had multiple surgeries including life saving brain surgery as a baby. ​Sturge-Weber syndrome (SWS) is a rare disorder affecting the skin and nervous system. Babies with SWS are born with a birthmark on their face known as a . Port-wine birthmarks are caused by enlarged blood vessels right underneath the skin. People with Sturge-Weber syndrome also have...

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Sarcoidosis show art Sarcoidosis

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In this episode we will discuss Sarcoidosis with Frank Rivera. Frank is the Founder and President of   is a WEGO Health Patient Leader, a Patient Ambassador at Illumina Inc, and a volunteer Patient Ambassador at The Foundation for Sarcoidosis Research. ​Sarcoidosis is a disease characterized by the growth of tiny collections of inflammatory cells (granulomas) in any part of your body — most commonly the lungs and lymph nodes. But it can also affect the eyes, skin, heart and other organs. The cause of sarcoidosis is unknown, but experts think it results from the body's immune system...

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Every day, gifts from donors restore health to save and improve lives. As of 2019, 165 million people in the U.S. have registered as donors, but we all need to sign up. There are still      men, women, and children waiting for a life-saving organ transplant.   ​Organ donation takes healthy organs and tissues from one person for  into another. Experts say that the organs from one donor can save or help as many as 50 people. Organs you can donate include Internal organs: Kidneys, heart, liver, pancreas, intestines, lungs Skin Bone and bone marrow Cornea ...

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Tinnitus show art Tinnitus

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Do you hear a constant sound in your ears, even though there is no external source linked to the noise? If so, you’re likely suffering from tinnitus, and you aren’t alone. It’s estimated that more than 50 million Americans suffer from some degree of tinnitus, 16 million Americans experience such severe ringing that they require some type of treatment, and another 2 million suffer from such debilitating tinnitus that it impacts their daily lives. ​ Tinnitus is marked by phantom-like ringing, roaring, hissing, buzzing, or clicking noise; in other words, the sound can be heard, yet...

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Ambre is a gastroparesis patient. She was diagnosed in 2016, after suffering with GI symptoms for nearly 2 years. Her disease has progressed to where she is now completely dependent on enteral nutrition. In the last two years she has become a vocal advocate for the gastroparesis community. She has also, in the last year become a vocal advocate for feeding tubes and body positivity.

Ambre Minty

By participating in several photoshoots to help with body positivity and awareness for medical devices, she hopes to encourage others. She writes a blog about her journey with chronic illness. She uses her platform for awareness, education, and positivity. She strives to encourage and empower others living with chronic illness.