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Gastroparesis and J-Tubes

PodcastDX

Release Date: 11/17/2020

Ehlers Danlos & EDS show art Ehlers Danlos & EDS

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Squeeze a world of passion, goal driven problem solver and an adventurous triathlete into 5 feet of fun and you get Faith Louise Cooper. Faith Louise grew up in a family of 5 with 2 younger sisters.  At the 12 she was diagnosed with Juvenile Rheumatoid Arthritis, now known as Juvenile Idiopathic Arthritis.  In 2017 she was diagnosed with hypermobility syndrome and was recently changed to Hypermobility Ehlers Danlos Syndrome abbreviated as hEDS.  Her younger sister also battles with hEDS on a daily basis.   Faith Louise joined the swim team in middle school to help manage...

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Hepatitis show art Hepatitis

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Hepatitis means inflammation of the liver. The liver is a vital organ that processes nutrients, filters the blood, and fights infections. When the liver is inflamed or damaged, its function can be affected. Heavy alcohol use, toxins, some medications, and certain medical conditions can cause hepatitis. However, hepatitis is often caused by a virus. In the United States, the most common types of viral hepatitis are , , and . ​Hepatitis D, also known as “delta hepatitis,” is a liver infection caused by the hepatitis D virus (HDV). Hepatitis D only occurs in people who are...

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Liver Transplant show art Liver Transplant

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Gina Rapacz is a 48 year old mother of 2 teenage daughters living in the Chicago suburbs.  She recently had a liver transplant after hers failed and she lingered on the transplant list in Chicago for just over a year.  Gina is a powerful woman who has endured a variety of personal tragedies.  There is not a challenge she can't handle.  It is this strength that has allowed her to get through the severity of her liver disease.

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Complex Diagnoses show art Complex Diagnoses

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On this week's show we are speaking once again with Kristine Hoestermann, the founder of "" and she will be explaining how difficult it has been to get a diagnosis for Ehlers Danlos Syndrome and where that diagnosis took her (Brittle Cornea Syndrome & the BRCA Gene for Breast Cancer are the latest two)  Heeeeere's Kristine!   Allow me to introduce myself🦓My name is Kristine (kk). I am the CEO of RARE.™ A brand that was born from my own frustrations following the onset of my symptoms in 2016. It never occurred to me I could wake up sick and never get better. That I would...

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Veteran's Day / Throwback Thursday/ Quad-Amputee show art Veteran's Day / Throwback Thursday/ Quad-Amputee

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In this episode we will discuss not just continuing life after a horrific injury, but excelling and living life to it's fullest, minus two arms and two legs.  United States Army Staff Sergeant Travis Mills of the 82nd Airborne was critically injured on his third tour of duty in Afghanistan by an IED (improvised explosive device) while on patrol, losing portions of both legs and both arms.   

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Throwback Thursday!  Travis Mills Veteran/Quad Amputee show art Throwback Thursday! Travis Mills Veteran/Quad Amputee

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For our very first Throwback Thursday episode we celebrate the bravery of our men and women that have served in the United States Armed Services!   In this episode we will discuss not just continuing life after a horrific injury, but excelling and living life to it's fullest, minus two arms and two legs.  On April 10, 2012, United States Army Staff Sergeant Travis Mills of the 82nd Airborne was critically injured on his third tour of duty in Afghanistan by an IED (improvised explosive device) while on patrol, losing portions of both legs and both arms. In September 2013, Travis...

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COVID with Crohn's Disease show art COVID with Crohn's Disease

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We are welcoming back Myisha Malone-KING.  As you may recall Myisha spoke with us in season 7 about Crohn's Disease and just last week about her daughter's severe asthma.  Myisha is a passionate dedicated advocate she’s received proclamations from states for recognition of her advocacy and IBD awareness.  Besides her challenges with Crohn's, she ended up catching COVID last year!! ​ Having doesn’t make you more likely to get exposed to the . But it may make you more likely to have a harder time with it if you do catch it. Certain people are more likely to become...

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Severe Asthma show art Severe Asthma

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As you may recall Myisha spoke with us in season 7 about Crohns Disease.   Myisha is a passionate dedicated advocate she’s received proclamations from states for recognition of her advocacy and IBD awareness.  Besides her challenges with Crohns, Myisha has a duaghter with severe asthma and is here today to discuss her daughters' journey. ​ Patients with severe asthma use the highest dose of inhaled corticosteroids plus a second controller and/or oral corticosteroids. However, despite using high dose medicines, reducing risks, and following their treatment plan, many times...

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COVID with a Rare Disease show art COVID with a Rare Disease

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COVID is a rough disease no matter how you look at it, however COVID when you already have a rare disease?  That has to be extra hard!  Barby Ingle joins us once again to discuss the ramifications in these trying times. ​ To reach Barby you can email:

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Halloween During COVID show art Halloween During COVID

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In this episode we will discuss Halloween Safety during COVID   ​ Fall celebrations like Halloween and Harvest Day are fun times for children, who at one time could dress up in costumes, enjoy parties, and eat yummy treats. These celebrations also provide a chance to give out healthy snacks, get physical activity, and focus on safety. ​Check out these tips to help make the festivities fun and safe for trick-or-treaters and some ideas to replace typical parties during these uncommonly scary times.

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Ambre is a gastroparesis patient. She was diagnosed in 2016, after suffering with GI symptoms for nearly 2 years. Her disease has progressed to where she is now completely dependent on enteral nutrition. In the last two years she has become a vocal advocate for the gastroparesis community. She has also, in the last year become a vocal advocate for feeding tubes and body positivity.

Ambre Minty

By participating in several photoshoots to help with body positivity and awareness for medical devices, she hopes to encourage others. She writes a blog about her journey with chronic illness. She uses her platform for awareness, education, and positivity. She strives to encourage and empower others living with chronic illness.