loader from loading.io

Gastroparesis and J-Tubes

PodcastDX

Release Date: 11/17/2020

Prescription Medicine Safety show art Prescription Medicine Safety

PodcastDX

Medicines are used to treat diseases, manage conditions, and relieve symptoms. Medicines are generally safe when used as prescribed or as directed on the label, but there are risks in taking any medicine. Each year in the United States, adverse drug events – harm resulting from medication use – cause more than one million visits to hospital emergency departments. Learning about medication safety can reduce and even prevent the risk of harm for you and your loved ones.

info_outline
Crohn's and Gastroparesis With Anna show art Crohn's and Gastroparesis With Anna

PodcastDX

This week we are talking once again with Anna, this time about Crohn's Disease and Gastroparesis.  Anna is a 35 year old female who has an independent spirit inside of a body that holds an alphabet of health conditions. Anna worked as a case manager for individuals with intellectual and developmental disabilities where she loved to advocate for her clients. When her health forced her to take a step back from working things have been rough as she looks for a new way to advocate for herself and for others. She has struggled with different health issues most of her life but the battle that...

info_outline
Bile Duct Organoids show art Bile Duct Organoids

PodcastDX

This week we are talking about organoids.  Scientists have shown over the past decade or so that organoids—small, organ-like structures grown in culture from stem cells—can integrate into many organs, including the , , and  of mice, and repair defects. In a study published today (February 18) in , researchers have advanced this approach in human tissue, and demonstrate that organoids derived from adult cholangiocytes, the cells that line the bile ducts, can integrate into human livers from deceased organ donors. The findings pave the way for new treatments...

info_outline
Familial cerebral cavernous malformation show art Familial cerebral cavernous malformation

PodcastDX

This week we're talking about FCCM or, Familial cerebral cavernous malformation, with Megan.   [FCCM is] ..." a rare, capillary-venous malformations characterized by closely clustered irregular dilated capillaries that can be asymptomatic or that can cause variable neurological manifestations such as seizures, non-specific headaches, progressive or transient focal neurologic deficits, and/or cerebral hemorrhages". Megan is a mom to twins — identical 17-year-old girls — and a 13-year-old son. She, her husband, and kids live just outside of Phoenix. She is a writer, caregiver, and...

info_outline
Hypertrophic Olivary Degeneration show art Hypertrophic Olivary Degeneration

PodcastDX

On today's show we are speaking with Christina Coates about Hypertrophic olivary degeneration (HOD) a rare neurological condition caused by degeneration in the brain stem, the structure that connects the brain to the spinal cord.  Signs and symptoms include palatal tremors, lack of movement coordination (ataxia), Holmes tremor, vision problems, muscle weakness, and gait impairment, along with an MRI showing enlargement (hypertrophy) of the . In 2017, Christina was diagnosed with a small Cavernous Malformation with a previous hemorrhage in her cerebellum. In 2021, she had a craniotomy to...

info_outline
Shapiro's Syndrome show art Shapiro's Syndrome

PodcastDX

On this episode we have the honor of speaking with Robyn A. Maguire.  She is a mother to 3 wonderful children. Her oldest is learning how to drive and excelling in her academics as a freshman in high school. Her middle child’s super into sports and music. Right now he’s teaching himself how to play the guitar. Her youngest son Zeke, smiles like sunshine, he warms the room. Funny, because his condition, Shapiro’s syndrome gives him hypothermia. Along with the joy of being their mom, Robyn is a bartender, student, enjoys yoga, and is a music enthusiast. She loves to see live music and...

info_outline
Four Year Recap show art Four Year Recap

PodcastDX

This week marks four years as co-hosts on PodcastDX.  For today's show we will be recalling some of our most memorable interviews from these past four years.  We have had the honor of speaking with 151 guests and have posted 209 episodes so it wasn't an easy task but with input from everyone on the team, I think we had success!   ​ I want to take the time to thank our listeners from around the world.   THANK YOU!! There isn't a day that goes by that I am not amazed that we have come so far!  Over 54 countries and a quarter of a million listeners are wondering what...

info_outline
Munchausen's During COVID show art Munchausen's During COVID

PodcastDX

 Factitious Disorder Imposed on Another (FDIA), also known as Munchausen Syndrome by Proxy (MSbP) is a very serious form of child abuse. The perpetrator, usually the mother, invents symptoms or causes real ones in order to make her child appear sick. Our guest today, Craig Lewis, not only survived the ordeal but has written a book on his experiences and is a Peer Counselor to help others.  ​ Craig recently published his book Craig continues to rise ever higher on his mission to be the living proof to all, that surviving the impossible, is entirely possible. ​ Knowing that FDIA...

info_outline
Tuberculosis/ TB show art Tuberculosis/ TB

PodcastDX

  On this week's episode we are discussing Tuberculosis, or TB.  Currently the infection has a rate of infection that is only 2.2 per 100,000 persons.  TB is more common in countries where many people live in absolute poverty because people are more likely to: live and work in poorly ventilated and overcrowded conditions, which provide ideal conditions for TB bacteria to spread suffer from malnutrition and disease – particularly HIV – which reduces resistance to TB have limited access to healthcare – and just one person with untreated infectious TB can pass the illness on...

info_outline
Hereditary Colon Cancer show art Hereditary Colon Cancer

PodcastDX

Our guest on today's show is  a retired Navy, Operation Desert Storm; Enduring and Iraqi Freedom veteran and 10 year hereditary colon cancer WARRIOR.  One of the risk factors for colorectal  is a  of the disease. Colorectal cancer is called "hereditary" or "inherited" when several generations of a family have it. Experts have found gene changes (also known as mutations or abnormalities) that . A gene is a block of DNA that holds the genetic code, or instructions, for making proteins vital to our bodily functions. The children of people who carry these genes...

info_outline
 
More Episodes

Ambre is a gastroparesis patient. She was diagnosed in 2016, after suffering with GI symptoms for nearly 2 years. Her disease has progressed to where she is now completely dependent on enteral nutrition. In the last two years she has become a vocal advocate for the gastroparesis community. She has also, in the last year become a vocal advocate for feeding tubes and body positivity.

Ambre Minty

By participating in several photoshoots to help with body positivity and awareness for medical devices, she hopes to encourage others. She writes a blog about her journey with chronic illness. She uses her platform for awareness, education, and positivity. She strives to encourage and empower others living with chronic illness.