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Fabry's Lysosomal Storage Disease

PodcastDX

Release Date: 05/11/2021

Medicinal use of Cannabis show art Medicinal use of Cannabis

PodcastDX

Cannabidiol (CBD) oils are low tetrahydrocannabinol products derived from Cannabis sativa that have become very popular over the past few years. Patients report relief for a variety of conditions, particularly pain, without the intoxicating adverse effects of medical marijuana. ​On todays show we are speaking with the Dynamic Duo at CannaPros inc. about the various Cannabis products typically used in healthcare.  Danny J Gallo (Klimczak)​ Founder & Alex Krupa COO of www.CannaProsDistribution.com have a wealth of knowledge and are eager to educate the masses on this valuable plant!...

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The Ehlers-Danlos Syndromes (EDS) give rise to a spectrum of features affecting the mouth that may lessen quality of life. Additionally, routine dental care has the potential to be compromised as a consequence of some of the systemic features of the disease. This episode provides a review of the oral and dental aspects of EDS. Orofacial manifestations The oral and facial features of EDS vary with each type of disease. There have been few detailed studies of the orofacial manifestations of the rare and/or recently described types of EDS. In general the greater the laxity of the skin and mucosa...

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This week's episode discusses a rare condition that turns bone into fibrous tissue.  Fibrous Dysplasia can be devastating, but our guest, Brittany is taking it all in stride and is continuing her advocacy work with us by sharing her story.  Without further ado...here's Brittany!   I am a 36 year old woman from Indiana. I have a rare disease called Fibrous Dysplasia. It turns my bones into fibrous tissue. There is no cure and surgery is our only form of treatment. I have had 12 surgeries so far. At 13, I had to get a tooth pulled and after a few months an uncle of mine noticed...

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On this week's show we are speaking with Kristine Hoestermann, the founder of "" and she will be explaining how she was diagnosed with HEDS and where that diagnosis took her! Heeeeere's Kristine!   Allow me to introduce myself🦓My name is Kristine (kk). I am the CEO of RARE.™ A brand that was born from my own frustrations following the onset of my symptoms in 2016. It never occurred to me I could wake up sick and never get better. That I would lose everything I knew without noticing. In the beginning of getting sick I experienced extreme isolation. I felt like I didn’t fit in...

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Food allergy is an immune system reaction that occurs soon after eating a certain food. Even a tiny amount of the allergy-causing food can trigger signs and symptoms such as digestive problems, hives or swollen airways. In some people, a food allergy can cause severe symptoms or even a life-threatening reaction known as anaphylaxis. Food allergy affects an estimated 6 to 8 percent of children under age 3 and up to 3 percent of adults. While there's no cure, some children outgrow their food allergy as they get older. It's easy to confuse a food allergy with a much more common reaction known as...

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This week we will be discussing stroke awareness. More than 800,000 strokes happen each year in the United States. Stroke is the fifth leading cause of death in the U.S. and is a major cause of serious disability for adults. A stroke is caused by blocked blood flow to the brain and can affect a person’s speech, movement, memory, and more. It’s important to know the signs of a stroke and get help quickly. Some of the warning signs include: Weakness in the face, arm, or leg Difficulty speaking Vision loss Dizziness Brief loss of consciousness

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Brandi McAlexander was born and raised in Kirtland, New Mexico, a small town ten miles from the Navajo Native American Reservation. She is both Oglala Sioux and White Stick Creek.

Brandi McAlexander

She is happily married to a veteran of two tours to Iraq. Together they have a happy full house with seven children; four girls and three boys.

She worked in healthcare as a C-Suite executive for twenty years before deciding to change careers to a Juris doctorate. After receiving her JD in 2019 she opened up her own business "Pass the baby bar". Dedicating her time providing free education to college students pursuing a law degree. As of 2021, she has helped over 200 first year law school students.

Halfway through law school she noticed a major loss of energy and began to believe she had a health issue. After years of tests, false diagnoses and untreated discomfort she was able to confirm the true culprit. During the Covid pandemic in 2020 through a genetic test, she received a confirmed diagnosis of Fabry’s Disease; having inherited both the x and y chromosomes.

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Brandi M. | LinkedIn