loader from loading.io

Parkinson's Caregiving

PodcastDX

Release Date: 09/07/2021

Waste Water Monitoring show art Waste Water Monitoring

PodcastDX

Wastewater monitoring is a valuable, efficient, and robust tool that public health officials can use to guide public health decision making across the nation. When we turn on the tap or flush the toilet, we often don’t think about where all that water goes.  Wastewater, the used water from our homes, schools, and businesses, holds valuable information about the health of our community. Wastewater monitoring can help cities manage wastewater effectively and also creates a safer, healthier, and more responsive living environment for their communities. This blog takes a closer look at five...

info_outline
Health & Human Services show art Health & Human Services

PodcastDX

The Public Health Agencies are created to deliver on the Government's commitment to help protect the health and safety of all people and communities in whatever country they live in.  For example: Canada's activities focus on: promoting health, well-being and equity protecting against threats to public health preventing and reducing diseases and injury Health Canada is responsible for helping Canadians maintain and improve their health. It ensures that high-quality health services are accessible, and works to reduce health risks. The UK supports ministers in leading the nation’s...

info_outline
Fluoride and Healthy Teeth show art Fluoride and Healthy Teeth

PodcastDX

Fluoride has been in the news recently with some people questioning the worth of adding this vital mineral to the water supplies in the United States.  Fluoride repairs and prevents damage to teeth caused by bacteria in the mouth. Bacteria in the mouth produce acid when a person eats or drinks. The acid dissolves minerals in a tooth's surface, making the tooth weaker and open to cavities. Fluoride replaces the minerals lost from a tooth due to acid breakdown. Some fluoride can replace minerals in the tooth surface, making the outer enamel layer harder to dissolve. Fluoride also may...

info_outline
Cannabis and the Heart show art Cannabis and the Heart

PodcastDX

Many people assume that ingesting cannabis — whether through edibles, oils, or tinctures — eliminates the cardiovascular risks associated with smoking it. While it's true that edibles avoid the harmful byproducts of combustion (such as carbon monoxide and tar), ingested cannabis still carries significant heart health risks due to the effects of tetrahydrocannabinol (THC), its main psychoactive compound. When THC is absorbed through the digestive system, it can cause substantial increases in heart rate and blood pressure — sometimes more dramatically than when cannabis is smoked or...

info_outline
Stress and the Immune System re-run show art Stress and the Immune System re-run

PodcastDX

This week we have re-posting a brief insight to the fact that stress can play havoc on the immune system and we hope to have a new guest soon to discuss this weighty problem.  If you are a member of the health care community and would like to be a guest on our show to discuss how stress affects the immune system, please drop us a line at .  Remember chronic stress = excessive cortisol and too much cortisol = a host of medical ailments.      Poor sleep  Cortisol levels are supposed to drop at nighttime, allowing your body to relax and recharge. But if your...

info_outline
Navigating the VA show art Navigating the VA

PodcastDX

This week's episode is very special for all of the veterans out there...  We welcome back three previous guests to discuss receiving healthcare at the Veteran Health Administration (VHA) a component of the Department of Veteran Affairs (VA). ​ Our main guest (from left to right above) is Mark Frerichs, a Navy veteran who was held captive by the Taliban while working as a government contractor in Afghanistan.  His battle didn't end with his eventual release and he was home trying to get the health care services he deserved.  Supporting him are: Kristal Kent, an Army veteran...

info_outline
Dangers of Nitrous Oxide show art Dangers of Nitrous Oxide

PodcastDX

Nitrous oxide, also sometimes known as “laughing gas,” is used in medicine for its sedative and anesthetic (pain prevention) properties. Joseph Priestley, an English chemist, and multidisciplinary scholar, first synthesized nitrous oxide, which has the chemical formula N2O, in 1772. After Priestley’s initial discovery of this substance, fellow chemist Humphry Davy performed various tests on the substance, including breathing the gas alone, with oxygen, and with air. Through this testing, it became clear that nitrous oxide had psychogenic properties, including as a sedative and...

info_outline
Vaccine Safety show art Vaccine Safety

PodcastDX

Vaccination is one of the best ways to prevent diseases. Over the past 50 years, essential vaccines saved at least 154 million lives (1). During the same period, vaccination has reduced infant deaths by 40%. Together with governments, vaccine manufacturers, scientists and medical experts, WHO's vaccine safety program is constantly helping monitor the safety of vaccines. This helps ensure that vaccines are safe for you and your family. ​In the United States, a number of safeguards are required by law to help ensure that the vaccines we receive are safe. Because vaccines are given to millions...

info_outline
Whooping Cough or Pertussis show art Whooping Cough or Pertussis

PodcastDX

Whooping cough, also known as pertussis, is a highly contagious respiratory infection caused by the bacteria Bordetella pertussis. It's characterized by severe, persistent coughing fits, often ending with a high-pitched "whoop" sound. The disease can be very serious, especially for infants, and is preventable through vaccination. ​​​Whooping cough is an illness that can spread easily. It's also called pertussis. An infection with bacteria causes it. Many people with the illness get a serious hacking cough. Breathing in after coughing often causes a high-pitched noise that sounds like a...

info_outline
Summer Health and Safety show art Summer Health and Safety

PodcastDX

What’s your plan for this summer? Enjoying the water? Going camping? Firing up the grill? Whatever you prefer, we have safety steps to follow. And don’t forget your furry friends. There are steps you can take to help keep them safe too. Skin safety Children's skin is more susceptible to sunburns and UV damage from the sun than adults. Before going outside, and dress your kids in protective clothing like rash guards and hats. Choose a sunscreen with a minimum SPF of 30 with broad-spectrum protection that blocks both UVA and UVB rays. Sunscreen is only safe for children over 6 months...

info_outline
 
More Episodes

Our guest on todays show is Elizabeth "Liz" Coy.  She is a full time Business Development Executive, and now also a caregiver for her dad who has developed Parkinson's.  

Liz & her dad

People with Parkinson’s disease rely on caregivers for a wide range of support — from driving them to doctors’ appointments to helping them get dressed. As the disease progresses, dependence on caregivers increases substantially.

Caregivers can help people with Parkinson’s adjust to the disease’s effects on the body. And knowing that a loved one is cared for can help the entire family adjust to the diagnosis.

But the person with Parkinson’s disease isn’t the only one who should be cared for.

Caregivers must take care of themselves too. Being a caregiver can be a complicated — as well as a physically and emotionally draining — experience.

Here are 12 ways to handle your role as a caregiver without neglecting your own well-being.

 

1. Educate yourself

As caregiver, it’s important for you to become familiar with all aspects of the disease. This will ensure better care for the patient and easier transitions for you as the disease progresses.

It will take time and continual effort for you to learn about the many varied Parkinson’s symptoms and how to manage them. As time goes on, you will also need to learn about medication regimens, which can be complex.

Several organizations, including The National Alliance for Caregiving and the Family Caregiver Alliance, provide assistance and care specifically to caregivers. These caregiver support groups offer:

  • education seminars

  • enrichment resources

  • connections to other individuals in similar situations

2. Prepare

Parkinson’s disease begins very slowly. It typically starts with a small tremor in one hand or difficulty walking or moving. Because of this, the role of caregiving is often thrust on a person with very little warning or a chance for preparation.

But once the diagnosis is made, you will lessen future stress by preparing now for the road ahead. Much of the work can wait, but you will want to start thinking now about the basics, such as:

  • Who will do food shopping and prepare meals?

  • How will medications be stored and administered?

  • What will have to change in the home setup to keep things safe and easy?

Of course, everything doesn’t have to change at once. And your loved one can probably share in a lot of it in the beginning. Talk with your doctors and other medical professionals about when and how much to restructure your lives.

As your loved one’s Parkinson’s progresses, their mental abilities will likely diminish. They will be less able to make decisions and plan.

At that point, prioritizing planning ahead will help both of you. Using an app may be helpful to make daily schedules as well as reminders for appointments, visitors, and special occasions.

3. Be involved

When a loved one is diagnosed with Parkinson’s disease, treatment for the disease should begin almost immediately. This is a time of major change not only for the person with Parkinson’s but also for you, the caregiver.

Doctors strongly encourage caregivers to attend doctors’ appointments. Your input may help your doctor understand:

  • how the disease is progressing

  • how the treatments are working

  • what side effects are occurring

As Parkinson’s disease progresses, dementia may make the patient’s memory worse. By going to the appointment, you can help remind your loved one of what the doctor said or instructed. Your role during this time is especially important to the treatment plan.

4. Establish a team

Many family members, friends, and neighbors will be happy to help if you need to run errands or just take a break. Keep a handy list of people you can call on occasionally when you need help.

Next, designate which people are the best to call on for specific situations. Some people may be more helpful with certain tasks, like grocery shopping, mailing packages, or picking up children from school.

5. Develop a support group

Caring for a loved one can be deeply satisfying. It’s a chance for your family to draw together as you face the challenges of Parkinson’s disease head-on.

However, providing emotional and physical care for someone with an illness can become stressful and, at times, overwhelming. Balancing your personal life with caregiving can be difficult. Many caregivers will face periods of feeling guilty, angry, and abandoned.

Of course, you don’t have to experience this alone. Support from other family members or professionals can help:

  • relieve stress

  • reevaluate approaches to treatment

  • offer new perspective on the caregiving relationship

Ask your doctor or your local hospital’s health outreach office for contact information for a Parkinson’s disease caregiving group. The person you’re caring for will likely also benefit from being part of a support group.

Support groups allow for open communication with other people facing the same struggles. These groups also provide an opportunity to share suggestions, ideas, and tips among the group members.

HEALTHLINE RESOURCE

TRANSFORM: Health Equity

71% of people agree that underrepresented communities in the US face greater hardships in accessing healthcare. Learn how they’ve been affected, and how you can help, today.

LEARN MORE

 

6. Seek professional assistance

Especially in the latter stages of Parkinson’s disease, caring for your loved one may become more difficult. When this happens, you may need to seek professional care from a care facility or organization.

Certain symptoms and side effects of Parkinson’s disease may be best treated with professional assistance or home health nurses, or in a nursing home environment. These symptoms and side effects may include:

  • difficulty walking or balancing

  • dementia

  • hallucinations

  • severe depression

 

7. Hire outside help if you need it

At some point, you may feel that both you and your support network are stretched thin. You’re tired, and you don’t feel comfortable asking friends and family to pick up the slack.

But the yard really needs upkeep. And the house isn’t as clean as it should be. And suddenly, it seems, you’re totally out of food, as well as the energy to go grocery shopping.

Hiring a gardener, a house cleaner, or a grocery delivery service can help if this is an option for you. Your physical well-being will thank you for it.

 

8. Build a good relationship

Caring for a loved one with Parkinson’s can place a great deal of stress on your relationship. A person you love is changing both physically and mentally, and both of you are needing to adapt.

The Michael J. Fox Foundation recommends keeping communication as open as possible and being flexible with your changing roles. Be aware that some changes, such as new apathy or irritability, is not directed personally at you.

If both you and your loved one are willing, consider consulting a therapist together. You can work through any of the anger, denial, or upset you are feeling, and find ways to keep your relationship healthy and loving.

 

9. Manage your stress

As caregiver, you are going to feel stress. You may feel fear, anger, helplessness, and more as you meet new challenges every day.

It’s important for you to know what triggers your stress and develop practices to manage your emotions and release them effectively. Journal writing, going for a walk, or calling a friend can all help.

Other coping skills might include:

  • Do something you enjoy. Tend the garden, talk to a neighbor, or read a book. Take at least a few minutes every day to enjoy yourself.

  • Try deep breathing. Even spending 1 minute taking 10 or so deep breaths can give your mind a rest and your energy a boost.

  • Get a massage. Getting a massage can release stress and give you the much-needed sense of being cared for.

  • Try a TV show. It’s OK. Be a couch potato for a half-hour or so. Watch your favorite TV show. It may help distract you from difficulties.

  • Exercise. This is one of the best stress-busters there is. Make time for it and find one you enjoy.

 

10. Be realistic

As a Parkinson’s caregiver, it is sometimes hard to remain rooted in the here and now.

In one moment, you might harbor hope that your loved one will somehow miraculously return to normal and be themselves again. In the next moment, you might think differently.

These are the times to take a few deep breaths and focus on how things truly are in this moment. Ungrounded fears and hopes can distract you from carrying on with life as it is.

If you need it, professional help can teach you tools and tips for how to do this. Mindfulness training, talk therapy, and meditation are all avenues you might explore.

 

11. Pay attention

The Parkinson’s Foundation points out that part of caring for your own mental and emotional well-being comes from noticing and understanding the changes both you and your loved one are experiencing.

The physical abilities of your loved one will change over time — and sometimes very suddenly. It is up to you to notice the change since they may not. By paying attention to these changes and managing them, you can make the road ahead easier for both of you.

You also have to keep a close eye on your own changes. ResearchTrusted Source shows that Parkinson’s caregivers frequently experience depression and anxiety, and their quality of sleep often diminishes.

 

12. Care for the caregiver

Whether you’re a spouse, parent, child, or friend, your role as a caregiver is to be on call 24/7. You’ll likely feel as if your entire world revolves around your loved one, while your personal life takes a backseat.

ResearchTrusted Source shows that caregiver burden is high among Parkinson’s caregivers, who likely face emotional, social, physical, and financial challenges as a result.

As the demands of caring for a loved one increase, many caregivers neglect their own health. It’s important to be proactive and take care of yourself. Keep current with your own medical appointments and healthcare needs.

Other things you can do to stay in shape include:

  • eat a balanced diet

  • exercise regularly

  • get proper sleep

  • schedule social activities for yourself

  • get temporary respite care when you need it

 

Takeaway

Caregiving for someone you love who has Parkinson’s is a major undertaking that can bring changes and challenges to every aspect of your life.

You will likely face emotional and physical hurdles, but also joy and the pleasure of helping someone you love. A brief prescription for succeeding as a caregiver includes:

  • educating yourself

  • asking for help when you need it

  • taking care of yourself

Don’t be shy about asking your medical providers, caregiving organizations, friends, and family for help. You need to do everything you can not only to help your loved one, but to also keep yourself healthy and positive as well. (credits to Healthline)