Ehlers Danlos & EDS
Release Date: 11/30/2021
In this episode we will discuss "Magic Mushrooms" with our guest, Del Jolly. Del Jolly, Co-Founder of , and expert in functional mushrooms, states the research at Unlimited Sciences collects real-world data on psychedelic use so that we can more quickly understand how to use these drugs safely and effectively for our health and overall wellbeing. Advocate & Educator. Focused on shifting the cultural narrative, Del worked as part of Decriminalize Denver and Charlotte’s Web CBD before co-founding Unlimited Sciences, a psychedelic research nonprofit partnered with the...info_outline Dehydration and Heat Injuries
In this episode we will discuss heat injuries and dehydration. As summer jumps in with both feet, so must we! Please listen, share, and take care of one another. There will not be a guest this week, we will discuss the topic in forum. We hope you will listen and share this important topic.info_outline Annual Checkup Part 1
Sometimes it's the simple things that make a difference in our healthcare. Getting a regular check-up is part of what can keep small things that are easily treatable from turning into a more difficult problem down the line! This episode is part one of two and will be discussing Oral/Dental Health. We will cover general health questions in a few weeks. Preventive dentistry is the practice of caring for your teeth to keep them healthy. This helps to avoid cavities, gum disease, enamel wear, and more. There are many forms of preventive dentistry, such as daily brushing and...info_outline Sharing Your Story
You have a chronic illness, new diagnosis, rare disease or are a caregiver for one of the above.... You really want to get your story told! There are others in the world that can benefit from understanding your story, but how do you even start? One idea is to become a guest on a show like ours, another could be writing a blog, or a book, or an article! Want to know more? Listen to this week's episode!info_outline Non-Hodgkin's Cost Factors
Sandra Hamilton, Founder of Cure-Cancer @UCL Institute We have the honor of speaking again today with Sandra Hamilton of the "Cure-Cancer Foundation" (CCF) which supports the University College London, Non-Hodgkin's Lymphoma Cancer Research Division. She will discuss how the financial toll of this disease has affected her and her family, and what she has found helpful in this journey. She is joined today by her friend and colleague Julia Selt, the Coordinator at CCF. This week we are talking about the cost factors of having a diagnosis of Non-Hodgkin's...info_outline Viral Hepatitis(part 2)
This week we are talking about Hepatitis means inflammation of the liver. The liver is a vital organ that processes nutrients, filters the blood, and fights infections. When the liver is inflamed or damaged, its function can be affected. Heavy alcohol use, toxins, some medications, and certain medical conditions can cause hepatitis. However, hepatitis is often caused by a virus. In the United States, the most common types of viral hepatitis are , , and . (CREDITS: info_outline Prescription Medicine Safety
Medicines are used to treat diseases, manage conditions, and relieve symptoms. Medicines are generally safe when used as prescribed or as directed on the label, but there are risks in taking any medicine. Each year in the United States, adverse drug events – harm resulting from medication use – cause more than one million visits to hospital emergency departments. Learning about medication safety can reduce and even prevent the risk of harm for you and your loved ones.info_outline Crohn's and Gastroparesis With Anna
This week we are talking once again with Anna, this time about Crohn's Disease and Gastroparesis. Anna is a 35 year old female who has an independent spirit inside of a body that holds an alphabet of health conditions. Anna worked as a case manager for individuals with intellectual and developmental disabilities where she loved to advocate for her clients. When her health forced her to take a step back from working things have been rough as she looks for a new way to advocate for herself and for others. She has struggled with different health issues most of her life but the battle that...info_outline Bile Duct Organoids
This week we are talking about organoids. Scientists have shown over the past decade or so that organoids—small, organ-like structures grown in culture from stem cells—can integrate into many organs, including the , , and of mice, and repair defects. In a study published today (February 18) in , researchers have advanced this approach in human tissue, and demonstrate that organoids derived from adult cholangiocytes, the cells that line the bile ducts, can integrate into human livers from deceased organ donors. The findings pave the way for new treatments...info_outline Familial cerebral cavernous malformation
This week we're talking about FCCM or, Familial cerebral cavernous malformation, with Megan. [FCCM is] ..." a rare, capillary-venous malformations characterized by closely clustered irregular dilated capillaries that can be asymptomatic or that can cause variable neurological manifestations such as seizures, non-specific headaches, progressive or transient focal neurologic deficits, and/or cerebral hemorrhages". Megan is a mom to twins — identical 17-year-old girls — and a 13-year-old son. She, her husband, and kids live just outside of Phoenix. She is a writer, caregiver, and...info_outline
Squeeze a world of passion, goal driven problem solver and an adventurous triathlete into 5 feet of fun and you get Faith Louise Cooper.
Faith Louise grew up in a family of 5 with 2 younger sisters. At the 12 she was diagnosed with Juvenile Rheumatoid Arthritis, now known as Juvenile Idiopathic Arthritis. In 2017 she was diagnosed with hypermobility syndrome and was recently changed to Hypermobility Ehlers Danlos Syndrome abbreviated as hEDS. Her younger sister also battles with hEDS on a daily basis.
Faith Louise joined the swim team in middle school to help manage the arthritis. She lives an enriching life and despite what the medical research says she has gone from being in excreting pain when standing for 15 mins to completing a half Ironman a few years back. Faith Louise has great joy and strength in life because of challenges she has faced.
Faith Louise, wanting to have all the tools in her tool box to live an enriching life has decided to study nutrition and is completing her certified holistic nutrition. She has passion for equipping, educating and inspiring other families going through the same thing as well as raising awareness.
- Facebook: https://www.facebook.com/cooperfa/. Faith Louise Cooper
- Instrgram: https://www.instagram.com/speakingoftri/. Speakingoftri
- LinkIn: www.linkedin.com/in/faith-cooper Faith Louise Cooper
In this episode she discusses the difficulties during COVID with EDS.