loader from loading.io

Severe ME-CFS Caregiver

PodcastDX

Release Date: 01/02/2024

Ectoparasites show art Ectoparasites

PodcastDX

This week we will discuss Ectoparasites.  The CDC says: "Although the term ectoparasites can broadly include blood-sucking arthropods such as mosquitoes (because they are dependent on a blood meal from a human host for their survival), this term is generally used more narrowly to refer to organisms such as ticks, fleas, lice, and mites that attach or burrow into the skin and remain there for relatively long periods of time (e.g., weeks to months). Arthropods are important in causing diseases in their own right, but are even more important as vectors, or transmitters, of many different...

info_outline
Pasteurization For Your Health show art Pasteurization For Your Health

PodcastDX

Over 200 years ago Louis Pasteur was born in Dole, France. Among Pasteur's major contributions and their benefit to society, the most important is the heat treatment of foods and beverages to reduce spoilage and eliminate pathogens for consumers. Probably the greatest achievement of Pasteur was the process that bears the name of this famous scientist who perfected the technique: pasteurization. For liquids, this process does not involve boiling the product to sterility but simply applying just enough heat (ie, par-boiling) to 50–60°C for a specified period to reduce spoilage microbes and...

info_outline
Spontaneous Pneumothorax with Jack show art Spontaneous Pneumothorax with Jack

PodcastDX

In this episode we are talking again with our audio editor Jack Scaro.  The topic again is: spontaneous pneumothorax, or collapsed lung. Spontaneous pneumothorax is an abnormal condition of the lung characterized by the collection of gas in the pleural space between the lungs and the chest wall. This condition occurs without an obvious etiology and can be classified as either primary or secondary. Patients may present with symptoms such as tachycardia and dyspnea. The diagnosis is based on clinical suspicion and can be confirmed with imaging.  Jack had this condition which surprised...

info_outline
Bile acid malabsorption (BAM) part 2 show art Bile acid malabsorption (BAM) part 2

PodcastDX

This week we will continue our coverage of Bile acid malabsorption (BAM),  a . It’s a common cause of . When bile acids aren’t properly absorbed in your intestines, they build up, upsetting the chemical balance inside. Excess bile acids trigger your  to secrete extra water, leading to watery stools. This week we will continue our coverage of Bile acid malabsorption (BAM),  a . It’s a common cause of . When bile acids aren’t properly absorbed in your intestines, they build up, upsetting the chemical balance inside. Excess bile acids trigger...

info_outline
Bile Acid Malabsorption show art Bile Acid Malabsorption

PodcastDX

This week we will discuss Bile acid malabsorption (BAM),  a . It’s a common cause of . When bile acids aren’t properly absorbed in your intestines, they build up, upsetting the chemical balance inside. Excess bile acids trigger your  to secrete extra water, leading to watery stools. ​ What are bile acids? Bile is a substance your  makes while filtering your blood. Your liver sorts waste products, such as toxins, dead blood cells and excess cholesterol into bile. Bile acids come from synthesizing these products together. The different acids in bile help...

info_outline
Veteran's Hesitancy to Healthcare show art Veteran's Hesitancy to Healthcare

PodcastDX

This week we will discuss a Veteran's hesitancy to receive healthcare at the government hospital system known as Veterans Administration or "VA".  Although many veterans may share the concern over receiving care through a government agency due to the medical care they got while in training or active duty; i.e. sucrettes and tylenol being the standard of care when Jean Marie and I were in training. Our guest, Mark Frerichs, has different reasons to question the quality of care. Mark, a Navy veteran who continued working as a contractor post-war in Afghanistan.  It was during his work...

info_outline
Adrenal Insufficiency show art Adrenal Insufficiency

PodcastDX

In this episode we discuss adrenal insufficiency  You can have either primary, secondary, or tertiary adrenal insufficiency. Primary adrenal insufficiency is also called Addison’s disease. When you have this type, your adrenal glands are damaged and can’t make the cortisol you need. They also might not make enough aldosterone. Secondary adrenal insufficiency is more common than Addison’s disease. The condition happens because of a problem with your pituitary gland, a pea-sized bulge at the base of your . It makes a hormone called adrenocorticotropin (ACTH). This is the...

info_outline
Heart Attack on a Train show art Heart Attack on a Train

PodcastDX

Have you ever wondered "what would happen if you or a family member had a medical emergency while using public transportation"  Today we feature Bill H. who had a cardiac event after boarding a Chicago Metra train and the two bystanders that weren't about to let these be his LAST train ride!    can help save lives during sudden cardiac arrest. However, even after training, remembering the steps to use an AED the right way can be difficult. In order to help keep your skills sharp, we've created a quick step-by-step guide that you can print up and place on your refrigerator, in...

info_outline
EDS and Gastroparesis show art EDS and Gastroparesis

PodcastDX

This week we are speaking with Dani, AKA, Stoned Zebra. It took almost 7 years of her health declining after giving birth, until she finally received her EDS diagnosis. She was initially misdiagnosed with Lupus, Fibromyalgia, Neuropathy, or chronic pain syndrome.  Her gastroparesis, symptoms (bloating, nausea, early satiety, severe constipation, weight loss, dehydration, belching, belly pain) began July 2022, and after a ton of aggressive testing, she was diagnosed in May 2023.  EDS just tacks on chronic pain, joint instability and other comorbidities like POTS, MCAS, and OH that...

info_outline
Long Covid With Grace Miller show art Long Covid With Grace Miller

PodcastDX

This week we will discuss a topic that is of concern for millions of people: "Long Covid" and our guest this week is Grace Miller.  Grace is 20 years old, and lives in Iowa. Currently attending college, where she is president of the honor society and finishing up her gen eds. She plans on pursuing a degree in Communication Disorders and become a speech pathologist. Some of her hobbies include crocheting, singing, playing the piano, and learning.  Some people who have been infected with the virus that causes COVID-19 can experience long-term effects from their infection, known as Long...

info_outline
 
More Episodes

This week we will discuss severe Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS).  Our guest is Galen Warden, the mom to six adult children, one being her son James Strazza.  Galen is now a full time caregiver to James due to the severity of his disease. 

Galen Warden and James Strazza

Here are her words:  "James was a healthy young man until he very slowly, because of medical ignorance and poor advice, became weaker and sicker following a severe case of the Epstein Barr Virus when he was just 19. After a few years, he slowly lost his ability to drive, to stand in his kitchen and prepare food for himself, then to walk more than a few steps, to use an electric wheelchair, and finally, to even sit up if carried onto a commode. He’s been 100% bed bound for three years. What is this bizarre disease that so many medical doctors prefer to pass off as psychological, psychosomatic or self-inflicted? Myalgic Encephalomyelitis was, in the past, known only as Chronic Fatigue Syndrome. An unfortunate name because it’s so easily dismissed as simple chronic fatigue, familiar to many with autoimmune diseases. ME/CFS is entirely different. It’s a disease not known, not taught, but not rare. Just rarely acknowledged, and more rarely understood....

ME appears to be a post-viral disease. The onset can be caused by Epstein Barr, Dengue Fever, Covid 19, and other viral illnesses. Now, research is so urgent because Long Covid is impacting thousands who are unaware of the potential that they could end up like James.

Post-viral Covid could easily continue to progress to Severe ME/CFS if patients are not aware of how to manage their overwhelming weakness and fatigue. They must rest and never push themselves. They need the early support of their families to pick up the burden of making meals, driving them, helping them rest as much as possible. Because, if they don’t allow them to rest now, caring for them will become a very heavy burden.

These patients, with their desperate families, their disbelieving caregivers and puzzled doctors, are why I’m compelled to add documenting our experience to my long list of weighty obligations."