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Severe ME-CFS Caregiver

PodcastDX

Release Date: 01/02/2024

Bullying in Young Children show art Bullying in Young Children

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This week we are discussing bullying amongst young children.   CDC defines bullying as any unwanted aggressive behavior(s) by another youth or group of youths, who are not siblings, that involves an observed or perceived power imbalance, and is repeated multiple times or is highly likely to be repeated. Bullying may inflict harm or distress on the targeted youth including physical, psychological, social, or educational harm. Common types of bullying include: Physical such as hitting, kicking, and tripping. Verbal including name-calling and teasing. Relational or social such as...

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Heavy Metal Poisoning show art Heavy Metal Poisoning

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Heavy metal poisoning (toxicity) is the result of exposure to heavy metals like lead, mercury and arsenic. Heavy metals bind to parts of your cells that prevent your organs from doing their job. Symptoms of heavy metal poisoning can be life threatening and they can cause irreversible damage. ​Heavy metal poisoning occurs when microscopic molecules of metals accumulate within your body after exposure. Heavy metals attach to your cells and prevent them from performing their functions, which causes symptoms that could be life threatening without treatment. ​ What metals cause heavy metal...

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COVID and LUPUS show art COVID and LUPUS

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Your  is your body's main defense against germs and illnesses. When you have , you're more prone to infections because your immune system works differently than most people's. It becomes overactive and attacks your body itself. ​ Our guest on today's show is another repeat guest,  Amber is a Registered Nurse turned blogger and patient advocate for those with chronic illnesses.  She deals with Hemiplegic Migraines and Lupus and unfortunately she caught COVID at the very start of the Pandemic. 

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Kidney Dialysis show art Kidney Dialysis

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This week we will discuss kidney dialysis with Christina & Michael.  Christina and Michael Gilchrist have quickly become known as "BLIND CHICK LIVING" & "THE CARETAKER" but who could forget Christina's service dog MOOSE!    Christina story: early teens kidney disease diagnosed, early 20's pregnant, doctor missed toxemia, seizures which caused retina and optic nerve imploded causing blindness in total kidney failure, oldest brother donated kidney, unfortunately rejected, asked if she could do home dialysis "NO!! YOU ARE BLIND", in center dialysis 5+yrs plus a young single...

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Red Blood Cell Exchange & Sickle Cell Disease show art Red Blood Cell Exchange & Sickle Cell Disease

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This week we will discuss Red Blood Cell Exchange (RBCX) and Sickle Cell Disease (SCD).  Our guest is Carly Newton.   ​Carly is a Registered Nurse at Terumo Blood and Cell Technologies with over 15years helping Health Care Professionals treating SCD patients with Red Blood Cell Exchange all over the globe. Specializing in apheresis treatments, Carly uses that experience to educate Health Care Professionals on the most effective ways to prescribe Red Blood Cell Exchange.  ​By focusing on differentiating the different types of transfusion therapies available to SCD patients,...

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Asthma show art Asthma

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As you may recall Myisha spoke with us in season 7 about Crohn's Disease and season 10 about Asthma.   We are running this week's episode as a re-run of her asthma interview.  Myisha is a passionate dedicated advocate she’s received proclamations from states for recognition of her advocacy and IBD awareness.  Besides her challenges with Crohn's, Myisha has a daughter with severe asthma and is here today to discuss her daughters' journey.   ​Patients with severe asthma use the highest dose of inhaled corticosteroids plus a second controller and/or oral...

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Neuro Complications from Chronic Disease show art Neuro Complications from Chronic Disease

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On this week's episode we are talking with Dr. Cornish about Neuro complications in Chronically Ill Patients.  Dr. Cornish, a highly regarded physician, provides integrative medicine services to a diverse global patient community. Currently serving as the Functional Medicine Director of the Amen Clinic East Coast Division, she specializes in autoimmune diseases, hormone imbalances Lyme disease, autism, environmental toxicity, gut imbalances, neurology and various other chronic conditions. Employing a holistic approach, Dr. Cornish identifies the root causes of health issues within the...

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Hormonal Imbalance show art Hormonal Imbalance

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 Hormonal imbalance is this week's topic, and our guest is Dr. Dan Murauski. As humans we are all made of the same set of biological systems but how those systems interact with one another is unique to each individual.  Dr Murauski believes that the goal of a patient physician relationship is to develop an understanding of the unique variables within each system and how they interact with one another in order to optimize health and create longevity. Dr. Daniel Murauski’s path to functional medicine began with his roots in his undergraduate education in biomedical...

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Comparing Types of Medical Service show art Comparing Types of Medical Service

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This week we discuss the differences between conventional western medicine, functional medicine and complementary medicine.  We also will touch on the 42 different subsets of conventional medicine. Western medicine refers to the traditional healthcare practices commonly used in the United States and much of the world. It relies on evidence-based methods to diagnose and treat symptoms and conditions. Healthcare providers in Western medicine use scientifically proven techniques to improve overall health. Examples of Western medicine include blood tests, X-rays, dietary changes,...

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Surviving Childhood Trauma show art Surviving Childhood Trauma

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This week we will discuss childhood trauma with author, speaker, and Licensed Clinical Social Worker Shari Botwin.  Shari has been practicing since 1996 and is a certified trauma expert treating those with eating disorders, anxiety, depression and trauma. She’s here today to talk about her work helping individuals recover from childhood trauma. ​ Few of us will escape our lives without some sort of trauma—some more or less severe than our peers. Whereas previous discussions around trauma were conducted only on therapists’ couches or in private diaries, they are now being more...

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This week we will discuss severe Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS).  Our guest is Galen Warden, the mom to six adult children, one being her son James Strazza.  Galen is now a full time caregiver to James due to the severity of his disease. 

Galen Warden and James Strazza

Here are her words:  "James was a healthy young man until he very slowly, because of medical ignorance and poor advice, became weaker and sicker following a severe case of the Epstein Barr Virus when he was just 19. After a few years, he slowly lost his ability to drive, to stand in his kitchen and prepare food for himself, then to walk more than a few steps, to use an electric wheelchair, and finally, to even sit up if carried onto a commode. He’s been 100% bed bound for three years. What is this bizarre disease that so many medical doctors prefer to pass off as psychological, psychosomatic or self-inflicted? Myalgic Encephalomyelitis was, in the past, known only as Chronic Fatigue Syndrome. An unfortunate name because it’s so easily dismissed as simple chronic fatigue, familiar to many with autoimmune diseases. ME/CFS is entirely different. It’s a disease not known, not taught, but not rare. Just rarely acknowledged, and more rarely understood....

ME appears to be a post-viral disease. The onset can be caused by Epstein Barr, Dengue Fever, Covid 19, and other viral illnesses. Now, research is so urgent because Long Covid is impacting thousands who are unaware of the potential that they could end up like James.

Post-viral Covid could easily continue to progress to Severe ME/CFS if patients are not aware of how to manage their overwhelming weakness and fatigue. They must rest and never push themselves. They need the early support of their families to pick up the burden of making meals, driving them, helping them rest as much as possible. Because, if they don’t allow them to rest now, caring for them will become a very heavy burden.

These patients, with their desperate families, their disbelieving caregivers and puzzled doctors, are why I’m compelled to add documenting our experience to my long list of weighty obligations."