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Complex Illness

PodcastDX

Release Date: 09/10/2024

Abdominal Adhesions show art Abdominal Adhesions

PodcastDX

This week we discuss Abdominal adhesions.  These are bands of scar tissue that form between abdominal tissues and organs. Like the name suggests, the tissue can cause your organs to “adhere,” or stick together. Adhesions commonly form after abdominal surgery. Typically, you don’t need treatment unless they cause a complication, like a small bowel obstruction. Abdominal adhesions are bands of scar tissue that form between the organs in your belly and pelvis. Mainly, they form between loops of your . They can also form between an organ and the wall of your abdominal cavity. Your...

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Vaccines/ Re-Run show art Vaccines/ Re-Run

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The first human vaccines against viruses were based using weaker or attenuated viruses to generate immunity. The smallpox vaccine used cowpox, a poxvirus that was similar enough to smallpox to protect against it but usually didn’t cause serious illness. Rabies was the first virus attenuated in a lab to create a vaccine for humans. Vaccines are made using several different processes. They may contain live viruses that have been attenuated (weakened or altered so as not to cause illness); inactivated or killed organisms or viruses; inactivated toxins (for bacterial diseases where toxins...

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Ablation or Meds for AFIB show art Ablation or Meds for AFIB

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This week we will discuss possible treatment methods for AFIB.   Atrial fibrillation (AFib) is a common type of irregular heart rhythm (arrhythmia) that occurs when the upper chambers of the heart (atria) beat chaotically and out of sync with the lower chambers (ventricles). This can lead to a variety of symptoms, including: Palpitations (a feeling of a racing or irregular heartbeat) Fatigue Shortness of breath Dizziness or lightheadedness Chest discomfort ​ AFib can increase the risk of blood clots, stroke, heart failure, and other heart-related complications. ​...

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Vagus Nerve Injury show art Vagus Nerve Injury

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This week we are talking about the Vagus Nerve.  The vagus nerve (10th cranial nerve) is a critical part of the autonomic nervous system, responsible for regulating vital functions such as heart rate, digestion, and respiration. It extends from the brainstem (medulla oblongata) through the neck and chest to the abdomen, with motor and sensory fibers allowing communication between the brain and organs. The vagus nerve has two branches—left and right—which overlap in regulating autonomic functions. Functions and Importance Cardiac and Pulmonary Regulation: The left vagus nerve...

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CRPS Complex Regional Pain Syndrome show art CRPS Complex Regional Pain Syndrome

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Our guest this week is Christine James.  Christine is a mother to two daughters, 19 and 23, a nurse of 8 ½ years and now a chronic pain patient.  She was happy to take the time to speak with us in order to bring awareness to a rare and largely unknown disease: CRPS or Complex Regional Pain Syndrome. As a nurse she worked in the fields of home health, acute medical, psych, long term care, dialysis; and has floated to many other units within hospitals. She has worked at the bedside and have also held supervisory positions. Passionate about her career as a nurse, she hopes to get well...

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Integrative Neurology with Dr. Alexander Zubkov show art Integrative Neurology with Dr. Alexander Zubkov

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  This week we discuss the field of Functional Neurology with Dr. Alexander Zubkov.  Stroke care is complex and does not stop when a patient is discharged from the hospital.  As a Functional Neurologist, Dr. Zubkov offers comprehensive follow-up for Stroke care, and focus on prevention through health and wellness.  According to his online presence, these are the benefits of such tailored medical care: Benefits of Integrative Neurology and Functional Medicine Identify the root cause of your illness Decrease excessive inflammation ...

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Winter Safety show art Winter Safety

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The winter season brings cold temperatures and severe weather conditions that create many hazards for individuals working in areas that experience these conditions. Even if you work indoors, winter weather still poses many hazards for you, such as driving into work in bad weather or walking through an icy parking lot to get to your building. It is important to recognize and address the hazards the winter season brings with it. ​ During extremely cold weather or winter storms, staying warm and safe can be a challenge. Winter storms can bring cold temperatures, power failures, loss of...

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Staying Healthy as a Veteran show art Staying Healthy as a Veteran

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This week we are talking once again with Dan "Dry Dock" Shockley on "Staying Healthy as a Veteran"  For Veteran's Day this year we are featuring Dan because even though he has been dealt a hard blow with a hereditary colon cancer gene he is not letting that slow him down one bit!  As a matter of fact he is thriving and advocating for others around the globe as a hereditary colon cancer ambassador!  Here is some more about Dan:   ​Dan Dry Dock Shockley, retired U.S. Navy veteran; Operation Desert Storm; Enduring and Iraqi Freedom veteran and a hereditary colon cancer...

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Halloween Safety show art Halloween Safety

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In this episode we will discuss Halloween Safety during COVID   ​ Fall celebrations like Halloween and Harvest Day are fun times for children, who at one time could dress up in costumes, enjoy parties, and eat yummy treats.   These celebrations also provide a chance to give out healthy snacks, get physical activity, and focus on safety. ​ Check out these tips to help make the festivities fun and safe for trick-or-treaters and some ideas to replace typical parties during these uncommonly scary times.

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Silicosis show art Silicosis

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Silicosis is a lung disease caused by inhaling tiny crystalline particles of silica, or silicon dioxide, often linked to work environments like mining, construction, stonework, and sandblasting. The disease leads to symptoms such as coughing, inflammation, and fibrosis (scarring) and is classified under pneumoconioses, a group of lung conditions caused by inhaling dust. Silicosis can be chronic, developing over more than 10 years of exposure; subacute, occurring in two to five years with heavier exposure; or acute, which can happen within months of intense exposure. Although silicosis is...

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More Episodes

On this week's show we are speaking once again with Kristine Hoestermann, the founder of "FindYourRare" and she will be explaining how difficult it has been to get a diagnosis for Ehlers Danlos Syndrome and where that diagnosis took her (Brittle Cornea Syndrome & the BRCA Gene for Breast Cancer are the latest two)  During our discussion I mentioned how I picture complex diagnoses as being like an over-spooled fishing reel, you don't know where to start to unravel the different aspects of the condition, but you know it's all connected!

Kristine_Hoestermann

Heeeeere's Kristine!

Allow me to introduce myself🦓My name is Kristine (kk). I am the CEO of RARE.™ A brand that was born from my own frustrations following the onset of my symptoms in 2016. It never occurred to me I could wake up sick and never get better. That I would lose everything I knew without noticing.

 

In the beginning of getting sick I experienced extreme isolation. I felt like I didn’t fit in anywhere. Among symptoms that have yet to have to be attributed to a known disease🧬I have been diagnosed with EDS , POTS, and Autoimmune Small Fiber Neuropathy Secondary to Unknown Connective Tissue Disease 🆗 That feels like a lot right? but I didn’t look sick and that made it really hard for not only me to accept but also the world around me 🌍

 

I created RARE.™ as a safe space for myself until I realized so many other rare disease fighters, chronic illness, chronic pain, invisible disease or any human needed that same thing. So I got to work and here we are. Together we can start to bridge the gap 🚧

 

🆗More about the RARE. Girl behind the brand; 

🥄I  am a fierce lover of Grey’s Anatomy. Meredith Grey is my person.

🥄You can be sure that I’ll be either listening to Taylor Swift or True Crime. 

🥄My favorite book is a Thesaurus

🥄I am a loyal Ticondaroga Pencil user

🥄I love to create & I am a huge nerd

 🥄My Wardrobe can easily be mistaken for your grandmas & I love it

 

Change Starts Here. Connect With RARE.™

 

📱Share With Us 🔛@findyour rare on all social platforms #findyourrare

🛍 Shop your purpose 🔛 www.findyourrare.com

🎙 Because We Are Strong Podcast 🔛 www.bwspod.com

🗳 VPR Membership Club 🔛 findyourrare.info/vrp 

✉️ Reach Out 🔛 [email protected]