An Interview With Allucent's Marcus Delatte, PhD, on Using Cannabinoids to Treat Patients With Rare Seizure Disorders
Release Date: 06/13/2025
An Interview With Nikki McIntosh, Founder of Rare Mamas and SMA Patient Advocate
Rare Care Podcast
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Nikki McIntoch, mother of a boy with spinal muscular atrophy (SMA) and founder of the advocacy group Rare Mamas.
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An Interview With Dr. Jennifer Brown, Director of the CLL Center at Dana-Farber Cancer Institute
Rare Care Podcast
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Jennifer Brown, MD, PhD, director of the CLL Center at Dana-Farber Cancer Institute in Boston, Massachusetts, and winner of the 2025 Michael J. Keating Outstanding Achievement Award.
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An Interview With Michio Hirano, MD, a Global Expert on Thymidine Kinase 2 Deficiency
Rare Care Podcast
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews neurologist Michio Hirano, MD, of Columbia University in New York about an investigative therapy that shows promise in treating thymidine kinase 2 deficiency (TK2d), an ultrarare disease.
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An Interview With Dr. Pradeep P.A. Mammen on Females With Duchenne Muscular Dystrophy
Rare Care Podcast
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews cardiologist Pradeep P.A. Mammen, MD, of the University of Kansas School of Medicine, on the growing awareness of girls affected by Duchenne muscular dystrophy.
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An Interview With Kfir Oved, CEO of Canopy Biotech, Which is Pursuing Novel Treatments in MG
Rare Care Podcast
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Kfir Oved about the latest Israeli research on myasthenia gravis.
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An Interview With Ileen Colin del Río, President of Duchenne Mexico
Rare Care Podcast
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Ileen Colin del Río, the mother of a boy with Duchenne muscular dystrophy and president of the Cancún-based nonprofit group Duchenne Mexico.
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An Interview With Aspiring DJ Yuva Gambhir
Rare Care Podcast
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Yuva Gambhir, 22, who doesn't let Duchenne muscular dystrophy get in the way of his aspiring career as a DJ.
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An Interview With Dr. Richard Nowak, Director of the Yale Myasthenia Gravis Clinic
Rare Care Podcast
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Richard Nowak, MD, director of the Myasthenia Gravis Clinic at Yale School of Medicine in New Haven, Connecticut.
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An Interview With Robert Steen of Norway on the Award-Winning Movie 'The Remarkable Life of Ibelin'
Rare Care Podcast
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Robert Steen of Oslo, Norway. Steen and his wife, Trude, are the parents of Mats Steen, who died of Duchenne muscular dystrophy (DMD) in 2014. An award-winning documentary, The Remarkable Life of Ibelin, is based on their son's story.
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An Interview With Dr. Carolina Barnett-Tapia, Associate Professor of Neurology at the University of Toronto, on MG Treatment
Rare Care Podcast
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Carolina Barnett-Tapia, MD PhD, an associate professor of neurology at the University of Toronto, about how myasthenia gravis is treated throughout the Western Hemisphere.
info_outlineLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Marcus Delatte, PhD, on how the versatile cannabis plant offers innovative treatments for children with Dravet syndrome and Lennox-Gestaut syndrome.