An Interview With Dr. Richard Nowak, Director of the Yale Myasthenia Gravis Clinic
Release Date: 07/28/2025
An Interview With Rheumatologist Eric Matteson, Winner of the ACR's 2025 Presidential Gold Medal
Rare Care Podcast
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Eric Matteson, MD, of the Mayo Clinic and winner of the American College of Rheumatology's 2025 Presidential Gold Medal.
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An Interview With New Mexico Patient Ambassador Karen Smoot of the Pulmonary Fibrosis Foundation
Rare Care Podcast
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Karen Smoot, a resident of New Mexico who has both idiopathic pulmonary fibrosis and pulmonary arterial hypertension. Karen is a patient ambassador for the Pulmonary Fibrosis Foundation.
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An Interview With Gabriela Romanow, Founder of Rare Vision, a Project That Helps Artists With Rare Neuroimmune Diseases
Rare Care Podcast
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Gabriela Romanow, founder of Boston, Massachusetts-based Rare Vision. The project showcases works by artists with rare neuroimmune diseases such as NMOSD, MOGAD and transverse myelitis.
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An Interview With Lisa Shea, Director of Global Patient Advocacy and Engagement for Immunology at Johnson & Johnson
Rare Care Podcast
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Lisa Shea, director of global patient advocacy and engagement for immunology at Johnson & Johnson, about the experiences of patients affected by HDFN and FNAIT.
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An Interview With Dr. Nicole Lamanna, Leukemia Specialist at Columbia University Medical Center
Rare Care Podcast
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Nicole Lamanna, MD, a leukemia physician specializing in CLL treatment at Columbia University Medical Center in New York City.
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An Interview With Dr. May Lee Tjoa, Maternal and Fetal Immunology Expert at Johnson & Johnson
Rare Care Podcast
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews May Lee Tjoa, PhD, senior global medical affairs leader for Johnson & Johnson’s nipocalimab and maternal-fetal immunology division.
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An Interview With Dr. John Mascarenhas, Professor at New York's Icahn School of Medicine
Rare Care Podcast
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews John Mascarenhas, MD, a professor with the Icahn School of Medicine at Mount Sinai in New York, on advancing care in myelofibrosis.
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An Interview With Catherine Miller, PharmD, of Intellia Therapeutics on an Experimental Gene Editing Therapy for HAE
Rare Care Podcast
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Catherine Miller, PharmD, global medical affairs lead for hereditary angioedema (HAE) at Intellia Therapeutics, on an experimental gene editing therapy known as lonvo-Z.
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An Interview With Dr. Shoshana Revel-Vilk, Director of the Gaucher Unit at Israel's Shaare Zedek Medical Center
Rare Care Podcast
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Shoshana Revel-Vilk, MD, director of the Gaucher unit at Shaare Zedek Medical Center in Jerusalem, Israel.
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An Interview With Nikki McIntosh, Founder of Rare Mamas and SMA Patient Advocate
Rare Care Podcast
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Nikki McIntoch, mother of a boy with spinal muscular atrophy (SMA) and founder of the advocacy group Rare Mamas.
info_outlineLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Richard Nowak, MD, director of the Myasthenia Gravis Clinic at Yale School of Medicine in New Haven, Connecticut.