Episode 384: Behavioral and Lifestyle Risk Factors for MS with Dr. Jared Bruce and Dr. Amanda Bruce
Release Date: 01/06/2025
Episode 401: The Things That (Should) Happen at Your Appointment With Your Neurologist with Dr. Barbara Giesser
RealTalk MS
Most people living with MS don't see their neurologist often. For many, it might be only once or twice a year. A lot of important things take place during that appointment. Symptoms are assessed. Decisions about disease-modifying therapies are made or, sometimes, changed. Questions get asked and, hopefully, answered. Dr. Barbara Giesser returns to the podcast, this time, to review the things that should be discussed and followed up on at your appointment with your neurologist or MS specialist. We're also sharing some good news about MS research funding from the National MS Society and...
info_outline
Episode 400: The President and CEO of the National MS Society Looks Back at the Past and Shares a Vision of the Future with Dr. Tim Coetzee
RealTalk MS
Welcome to the 400th episode of RealTalk MS! Over the past nearly eight years, it's been my absolute honor to bring you insights from leading experts, researchers, advocates, and, perhaps most importantly, from people living with MS themselves. And we have no intention of stopping here! We're excited to continue bringing you the information and conversations that matter most to the MS community. In this episode of the podcast, Dr. Tim Coetzee, President and CEO of the National MS Society, looks back at a significant milestone that took place eighty years ago. Tim also shares his...
info_outline
Episode 399: How Spirituality Can Make a Difference If You're Living with MS with Dr. Mana Ali Carter
RealTalk MS
Research shows that spirituality can benefit mental health and improve overall well-being. And it can play a meaningful role in helping people cope with life’s challenges, like living with MS. This week, Dr. Mana Ali Carter, a rehabilitation psychologist at MedStar National Rehabilitation Hospital in Washington D.C., joins me to discuss the positive effects that spirituality can have on the mind and body, and how it's been shown to make a difference for people living with MS. We're also sharing encouraging initial reports from a Phase 1 clinical trial for KYV-101, Kyverna's...
info_outline
Episode 398: How Breakthrough Discoveries in MS Research Will Impact MS Care with Dr. Amit Bar-Or
RealTalk MS
Last week, at the American Academy of Neurology annual meeting, Dr. Amit Bar-Or received the John Dystel Prize for Multiple Sclerosis Research for his multiple achievements that have advanced our knowledge of neuroimmunology, precision medicine, and biomarkers in MS. We talked with Dr. Bar-Or about how some of the latest discoveries in MS research would impact patient care. Tolebrutinib, an investigational disease-modifying therapy, is currently making its way through the FDA's regulatory process. Last week, the results of the Phase 3 clinical trials for Tolebrutinib were published, and...
info_outline
Episode 397: Managing Grief and MS with Dr. Mary-Frances O'Connor
RealTalk MS
For many people, it can be difficult to talk about the feelings of loss that can accompany MS. For some, it's the loss of the way they imagined their life would turn out. For others, it's the more specific loss of function. Perhaps the loss of their mobility. Or a decline in their cognitive skills. It's painful to imagine any of these scenarios, let alone experience them in real life. The human response to loss is grief. And grieving itself can affect your physical, emotional, and cognitive health. Joining me today to discuss how grieving can affect you, along with ways to best...
info_outline
Episode 396: The Importance of Cancer Screenings for People Living with MS With Dr. Ruth Ann Marrie
RealTalk MS
Managing MS means staying focused not only on your MS but also on your overall health. That includes getting routine health screenings to stay ahead of potential complications. Recent research has shown that, compared to healthy people, people with MS are more likely to develop some cancers. Clinician-scientist Dr. Ruth Ann Marrie joins me to discuss which cancers pose a greater risk to someone with MS, why you need to make those appointments for cancer screenings, where you can find low-cost or no-cost cancer screenings, and things you can do to further minimize your risk of...
info_outline
Episode 395: Things You Need to Know When You're Managing MS While You're Managing Menopause with Dr. Riley Bove
RealTalk MS
When you look at a list of the typical symptoms associated with perimenopause, you'd think you were looking at a list of MS symptoms. And, for women living with MS, that's where the confusion begins. With an estimated 30% of the current MS population now in peri- or post-menopause, researchers are beginning to focus on how menopause and MS interact and the best ways to treat symptoms. Dr. Riley Bove, a neurologist and founding director of the Sex and Gender-Enriched (SAGE) Neurology Program at the University of California San Francisco, joins me to talk about the things you need to know...
info_outline
Episode 394: Probably The Most Important Conversation About MS Advocacy That We Will Ever Have with Steffany Stern
RealTalk MS
Next week, a couple of hundred MS activists will gather in Washington, D.C. for the National MS Society's Public Policy Conference. As we're seeing devastating cuts in funding for MS research, layoffs in every major governmental agency that impacts our healthcare, including the National Institutes of Health, the FDA, CDC, Health and Human Services, and the Department of Veterans Affairs, and even Medicaid funding is at serious risk, advocacy has never been more important than it is right now. I'm devoting this entire episode to a conversation with Steffany Stern, the National MS...
info_outline
Bonus: An ACTRIMS Forum Conversation with Kristine Werner Ozug
RealTalk MS
Just a couple of weeks ago, 1,800 scientists, clinicians, postdoctoral fellows, and medical residents gathered in West Palm Beach, Florida, for the Americas Committee for Treatment and Research in Multiple Sclerosis annual meeting, better known as the ACTRIMS Forum. Kristine Werner Ozug lives with MS and, full disclosure, she's a member of the RealTalk MS team. After the ACTRIMS Forum, Kristine shared her impressions of the conference. We have a lot to talk about! Are you ready for RealTalk MS??! SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or...
info_outline
Bonus: An ACTRIMS Forum Conversation with Dr. Emanuelle Waubant
RealTalk MS
Just a couple of weeks ago, 1,800 scientists, clinicians, postdoctoral fellows, and medical residents gathered in West Palm Beach, Florida, for the Americas Committee for Treatment and Research in Multiple Sclerosis annual meeting, better known as the ACTRIMS Forum. Dr. Emanuelle Waubant is a neurologist who specializes in treating patients with MS, and she is the Director of the UCSF Regional Pediatric Multiple Sclerosis Center. At the ACTRIMS Forum, we talked with Dr. Waubant about advances in pediatric MS treatment and care, and the importance of the International Women in Multiple...
info_outline
Dr. Jared Bruce is a neuropsychologist and the director of psychiatric research at the University of Missouri-Kansas City School of Medicine. Dr. Amanda Bruce is a clinical psychologist and an assistant professor in the Department of Behavioral Pediatrics at the University of Kansas Medical Center.
We're also reviewing the details of the Inflation Reduction Act, which means, beginning in 2025, significantly lower out-of-pocket costs for prescription medications for the quarter-million people with MS who are on Medicare.
We'll tell you about study results for a novel drug that was effective in remyelination and restoring lost function to mice with the mouse model of MS.
We'll share the details of a study that shows how specific comorbidities affect specific MS outcomes.
We'll review results of a study that shows men with MS who start a high-efficacy disease-modifying therapy experience fewer relapses.
And we'll tell you how an artificial intelligence chatbot soundly beat human experts in predicting the results of neuroscience studies.
We have a lot to talk about! Are you ready for RealTalk MS??!
This Week: Behavioral and Lifestyle risk factors for MS (and how to mitigate them) :22
It's 2025, and that means significant out-of-pocket savings on prescription medications for people with MS on Medicare 1:20
Novel drug shows effectiveness in remyelination and restoring function in mouse model of MS 3:26
Study shows how specific comorbidities affect specific MS outcomes 5:17
Study shows men on high-efficacy disease-modifying therapies experience fewer MS relapses 8:46
Study shows AI beats human experts in predicting results of neuroscience studies 12:22
Dr. Jared Bruce and Dr. Amanda Bruce discuss behavioral and lifestyle MS risk factors 16:43
Share this episode 32:13
Have you downloaded the free RealTalk MS app? 32:33
SHARE THIS EPISODE OF REALTALK MS
Just copy this link & paste it into your text or email: https://realtalkms.com/384
ADD YOUR VOICE TO THE CONVERSATION
I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!
Email: [email protected]
Phone: (310) 526-2283
And don't forget to join us in the RealTalk MS Facebook group!
LINKS
If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com
RealTalk MS on YouTube
https://www.youtube.com/@RealTalkMS
STUDY: Selective Retinoid X Receptor Agonism Promotes Functional Recovery and Myelin Repair in Experimental Autoimmune Encephalomyelitis
https://actaneurocomms.biomedcentral.com/articles/10.1186/s40478-024-01904-x
STUDY: Comorbidities and Their Association with Outcomes In the Multiple Sclerosis Population: A Rapid Review
https://msard-journal.com/article/S2211-0348(24)00519-4/fulltext
STUDY EXPLAINED (Plain English): Comorbidities and Their Association with Outcomes In the Multiple Sclerosis Population: A Rapid Review
https://tremlettsmsresearchexplained.wordpress.com/2024/10/29/comorbidities-and-their-association-with-outcomes-in-the-multiple-sclerosis-population-a-rapid-review-explained
STUDY: Comparative Effectiveness of High-Efficacy and Moderate-Efficacy Disease-Modifying Agents in Reducing the Annualized Relapse Rates Among Multiple Sclerosis Patients in the United States
https://sciencedirect.com/science/article/abs/pii/S0091743524003359
STUDY: Large Language Models Surpass Human Experts in Predicting Neuroscience Results
https://nature.com/articles/s41562-024-02046-9
Join the RealTalk MS Facebook Group
https://facebook.com/groups/realtalkms
Download the RealTalk MS App for iOS Devices
https://itunes.apple.com/us/app/realtalk-ms/id1436917200
Download the RealTalk MS App for Android Devices
https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk
Give RealTalk MS a rating and review
http://www.realtalkms.com/review
Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.
RealTalk MS Episode 384
Guests: Dr. Jared Bruce and Dr. Amanda Bruce