loader from loading.io

Breaking the Cycle: How Informed Parents Can Change the SEND System with Samantha Ryan

The SENDcast

Release Date: 11/13/2025

Living with Hearing Loss and Deafness with Samantha Baines show art Living with Hearing Loss and Deafness with Samantha Baines

The SENDcast

This Deaf Awareness Week, we welcome Samantha Baines to the podcast to explore what it’s like living with hearing loss and deafness. Samantha is an award-winning actress, comedian and broadcaster who discovered she was deaf nearly 10 years ago and now advocates for accessibility. Samantha shares practical insights, challenges misconceptions, and explores what meaningful accessibility looks like in everyday life and in education. They discuss: The language that deaf communities prefer (and why words matter). How to make meetings, classrooms and public spaces more accessible. The role of BSL...

info_outline
*Special Episode* - Who Will Be SEND? Questions, Not Answers on the Reform Ahead with Dale Pickles show art *Special Episode* - Who Will Be SEND? Questions, Not Answers on the Reform Ahead with Dale Pickles

The SENDcast

Who Will Be SEND? Questions, Not Answers on the Reform Ahead Dale Pickles, Managing Director, B Squared England's SEND system is on the cusp of its most significant reform in a generation - but one crucial question is going largely unanswered: who will actually be SEND under the new framework? Dale has written another thought-provoking paper - and again he's recorded it too, so you can take it in without having to work through 34 pages of reading. He unpacks the quiet but profound shift hidden within the proposed move from four areas of need to five areas of development. The SEND register...

info_outline
Barriers to Mental Healthcare for Autistic People with Dr Joanna Grace show art Barriers to Mental Healthcare for Autistic People with Dr Joanna Grace

The SENDcast

Did you know that a third of autistic people experience serious mental health challenges? This striking statistic is highlighted by Dr Joanna Grace in her latest podcast ‘Barriers to Mental Healthcare for Autistic People’. “Autistic people have been actively removed from research about mental health.” Dr Joanna Grace A sensory engagement and inclusion specialist, Joanna emphasises that while there is substantial research on mental health, we often don’t know if it applies to autistic individuals. During the podcast, they discuss: The prevalence of inaccurate mental health...

info_outline
*Special episode* The Autism and ADHD Shows 2026 show art *Special episode* The Autism and ADHD Shows 2026

The SENDcast

Geoff and Nargis join Dale in the studio for this special episode to discuss the Autism & ADHD Shows (June–July) in London, Birmingham, and, for the first time, Liverpool (moved from Manchester). They share how the event evolved from the Autism Show, launched in 2011 after their son’s autism diagnosis, to its current format that also includes ADHD - driven by the rise in co-occurring diagnoses. They also describe what attendees can expect: a welcoming, supportive community hub offering over 100 CPD-accredited learning hours, practical strategies, workshops, one-to-one clinics, and the...

info_outline
Rare but Recognisable: Isla’s FOP Story with Nicky Muller show art Rare but Recognisable: Isla’s FOP Story with Nicky Muller

The SENDcast

Today is Fibrodysplasia Ossificans Progressiva (FOP) Awareness Day, and to mark the occasion we’re sharing an episode focused on raising awareness of this rare condition. In this conversation, Nicky Muller - a former trustee of FOP Friends and mother of Isla, who has FOP - joins Dale to share practical insight into supporting children with rare conditions and to tell Isla’s inspiring story. Nicky explains that FOP causes the body’s soft tissues to progressively turn into bone, often after flare-ups triggered by injury or sometimes viruses. She highlights how unpredictable this is, and...

info_outline
Supporting Young People with Long-Term Illness in Education with Josh Pelled show art Supporting Young People with Long-Term Illness in Education with Josh Pelled

The SENDcast

Bright Futures’ research estimates that around 270,000 young people (age 5–24) miss 20% or more of their education each year due to long-term illness. The consequences for qualifications, employment and wellbeing are severe - for example, 79% of 18-24 year‑olds who are out of work due to ill health only have qualifications at GCSEs or below, compared with 34% of their peers. These young people don’t just lose learning: prolonged absence damages social connections, confidence and everyday school experiences. “Returning to normal” needs careful planning, not a simple reinstatement of...

info_outline
Assessing Complex Learners with Jordan Garrett show art Assessing Complex Learners with Jordan Garrett

The SENDcast

The needs around SEND in schools are increasing - both in numbers and complexity of needs – and many schools are struggling with the best way to support their learners effectively. They want to do the best for their students, but the DfE provides very limited guidance on supporting learners with SEND. Jordan Garrett from Sensory Classroom joins Dale to discuss ‘assessing complex learners’. Jordan brings a wealth of experience from specialist and mainstream settings, plus years of curriculum and resource development, and offers practical, classroom-tested advice. Their discussion...

info_outline
Understanding PANS and PANDAS: Bridging the Gap in Education and Health with Tina Coope show art Understanding PANS and PANDAS: Bridging the Gap in Education and Health with Tina Coope

The SENDcast

Did you know that common infections, like strep throat, can cause a neuroinflammatory response affecting the brain? Today we’re raising awareness of difficult to diagnose and often misunderstood conditions – Paediatric Acute-onset Neuropsychiatric Syndrome (PANS) and Paediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections (PANDAS). Tina Coope, a former teacher and parent whose daughter experienced sudden neuropsychiatric symptoms, explains how PANS and PANDAS present, why they’re often missed, and what schools can...

info_outline
Understanding Epilepsy’s Impact on Children and Young People with Catherine Hodder show art Understanding Epilepsy’s Impact on Children and Young People with Catherine Hodder

The SENDcast

In recognition of International Purple Day today, Catherine Hodder, Head of Policy, Influencing & Youth Voice at Young Epilepsy joins Dale to discuss ‘Understanding epilepsy’s impact on children and young people’. Epilepsy affects around 1 in 200 children in the UK, yet 1 in 3 children with epilepsy do not get the support they need to fully participate in school life. Epilepsy is one of the most common conditions affecting children and young people, yet it is often misunderstood. Seizures can be subtle and are frequently missed or mistaken for inattention, many school staff do not...

info_outline
Supporting Children with Down syndrome to Reach Their Full Potential with Sarah Holton show art Supporting Children with Down syndrome to Reach Their Full Potential with Sarah Holton

The SENDcast

Did you know that children with Down syndrome have a different learning profile? Ahead of World Down Syndrome Day this Saturday, Sarah Holton from Down syndrome UK, joins Dale to tell us how we can ‘support children with Down syndrome to reach their full potential’. Sarah is a specialist advisory teacher and parent to two children, one of whom has Down syndrome. She shares practical, research‑informed strategies to help children with Down syndrome thrive. Why listen? Understand the Down syndrome learning profile (strengths like visual learning; challenges like hearing, visual acuity,...

info_outline
 
More Episodes

Navigating the SEND system can be overwhelming, and many parents find themselves without essential information until it’s too late. Unfortunately, there’s no handbook to guide us. Often, parents only begin to understand SEN processes, the graduated approach, and even SEN law when their child is already struggling.

This week, we welcome Samantha Ryan, a neurodivergent mother, SEND advocate, and author. In this insightful episode, Samantha shares her journey as a parent navigating the complex SEND system, advocating for her autistic son who has been out of school since March 2024. With her unique perspective, she discusses the emotional challenges faced by parents and the critical importance of being informed about the SEND process.

Key highlights from their discussion:

  • The significance of understanding the assess, plan, do, review (APDR) cycle and how it impacts your child's educational journey.
  • Practical advice on how parents can work collaboratively with schools to ensure their children's needs are met.
  • The importance of early intervention and how informed parents can help prevent crises before they escalate.
  • Insight into the emotional toll of navigating the SEND system and the need for a supportive community.

Samantha's experiences and insights can empower parents and educators alike to create a more inclusive environment for all children with SEND.

View all podcasts available or visit our SENDcast sessions shop!

 

About Samantha Ryan

I am a neurodivergent mother, informal SEND advocate, and author of SEND Help! and A Parent’s Guide to SEND Life and Law (although my day job is Global Process Owner working in Finance process and systems for ITV).  

My son is autistic, PDA and probable ADHD. He hit burnout at school in March 2024 and was left with trauma after being restrained during a mental health crisis. He has been out of education since that fateful day. I have been fighting for support and continue to battle through the SEND support system. 

I spent a year as co-admin helping to grow the Facebook group SEN Parent Support Group which was setup by Andrea Dixon-Boldy in February 2024 and was at 19,000 members by the time I left the group in May this year. Over that time, I did my IPSEA SEN law training for parents, created hundreds of resources breaking down SEN processes, designed and delivered training to hundreds of parents and offered parent-to-parent support alongside our amazing team of volunteers. 

I am passionate about empowering families with the knowledge they deserve before they reach crisis point.

 

Contact Samantha

https://linktr.ee/samantharyansendnd

https://www.facebook.com/Sam.MentallyHilariousMum/

https://www.tiktok.com/@sam_mhm

 

Useful Links

Available on Amazon: 

Parent’s Guide to SEND Life and Law :

Amazon.com: PARENT'S GUIDE TO SEND LIFE & LAW: Rights, reality, resilience & resistance: A Parent’s Survival Guide to SEND Law, Life, and the Support That Saves Us eBook : Ryan, Samantha: Kindle Store

SEND Help! A Parent’s Toolkit to Navigating SEND Processes 

SEND Help!: A Parent’s Toolkit to Navigating SEND Process eBook : Ryan, Samantha: Amazon.co.uk: Kindle Store

 

 

The SENDcast is powered by B Squared

We have been involved with Special Educational Needs for over 25 years, helping show the small steps of progress pupils with SEND make. B Squared has worked with thousands of schools, we understand the challenges professionals working in SEND face. We wanted a way to support these hardworking professionals - which is why we launched The SENDcast! Click the button below to find out more about how B Squared can help improve assessment for pupils with SEND in your school.