loader from loading.io

Rare but Recognisable: Isla’s FOP Story with Nicky Muller

The SENDcast

Release Date: 04/23/2026

A Million Families Waiting: Can AI Help? with Ben Cosh show art A Million Families Waiting: Can AI Help? with Ben Cosh

The SENDcast

AI is everywhere right now - but how useful is it really for families navigating the SEND system, and how do you know when to trust it? In this episode, Dale is joined by Ben Cosh, founder and CEO of Silva, to discuss AI in SEND: what it can do, what it can't, and why families shouldn't have to wait years for help. Ben built Silva after living through the reality of year-long NHS waiting lists, overwhelmed teachers, and private assessments that cost a fortune but came with no support afterwards. His own experience - three years to identify his daughter's unmet needs, and another three...

info_outline
Behind the Mask: Autistic Burnout and Eva's Story with Sarah Griffiths show art Behind the Mask: Autistic Burnout and Eva's Story with Sarah Griffiths

The SENDcast

Autistic burnout is talked about on social media, but how many of us truly understand what it looks like - and what it takes to recover from it? Sarah Griffiths, children's author, meditation teacher, and parent advocate, joins Dale to discuss  and the story of her daughter Eva. Sarah shares, with honesty and warmth, how Eva - autistic and ADHD, and a skilled masker for years - collapsed into severe burnout at the start of Year 6. Her executive functioning all but disappeared. She couldn't leave the sofa. The family slept downstairs for three months. And at every turn, the systems...

info_outline
What do we mean by trauma informed practice? with Dr Asha Patel show art What do we mean by trauma informed practice? with Dr Asha Patel

The SENDcast

Trauma-informed practice is one of those phrases everyone nods along to – but how many of us truly understand what it means, or what it actually looks like in practice? Dr. Asha Patel, founder and CEO of Innovating Minds, joins Dale to discuss what we really mean by trauma-informed practice. “Trauma-informed practice is a way of being. It’s not a switch that you can switch on and off.” — Dr. Asha Patel It starts with the adult being regulated, aware of how they are feeling, and able to offer that calmness to the young person in front of them. You cannot support a dysregulated child...

info_outline
Where are specific learning difficulties in the SEND reforms? with Louise Selby and Janet Goring show art Where are specific learning difficulties in the SEND reforms? with Louise Selby and Janet Goring

The SENDcast

The SEND reforms have generated a lot of discussion – but one significant gap has gone largely unnoticed. Where do specific learning difficulties fit in? Dale is joined by Louise Selby, a dyslexia specialist, and Janet Goring, an SpLD specialist, for a lively and at times eye-opening conversation about what the shift from four broad areas of need to five areas of development could mean for children with SpLD. Together, they explore: Why cognition and learning has disappeared from the new framework – and why this is a significant oversight. Why dyslexia, dyscalculia, and SpLD maths don’t...

info_outline
DLD and SEND Reforms: No Child Left Behind with Jane Harris show art DLD and SEND Reforms: No Child Left Behind with Jane Harris

The SENDcast

There are 1.3 million children in this country with developmental language disorder. Most of them are sitting quietly in classrooms going unnoticed. Today, Dale is joined by Jane Harris, Chief Executive of Speech and Language UK, to discuss , and what it really means to ensure no child is left behind. They discuss: - Why children with DLD are six to ten times more likely to fall behind in core subjects, and twice as likely to be unemployed as adults. - The deeply problematic link between unidentified speech and language challenges and mental health - and why referring these children...

info_outline
We need to talk about the neurodivergent teachers in our schools with Chris Benson show art We need to talk about the neurodivergent teachers in our schools with Chris Benson

The SENDcast

We will never have true inclusion in our schools while neurodivergent teachers remain hidden. In this episode, Dale is joined by Chris Benson, founder of Headfirst Consulting and ND Chat, to discuss the neurodivergent teachers in our schools – and why it’s a conversation that the profession shouldn’t ignore. Chris was one of the first serving headteachers to publicly disclose his own ADHD diagnosis. The response – hundreds of private messages from educators across the country – spoke volumes about just how many teachers are quietly living with the same experience. Together, Dale and...

info_outline
Why every school needs a SENCO on the senior leadership team with Lisa Pinkerton show art Why every school needs a SENCO on the senior leadership team with Lisa Pinkerton

The SENDcast

If a school’s inclusion strategy depends solely on its SENCO, it simply isn’t sustainable – and it isn’t working. In this episode, Dale is joined by Lisa Pinkerton, Head of Education at Widgit Software and former primary school deputy headteacher, to discuss why every school needs a SENCO on its senior leadership team. Together, Dale and Lisa explore why the SENCO’s circle of influence is so often determined not by the SENCO themselves, but by the headteacher and the authority they choose to give. They discuss the very real tension between strategic leadership and the mountain of...

info_outline
It's Not What It Looks Like: Screen Time and Neurodivergent Children with Dr Daniel Weisberg show art It's Not What It Looks Like: Screen Time and Neurodivergent Children with Dr Daniel Weisberg

The SENDcast

When you see a child glued to a screen, it's easy to make assumptions. But for neurodivergent children, screen use is rarely what it looks like from the outside. In this episode, Dale is joined by Dr. Daniel Weisberg a consultant clinical psychologist to discuss neurodivergent children, young people, and screen use. Together, Dale and Daniel explore six key reasons why screens function very differently for neurodivergent children - from the haven of predictability that games provide in contrast to an overwhelming real world, to the role of screens in decompression and emotional regulation...

info_outline
Leadership in Social Impact Education with Ed Robbins show art Leadership in Social Impact Education with Ed Robbins

The SENDcast

For some children and young people, the traditional school system has already failed them - sometimes more than once. What they need isn't a better curriculum. It's someone who will meet them where they are. In this episode, Dale is joined by Ed Robbins, CEO of Fresh Start in Education to discuss ‘Leadership in Social Impact Education’. Fresh Start works one-to-one with young people in their homes, in coffee shops, parks, libraries - wherever they feel safe enough to connect. The goal isn't academic attainment from the outset. It's building a relationship, celebrating the seemingly small...

info_outline
*Special episode* The Tes SEND Show 2026 show art *Special episode* The Tes SEND Show 2026

The SENDcast

This is a special episode in which Dale is joined by Beverley Walters, Programme Director of the Tes SEND Show, and Jane Friswell, SEND Consultant and parent advocate, to discuss why listeners should attend the Tes SEND Show taking place on Friday 9th and Saturday 10th October at the Business Design Centre in Islington, London. Now in its 34th year, the show is the flagship event in the SEND calendar, offering over 42 seminars, 29 free exhibitor sessions, six parent-carer forum sessions, and a leadership summit run in partnership with ASCL. Beverley outlines this year’s seminar programme,...

info_outline
 
More Episodes

Today is Fibrodysplasia Ossificans Progressiva (FOP) Awareness Day, and to mark the occasion we’re sharing an episode focused on raising awareness of this rare condition.

In this conversation, Nicky Muller - a former trustee of FOP Friends and mother of Isla, who has FOP - joins Dale to share practical insight into supporting children with rare conditions and to tell Isla’s inspiring story.

Nicky explains that FOP causes the body’s soft tissues to progressively turn into bone, often after flare-ups triggered by injury or sometimes viruses. She highlights how unpredictable this is, and how it affects daily life - particularly movement, risk management, and schooling.

A key focus is Isla’s recent transition to secondary school where they discuss difficulties around inclusion, PE participation, breaks/lunchtime, and the emotional impact. Nicky highlights the importance of school-wide awareness and an inclusive culture. Stressing that genuine inclusion is not just about the support in place, but whether a child feels safe, seen, valued and able to belong.

“The best one-on-ones are the ones where you don't even know they're there. Isla’s voice is the voice that's heard - it's so difficult for her to feel not only included but valued.”

Nicky Muller

View all podcasts available or visit our SENDcast sessions shop!

 

About Nicky Muller

Nicky is an FOP awareness advocate and mum to Isla who is now 12 and diagnosed with FOP as a baby. A former trustee of the UK charity, FOP Friends and a career in Marketing, she combines lived experience with expertise to drive awareness, fundraising and support for families.

 

Contact Nicky

https://www.fopfriends.com

https://www.facebook.com/fopfriends

https://www.instagram.com/fop_mum/

https://x.com/FOPFriends

nickyjmuller@gmail.com

https://www.youtube.com/FOPFriends

 

Useful Links

www.fopfriends.com 

 

 

The SENDcast is powered by B Squared

We have been involved with Special Educational Needs for over 25 years, helping show the small steps of progress pupils with SEND make. B Squared has worked with thousands of schools, we understand the challenges professionals working in SEND face. We wanted a way to support these hardworking professionals - which is why we launched The SENDcast! Click the button below to find out more about how B Squared can help improve assessment for pupils with SEND in your school.