Bonus Episode: Dr. Terry Wahls With New Multiple Sclerosis Study And You Can Participate
Thriving Over Surviving Multiple Sclerosis
Release Date: 09/01/2022
112 Maintaining Hope When You Have MS
Thriving Over Surviving Multiple Sclerosis
But let's be real, MS presents difficulties. Having hope that things will get better, that there is love and kindness in the world, and that hope is in each of us makes a difference for the good. We can not hope blindly. We have to choose a course of action and stick to it. Despite the delays and setbacks along the journey hope carries us along while ersisting with an adventurous course of action. I call it a gritty hope. These are the words of Justine Calcagno who was diagnosed with MS in 2016. She is an ultrarunning non-profit researcher with a Ph.D. in psychology. She is passionate about...
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111 Choosing Self Over Fear When Wanting To Get Pregnant With Multiple Sclerosis
Thriving Over Surviving Multiple Sclerosis
What is your greatest fear? Before MS, mine was probably superficial. Fear is an unpleasant emotion caused by the belief that something or someone is dangerous and likely to cause pain (physical, emotional, etc.). Fear can be intense and sometimes overpower us if we don't have the tools to work through the emotions it brings. Mary Virgi does not let fear hold her back! She leans into her core values of family and faith to climb out of negative spaces. At the time we recorded this, Mary was 14 weeks pregnant. And releasing this episode she is now about to have her baby. She is surely thriving!...
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110 Finding A Safe Space When Multiple Sclerosis Causes Depression
Thriving Over Surviving Multiple Sclerosis
Did you know that approximately 50% of people diagnosed with multiple sclerosis are also diagnosed with depression? This is 3X more likely than in the general population. Managing mental health can be complicated especially when you also have an unpredictable autoimmune disease. Alyssa Gonzalez bravely shares her journey with MS and mental health. She was diagnosed with pediatric Multiple Sclerosis and just that process alone was overwhelming. There is so much to chat about with this gorgeous and positive Instagram Influencer. Let's chat it up with Aly Katelyn! Instagram: @aly_katelyn...
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109 The Crap Gap With Multiple Sclerosis Treatments
Thriving Over Surviving Multiple Sclerosis
Have you ever experienced Crap Gap? You may know it as the end of dosing interval or the weaning-off effect. This refers to the period of time between Ocrevus infusions when you might feel a worsening of MS symptoms. This may include things such as Fatigue, cognitive fog, motor function or balance problems. You know... all the things! Kellie Batts, who has had MS since 2016 shares her experience with Crap Gap as well as her experience over the last seven years with Relapsing-Remitting Multiple Sclerosis. Let's chat it up with Kellie! Instagram: @_livinglikek UpLift accepts most...
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108 Just Multiple Sclerosis
Thriving Over Surviving Multiple Sclerosis
Has your multiple sclerosis diagnosis influenced the course of your life? Has it shifted your passions in a certain direction? Many people say that everything happens for a reason. Would being diagnosed with a chronic illness happen for a reason? Justin Loizos believes his MS diagnosis has further grown his passions. Let's chat it up with Justin. Instagram: @justinmloizos, @justcompassioncannabis, @justmultiplesclerosis Instagram: @thrivingoversurvivingpodcast
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107 Benefits of Massage For People Who Have Multiple Sclerosis
Thriving Over Surviving Multiple Sclerosis
Have you ever had a massage? Not one from a friend or lover, I'm talking from a professional masseuse? For many, massage becomes a regular part of their health routine. Massage can help with anxiety, depression, digestive disorders, fibromyalgia, headaches, insomnia, nerve issues, muscle stiffness, inflammation, and more! Angela Landeros shares how massage therapy became her passion. As someone diagnosed with MS and a massage therapist, she knows firsthand how therapeutic it can be. This equestrian and author shares her experience with multiple sclerosis and beyond. Let's chat it up with...
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106 The Importance of Staying Curious When You Have Multiple Sclerosis
Thriving Over Surviving Multiple Sclerosis
Remaining curious is essential, especially when seeking answers to improve our health. Asking questions is necessary, but challenging when we don't know what questions to ask. Empowering ourselves with the knowledge and strength required to tackle our daily struggles with chronic illness. Fitness Coach Marnie Bothmer, who thrives with MS, knows that curiosity is necessary to open her mind to other ways of viewing the world. Let's chat it up with Marnie! Instagram: @mbstrength4life Instagram: @thrivingoversurvivingpodcast
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105 Fear Of The Unknown With An Multiple Sclerosis Diagnosis
Thriving Over Surviving Multiple Sclerosis
When have you felt the most fear in your life? Did you know there are seven deadly fears? Fear of being alone Fear of connecting (lack of) Fear of abandonment Fear of self-assertion Fear of lack of recognition Fear of failure and success Fear of being fully alive Rachel Larsen shares how she moved beyond fear and anger to embrace vulnerability and live her best life. She removed herself from isolation and now fully enjoys her life with or without MS. Let's chat it up with Rachel. Facebook and Instagram: @wontstopsmyelin email: Instagram:...
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104 Our Emotional Health With Multiple Sclerosis
Thriving Over Surviving Multiple Sclerosis
Would you consider yourself emotionally well? Do we even know what that feels like or should feel like? Jane Gould has found what emotional wellness is for her. She shares with us her 20-year journey with MS, what she has learned about herself, and how she finds peace in her every day life. Let's chat it up with Jane! Twitter: @ABCsofMS Substack: Instagram: @thrivingoversurvivingpodcast
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103 Knowledge Is Power With MS, But What's Next?
Thriving Over Surviving Multiple Sclerosis
Many of us searched for answers for a long time before finding out we have multiple sclerosis. Once you had the knowledge, what did you do with it? Knowing is just the first step. Alex Sokoloff uses his core value of self-discipline to stick to his routines after learning many lessons throughout his MS experience. Let's chat it up with Alex! Instagram: @thrivingoversurvivingpodcast
info_outlineClinical Trial: Efficacy of Diet on Quality of Life in Multiple Sclerosis (EDQ:MS)
ClinicalTrials.gov Identifier: NCT05007483
Type of MS: relapsing-remitting multiple sclerosis (RRMS)
Treatment mode of action: dietary intervention
Number of Participants: 156
Medication: Participants may continue disease-modifying treatments if they are on them
Institution: University of Iowa
Address: 200 Hawkins Drive, Iowa City, Iowa 52242
Contact Name: Mary Ehlinger
Phone: 319-384-5002
Email: [email protected]
Funding: Gift from the Carter Chapman Shreve Family Foundation to the Therapeutic Lifestyle Fund at the University of Iowa
Brief Description
This is a research study comparing the effects of three diets — a Modified Paleolithic Diet (elimination of gluten, dairy, and eggs), a Time Restricted Olive Oil-based Ketogenic diet, and usual diet with information about the USDA Dietary Guidelines for Americans — to determine whether these diets improve quality of life and reduce fatigue, a disabling symptom that can significantly interfere with the ability to function in daily life. Participants in the usual diet group will be encouraged but not required to follow the Dietary Guidelines for Americans diet. The study will also measure the impact of the study diets on walking function, hand function, vision, serum neurofilament (blood biomarker), and brain imaging (presence of enhancing lesions and changes in brain volume).
The study will be held at the University of Iowa Hospitals & Clinics over two years. It will consist of three visits to Iowa City, Iowa. The first visit occurs at month 0. The second visit is at month 3, and third and final visit is at month 24. The first visit may last 4-6 hours. The second visit will last about 2-3 hour. The third visit may last approximately 4-6 hours.
Participants will be randomly assigned to follow one of the three study diets. Participants will continue to take their current medications, including any disease-modifying treatments for multiple sclerosis. Participants may take recommended supplements, eat more non-starchy vegetables, complete daily food logs (3 questions) on a free smartphone application, complete online surveys every three months, watch videos to learn about the study diet to which they are assigned, meet with the study dietitian to learn about the study diet to which they are assigned, and attend optional online support meetings. If a participant is assigned to the ketogenic diet, they will be asked to take a blood ketone measurement using a drop of blood daily for the first month, then twice per week. They will have a device that pricks the finger to conduct the blood ketone measurement.
Participants will have a fasting blood draw at each of the study visits and may bring a snack after the blood draw. They will complete assessments of walking, hand, and vision function at each visit. They will have a NON-CONTRAST MRI of the brain at the first and last visits.
Key requirements to participate in the study include the following: 1) be willing to share medical records with the study team, 2) do not have clinically significant heart disease, liver disease, kidney disease or type 1 diabetes, 3) do not have a serious psychiatric disease that would make adopting a study diet more difficult (for example schizophrenia or disabling depression), 4) are not taking insulin, coumadin, or weight loss medications, 5) have a smart phone or tablet to download a free app, and 6) have access to high-speed internet and a computer, tablet or smart phone to complete surveys and participate in video conferences via the Zoom platform.
A screening survey for eligibility to participate in this study is available here: https://redcap.icts.uiowa.edu/redcap/surveys/?s=JX73EYRJNPF9MHRR
Dr. Terry Wahls is an Institute for Functional Medicine Certified Practitioner and a clinical professor of medicine at the University of Iowa where she conducts clinical trials in the setting of Multiple Sclerosis. In 2018 she was awarded the Institute for Functional Medicine’s Linus Pauling Award for her contributions in research, clinical care and patient advocacy. She is the author of The Wahls Protocol: A Radical New Way to Treat All Chronic Autoimmune Conditions Using Paleo Principles, and the cookbook, The Wahls Protocol Cooking for Life. Learn more about her MS clinical trials https://wahls.lab.uiowa.edu/. Pick up a one-page handout for the Wahls™ Diet at https://terrywahls.com/diet/
Wahls Research Lab - to learn about current clinical research studies that Dr. Wahls is conducting
Social Media Links
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