Thriving Over Surviving Multiple Sclerosis

Multiple sclerosis (MS) is an incurable autoimmune disease. Thriving Over Surviving shares the experiences of those living with MS who lean into their core values to live their best lives. Our host, Edie, was diagnosed with RRMS in 2015. In each episode, she chats it up with MS thrivers to learn and grow from each other's experiences. Chronic illnesses such as MS can impact our lives in ways that may become overwhelming. It is nice to know that others out there focus on thriving despite their diagnosis. New episodes are published each week. Thank you for joining our thriving community!

111 Choosing Self Over Fear When Wanting To Get Pregnant With Multiple Sclerosis 11/21/2023

110 Finding A Safe Space When Multiple Sclerosis Causes Depression 11/14/2023

109 The Crap Gap With Multiple Sclerosis Treatments 11/07/2023

108 Just Multiple Sclerosis 10/24/2023

107 Benefits of Massage For People Who Have Multiple Sclerosis 10/17/2023

106 The Importance of Staying Curious When You Have Multiple Sclerosis 10/10/2023

105 Fear Of The Unknown With An Multiple Sclerosis Diagnosis 09/26/2023

104 Our Emotional Health With Multiple Sclerosis 09/19/2023

103 Knowledge Is Power With MS, But What's Next? 09/12/2023

102 It's A Marathon, Not A Sprint With Multiple Sclerosis 09/05/2023

101 Being Kind To Yourself When You Have Multiple Sclerosis 08/29/2023

100 Researchers Are Making Breakthroughs in the MS Field 08/22/2023

99 Adopting Children When You Have Multiple Sclerosis 08/22/2023

98 The Golden Rule of Multiple Sclerosis 08/15/2023

97 Everyone With MS Deserves A Hero 08/08/2023

96 Meeting Friends In The Multiple Sclerosis Community 08/08/2023

95 MS Challenges Are An Opportunity To Learn About Yourself 11/29/2022

94 Vitality Over Vanity When Living With An MS Diagnosis 11/22/2022

93 Feeling Grateful As A Single Mom Living With MS 11/08/2022

92 Living An Adventurous Life With Multiple Sclerosis 11/01/2022

91 Owning The Diagnosis Of Multiple Sclerosis With The MS Stage 10/18/2022

90 Writing Your Own Definition of Health With MS 10/11/2022

89 Dating And Multiple Sclerosis With MS Girl Gang 10/04/2022

88 Multiple Sclerosis Friends United 09/27/2022

87 Thoughts Of An MS Warrior; Beneath The Tracksuit 09/20/2022

86 How MS Hope And The Best Bet Diet Changed One Man's Perspective On Living Well 09/13/2022

85 Being Your Authentic Self With Multiple Sclerosis 09/06/2022

Bonus Episode: Dr. Terry Wahls With New Multiple Sclerosis Study And You Can Participate 09/01/2022

Bonus Episode: Dr. Terry Wahls With New Multiple Sclerosis Study And You Can Participate Clinical Trial: Efficacy of Diet on Quality of Life in Multiple Sclerosis (EDQ:MS) ClinicalTrials.gov Identifier: NCT05007483 Type of MS: relapsing-remitting multiple sclerosis (RRMS) Treatment mode of action: dietary intervention Number of Participants: 156 Medication: Participants may continue disease-modifying treatments if they are on them Institution: University of Iowa Address: 200 Hawkins Drive, Iowa City, Iowa 52242 Contact Name: Mary Ehlinger Phone: 319-384-5002 Email: Funding: Gift from the Carter Chapman Shreve Family Foundation to the Therapeutic Lifestyle Fund at the University of Iowa Brief Description This is a research study comparing the effects of three diets — a Modified Paleolithic Diet (elimination of gluten, dairy, and eggs), a Time Restricted Olive Oil-based Ketogenic diet, and usual diet with information about the USDA Dietary Guidelines for Americans — to determine whether these diets improve quality of life and reduce fatigue, a disabling symptom that can significantly interfere with the ability to function in daily life. Participants in the usual diet group will be encouraged but not required to follow the Dietary Guidelines for Americans diet. The study will also measure the impact of the study diets on walking function, hand function, vision, serum neurofilament (blood biomarker), and brain imaging (presence of enhancing lesions and changes in brain volume). The study will be held at the University of Iowa Hospitals & Clinics over two years. It will consist of three visits to Iowa City, Iowa. The first visit occurs at month 0. The second visit is at month 3, and third and final visit is at month 24. The first visit may last 4-6 hours. The second visit will last about 2-3 hour. The third visit may last approximately 4-6 hours. Participants will be randomly assigned to follow one of the three study diets. Participants will continue to take their current medications, including any disease-modifying treatments for multiple sclerosis. Participants may take recommended supplements, eat more non-starchy vegetables, complete daily food logs (3 questions) on a free smartphone application, complete online surveys every three months, watch videos to learn about the study diet to which they are assigned, meet with the study dietitian to learn about the study diet to which they are assigned, and attend optional online support meetings. If a participant is assigned to the ketogenic diet, they will be asked to take a blood ketone measurement using a drop of blood daily for the first month, then twice per week. They will have a device that pricks the finger to conduct the blood ketone measurement. Participants will have a fasting blood draw at each of the study visits and may bring a snack after the blood draw. They will complete assessments of walking, hand, and vision function at each visit. They will have a NON-CONTRAST MRI of the brain at the first and last visits. Key requirements to participate in the study include the following: 1) be willing to share medical records with the study team, 2) do not have clinically significant heart disease, liver disease, kidney disease or type 1 diabetes, 3) do not have a serious psychiatric disease that would make adopting a study diet more difficult (for example schizophrenia or disabling depression), 4) are not taking insulin, coumadin, or weight loss medications, 5) have a smart phone or tablet to download a free app, and 6) have access to high-speed internet and a computer, tablet or smart phone to complete surveys and participate in video conferences via the Zoom platform. A screening survey for eligibility to participate in this study is available here: Dr. Terry Wahls is an Institute for Functional Medicine Certified Practitioner and a clinical professor of medicine at the University of Iowa where she conducts clinical trials in the setting of Multiple Sclerosis. In 2018 she was awarded the Institute for Functional Medicine’s Linus Pauling Award for her contributions in research, clinical care and patient advocacy. She is the author of and the cookbook, . Learn more about her MS clinical trials . Pick up a one-page handout for the Wahls™ Diet at Wahls Research Lab - to learn about current clinical research studies that Dr. Wahls is conducting Social Media Links /episode/index/show/thrivingoversurvivingpodcast/id/24237984

84 Living Life With Multiple Sclerosis Out Loud! 08/30/2022

83 Discrimination Within The MS Healthcare System 08/23/2022

Thriving Over Surviving Multiple Sclerosis

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