05 Ehlers-Danlos Syndrome - quick tips with Eir and Laura
Tips and Tricks on How to Be Sick
Release Date: 06/01/2018
02-02 Depression and Suicidality
Tips and Tricks on How to Be Sick
This month we’re going to talk about some heavy stuff that a lot of us experience, especially during the holiday season: we’re going to talk with musician Amy McNally about ways she copes with depression and suicidal ideation, both with formal medical and psychological treatment and in ways she deals with it apart from that. Musical excerpts copyright Amy McNally, used with permission.
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02-01 We're back for Season 2! Administrative notes on our hiatus and then we talk dysautonomia
Tips and Tricks on How to Be Sick
In honor of Dysautonomia Awareness Month, we’re going to discuss dysautonomia and the ways it can present in different people, both on its own and in conjunction with other disorders.
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08 TBI and everything after - a conversation with Cheryl Green
Tips and Tricks on How to Be Sick
What I would like to see is, at the same time that you’re going through rehab, that you’re getting constant reinforcement that it is OK to be a person with a disability or with an impairment.
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07 Teletherapy - what it is and how it can help
Tips and Tricks on How to Be Sick
We are going to be talking about mental health, why therapy could be helpful to anyone — mental health diagnosis or not — and ways to make therapy more accessible to people with disabilities. For this, the interview will be with a clinical psychologist who, in the interests of full disclosure, I will tell you now has been my closest friend for almost 25 years, Dr. Erica Essary, Psy.D.
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Unplanned hiatus and an apology
Tips and Tricks on How to Be Sick
This isn’t an episode of the podcast, not really. This is more of a side note and an apology for an unplanned three month hiatus.
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06 How to Keep It Together when it's all falling apart
Tips and Tricks on How to Be Sick
In this episode, we are going to be talking about keeping it together; keeping up with all the little changes that happen when a new chronic illness diagnosis or disability happens.
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05 Ehlers-Danlos Syndrome - quick tips with Eir and Laura
Tips and Tricks on How to Be Sick
In this episode, we are going to be talking about Ehlers-Danlos Syndrome, or EDS. There are many types of EDS, but they all stem from the same cause: improperly made collagen in the body.
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04 Autism - including interviews with an #ActuallyAutistic adult and a licensed therapist
Tips and Tricks on How to Be Sick
In this episode, we are going to be talking about autism, also called Autism Spectrum Disorder (ASD), and what it’s like to realize, as an adult, that not only are you non-neurotypical but that you are, in fact, autistic. Includes interviews with an #ActuallyAutistic man diagnosed as an adult, and a clinical therapist who gives some insight into the diagnostic process.
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03 ME/CFS and an interview with filmmaker Jen Brea
Tips and Tricks on How to Be Sick
In this episode, we have a special guest: we are going to be talking with filmmaker Jen Brea. Jen has ME/CFS, and while making a documentary about the progress of her condition from first symptoms through diagnosis and beyond, she did most of that work from her bed.
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02 Sleep - how to do it once chronic illness changes everything
Tips and Tricks on How to Be Sick
In this episode, we’re going to discuss a thing we all have to do, but that some of us have real trouble with once our chronic illnesses or disabilities change everything: sleeping.
info_outlineIn this episode, we are going to be talking about Ehlers-Danlos Syndrome, or EDS. There are many types of EDS, but they are considered to be the same family of disorders because they all stem from the same cause: improperly made collagen in the body. Collagen is a protein that forms the latticework that everything in the body gets built upon, but it’s not all the same.
There’s 28 different type of collagen across several different genes, and each one has a different effect if there’s an error in the genetic code, resulting in a wide range of possible symptoms for people with some form of EDS.
We'll talk about some of the most common symptoms and our top tips and tricks on coping with them.
Please see show website for a full transcript of this podcast.