Shaky Quaky Jake ET Awareness Project
Talking Essential Tremor
Amber is an early childhood educator who is working to increase essential tremor awareness. Her goal is to place a copy of the children’s book “Shaky Quaky Jake” in Head Start locations in the south. Learn more, including how to get involved, through the podcast or by reading her story .
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Talking about the Be Still Foundation
Talking Essential Tremor
Bobby Krause, founder of the Be Still Foundation, shares his personal story of being diagnosed with early onset Parkinson’s disease, which led to the formation of the . The foundation helps cover the costs, raise awareness and provide education on the benefits of Focused Ultrasound treatment for those in need of tremor relief. This includes people with Parkinson’s disease and essential tremor.
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To Whom Much is Given, Much is Expected
Talking Essential Tremor
The well-known philanthropist and businessman Jimmy Walker talks about his essential tremor, his many charitable events and his philosophy about serving others.
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A Story of Perseverance and Hope for People with ET
Talking Essential Tremor
Marsha Rodgers, @Shakeyfree24, talks about her essential tremor journey, including ET's debilitating impact, her successful treatment and how she's raising awareness and providing hope for others.
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Creating the Still Honeyman Documentary
Talking Essential Tremor
Learn about the making of the "" documentary film, which shares Mark Honeyman's inspirational journey through deep brain stimulation surgery to calm his essential tremor. Executive Producers J.R. Heffelfinger and Alex Walters, and Mark Honeyman himself are part of this discussion. "My mission as an artist is to unveil hidden truths about the human condition, to amplify the voices of the voiceless and to make the invisible, visible and I believe we did that with this film," according to Heffelfinger.
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Talking about HandiThings
Talking Essential Tremor
is a family-owned business that manufactures and sells weighted products to assist patients with essential tremor. Owner/manager Brian Heinz shares his family’s story.
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Talking about the Steadi-3 Tremor Glove
Talking Essential Tremor
Steadiwear will begin taking pre-orders for the third version of its tremor glove, Steadi-3 in October 2024. Steadiwear Co-Founder and CEO Mark Elias talks about the updates, which include a lighter weight and smaller size, in this podcast.
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Facts about the VILIM Ball
Talking Essential Tremor
is a handheld mechanical therapeutic device that provides neuromodulation therapy to temporarily reduce hand tremor for patients with essential tremor. This is a conversation with creator Dr. Mantas Venslauskas, CEO of the Lithuanian-based company . He talks about how VILIM ball works, how it was tested and warns against less expensive imitations. The company released VILIM ball for purchase in 2018 in European countries, then expanded distribution to the U.S. and other countries in 2023.
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'Shaky Quaky Jake' Shines a Light on ET in Children
Talking Essential Tremor
Author Kelly Roberts talks about her children’s book “Shaky Quaky Jake” whose main character is a child with essential tremor (ET). Kelly’s overall message is “every child needs to be accepted and loved for who they are, as they are.”
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Using Assistive Technology Centers for ET Support
Talking Essential Tremor
People with essential tremor are always looking for assistive technology to enhance their quality of life. David Baker, director, Missouri Assistive Technology, talks about the services U.S. assistive technology centers provide in each state, including assistive device demonstrations and loans.
info_outlineDr. Elan Louis, professor and chair of neurology at University of Texas Southwestern Medical Center in Dallas, discusses the COGNET Study. More than six years ago, this research was started, following hundreds of ET patients to study their cognitive function over a span of time.