Talking Essential Tremor
We’re exploring all aspects of essential tremor: symptoms, diagnosis, treatments, support, new research, and more. Hosted by the International Essential Tremor Foundation.
info_outline Study Documents the Effectiveness of Cala Trio 01/24/2023
Study Documents the Effectiveness of Cala Trio continues to be an effective therapy for managing essential tremor, according to a recently released study by . Liana Hennum, head of health economics outcomes research for Cala, talks about other positive outcomes revealed in this study.
info_outline How Common is Essential Tremor? 11/09/2022
How Common is Essential Tremor? Research shows that one of every 100 people on the planet has essential tremor (ET). This is one of the many results published in the article, “How Common is Essential Tremor? Update on the Worldwide Prevalence of Essential Tremor.” Learn more statistics in this podcast interview with co-author of the study, Dr. Elan Louis, professor and chair of the department of neurology at the University of Texas Southwestern Medical Center, Dallas.
info_outline A Look at the New Book 'Tremors' 10/26/2022
A Look at the New Book 'Tremors' Much has happened in the field of tremors in the past 10+ years and a newly published book, “Tremors” brings it all together. It shares recent developments in understanding tremor pathology and genetics, as well as the clinical findings in treatment models. Listen to this conversation with one of the co-editors Dr. Claudia Testa, with the University of North Carolina School of Medicine.
info_outline A Conversation with ET Advocate Shakey Nan 09/06/2022
A Conversation with ET Advocate Shakey Nan Her goal is to find one person every day to educate about essential tremor. She uses the name Shakey Nan, and posts videos on YouTube, TikTok, Facebook and Instagram, not only talking about it, but also showing it first-hand. She said she’s never known a day without ET, and raising awareness has made her less self-conscious and has given her back her life.
info_outline Running 100 Miles for ET Awareness 06/07/2022
Running 100 Miles for ET Awareness Navy Veteran Peder Nelson is training for his second Cloudsplitter 100, a 100-mile ultramarathon. His goal is to raise awareness about essential tremor and support for the mission of the International Essential Tremor Foundation. Hear his ET story and learn how exercise helps him emotionally and physically. Follow his story and journey on his Difficult Destinations Facebook page, .
info_outline Talking About Allevion's Wrist Worn Device for Treating ET 03/02/2022
Talking About Allevion's Wrist Worn Device for Treating ET Learn about , a neuromodulation wrist device for treating essential tremor, developed by Allevion Therapeutics. IETF Executive Director Patrick McCartney talks with Allevion’s CEO and Chairman Shawn Moaddeb and Board Certified Neurologist Dr. Neal Hermanowicz.
info_outline Steady Your Hands with Readi-Steadi 02/02/2022
Steady Your Hands with Readi-Steadi The Anti-Tremor Orthotic Glove System was developed to help patients gain control of their hand tremors. Creator Krista Madere, licensed occupational therapist and certified hand therapist, shares her story about this medical device that, on average, provides a 50 percent reduction in tremor.
info_outline Talking with Jazz Pharmaceuticals About an Investigational Drug for ET 01/06/2022
Talking with Jazz Pharmaceuticals About an Investigational Drug for ET Jazz Pharmaceuticals is investigating a drug that acts to modulate the activity of t-type calcium channels associated with essential tremor. The investigational process and the work of Jazz is explained by staff members Michelle Baladi, senior director of global development, and Margaret Lee, head of neuroscience pharmacology.
info_outline Talking About the Steadi-Two Hand Stabilizing Glove 12/01/2021
Talking About the Steadi-Two Hand Stabilizing Glove Steadiwear has introduced a second version of its smart glove, the Steadi-Two, developed to stabilize hand tremors. CEO Mark Elias discusses upgrades made to this device and how it works, plus feedback the company has received from the essential tremor community.
info_outline Talking About Voice Tremor with Musician Terri Hendrix 11/03/2021
Talking About Voice Tremor with Musician Terri Hendrix Diagnosed with voice tremor and spasmodic dysphonia in 2019, singer-songwriter Terri Hendrix has come to realize that attitude is everything. She advises aspiring musicians with essential tremor to own the condition. Her management techniques include vocal exercises, medication and sometimes a shot of alcohol.
info_outline Tracking Cognitive Changes in People with ET 10/11/2021
Tracking Cognitive Changes in People with ET Dr. Elan Louis, professor and chair of neurology at University of Texas Southwestern Medical Center in Dallas, discusses the COGNET Study. More than six years ago, this research was started, following hundreds of ET patients to study their cognitive function over a span of time.
info_outline Talking Essential Tremor with Lord Julian Fellowes 08/09/2021
Talking Essential Tremor with Lord Julian Fellowes Lord Julian Fellowes, English actor, novelist and screenwriter best known for creating the television series Downton Abbey, has lived with essential tremor for the past 10 years. He is credited for escalating awareness of ET by writing it into the Downton Abbey storyline. In this podcast, he talks about how having ET changed his career.
info_outline Talking About Deep Brain Stimulation with Abbott 07/12/2021
Talking About Deep Brain Stimulation with Abbott If you’re considering Deep Brain Stimulation therapy to help manage your essential tremor, what questions should you be asking? Learn this and more from this conversation with Dr. Binith Cheeran, movement disorders specialist and medical director for neurological therapies at Abbott Labs.
info_outline Partnering with the American Brain Coalition for ET Advocacy 06/07/2021
Partnering with the American Brain Coalition for ET Advocacy Did you know that brain disease affects more people than heart disease and cancer combined? Katie Sale, executive director of the American Brain Coalition, talks about the mission and advocacy work of the ABC, which serves as an umbrella organization for more than 100 brain-related professional organizations and patient advocacy groups, including the IETF.
info_outline Talking About ET Support Groups 05/10/2021
Talking About ET Support Groups Listen to this panel discussion with some of the IETF’s Essential Tremor Support Group leaders. Learn what motivated some of these leaders to start their group, the rewards and challenges of being a leader and how to get one started in your area.
info_outline Talking About the Tremelo Hand Stabilizing Device 04/12/2021
Talking About the Tremelo Hand Stabilizing Device He took real world technology used in industry and formatted it for human use to calm hand tremors. Hear how Dr. Leo Nguyen, associate professor of mechanical engineering at California State University, used his expertise to create the Tremelo hand-stabilizing device. He is the founder of Five Microns.
info_outline ET Helped Him Find His Family 03/08/2021
ET Helped Him Find His Family Mark Honeyman went from being an only child to having 7 siblings and 37 nieces and nephews. Adopted at birth, he started a search for his birth parents several years ago to learn where his essential tremor came from. That led him on a journey with many twists and turns, and fascinating stories. He says having ET has humbled him and made him a better person.
info_outline Talking About a New Investigational Drug for ET 02/08/2021
Talking About a New Investigational Drug for ET Sage 324 is an oral investigational drug which is thought to enhance the activity of GABA receptors in the brain tremor, having the potential to modulate electrical fluctuations and reduce the abnormal movements in essential tremor. Listen to this podcast with Helen Colquhoun , VP of Development with Sage Therapeutics.
info_outline Talking about the DaTscan with GE Healthcare 01/11/2021
Talking about the DaTscan with GE Healthcare Learn how a DaTscan can help neurologists understand the cause of a patient’s tremors. GE Healthcare's Mark Hibberd, global head of medical services and chief medical officer of pharmaceutical diagnostics. explains.
info_outline Talking ET with Scholarship Recipient Madison Young 11/30/2020
Talking ET with Scholarship Recipient Madison Young IETF scholarship recipient Madison Young talks about her initial essential tremor diagnosis and how she has learned to explain her condition to others. She expresses her gratitude to those who support the . “I love having the support of the community behind me,” she said.
info_outline Talking About Focused Ultrasound with Insightec 11/09/2020
Talking About Focused Ultrasound with Insightec How does focused ultrasound work to help manage essential tremor? Listen to our interview with Dr. Arjun Desai, chief strategy and innovation officer with , a leader in this incisionless technology.
info_outline Talking DBS Therapy with Medtronic 09/04/2020
Talking DBS Therapy with Medtronic Are you a good candidate for DBS therapy? What are the benefits and risks? Lisa Johanek, senior principal medical affairs scientist with Medtronic, answers these questions and more in our first Talking Essential Tremor podcast.