Talking Essential Tremor

We’re exploring all aspects of essential tremor: symptoms, diagnosis, treatments, support, new research, and more. Hosted by the International Essential Tremor Foundation.

Facts about the VILIM Ball 03/04/2024

Facts about the VILIM Ball is a handheld mechanical therapeutic device that provides neuromodulation therapy to temporarily reduce hand tremor for patients with essential tremor. This is a conversation with creator Dr. Mantas Venslauskas, CEO of the Lithuanian-based company . He talks about how VILIM ball works, how it was tested and warns against less expensive imitations. The company released VILIM ball for purchase in 2018 in European countries, then expanded distribution to the U.S. and other countries in 2023. /episode/index/show/tremor/id/30222283

'Shaky Quaky Jake' Shines a Light on ET in Children 02/06/2024

'Shaky Quaky Jake' Shines a Light on ET in Children Author Kelly Roberts talks about her children’s book “Shaky Quaky Jake” whose main character is a child with essential tremor (ET). Kelly’s overall message is “every child needs to be accepted and loved for who they are, as they are.” /episode/index/show/tremor/id/29651568

Using Assistive Technology Centers for ET Support 11/30/2023

Using Assistive Technology Centers for ET Support People with essential tremor are always looking for assistive technology to enhance their quality of life. David Baker, director, Missouri Assistive Technology, talks about the services U.S. assistive technology centers provide in each state, including assistive device demonstrations and loans. /episode/index/show/tremor/id/28873948

Sharing Your Essential Tremor Diagnosis with Your Employer 10/18/2023

Sharing Your Essential Tremor Diagnosis with Your Employer may cause physical limitations in the workplace. At what point should you inform your employer? Fred Gutermuth talks about his experience. /episode/index/show/tremor/id/28358735

TREMOR: The Response Project 07/31/2023

TREMOR: The Response Project Dr. Brianna Matzke, assistant professor of music at Wilmington College, announced her essential tremor diagnosis as part of a commissioned arts project called . She has commissioned artists and composers to create piano, visual art and multimedia exploring the lived experience of ET, but more importantly, ability and disability. /episode/index/show/tremor/id/27456243

Spreading ET Awareness through the Miss New Hampshire Scholarship Program 04/20/2023

Spreading ET Awareness through the Miss New Hampshire Scholarship Program Jillian Mars has spent the past two years working to make an impact on essential tremor (ET) awareness. As a contestant in the Miss New Hampshire Scholarship Program she has adopted ET as her community service initiative, and has been educating others during appearances and speeches. She talks about her journey with ET. /episode/index/show/tremor/id/26383044

Talking about the Brain Donor Project 03/29/2023

Talking about the Brain Donor Project Tish Hevel, CEO of the , explains the process of becoming a brain donor. Brain donation is critical to the role of identifying treatments and cures for all kinds of brain disease, including essential tremor. /episode/index/show/tremor/id/25953969

Long-Term Impact of Focused Ultrasound on Essential Tremor 02/28/2023

Long-Term Impact of Focused Ultrasound on Essential Tremor Four to five years after undergoing focused ultrasound (FUS) to treat their essential tremor, patients are continuing to endure benefits. In this podcast, Dr. Rees Cosgrove, director of epilepsy and functional neurosurgery at the Brigham and Women’s Hospital in Boston, talks about the study and the enhancements made to FUS. /episode/index/show/tremor/id/25816662

Study Documents the Effectiveness of Cala Trio 01/24/2023

Study Documents the Effectiveness of Cala Trio continues to be an effective therapy for managing essential tremor, according to a recently released study by . Liana Hennum, head of health economics outcomes research for Cala, talks about other positive outcomes revealed in this study. /episode/index/show/tremor/id/25714038

How Common is Essential Tremor? 11/09/2022

How Common is Essential Tremor? Research shows that one of every 100 people on the planet has essential tremor (ET). This is one of the many results published in the article, “How Common is Essential Tremor? Update on the Worldwide Prevalence of Essential Tremor.” Learn more statistics in this podcast interview with co-author of the study, Dr. Elan Louis, professor and chair of the department of neurology at the University of Texas Southwestern Medical Center, Dallas. /episode/index/show/tremor/id/24959457

A Look at the New Book 'Tremors' 10/26/2022

A Look at the New Book 'Tremors' Much has happened in the field of tremors in the past 10+ years and a newly published book, “Tremors” brings it all together. It shares recent developments in understanding tremor pathology and genetics, as well as the clinical findings in treatment models. Listen to this conversation with one of the co-editors Dr. Claudia Testa, with the University of North Carolina School of Medicine. /episode/index/show/tremor/id/24667740

A Conversation with ET Advocate Shakey Nan 09/06/2022

A Conversation with ET Advocate Shakey Nan Her goal is to find one person every day to educate about essential tremor. She uses the name Shakey Nan, and posts videos on YouTube, TikTok, Facebook and Instagram, not only talking about it, but also showing it first-hand. She said she’s never known a day without ET, and raising awareness has made her less self-conscious and has given her back her life. /episode/index/show/tremor/id/24291153

Running 100 Miles for ET Awareness 06/07/2022

Running 100 Miles for ET Awareness Navy Veteran Peder Nelson is training for his second Cloudsplitter 100, a 100-mile ultramarathon. His goal is to raise awareness about essential tremor and support for the mission of the International Essential Tremor Foundation. Hear his ET story and learn how exercise helps him emotionally and physically. Follow his story and journey on his Difficult Destinations Facebook page, . /episode/index/show/tremor/id/23308943

Dine with Dignity with Meal Lifter 04/26/2022

Dine with Dignity with Meal Lifter /episode/index/show/tremor/id/22840913

Talking About Allevion's Wrist Worn Device for Treating ET 03/02/2022

Talking About Allevion's Wrist Worn Device for Treating ET Learn about , a neuromodulation wrist device for treating essential tremor, developed by Allevion Therapeutics. IETF Executive Director Patrick McCartney talks with Allevion’s CEO and Chairman Shawn Moaddeb and Board Certified Neurologist Dr. Neal Hermanowicz. /episode/index/show/tremor/id/22314011

Steady Your Hands with Readi-Steadi 02/02/2022

Steady Your Hands with Readi-Steadi The Anti-Tremor Orthotic Glove System was developed to help patients gain control of their hand tremors. Creator Krista Madere, licensed occupational therapist and certified hand therapist, shares her story about this medical device that, on average, provides a 50 percent reduction in tremor. /episode/index/show/tremor/id/21841958

Talking with Jazz Pharmaceuticals About an Investigational Drug for ET 01/06/2022

Talking with Jazz Pharmaceuticals About an Investigational Drug for ET Jazz Pharmaceuticals is investigating a drug that acts to modulate the activity of t-type calcium channels associated with essential tremor. The investigational process and the work of Jazz is explained by staff members Michelle Baladi, senior director of global development, and Margaret Lee, head of neuroscience pharmacology. /episode/index/show/tremor/id/21633914

Talking About the Steadi-Two Hand Stabilizing Glove 12/01/2021

Talking About the Steadi-Two Hand Stabilizing Glove Steadiwear has introduced a second version of its smart glove, the Steadi-Two, developed to stabilize hand tremors. CEO Mark Elias discusses upgrades made to this device and how it works, plus feedback the company has received from the essential tremor community. /episode/index/show/tremor/id/20884817

Talking About Voice Tremor with Musician Terri Hendrix 11/03/2021

Talking About Voice Tremor with Musician Terri Hendrix Diagnosed with voice tremor and spasmodic dysphonia in 2019, singer-songwriter Terri Hendrix has come to realize that attitude is everything. She advises aspiring musicians with essential tremor to own the condition. Her management techniques include vocal exercises, medication and sometimes a shot of alcohol. /episode/index/show/tremor/id/20661200

Tracking Cognitive Changes in People with ET 10/11/2021

Tracking Cognitive Changes in People with ET Dr. Elan Louis, professor and chair of neurology at University of Texas Southwestern Medical Center in Dallas, discusses the COGNET Study. More than six years ago, this research was started, following hundreds of ET patients to study their cognitive function over a span of time. /episode/index/show/tremor/id/20568599

Talking Essential Tremor with Lord Julian Fellowes 08/09/2021

Talking Essential Tremor with Lord Julian Fellowes Lord Julian Fellowes, English actor, novelist and screenwriter best known for creating the television series Downton Abbey, has lived with essential tremor for the past 10 years. He is credited for escalating awareness of ET by writing it into the Downton Abbey storyline. In this podcast, he talks about how having ET changed his career. /episode/index/show/tremor/id/19405496

Talking About Deep Brain Stimulation with Abbott 07/12/2021

Talking About Deep Brain Stimulation with Abbott If you’re considering Deep Brain Stimulation therapy to help manage your essential tremor, what questions should you be asking? Learn this and more from this conversation with Dr. Binith Cheeran, movement disorders specialist and medical director for neurological therapies at Abbott Labs. /episode/index/show/tremor/id/19405217

Partnering with the American Brain Coalition for ET Advocacy 06/07/2021

Partnering with the American Brain Coalition for ET Advocacy Did you know that brain disease affects more people than heart disease and cancer combined? Katie Sale, executive director of the American Brain Coalition, talks about the mission and advocacy work of the ABC, which serves as an umbrella organization for more than 100 brain-related professional organizations and patient advocacy groups, including the IETF. /episode/index/show/tremor/id/18926033

Talking About ET Support Groups 05/10/2021

Talking About ET Support Groups Listen to this panel discussion with some of the IETF’s Essential Tremor Support Group leaders. Learn what motivated some of these leaders to start their group, the rewards and challenges of being a leader and how to get one started in your area. /episode/index/show/tremor/id/18901055

Talking About the Tremelo Hand Stabilizing Device 04/12/2021

Talking About the Tremelo Hand Stabilizing Device He took real world technology used in industry and formatted it for human use to calm hand tremors. Hear how Dr. Leo Nguyen, associate professor of mechanical engineering at California State University, used his expertise to create the Tremelo hand-stabilizing device. He is the founder of Five Microns. /episode/index/show/tremor/id/18627986

ET Helped Him Find His Family 03/08/2021

ET Helped Him Find His Family Mark Honeyman went from being an only child to having 7 siblings and 37 nieces and nephews. Adopted at birth, he started a search for his birth parents several years ago to learn where his essential tremor came from. That led him on a journey with many twists and turns, and fascinating stories. He says having ET has humbled him and made him a better person. /episode/index/show/tremor/id/17652812

Talking About a New Investigational Drug for ET 02/08/2021

Talking About a New Investigational Drug for ET Sage 324 is an oral investigational drug which is thought to enhance the activity of GABA receptors in the brain tremor, having the potential to modulate electrical fluctuations and reduce the abnormal movements in essential tremor. Listen to this podcast with Helen Colquhoun , VP of Development with Sage Therapeutics. /episode/index/show/tremor/id/17652950

Talking about the DaTscan with GE Healthcare 01/11/2021

Talking about the DaTscan with GE Healthcare Learn how a DaTscan can help neurologists understand the cause of a patient’s tremors. GE Healthcare's Mark Hibberd, global head of medical services and chief medical officer of pharmaceutical diagnostics. explains. /episode/index/show/tremor/id/17459330

Talking ET with Scholarship Recipient Madison Young 11/30/2020

Talking ET with Scholarship Recipient Madison Young IETF scholarship recipient Madison Young talks about her initial essential tremor diagnosis and how she has learned to explain her condition to others. She expresses her gratitude to those who support the . “I love having the support of the community behind me,” she said. /episode/index/show/tremor/id/16921664

Talking About Focused Ultrasound with Insightec 11/09/2020

Talking About Focused Ultrasound with Insightec How does focused ultrasound work to help manage essential tremor? Listen to our interview with Dr. Arjun Desai, chief strategy and innovation officer with , a leader in this incisionless technology. /episode/index/show/tremor/id/16698593

Talking Essential Tremor

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