What research in endometriosis is ongoing?
Unheard of
In this episode, we are joined by Dr Mira Mousa, Dr Nilüfer Rahmioğlu and Ulrik Bak Kirk. With Mira, we explore studying endometriosis and reproductive health amongst Arab women in the Middle East. With Nilüfer we discuss the genetic risk factors for endometriosis, and learn more about the COHERE project; one which aims to understand endometriosis amongst women in Northern Cyprus. Finally, Ulrik tells us about the FEMaLe project; one that aims to use machine learning to better understand, diagnose and treat endometriosis. If you liked today’s episode, please like, share and...
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How is endometriosis treated?
Unheard of
How do we treat endometriosis associated symptoms and what treatment options are available and offered? In this episode we speak to Dr Vimee Bindra and Dr Emma Evans about surgical and psychological management of endometriosis symptoms. We also hear from Margarida Sardo about her experience with endometriosis symptoms management and what options worked for her along her endometriosis journey.
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Access to endometriosis care - where do we go wrong?
Unheard of
What barriers can one encounter when seeking endometriosis care? How can parts of one’s identity contribute to further difficulties accessing such care? What language should we use when speaking about endometriosis to ensure inclusivity?
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How is endometriosis diagnosed?
Unheard of
How do we diagnose endometriosis? Why does it take so long (on average 7.5 years in the UK)? What options are available currently, and what does the future hold for non-invasive methods of diagnosis?
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What causes pain in endometriosis?
Unheard of
What causes pain in endometriosis? What research is being done to better understand endometriosis-associated pain? If you've ever asked yourself these questions, listen now to our brand-new episode of Unheard of.
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What causes endometriosis?
Unheard of
What causes endometriosis? What does endometriosis look like when being diagnosed? If you’ve ever asked yourself these questions, listen now to our brand-new episode of Unheard of.
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What is it like living with endometriosis?
Unheard of
What causes endometriosis? Why can endometriosis be so painful? Will there ever be a cure? This short podcast series seeks answers to some of the biggest questions posed by the endometriosis community.
info_outlineIn this episode, we are joined by Nikita Aashi Chadha, Writer & Lead Facilitator for Cysters, Dr Cara E. Jones, Assistant Professor of Women's & Gender Studies at California State University at Sacramento, and Beth McCowen, Deputy director of Endo Support United. Together we discuss how various aspects of our identity (i.e. race, gender, sexuality, age) may further contribute to the delay in receiving a diagnosis, and the quality of care one receives along their endometriosis journey.
If you liked today’s episode, please like, share and subscribe!
This podcast was generously brought to you by the Nuffield Department of Women’s and Reproductive Health, at the University of Oxford.
We would like to thank Nikita Aaashi Chada, Cara E. Jones and Beth McCowen for sharing their experiences of endometriosis with us, but also for shedding light on the crucial importance of understanding endometriosis and communicating about it in an inclusive and intersectional manner.
Contact Details:
Nikita Aashi Chadha: (instagram): @nikkaayyy_c
Dr Cara E. Jones: (twitter): @DrCaraEJones, (email): [email protected]
Beth McCowen: (twitter) @EndoSpprtUnited, (instagram): @bethmccoweb, @endo.support.united.lt
Additional Resources:
To get in touch with, or to work directly with Cysters please contact us via [email protected]
We are currently working on changing the narrative of the chronically ill space by publishing our own powerlist of 100 POC Chronic Illness Advocates. We are urging people to self-nominate in an attempt to dispel imposter syndrome: http://cysters.org/thepowerlist/
If you'd like to participate in research that is looking at intersectional experiences of Endometriosis, please visit the link via Jodie Hughes PhD @ Endometriosis South Coast: https://roehamptonuniversity.onlinesurveys.ac.uk/a-study-on-the-effects-of-location-ethnicity-and-care-app
To read more about Endometriosis and Intersectionality, please refer to Nikita's Discover Society Article, or follow us on Instagram: @nikkaayyy_c @cystersgroup @neelamheeraspeaks
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Cara E. Jones articles:
Queering gendered disabilities
The Pain of Endo Existence: Toward a Feminist Disability Studies Reading of Endometriosis
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Endo Support United Ltd resources
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If you're interested in donating to the work done my Endo Support United Ltd and Cysters, please consider getting in touch: Endo Support United Ltd, Cysters.