Gluten Free RN

Gluten Free RN, Nadine Grzeskowiak RN BSN CEN, talks about every aspect of celiac disease, non-celiac gluten sensitivity, gluten free lifestyle & diet, Paleo lifestyle, microbiome and all related issues.

A Nurse’s Story of Celiac Disease from 1953 EP074 06/21/2018

A Nurse’s Story of Celiac Disease from 1953 EP074 What did we know about celiac disease in 1953? The truth is, we knew quite a bit about sensitivity to gluten 65 years ago when Matilda Babbitz’s son Bobby was diagnosed with celiac disease. A nurse by profession, Matilda carefully observed her baby and kept detailed records of his reactions to foods, working with doctors to determine an appropriate diet for Bobby. Today, the Gluten Free RN is sharing an written by Matilda herself. She covers how Bobby presented with celiac disease at six months of age and the dramatic change in his health and behavior after a diet change. Nadine discusses the systematic approach Bobby’s healthcare team took in creating a custom diet, the relationship between the baby’s irritability and his inability to digest food, and his growth and development before and after treatment. She also addresses the misunderstanding that children will ‘grow out of’ celiac disease, explaining that we’ve since learned patients must adhere to a 100% gluten-free diet for life. Listen in for insight around what we can learn from past case studies of celiac disease and understand what we already knew about celiac disease back when Eisenhower was president and Gentlemen Prefer Blondes was on the big screen! What’s Discussed: How Bobby presented with celiac disease at six months of age Sudden attack of diarrhea, upper respiratory infection History of GI difficulty + distended abdomen, increased gas Marked irritability, weight loss, inability to move arms/legs The dramatic change in Bobby’s behavior after a diet change Symptoms of diarrhea, vomiting and weakness disappeared Irritability subsided with shift to skim milk The new pediatrician’s approach when Bobby’s progress stalled Shift to goat’s milk, added complete multivitamin supplement The relationship between irritable behavior and the inability to digest foods Nurse/mom kept detailed records of foods eaten, reactions Bobby’s growth and development before and after diagnosis Lost ability to perform gross motor activity prior to diagnosis Caught up with age group after diet change (walked at 18 months) How Bobby’s mother dealt with social pressure to eat with others Replaced cookies and ice cream with sherbet and lollipops Kept away from parties so not conscious of being left out The chronic nature of celiac disease No one ‘grows out of’ being celiac 100% gluten-free diet for life Nadine’s insight around what we knew about celiac disease in 1953 Many celiac patients unable to digest cow’s milk Need supplementation with vitamins, certain fats Recognized impairment of immune system Resources Connect with Nadine: Books by Nadine: Subscribe to The Gluten Free RN Podcast: /episode/index/show/glutenfreern/id/6730969

Musings & Truths From the Gluten Free RN EP073 06/14/2018

Musings & Truths From the Gluten Free RN EP073 ‘Know your own truth and let that guide you.’ How do you cut through the noise and misinformation around gluten sensitivity and celiac disease in order to make the best choices for your health and happiness? By tapping into your intuition and asking WHY when the answers don’t feel right—and reaching out to the right people for support when you need it. Today, the Gluten Free RN is sharing her Top 10 Musings and Truths for health and wellbeing, empowering you to be self-protective and surround yourself with the people who genuinely care enough to speak up for—and with you. She shares the value in setting goals for your physical and mental health and taking your power back from the people who may have victimized you in the past. Nadine also encourages you to get educated and engage in critical thinking, questioning the information you are given and saying ‘no’ to anyone who suggests you eat gluten—even if they happen to be a doctor. Listen in to understand the idea that ‘you are your own experiment’ and learn to be the healthiest YOU you can be by committing to a 100% gluten-free diet! What’s Discussed: Commit to being 100% gluten-free, dairy-free and ideally Paleo Focus on diet change for first year so intestines can heal Be self-protective Lose people who aren’t supportive Find your tribe People who speak up for/with you, willing to change diet Set goals for what you want your life to look like Write down objectives to make real, move in that direction Be powerful (even if you don’t feel it) Speak up and take power back, don’t be victim Get educated and educate others Go to conferences, read and do research Don’t believe everything you hear, read or say Get answers to questions, then question the answers (ask WHY) Don’t eat gluten for anyone Not for friends/family, doctors or research study Be the healthiest YOU, you can be Strive for MORE health, fun, good food and information You are your own experiment Reassess and apply new information as needs change, work with team Connect with Nadine: Books by Nadine: /episode/index/show/glutenfreern/id/6705184

African Americans & Celiac Disease EP072 06/07/2018

African Americans & Celiac Disease EP072 Much existing propaganda claims that African Americans do not suffer from celiac disease. Even the Gluten Free RN was surprised to find out that her adopted daughter had a genetic predisposition to the disease back in 2006, as research available at the time regarded the HLA-DQ2 and HLA-DQ8 genes to be primarily Caucasian traits. And until we take steps to conduct a mass screening, we simply don’t know how common celiac disease is among people of African descent. Today, the Gluten Free RN is exploring celiac disease in the African American population. She covers a 2006 study out of Columbia University that assessed African American celiac patients, discussing the variety of ways the subjects presented with celiac disease and the potential reasons for their poor compliance with the prescribed gluten-free diet. Nadine also considers the prevalence of celiac disease on the continent of Africa, explaining why she believes the number of celiac patients will explode with the population’s growing exposure to wheat. Listen in for the Gluten Free RN’s insight on other health issues that may point to undiagnosed celiac disease and learn how we can prevent celiac disease among the African American population with access to testing, social support and gluten-free food! What’s Discussed: The of celiac disease in African Americans Identified nine patients with biopsy-proven celiac disease Presented with diarrhea, iron deficiency anemia and autoimmune disorders Why patients in the Columbia study demonstrated poor dietary compliance Expense, availability and palatability of gluten-free food Lack of symptoms at diagnosis, inaccurate dietary information Nadine’s prediction around the number of celiac patients in Africa Increasing exposure to wheat will cause explosion The statistics regarding the mortality burden of celiac disease Science Daily reported estimates of 42K child deaths every year in 2011 Majority from Africa and Asia The overlap between diabetes and celiac disease Every type 1 diabetic is HLA-DQ2/8 gene carrier The health issues that may indicate undiagnosed celiac disease Type 1 diabetes, cardiac issues, stroke and heart attack Obesity (stems from lack of nutrient absorption) How to prevent celiac disease among the African American population Access to testing, social support and gluten-free food Resources: Connect with Nadine: Books by Nadine: /episode/index/show/glutenfreern/id/6680017

Celiac Disease & Why No One Should Have Belly Pain EP071 05/24/2018

Celiac Disease & Why No One Should Have Belly Pain EP071 Approximately 50% of ER visits are associated with abdominal pain, and the vast majority of those patients are given a diagnosis of ‘abdominal pain of an unknown origin’ and directed to come back if the condition gets worse. This is little comfort to people suffering from severe discomfort who need answers around the cause of their belly pain, not just medication to mask it temporarily. Could undiagnosed celiac disease be the source of their suffering? Today, the Gluten Free RN is diving into the issue of belly pain and undiagnosed celiac disease, discussing the expensive testing often conducted to determine the cause of abdominal discomfort—testing that rarely includes a celiac panel. She covers several of the common misdiagnoses of celiac patients as well as the incredibly high prevalence of abdominal pain in children. Nadine shares the case study of a child-patient who was misdiagnosed with appendicitis and the research published in Digestive and Liver Disease outlining the unnecessary surgical interventions endured by undiagnosed celiac patients. Listen in for the Gluten Free RN’s advice to patients with idiopathic abdominal discomfort and learn why no one should suffer from belly pain! What’s Discussed: The statistics around ER visits and abdominal pain 50% of visits associated with belly pain The most common abdominal pain diagnoses Abdominal pain of unknown ideology, idiopathic abdominal pain How patients are treated for idiopathic abdominal pain Medication, directive to return if condition gets worse The testing to find the cause of chronic abdominal pain Expensive blood workups, rarely include celiac panel How many children suffer from belly pain 30% report abdominal discomfort Nadine’s patient who received a misdiagnosis of appendicitis Mother of child-patient sought second opinion prior to surgery Child didn’t have appendicitis, cause of pain still unknown A around abdominal surgery and celiac disease Patients with celiac disease at increased risk of abdominal surgery Misdiagnosis leads to inappropriate interventions (i.e.: appendectomy) Nadine’s advice for patients diagnosed with idiopathic abdominal pain Initiate clinical trail of gluten-free or Paleo diet Resources: in Digestive and Liver Disease in the Journal of Pediatric Gastroenterology and Nutrition in the American Journal of Clinical Nutrition in the Canadian Journal of Gastroenterology in Annals of Surgery in The Annals of The Royal College of Surgeons of England Connect with Nadine: Books by Nadine: /episode/index/show/glutenfreern/id/6630786

Blood Disorders and Celiac Disease EP070 05/03/2018

Blood Disorders and Celiac Disease EP070 If you are being treated for a blood disorder, it is time to look deeper and explore the underlying cause. Rather than simply addressing iron- or B12-deficiency anemia in isolation, ask WHY you have a deficiency in the first place. It is possible that damage to your intestines caused by gluten is preventing your body from absorbing the nutrients necessary to grow your red blood cells and keep your immune system healthy. And anemia is not the only blood disorder associated with celiac disease and non-celiac gluten sensitivity! The Gluten Free RN is taking a closer look at the hematologic manifestations of celiac disease from anemia to hyposplenism. She explains the connection between disorders of the blood and bones, offering insight around why men with both anemia and osteoporosis are also likely to have celiac disease. Nadine discusses the danger in taking H2 blockers or proton pump inhibitors for GERD long-term, describing how those medications decrease the gastric acid necessary for breaking down food. She also addresses what you can do to identify any nutritional deficiencies in your blood and reminds us why celiac patients have difficulty absorbing the nutrients necessary to form red blood cells. Listen in to understand how the skin reflects what’s happening internally and learn how to prevent a number of blood disorders with a gluten-free diet! What’s Discussed: The hematologic manifestations of celiac disease Anemia secondary to malabsorption of iron, folate and vitamin B12 Thrombocytosis, thrombocytopenia, leukopenia, venous thromboembolism Hyposplenism, IgA deficiency and increased risk of lymphoma Why iron supplements didn’t solve Nadine’s anemia Couldn’t absorb supplements due to undiagnosed celiac disease The connection between anemia, osteoporosis and celiac disease B12 forms red blood cells made in long bones The danger of taking H2 blockers and PPIs long-term Decreases levels of gastric acid necessary to liquify food Leads to bacterial overgrowth, gastritis How to uncover potential nutrient deficiencies in your blood CBC with differential (breakdown of red blood cells) The conclusions of the Anemia and hyposplenism are most common complications of celiac disease Obtain small-bowel biopsy in all patients with iron-deficiency anemia The fat-soluble vitamins A, D, E and K Deficiency in one indicates malabsorption, potential celiac disease The connection between DH and celiac disease Skin disorders begin in intestines Resources: in BMC Medicine From Pathophysiology to Advanced Therapies in Balkan Medical Journal in Clinical Advances in Hematology & Oncology in Bratislavske Lekarske Listy in Hematology in Terapevticheskii Arkhiv Connect with Nadine: Books by Nadine: /episode/index/show/glutenfreern/id/6553723

Eosinophilic Esophagitis and Celiac Disease EP069 04/26/2018

Eosinophilic Esophagitis and Celiac Disease EP069 Your gastrointestinal tract is approximately 30 feet long, and it runs from your mouth all the way to the anus! We know that celiac disease can impact any part of the digestive tract. But there is another disease that wreaks havoc on the GI tract as well, a condition called eosinophilic esophagitis or EoE. The Gluten Free RN is explaining the fundamentals of eosinophilic esophagitis, from its characteristic inflammation of the esophagus and elevated eosinophils in the blood to the common symptoms of vomiting and upper abdominal pain. She walks us through the treatment for EoE, an elimination diet or steroid therapy. Nadine speaks to the research exploring a possible connection between eosinophilic esophagitis and celiac disease, citing a paper that found a higher prevalence of EoE in children with celiac disease than the general population as well as the case study of a woman with both celiac disease and elevated eosinophils in her blood. Listen in for the Gluten Free RN’s insight on the best EoE clinics and physicians in the country and learn why further study is needed around EoE and celiac disease! What’s Discussed: The fundamentals of eosinophilic esophagitis Allergic response to dietary antigens Causes inflammation of esophagus, increased eosinophils in blood The benefits of unsedated transnasal endoscopy for children with EoE Monitors esophageal mucosa without sedation Safer, faster and less costly Some common symptoms of eosinophilic esophagitis Vomiting, difficulty swallowing, food stuck in throat Chest pain, heartburn, upper abdominal pain The condition of achalasia Muscles of esophagus don’t work appropriately Causes spasms or constriction The treatment for EoE Elimination diet (remove wheat, eggs, milk, soy, shellfish and seafood, peanuts and tree nuts) Topical or systemic steroids The potential increased prevalence of EoE in children with celiac disease found prevalence of 10.7% (much higher than general population) Other research articles argue no increased prevalence of EoE in CD The of a 30-year-old woman with celiac disease and elevated eosinophils Presented with abdominal pain and distension, vomiting and frequent bowel movement Treated with IV hydrocortisone, but developed steroid induced psychosis Nadine’s insight on the best specialty clinics for EoE in the US University of Colorado (Denver School of Medicine) Pennsylvania insight on the difficulty of diagnosing EoE Relatively new disease, tendency to diagnose based on pathology report alone Elevated eosinophils also found in GERD, inflammatory bowel disease and celiac disease Special considerations for pediatric patients with EoE Consultation with dietician Limited exposure to corticosteroids Attention to development of feeding skills Potential psychosocial, behavioral problems Resources: in Gastrointestinal Endoscopy in BMC Research Notes in Gastrointestinal Medicine in Gastroenterology and Hepatology in BMC Gastroenterology in Immunology and Allergy Clinics of North America in Nutrients in the World Journal of Gastrointestinal Pharmacology and Therapeutics in the Journal of Pediatric Gastroenterology and Nutrition in Current Opinion in Pharmacology in Patients with Active Celiac Disease on Biopsy’ in Clinical Gastroenterology and Hepatology in Hepatology and Gastroenterology in the Journal of Pediatric Gastroenterology and Nutrition Connect with Nadine: Books by Nadine: /episode/index/show/glutenfreern/id/6526381

Why No Dairy on a Gluten-Free Diet? EP068 04/19/2018

Why No Dairy on a Gluten-Free Diet? EP068 If you’re just getting used to eliminating gluten from your diet, it may feel like a burden to remove dairy as well—especially if you’re a fan of comfort foods like cheese and ice cream. Why exactly do many practitioners recommend a gluten- AND dairy-free diet to patients diagnosed with celiac disease and non-celiac gluten sensitivity? The Gluten Free RN is walking us through the similarities between gliadin and casein, explaining how the proteins found in gluten, milk and cheese impact our brains. She discusses how Marsh 1 damage from celiac disease leads to an inability to break down the sugar in milk and why we crave the very foods that are making us sick. Nadine shares the story of a young man with autism whose health improved once his family went gluten-free, describing the well-documented gut-brain connection and how the right high-fat diet can repair the neurological system. Listen in for the Gluten Free RN’s insight around dairy replacement options and get empowered to reclaim your health with a gluten- and diary-free diet! What’s Discussed: The similarities between the gluten and casein proteins Molecularly very similar, bodies read as toxins Both capable of crossing blood-brain barrier How the casein protein impacts the brain Causes inflammation, hypoxia (decrease flow of oxygen) Brain fog, anxiety, depression, irritability and fatigue The effect of Marsh 1 damage due to celiac disease Microvilli damaged or destroyed Can’t produce enzymes that break down sugar in milk How gluten and casein proteins act as exorphins Bind with opium receptors in brain Crave foods that make us sick Nadine’s recommendations for dairy replacements Coconut, hemp, almond or hazelnut milk and cheese options How a gluten-free diet helped a young man with autism More interaction with family, fewer GI issues High-fat diet repairs neurological system The story of Dr. Terry Wahls Diagnosed with MS, healed on gluten-free diet Resources: by Dr. Terry Wahls Connect with Nadine: Books by Nadine: /episode/index/show/glutenfreern/id/6499632

Indigenous Populations, Celiac Disease and NCGS EP067 04/12/2018

Indigenous Populations, Celiac Disease and NCGS EP067 ‘Globally, indigenous peoples suffer from poorer health, are more likely to experience disability and reduced quality of life, and ultimately die younger than their non-indigenous counterparts.’ A on the health of indigenous peoples points to a significant problem, but the question is WHY? Why are native populations more prone to autoimmune disorders and type 1 diabetes? Why do they have a higher incidence of alcoholism and drug addiction? And why the lower life expectancy? The Gluten Free RN is exploring the role of food in health outcomes for indigenous populations around the world. She begins with an explanation of the dietary differences between hunter-gatherer and agricultural societies, discussing how native populations were exposed to the gluten in grains only when European conquerors came to occupy their lands. Nadine shares her challenge in finding information about indigenous populations and celiac disease, explaining why further study is necessary. She speaks to the highly processed nature of the commodity foods provided to Native Americans in the US and the shortcomings of Canada’s Food Guide when it comes to the health of First Nations people. Listen in and learn the significance of educating indigenous populations around celiac disease and non-celiac gluten sensitivity, empowering those groups to make choices that will improve their health and quality of life! What’s Discussed: The global indigenous population 370M in 70-plus countries Rich diversity of cultures The health status of indigenous populations Higher incidence of autoimmune disorders, T1D Higher prevalence of addictive disorders, cardiovascular disease Lower life expectancy, increased morbidity/mortality Why indigenous populations have more health issues Access to health care, isolation and lifestyle Food (hunter-gatherer vs. agricultural society) The lack of information around indigenous populations and celiac disease Very few studies available The impact of grains on the native population Significant change in health care outcomes, quality of life The prevalence of celiac disease in indigenous populations At least 1%, likely 3% or higher No way to know without mass screening Why eating healthy is a challenge for the indigenous population Food scarcity, desserts Reliance on commodity foods provided by government The conclusions of the Based on diet of European origins, doesn’t mention celiac disease Ignores health benefits of traditional diet for First Nations people Why it’s important to educate indigenous people around celiac disease Empower to make food choices with better health outcomes Resources: Connect with Nadine: Books by Nadine: /episode/index/show/glutenfreern/id/6474965

How to Easily Go Gluten-Free or Paleo EP066 04/05/2018

How to Easily Go Gluten-Free or Paleo EP066 ‘It’s too hard.’ ‘It’s too expensive.’ ‘It’s time-consuming.’ ‘My family won’t support me.’ There are lots of excuses why you can’t go gluten-free or Paleo, but the Gluten Free RN argues that if it’s hard, you’re doing it wrong. And today, she’s prepared to explain how to easily go gluten-free or Paleo and either maintain or regain your health. Nadine begins with a discussion of the connection between food and pain or discomfort. She explains how the processed, non-food that most people consume causes damage that prevents us from absorbing the nutrients our bodies need. She offers insight around where to go for gluten-free, organic food and how to jump-start a gluten-free or Paleo diet. The Gluten Free RN provides tips on taking control of your food choices, trying new foods, and gluten-free cooking—minus the cheap fillers. She also outlines a shopping list for nutrient-dense foods that will heal your leaky gut and feed your neurologic system. Listen in and learn the easy way to go gluten-free or Paleo and optimize your health! What’s Discussed: The value in recognizing how you feel Shouldn’t have pain, discomfort daily Underlying cause traced back to food Nadine’s response to excuses for not going gluten-free No more expensive, must buy food anyway Food is medicine, good choices can improve health How to avoid non-food with empty calories Stay away from soda, sugary coffees Pass up highly processed and fast non-food The difference between organic and conventional food Conventional food—herbicides, pesticides, genetically modified Roundup causes leaky gut, even in absence of celiac disease Nadine’s suggestions around where to go for gluten-free food Grocery stores that cater to gluten-free population Local food co-ops, farmers Nadine’s advice for going gluten-free or Paleo Try new foods in the produce section Learn to pack simple breakfast, lunch and dinner Consider putting in garden Get re-educated, take control of food choices Replace cutting boards, toasters, etc. How to get started on a gluten-free or Paleo diet (eliminate grains, sugar and dairy) Nadine’s shopping list for a gluten-free diet Fruits and vegetables Nuts and seeds Meat, fish and eggs Resources: Connect with Nadine: Books by Nadine: /episode/index/show/glutenfreern/id/6450311

Russia and Celiac Disease EP065 03/29/2018

Russia and Celiac Disease EP065 As stories about Russia continue to dominate the news cycle, you are probably familiar with the recent sanctions against the country, Vladimir Putin’s reelection, and even the expulsion of Russian diplomats from the EU and US. But what do you know about celiac disease in Russia? The Gluten Free RN is taking a closer look at the limited information about celiac disease in Russia, giving us an overview of the country’s size and population and the likely number of celiac cases based on the global tendency. She discusses the thriving wheat production industry in Russia as well as the gluten-containing traditional Russian diet. Nadine walks us through a presentation created by Dr. Elena Roslavtseva at the Scientific Center for Children’s Health in Moscow, sharing how the diagnoses of celiac disease changed from the 1970’s through the 2000’s, the inconsistencies with testing for celiac disease around the nation, and the challenges of maintaining a gluten-free diet in Russia. Listen in as the Gluten Free RN covers the Journal of Immunology Research’s overview of celiac disease in Russia, explaining why the reported frequency probably doesn’t reflect the true prevalence and the necessity of a mass screening. What’s Discussed: General information about the country of Russia Population of 144.3M Dual nation state, 185 ethnic groups Largest country by land mass Russia’s thriving wheat production industry Very high, exported to Middle East and Africa Ban on genetically modified wheat The first diagnoses of celiac disease in Russia Late 1970’s—1980’s Cases of severe malabsorption No gluten-free foods available How celiac diagnoses changed in the 2000’s Diagnosed more often, well-known in most regions Research done in many universities, med centers The Eastern European countries that have done mass screenings Romania, Slovakia, Slovenia, Estonia Why the data around celiac disease in Russia is unreliable Variation in how practitioners test for celiac disease Belarus—HLA-typing not available in most cases Latvia—mandatory screening for patients with IDDM and AIT The problems associated with celiac disease in Russia Unreliable data in absence of mass screening Gluten-containing traditional Russian food The presented in the Journal of Immunology Research Diagnostic tools for celiac disease in Russia vary significantly Reported frequency of 0.2-0.6%, but real rate unknown Resources: by Dr. Elena Roslavtseva in the Journal of Immunology Research in agriCENSUS in Bloomberg from the Australian Export Grains Innovation Centre from Solaris Commodities in Bloomberg in The Celiac Scene Connect with Nadine: Books by Nadine: /episode/index/show/glutenfreern/id/6423681

Review of Colombia University Celiac Disease Conference 2018 EP064 03/22/2018

Review of Colombia University Celiac Disease Conference 2018 EP064 When faced with new information, it’s important to consider the source. Stop for a moment and examine whether the material is coming from someone with YOUR best interests at heart. The Gluten Free RN has just returned from the Colombia University Celiac Disease Conference, and she is breaking down the information presented to determine what’s useful—and what might be tainted by the pharmaceutical or food industry agenda. Nadine begins with a workshop led by General Mills that offered some questionable information about how grains are processed at their factories and a talk led by University of Chicago faculty on the topic of a gluten challenge. She also speaks to the differences between celiac management in the US and countries with universal healthcare like Italy and Australia. Nadine covers new testing that detects gluten exposure in stool or urine and what that reveals about the systemic nature of gluten damage as well as her take on practitioners who perpetuate the myth that grains are necessary and nutritious. Listen in for the Gluten Free RN’s insight around pharmaceutical treatments for celiac disease and the danger in volunteering for studies backed by drug companies. What’s Discussed: The two programs available at Colombia’s 2018 conference Clinical (nurses, RDs and laypeople) International (doctors, scientists, industry and VC) How celiac disease is managed in Italy Presentation by Dr. Carolina Ciacci Law mandates gluten-free options Nadine’s frustration with the General Mills presentation Major sponsor of conference Claim to separate grains at factory Nadine’s take on gluten-free Cheerios Should be avoided, not truly gluten-free Nadine’s confusion around Dr. Bana Jabri’s comments Wouldn’t put ‘potential celiac patient’ on gluten-containing diet Did not include patients with positive antibody test but negative biopsy Why the biopsy for celiac disease is problematic Only tests one foot into duodenum GI tract is 30 feet in length Nadine’s insight on a gluten-free challenge No possible benefit for patient Unnecessary, unethical The systemic nature of gluten damage New tests detect gluten exposure in stool, urine Urine test indicates passage through every system Nadine’s stance on pharmaceutical treatments for celiac disease No pill or vaccine will treat or cure CD Harmful to people in studies The myth that grains are necessary and nutritious Practitioners who perpetuate are ‘toeing company line’ Why it’s important to understand the source of your information Should be untainted by pharmaceutical money, agenda Australia’s requirements for gluten-free food Standard of less than 3 ppm Resources: Connect with Nadine: Books by Nadine: /episode/index/show/glutenfreern/id/6397276

Poland and Celiac Disease EP063 03/07/2018

Poland and Celiac Disease EP063 To pierogi or not to pierogi… If you have celiac disease, there is no question that you should avoid anything made with flour or grains, no matter how delicious the dish may be. Although the Gluten Free RN has fond memories of her Polish grandmothers making traditional pastries, she contends that you don’t have to eat customary Polish food to celebrate your Polish heritage. In preparation for her upcoming trip to Warsaw in July, Nadine is taking a closer look at celiac disease in Poland. She discusses a 2009 study assessing the prevalence of celiac disease in Polish children, highlighting the asymptomatic and oligosymptomatic nature of the disease and explaining her own false negative test. Listen in for the Gluten Free RN’s insight around preparing for a trip to Poland, including research on the available gluten-free food and adult beverages! What’s Discussed: Why Nadine is concerned about her upcoming trip to Poland Flour, grains used in cooking and baking Nadine’s Polish heritage Fond memories of grandmothers making pierogi, pastries The of celiac disease in Poland Assessed prevalence in children, only screened for IgA EmA, IgG EmA 3,235 children in Bydgoszcz tested, 25 identified (seven with Marsh III) Predominantly asymptomatic or oligosymptomatic Nadine’s genetic predisposition for celiac disease HLA-DQ2.5 homozygous How Nadine is preparing for travel in Poland Aware of Polish translations for gluten-free, celiac (bezglutenowe, trzewny) Take ‘rescue food’ for emergencies The prevalence of celiac disease in Poland 1:100 (matches worldwide estimate) The gluten-free alcoholic beverages available in Poland Potato vodka, honey mead Nadine’s caution against eating bread in Europe Wheat, grain causes damage regardless of location The overlap between autoimmune and celiac disease CD is grossly unrecognized, underdiagnosed Nadine’s suggested diet for celiac patients Meat, fish and eggs Nuts and seeds Fruits and vegetables Resources: in the Medical Science Monitor in ACTA Biochimica Polonica in Neuropsychiatric Disease and Treatment in Przeglad Gastroenterologiczny Connect with Nadine: Books by Nadine: /episode/index/show/glutenfreern/id/6341514

The Irish and Celiac Disease EP062 03/01/2018

The Irish and Celiac Disease EP062 The Irish are known for being lucky… But does that luck hold out when it comes to celiac disease? The prevalence of celiac disease among the Iris is 1:100, about the same as the rest of the world. And if you are a redhead of Irish descent, there is a good chance that you are an HLA-DQ2 or HLA-DQ8 gene carrier. Today, the Gluten Free RN explores Irish ancestry and celiac disease, discussing how the Potato Famine led to a change in diet for much of the surviving population. She walks us through a paper published by Irish College of General Practitioners explaining the clinical presentations and complications of celiac disease. Nadine shares her experience running the Dublin marathon and the health consequences she suffered after touring the Guinness brewery. Listen in to understand the work of the Coeliac Society of Ireland and learn about the trends in celiac disease among the Irish. What’s Discussed: Why red hair is associated with celiac disease Tend to be HLA-DQ2 and/or HLA-DQ8 gene carriers The prevalence of celiac disease in Irish Setters Do much better on a gluten-free/Paleo diet The Irish Potato Famine Potato-based diet, little access to grains Famine from 1845-1849 One million died, many emigrated The myth that celiac disease is more prevalent in Europe than the US 30-50% of the population carries HLA-DQ2, HLA-DQ8 gene The myth that women are more susceptible to celiac disease Statistics don’t support this belief The Irish College of General Practitioners paper on celiac disease Clinical presentations, complications of celiac disease Conditions associated with increased prevalence The prevalence of celiac disease in Ireland 1:100 (matches rest of world) The appropriate testing for celiac disease and NCGS Blood test for total IgA/IgG, DGP and AGA Nadine’s experience running the Dublin marathon in 1998 Extreme edema in lower extremities The information provided by the Health ramifications of undiagnosed CD Average duration from symptoms to diagnosis (nine months) Resources: in The Canadian Veterinary Journal in ICGP in Gastroenterology by the Coeliac Society of Ireland in Alimentary Pharmacology & Therapeutics in Lifestyle Health by the Food Safety Authority of Ireland in The Irish Times in Clinical Gastroenterology and Hepatology in Irish Health in Irish Health by the Dublin Academic Medical Centre & UCD Connect with Nadine: Books by Nadine: /episode/index/show/glutenfreern/id/6317416

The US Military and Celiac Disease EP061 02/22/2018

The US Military and Celiac Disease EP061 It goes without saying that anyone who serves in the military needs to be healthy and strong—and that military leaders have an obligation to keep enlisted servicemen and women as safe and healthy as possible. So, it makes sense that people with food allergies (including celiac patients) are disqualified from military service, but it is less clear why celiac testing is not a part of the medical exam to qualify for enlistment. Today, the Gluten Free RN addresses the issue of celiac disease in the military. She explains the challenges of preparing gluten-free food in a mess hall setting and describes the consequences for an active duty soldier who is found to have celiac disease. Nadine shares a research study exploring celiac trends among active duty military as well as a case study around veterans and celiac disease. Listen in for insight on what’s behind the increased prevalence of celiac disease among military personnel and the confirmed association between celiac disease and other complex health issues. What’s Discussed: Why celiac patients are disqualified from enlisting in any branch of service Unable to provide safe food What happens to military personnel who are found to have celiac disease Will receive medical discharge The US military policy around food allergies and intolerances No accommodations made Countries that allow celiac patients to serve Israel, Finland and Scandinavia The Mayo Clinic study of celiac trends among active duty military Healthy worker population with medical diagnostic coding Incidence of celiac disease increased five-fold from 1999-2008 Combination of increased suspicion and environmental factors The challenge of preparing gluten-free food in a military setting High risk of cross-contamination A case study involving military veterans and celiac disease Confirmed association between CD and other complex issues The benefits of a gluten-free diet Preventative for autoimmune disorders, nutritional deficiencies and cancer Nadine’s argument for celiac testing prior to enlistment Obligation to safety of servicemen/women Resources: in the American Journal of Gastroenterology in Digestive Diseases and Sciences in Gluten-Free Living in Military Times Connect with Nadine: Books by Nadine: /episode/index/show/glutenfreern/id/6291320

Hepatitis B Vaccine and Celiac Disease EP060 02/07/2018

Hepatitis B Vaccine and Celiac Disease EP060 We get vaccinated to protect ourselves, to gain an immunity to a particular disease. But in the case of hepatitis B, celiac patients may come to find out that we are NOT immune—despite having done the right thing in getting a hepatitis B vaccination. Today, the Gluten Free RN is walking us through the latest research around vaccination and celiac disease. She explores the fact that celiac patients are more likely to be non-responsive to HBV than the general population, explaining the fundamentals of hepatitis B and the two main theories as to why the vaccine doesn’t work for some celiac patients. Nadine shares her take on immunizations, explaining why she is a proponent of an alternate vaccination schedule for infants who may be immunocompromised. Listen in and learn how to determine whether you are truly immune to hepatitis B and protect yourself from potentially life-threatening disease! What’s Discussed: The basics of hepatitis B (HBV) Viral infection that attacks liver Transmitted through blood, body fluids The prevalence of hepatitis B 257M people infected 887K deaths in 2015 The 2013 Italian study around celiac disease and the hepatitis B vaccine Number of non-responders to vaccine higher in CD patients May be genetic OR caused by gluten intake during vaccination Nadine’s experience with vaccination as a child Contracted mumps despite MMR Nadine’s take on vaccination Advocates for immunization to prevent disease Giving babies multiple vaccines at once may not be best The conclusion of a 2017 Italian study Administer booster shots of hepatitis B vaccine as needed Evaluate response to vaccine in newly diagnosed celiac patients Revaccinate one year after adoption of gluten-free diet The value of a hepatitis B titer Confirms whether really immune If not, test for celiac disease Resources: in the Journal of Pediatric Gastroenterology and Nutrition in the World Journal of Gastroenterology in Human Vaccines and Immunotherapeutics in Pediatrics in Pediatrics in Gut in Human Vaccines and Immunotherapeutics Connect with Nadine: Books by Nadine: /episode/index/show/glutenfreern/id/6236463

Hypothyroid, Pulmonary Edema and Celiac Disease EP059 01/31/2018

Hypothyroid, Pulmonary Edema and Celiac Disease EP059 When the Gluten Free RN went on a gluten-free diet 11 years ago, her thyroid settled down and the associated symptoms and disorders—Graves’ disease, weight gain and hair loss—resolved. But when Nadine was inadvertently hit with gluten two years ago, several of those symptoms returned, along with a few new ones. She was losing hair and gaining water weight again. On top of that, her sinuses were congested. She developed asthma, a rash on her lower right leg and a scary case of pulmonary edema (excess fluid in the lungs). Hindsight being 20/20, Nadine realizes that her recent diagnosis of hypothyroidism is associated with that accidental gluten ingestion. Further study made it clear that there is a potential connection between her thyroid problems and pulmonary edema, as the leaky gut that comes with celiac disease can cause fluid shifts into body tissues. Today the Gluten Free RN explores the links among celiac disease, thyroid disorders and pulmonary edema. She explains the function of the endocrine system, the symptoms associated with hypothyroidism, and the diet she recommends for patients with thyroid issues. Listen in for Nadine’s insight around how gluten affects the thyroid gland and why the resulting low sodium levels might trigger edema in celiac patients. What’s Discussed: The function of the endocrine system Glands in body that make hormones The connection between celiac disease and thyroid disorders Thyroid especially vulnerable to gluten protein in wheat, barley, rye and oats Nadine’s symptoms of hypothyroidism Lower extremity edema Congested sinuses Hair falling out Pulmonary edema Asthma Rash on leg How damp rash lotion resolved Nadine’s symptoms Prescribed by acupuncturist in Chiang Mai Rash cleared, could breathe easy Symptoms returned within four weeks of return to US Nadine’s thyroid-stimulating hormone (TSH) levels Within normal limits despite thyroid issues Practitioner declined to order thyroid panel The relationship between thyroid issues and edema Sodium = major electrolyte, maintains body’s pH Hypothyroidism means low sodium levels Leaky gut of celiac disease leads to fluid shifts (edema) The research around thyroid disorders and celiac disease in Current Allergy and Asthma Reports Association between CD and thyroid disorders well documented Increased prevalence of autoimmune thyroiditis and Graves’ disease in celiac populations The diet Nadine recommends for celiac patients with potential thyroid issues Gluten-free, dairy-free Whole food, Paleo Why patients with unexplained pulmonary edema should be tested for celiac disease AND thyroid disorders Potential connection among all three The symptoms associated with hypothyroidism Puffy face, constipation, fatigue Muscle weakness, aches and pains Irregular, delayed menstrual periods Hair loss, thinning hair Slower heartrate, hypothermia Depression, memory problems Resources: in the Journal of the Chinese Medical Association in CHEST Journal Letters to the Editor in Endocrinology, Diabetes & Metabolism Case Reports in Clinical Medicine & Research in Current Allergy and Asthma Reports in BMJ Case Reports in Ghana Medical Journal in the Journal of Clinical Medicine in the Indian Journal of Endocrinology and Metabolism Connect with Nadine: Books by Nadine: /episode/index/show/glutenfreern/id/6209721

Mental Health Disorders and Celiac Disease EP058 01/24/2018

Mental Health Disorders and Celiac Disease EP058 An estimated 50% of Americans are on some type of psychotropic drug. Half of the US population! What is causing such widespread prevalence of mental health disorders? Prescription anti-depressants and sedatives don’t solve the underlying problem… So how do we get to the bottom of this? The Gluten Free RN contends that there may be a connection between mental health and undiagnosed celiac disease. Today she explains how several disorders (anxiety, depression and paranoia, among others) have been linked to gluten, discussing how a leaky blood-brain barrier can lead to hypoxia, an inflammation of the brain. Nadine walks us through the best research in mental health disorders and gluten sensitivity, sharing two landmark studies that emphasize the gut/brain connection and characterize celiac disease as primarily a neurological disorder. Nadine offers her insight around working with schizophrenic patients and the increasing number of children suffering from anxiety. Listen in to understand how gluten impacts your mental health, and learn how to eliminate brain fog, get off prescription meds, and enjoy a higher quality of life! What’s Discussed: The connection between gluten and hypoxia Leaky blood-brain barrier leads to inflammation of brain, decreased oxygen flow The shocking statistics around Americans and psychotropic drugs Estimated 50% of US population on psychotropic medication The potential relationship between mental health disorders and undiagnosed celiac disease High instance of depression, anxiety, fatigue and paranoia May have difficulty sleeping, headaches or seizure disorder Nearly all experience brain fog The health consequences of undiagnosed celiac disease Malabsorption of nutrients Damaged immune system Neurological symptoms Hormonal imbalance Neurotransmitter disruption The findings of the landmark Cooke study in 1966 Ten of 16 patients with celiac disease had severe progressive neuropathy All 16 had severe malabsorption The conclusion of an editorial published in Neurology, Neurosurgery & Psychiatry Celiac disease, NCGS is primarily neurological How a gluten-free diet can resolve gastrointestinal and psychiatric symptoms Celiac disease can manifest as depression, anxiety or psychosis Research published in International Journal of Celiac Disease demonstrates gut/brain connection Nadine’s experience with schizophrenia patients Majority are gene positive for HLA-DQ2, HLA-DQ8 The increasing number of children diagnosed with anxiety disorder May be caused by undiagnosed sensitivity to gluten The concept of food as medicine Body may read gluten as toxic, must remove from diet Resources: Connect with Nadine: Books by Nadine: /episode/index/show/glutenfreern/id/6185013

My Health and Lessons for You EP057 01/18/2018

My Health and Lessons for You EP057 Two and a half years ago, Nadine was inadvertently hit with gluten—three times in a row. In the past, it had taken about ten weeks for her symptoms to resolve after an accidental exposure, but this time they stuck around. It started with feeling cold. Then she began experiencing abdominal distention and pain. Her dermatitis herpetiformis returned, she was plagued with sinus congestion, and she was gaining weight. Most concerning of all, she developed pulmonary edema, a condition caused by excess fluid in the lungs. Today, the Gluten Free RN is getting real, revealing the health struggles she has been dealing with since 2015. She explains the circumstances that led to her accidental gluten exposure and recounts the ten scary nights she spent in a recliner, forced to sit up in order to breathe. Nadine takes us along on her global search for the answers that began with a practitioner in Thailand and a tiny container of damp rash lotion, and ended with a diagnosis of myxedema from a naturopath here in the States. Nadine discusses how those three consecutive hits of gluten targeted her thyroid gland and how T3 is working to resolve her symptoms. Listen in and learn how the Gluten Free RN is reclaiming her Superwoman status and how you, too, can reach your full potential with good health and wellbeing! What’s Discussed: Maslow’s hierarchy of needs Physiological, safety needs must be taken care of first Difficult to achieve self-actualization with poor health Nadine’s health struggle the past 30 months Inadvertently hit with gluten three times in a row Symptoms persisted past usual ten weeks Sinus congestion, DH, pulmonary edema and weight gain Nadine’s search for the underlying cause Saw practitioner in Chiang Mai, damp rash lotion resolved symptoms Naturopath in Oregon diagnosed myxedema (hypothyroidism) How Nadine is reclaiming her health Taking T3 to resolve symptoms How a damaged thyroid gland impacted Nadine Affected sleep, ability to do challenging physical activity The importance of support in getting your health back Need relationships to support choices Resources: Connect with Nadine: Books by Nadine: /episode/index/show/glutenfreern/id/6164230

Celiac Disease for Nurses EP056 01/10/2018

Celiac Disease for Nurses EP056 Celiac disease is messy. It can develop at any age, in any ethnicity, in both men and women, with any symptom or no symptom at all. Every patient is different, and each one presents differently. There is nothing cut and dried about celiac disease, except that a 100% gluten-free diet is necessary for healing. Nurses are in a unique position to make sense of this chaos and advocate for patients, recognizing possible celiac disease and non-celiac gluten sensitivity and recommending appropriate testing when necessary. Today, the Gluten Free RN covers the basics of celiac disease for nurses, explaining the frequency with which the disorder is misdiagnosed or goes undiagnosed for years. She walks us through the testing required for a diagnosis of celiac disease proper, who should undergo testing, and why one negative test doesn’t rule out the disease. Nadine speaks to the 300-plus signs of celiac disease, reviewing the most common symptoms and the overlap between celiac disease and autoimmune disorders like type 1 diabetes. She also shares the discouraging statistics around the impact of undiagnosed celiac disease on fetal development and maternal health. Listen in to understand why Nadine encourages fellow nurses include celiac disease as part of their differential diagnosis, providing gluten-sensitive patients with a safe, gluten-free environment and a higher quality of life! What’s Discussed: The frequency with which celiac disease is misdiagnosed or goes undiagnosed 94% of people with celiac disease are undiagnosed Current estimate is 3% of US population Takes average of 9-15 years for diagnosis The challenges around getting a diagnosis of celiac disease proper Requires genetic test, celiac antibody test and documented villous atrophy Celiac antibody test = 70% false negative in US The chronic nature of celiac disease Patients must go 100% gluten-free for life The 300-plus signs and symptoms of celiac disease Primarily a neurological disorder Why celiac patients must be tested for potential nutritional deficiencies May need B12, Mg RBC, D3, Zn or I supplements The detrimental impact of undiagnosed celiac disease on fetal development, maternal health 800-900% increase in miscarriage Increased risk of stillbirth, premature birth and neural defects Where gluten is hiding Medications, personal care products and food items Who should be tested for celiac disease Patients with mental health issues, developmental delays Anyone with an autoimmune disorder (e.g.: type 1 diabetes) Family members of celiac patients Why one negative test doesn’t rule out celiac disease Can seroconvert at any time How a gluten-free diet can benefit children with stunted growth Growth resumes if diagnosed before epiphyseal plates seal Resources: by Cleo J. Libonati Connect with Nadine: Books by Nadine: /episode/index/show/glutenfreern/id/6136779

Hopes and Wishes for Celiac Disease in 2018 EP055 01/04/2018

Hopes and Wishes for Celiac Disease in 2018 EP055 As we ring in the New Year, many of us take the time to jot down our aspirations for the next twelve months. What are your hopes and dreams for 2018? Health and happiness? An opportunity to travel? Stronger relationships? Whether you have big plans to hike the Grand Canyon this year, or you simply resolve to get a little more sleep, it’s likely that aspects of health and wellness are a big part of your vision for 2018. The Gluten Free RN wants you to be happy and healthy in the coming year, and today she is sharing her hopes and wishes around celiac disease for 2018. Nadine offers insight on taking control of what you can, including the food you eat. She shares her wish for widespread access to high-quality food and nutritional information that is NOT influenced by corporations. She explains the need for universal healthcare, better comprehensive testing for celiac disease (performed annually), and appropriate follow-up care for patients with a celiac diagnosis. Listen in to understand why Nadine advocates for a global celiac education campaign and learn how to evaluate new information about the disease with a critical ear. Let’s get happy and healthy in 2018 so that we can pursue all of our hopes and dreams! What’s Discussed: Nadine’s wish for health, happiness and wellness Reevaluate your choices and control what you can (sleep, food, activities) Why Nadine advocates for universal healthcare Everyone deserves access to high-quality healthcare without financial strain The need for better comprehensive testing Healthcare providers should be educated in ordering, interpreting labs Nadine’s hope for worldwide knowledge of celiac disease Patients in US not diagnosed correctly for 70 years Consider mini-mass screening of patients/family The importance of accurate media coverage Stories not influenced by sponsors, pharmaceuticals, etc. Why friends and family should be tested every year Early diagnosis important Can be ruled in, not ruled out The value of nutritional information not influenced by food companies Understand where food comes from, how processed Nadine’s aspiration for universal access to high-quality food Organic, whole foods with minimal processing Provides fuel today, building blocks of healing The need for appropriate follow-up care Labs to address nutritional deficiencies, associated issues Nadine’s insight around celiac education Seek information, evaluate with critical ear Resources: Connect with Nadine: Books by Nadine: /episode/index/show/glutenfreern/id/6116153

Thoughts on Celiac Disease EP054 12/14/2017

Thoughts on Celiac Disease EP054 In 11 years as the Gluten Free RN, Nadine has done an incredible amount of research on celiac disease and delivered more than 2,000 lectures. No question she is frustrated to see misinformation continue to make its way onto celiac support sites and Facebook groups. How does the average person sift through all the material that’s out there—material that may be influenced by corporations and pharmaceutical companies with a vested interest in the way celiac disease is perceived—to get to the most accurate information? Just in time for the holidays, the Gluten Free RN is sharing her wish list around the direction of celiac disease and non-celiac gluten sensitivity in the next ten years. She discusses the need for a global mass screening, explaining how celiac disease meets the World Health Organization’s criteria. She covers the reasons why pharmaceutical companies have no place in celiac research as well as the bad publicity the gluten-free community receives in the media. Nadine speaks to the grievous lack of education about celiac disease among healthcare providers and shares her hope for a cultural shift to support people on a gluten-free diet, explaining the role nurses can play in ending the needless suffering. She talks about why a gluten-free diet is NOT dangerous and how to make the best food choices based on your lifestyle and current situation. Listen in and get empowered to accept responsibility for your health! What’s Discussed: The need for a global mass screening Celiac disease meets WHO criteria 30-50% of population carries gene Why pharmaceutical companies should not be involved in celiac research Diet change resolves symptoms Pharmaceutical involvement gives false hope for cure The misinformation about celiac disease in the media Misrepresentation in recent episode of Freakonomics Radio The need to educate healthcare providers around celiac disease Recommended in Never happened in standardized form Nadine’s call for support of people on a gluten-free diet Don’t assume intentionally being difficult The unique position of nurses to use their influence Prevent needless suffering with understanding of celiac disease Why you must accept responsibility for your own health Take advantage of available resources Find practitioners open to other modalities How to avoid processed foods Focus on raw, whole foods Choose fresh fruits, vegetables Don’t fall victim to convenience marketing Use community, intuition to make decisions Why a gluten-free diet is NOT dangerous Nadine restored her health by eliminating grains Unethical to suggest that celiac patient go off gluten-free diet Resources: Connect with Nadine: Books by Nadine: /episode/index/show/glutenfreern/id/6046509

Alex Michaels from LPI on Vitamin C EP053 12/07/2017

Alex Michaels from LPI on Vitamin C EP053 You know that vitamin C is good for you. It is necessary for the growth, development and repair of all your body tissues, and it plays a role in the healthy functioning of your immune system. But evidence shows that the RDA—90mg for men and 75mg for women—may be woefully inadequate. And if you are suffering from certain types of cancer or sepsis, vitamin C may be the key to recovery. The Gluten Free RN is joined by vitamin C researcher Alex Michaels from the Linus Pauling Institute at Oregon State University to discuss the latest developments in vitamin C, explaining how intravenous vitamin C works to kill certain cancer cells and reverses the organ failure associated with sepsis. He also covers the difference between vitamin C inadequacy and vitamin C deficiency and the debilitating symptoms of scurvy. Nadine and Alex speak to the best food sources of vitamin C and how it impacts other vitamins and minerals like iron and copper. Alex offers his advice around how much vitamin C you should get on a daily basis and explains why synthetic and natural vitamin C are identical. Learn about the LPI mission to determine the optimal ranges of micronutrients and phytochemicals you should be getting on a daily basis and how you can benefit from their research! What’s Discussed: Micronutrients vs. macronutrients Micronutrients are vitamins, essential minerals needed in small amounts (milligrams or micrograms/day) Macronutrients include fats, carbs and proteins (grams/day) Phytochemicals come from plants, affect health but not essential nutrients The difference between intravenous and oral vitamin C Intravenous bypasses GI system, high concentration in bloodstream (up to 100 grams) Body can only absorb certain amount of oral vitamin C, inflammation may prevent absorption Vitamin C’s resurgence as a cancer therapy High levels of intravenous vitamin C can covert oxygen to hydrogen peroxide Hydrogen peroxide floods and kills some cancer cells (e.g.: pancreatic tumors) Vitamin C’s role in the treatment of sepsis Reverses organ failure, decreases inflammation May restore vitamin C to normal levels, protect from negative effects of iron The availability of intravenous vitamin C Difficult to obtain, naturopaths usually have dedicated supplier More readily available in Australia, New Zealand The fundamentals of scurvy Defined as deficiency in vitamin C Symptoms include bleeding gums, corkscrew hair growth, open wounds, malaise and low energy Very rare in western world, would have to go without any fruits or vegetables for months May have vitamin C inadequacy without any outward signs of problem The best food sources of vitamin C Chili peppers Tropical fruits (papayas, Kakadu plum, camu camu) Factors that are known to denigrate vitamin C Heat, light and air Mechanical disruption (i.e.: juicer) Basic pH (anything above 7) Enzymatic factors Iron, copper How vitamin C impacts other vitamins and minerals Enhances iron absorption, some must be careful of iron overload Synthetic vitamin C may deplete copper concentration Alex’s take on the appropriate daily intake of vitamin C 400 mg/day recommended RDA much too low Resources: by Martha H. Stipanuk PhD and Marie A. Caudill by Ewan Cameron and Linus Pauling Connect with Nadine: Books by Nadine: /episode/index/show/glutenfreern/id/6021932

Go Gluten Free for Good EP052 11/30/2017

Go Gluten Free for Good EP052 How do you successfully transition to and maintain a 100% gluten-free diet for the rest of your life? The prospect of eliminating wheat, barley and rye from your diet may seem daunting, but it is possible to go gluten free for good—for the good of your family and your health! The Gluten Free RN explains the addictive nature of gluten and what to expect during the detox process as you begin your gluten-free journey. She offers valuable advice around how to choose the best quality food products while avoiding potential sources of cross-contamination. Nadine discusses the need for supplements that will help you heal faster and more completely, speaking to the vitamin levels you should monitor along the way. Listen and learn her best tips for navigating the grocery store and maintaining a positive attitude throughout the process of going gluten-free—for GOOD! What’s Discussed: The addictive nature of gluten Gliadin, gluten proteins bind to opioid receptors Wheat, barley and rye are cheap and readily available What to expect during the detox process Different for everyone Consider elimination diet to reboot system May feel worse before feel better Headaches, low energy and feeling hungry are common Why you shouldn’t cheat on a gluten-free diet Same autoimmune response, even if symptom-free Potential sources of cross-contamination Processed foods Unwashed fresh fruits, vegetables Bulk bins Restaurants Own home (i.e.: cutting boards, hands, pets, utensils, appliances, etc.) Nadine’s rules around choosing quality food products Five ingredients or less Picture every ingredient Certified gluten-free 100% grain-free Why there is no such thing as cheap food Pay for quick-fixes to treat symptoms The necessity of additional vitamins, supplements Helps heal faster, more completely Use multivitamin, fish oil, pre- and probiotics Check levels of D3, Zinc, B6 and B12 Liquid, chewables and capsules are easier to break down Nadine’s advice around navigating the grocery store Plan menus in advance Bring list of safe foods Read labels carefully Consider local co-ops, natural grocers and farmers markets Nadine’s best tips for going gluten-free Concentrate on what you can eat Accept more cooking, baking and meal planning Find support group Stay current on research, food labeling Practice mindfulness, maintain positive attitude Resources: Connect with Nadine: Books by Nadine: /episode/index/show/glutenfreern/id/5997251

Nutrient Dense Foods EP051 11/22/2017

Nutrient Dense Foods EP051 ‘When in doubt, go without.’ The problem with processed food is that you simply can’t be sure that it is gluten-free. The risk of cross-contamination is high, and no one at the big corporations is accountable for your health. Not to mention the fact that processed foods have been irradiated to make them shelf-stable, effectively killing any probiotics. Even certified gluten-free products are often low in nutrients, high in calories—and expensive! So what should you eat? The Gluten Free RN is on the case with her best suggestions around finding organic, whole foods that contain the healthy fat you need to heal. She explains her revised, gluten-free version of the food pyramid and discusses how these nutrient-dense foods support the healing process. Nadine provides a list of the best nutrient-dense foods, offering the benefits of each. She also speaks to the most appropriate vitamins and supplements available to solve your nutrient deficiencies. You are what you eat, so make sure you are filling your tank with nutrient-dense foods that will improve your health and quality of life! What’s Discussed: How nutrient dense foods support healing Regenerate villi Reduce inflammation of intestines Heal immune system Why Nadine recommends staying away from gluten-free junk foods Low in nutrients, high in calories Risk of cross-contamination (processed in facilities with wheat products) The best sources of nutrient-dense foods Whole foods, organic Farmers market (few/no fertilizers) Why shelf-stable products lack nutrients Food dead from irradiation, no live probiotics The risk of contamination in processed foods No one accountable at big corporation ‘When in doubt, go without’ Nadine’s revised food pyramid Fruits and vegetables at base Meat, fish and eggs Nuts, seeds and berries The importance of eating healthy fats Heals intestines Absorb fat-soluble vitamins (A, D, E and K) Fix deficiencies Healthy brain cells, nervous system Balance hormones Nadine’s recommendations around the best nutrient-dense foods Sweet potatoes Leafy greens (e.g.: kale, collard greens) Berries Coconuts Black molasses Avocados Pumpkin, chia seeds Meat and fish High-quality eggs Licorice root, peppermint tea Cinnamon Nadine’s vegetable challenge Expand your vegetable repertoire Try one new veggie per week Nadine’s suggestions around additional vitamins, supplements Good quality multivitamin Fish oil (i.e.: ) Pre/probiotics Vitamin D How to avoid cross-contamination Avoid bulk food bins Wash produce Resources: Connect with Nadine: Books by Nadine: /episode/index/show/glutenfreern/id/5973056

Managing the Holidays with Celiac Disease EP050 11/16/2017

Managing the Holidays with Celiac Disease EP050 With the approach of the holidays, you may be nervous about navigating family and workplace gatherings—especially if you are newly diagnosed with celiac disease. How do you explain your dietary restrictions and keep yourself safe, eating well without getting ‘glutened’? Today the Gluten Free RN shares her best advice around managing the holidays with celiac disease. She offers ten key tenants to help you enjoy the holiday season and mitigate stress, without feeling like you’re missing out. She shares some things you need to avoid, including unsafe situations, people who make you miserable, and cheating on your gluten-free diet! But she also discusses strategies you can implement to make the season bright, such as creating new traditions, getting creative in the kitchen, and finding your tribe—the people who will support you in your gluten-free journey. Nadine also gives tips around where to go for gluten-free ingredients and holiday recipes, and how to develop a backup plan so you won’t go hungry if the food you encounter is questionable. You are likely to encounter well-intentioned friends and family members who have no idea how to feed you safely at holiday parties. Listen in and learn how to be clear about your dietary needs and take control of your health without isolating yourself from loved ones during this most wonderful time of the year! What’s Discussed: #1 Don’t eat anything contaminated with wheat Cannot eat center of pie, any part of turkey with bread stuffing #2 Beware of good-intentioned people Don’t eat anything questionable Bring a snack with you just in case #3 Be prepared to establish new traditions Get creative in kitchen #4 Don’t isolate yourself Find support group, create your own #5 Gather recipes early Reference , gluten-free cookbooks Follow #6 Order ingredients in advance Consider organic, free range turkey #7 Don’t invite people who make you miserable Set clear boundaries (no complaints, ridicule) #8 Eat before you go or take your own plate ‘Desperate people make desperate decisions’ Take a dish to share, take your portion first #9 Don’t be a victim Be clear about your needs #10 Find your people Those who truly love you don’t want you to be sick Resources: by Sarah Ballantyne Connect with Nadine: Books by Nadine: /episode/index/show/glutenfreern/id/5952970

Lyme Infection and Celiac Disease EP049 11/09/2017

Lyme Infection and Celiac Disease EP049 If you’ve been following a strict gluten-free diet, but continue to suffer from lingering neurological symptoms, you may need to explore the possibility that you have Lyme disease. In fact, there are many parallels between celiac disease and Lyme, and the Gluten Free RN has called in an expert to discuss the similarities between the two disorders and why a gluten-free diet is part of the proper treatment for both. Dr. Usha Honeyman, a chiropractic and naturopathic physician out of Corvallis, Oregon, joins Nadine to explain the fundamentals of Lyme disease. She shares her best advice around prevention and treatment, exploring why it can be difficult to get an accurate diagnosis. Nadine and Usha also cover the inflammation of the gut that plagues both celiac and Lyme patients, the neurological component of Lyme disease, and the relationship between Lyme and illnesses like MS, Parkinson’s and ALS. Listen in to understand what can happen when Lyme goes untreated and how antibiotics coupled with a gluten-free diet may restore your health! What’s Discussed: The fundamentals of Lyme disease Most common insect-borne disease in US Primarily carried by tics (disable immune system at bite site) CDC estimates 300K new cases each year How to prevent Lyme infection Repellants, How the political controversy in medicine has led to conflicting information around Lyme disease The treatment for Lyme disease Long-term antibiotics T3 to raise body temperature, make white blood cells more efficient Probiotics to support immune system Why Dr. Honeyman advises Lyme patients to go gluten-free Lyme causes inflammation of gut The neurological component of Lyme disease Spirochetes permeate blood-brain barrier Cause brain fog, balance issues, sensory disorders, etc. The alpha-gal reaction in Lyme patients in the Southeast US The strange gait and lower-face movement in Lyme patients Bell’s palsy is red flag for Lyme disease The importance of having a Lyme-literate doctor Skin scraping of rash for diagnosis available in research setting ELISA and Western blot miss 80-90% of Lyme patients The consequences of untreated Lyme disease The three forms of Borrelia Spirochete-form, intracellular and cystic Resources: by David Perlmutter Connect with Nadine: Books by Nadine: /episode/index/show/glutenfreern/id/5930233

Gluten Free Products EP048 11/02/2017

Gluten Free Products EP048 The increasing number of gluten-free products on the market can be both a blessing and a curse. Yes, it gives us more options, but are those options truly safe and healthy? Today the Gluten Free RN goes over the important questions to ask about the products you consume, explaining how the foods promoted by some gluten-free groups may be influenced by their corporate sponsors. She reminds us why we can’t simply trust the products labeled ‘gluten-free’ or ‘gluten removed,’ discussing the lack of oversight and standardization around classification and the cumulative effect of consuming a number of products that are just under the 20 ppm cutoff. Nadine also shares a list of companies she trusts to consistently produce gluten-free products and offers suggestions around new food options we might explore. Listen in and learn to choose the nutrient-dense foods that will help your body heal! What’s Discussed: The importance of questioning the source of your information Gluten-free groups take money from sponsors (corporations, pharmaceutical companies) Why Nadine avoids the ‘gluten removed’ label The questions to ask about gluten-free products Is it manufactured in a designated facility? From where do they source the ingredients? Do they batch test those ingredients? The cumulative effect of eating many products just under 20 ppm Reliable companies that consistently produce truly gluten-free products The challenges faced by newly diagnosed celiac patients Feeling different Loss of convenience Why Nadine avoids gluten-free breads New food options to explore as a celiac patient Why Nadine recommends reevaluating the foods you consume Ensure they are nutrient dense, don’t cause inflammation Why you can’t trust product labels Corporations given six months to update after ingredients change Not required to test products labeled gluten-free (no oversight, standardization) Nadine’s rules around choosing products Five ingredients or less Must be able to picture ingredients Resources: Connect with Nadine: Books by Nadine: /episode/index/show/glutenfreern/id/5903800

FAQ’s About Celiac Disease Answered EP047 10/25/2017

FAQ’s About Celiac Disease Answered EP047 How do I get over feeling sad about giving up the foods I love? Don’t celiac patients look a certain way? Can I eat wheat when I travel to Europe? Today the Gluten Free RN is answering your frequently asked questions about celiac disease, clearing up misconceptions around the safety of wheat in Europe, the appearance of a celiac patient, and the percentage of the population that suffers from gluten sensitivity. She speaks to the challenges of getting your healthcare provider to do appropriate testing for celiac disease and the learning curve associated with changing your diet. Nadine also explains the risks of embarking on a gluten challenge and the benefits of a super-good high fat diet. She discusses why a single breadcrumb can trigger an autoimmune response and how she uses tools like a Nima Sensor when she eats out. Listen in and learn why one negative test doesn’t rule you out for celiac disease, especially if you suffer from type 1 diabetes. Having celiac disease doesn’t mean you have to live in a bubble. The Gluten Free RN wants to give you the answers you need to navigate the world—happy, healthy and gluten-free! What’s Discussed: ‘My sister has celiac disease, but I tested negative. I do have type 1 diabetes… What should I do?’ Get genetic test for HLA-DQ2, HLA-DQ8 Virtually every type 1 diabetic is gene carrier One test doesn’t rule you out ‘Why do you use a or test strips? Doesn’t it give you a false sense of security?’ Have to trust others to prepare food when out Not foolproof, but does give decent idea ‘A single breadcrumb or dusting of flour can trigger an autoimmune response? Really?’ ‘I am overweight, I have dark hair, and I’m not of European descent. Don’t celiac patients look a certain way?’ Can’t see genes, celiac disease can affect any population worldwide Overweight patients tend to be malnourished (unable to absorb nutrients) Never rule out based on appearance, may not show physical symptoms ‘Why do you recommend a super-good high-fat diet?’ ‘I’m already on a gluten-free diet. Do I need to go back to gluten to prove I have celiac disease?’ ‘My cousin was just diagnosed with celiac disease, and she is very sad about giving up the food she grew up with. How can she get started on a gluten-free diet?’ Steep learning curve goes with process Okay to feel sad, angry Remember you will get better without surgery, medication Try to see as an adventure ‘Why won’t my doctor order tests for celiac disease?’ Countries with for-profit healthcare tend to do poor job of testing, follow-up care Fragmented, inaccurate education around celiac disease Be own best advocate ‘Can I eat wheat in Europe?’ ‘Is it true that celiac disease affects 1% of the population?’ 1% translates to 3M people 3% is more accurate statistic Won’t know for sure until conduct mass screening Resources: Connect with Nadine: Books by Nadine: /episode/index/show/glutenfreern/id/5876172

Where Gluten Hides EP046 10/19/2017

Where Gluten Hides EP046 Never assume. It makes an ass of u and me! Not only do assumptions make you feel foolish, they can be dangerous. If you suffer from celiac disease or non-celiac gluten sensitivity, assuming that a product is safe and gluten-free can be hazardous to your health! Gluten is hiding is some surprising places, from cashews to PlayDoh, and it is in your best interest to remember that anything processed in the same facility with wheat is at risk for contamination. Today the Gluten Free RN shares the many places she has discovered gluten ‘hiding in plain sight,’ including personal care products, olive oil and communion wafers. She offers advice around supporting companies that are 100% gluten-free, alternatives to gluten-containing products, and choosing nutrient-dense foods that will help you heal. Nadine also covers labels, discussing why you can’t necessarily trust the information you find there, the many different names for wheat to look out for, and why you should take a look even when the product should be naturally gluten-free. She reveals some of her favorite gluten-free products as well as several companies that are committed to maintaining gluten-zero production facilities. Listen in and learn how to make good choices—without giving up the activities you love. Eating gluten-free doesn’t have to be a punishment, and the Gluten Free RN can’t wait to share! What’s Discussed: Why Nadine sticks with clearly marked gluten-free products Some of the surprising places gluten hides Olive oil, kombucha, hard ciders, smoothies and other drinks Alcohol and malted beverages Lipsticks, lip balms and gloss Communion wafers Supplements and medications Play-Doh Why you can never assume a product is naturally gluten-free Anything processed in same facility with wheat is at-risk for contamination Why Nadine encourages the support of companies striving to be 100% gluten-free Don’t have to worry about safety Sends message to companies with unclear labels The many different names for wheat to watch out for on labels Alternatives to gluten-containing products like bread, crackers and chocolate Why you can’t trust labels Companies have six months to change a label after ingredients, info has changed Must read label every time buy product, refill prescription medication The cumulative effect of consuming products that contain just under 20 ppm of gluten Why Nadine urges you to be picky Don’t settle for cheap filler foods Only nutrient-dense foods will help you heal Resources: Connect with Nadine: Books by Nadine: /episode/index/show/glutenfreern/id/5857308

The Psychology of Eating Gluten Free EP045 10/12/2017

The Psychology of Eating Gluten Free EP045 We all just want to fit in, so it can be embarrassing to have special needs when it comes to your diet. Whether you are gluten-free, Paleo, or suffering from food allergies, a feeling of isolation is not uncommon. After all, you have to eat differently from the rest of your friends, family, or colleagues—and that makes you stand out. You run the risk of being perceived as picky or annoying, when the truth is that certain foods are toxic to your system! Today the Gluten Free RN speaks to the psychology of eating gluten-free, explaining the sense of disbelief many gluten-sensitive individuals feel when the food they love turns out to be poison. She discusses ‘food ideology’ and why changing your diet can be so challenging. Nadine also covers the doubt, mocking, and even anger that celiac and gluten-sensitive individuals face, offering suggestions for building connections with a like-minded, gluten-free community. Listen in as she outlines her approach to dating on a Paleo diet and reassuring family and friends who find a gluten-free diet too restrictive for kids. Learn to be your own best advocate and resist the social pressure to eat the standard American diet! What’s Discussed: Why gluten sensitive patients must be willing to experiment Learn how body works best Identify foods that allow body to heal Pinpoint foods that cause symptoms A downtown Corvallis business owner’s testimonial Couldn’t get doctor to test for celiac disease Family gave hard time Gluten-free for year Bloating, abdominal pain went away Head clear How to research the possibility that gluten is causing your symptoms Search Use both spellings (celiac, coeliac) Why people are resistant to diet change Subscribe to particular food ideology Media, social pressure to eat standard American diet The difficulty around getting a celiac diagnosis The value of preventative medicine Dating on a gluten-free diet Look for someone open to new ideas Nadine’s partner is supportive, willing to change On food path together Health benefits whether celiac or not The human need to be part of a community Celiac patients may feel isolated from family, at work/school Find ‘your people’ (gluten-free support group, cross-fit gym) The global shift to a Western diet Export fast food to world Increased consumption of wheat, barley, rye and oats Why Nadine recommends a diet Remove all grains, dairy, alcohol and sugar Eat meat and fish, nuts and seeds, fruits and vegetables Allows body to reboot Evaluate how you feel The narcotic-like effect of gluten on the brain Comfort foods (pasta, pizza) contain wheat, dairy Cause chemical reaction in brain Nadine’s recent experience in hospitals Only nutrient-deficient, packaged foods available Offerings toxic, full of sugar Nadine’s rules around ingredients in packaged foods Five ingredients or less Must be able to picture every ingredient Why people on a gluten-free diet are reluctant to tell others Don’t want to be difficult, needy Don’t want to call attention, be seen as ‘other’ May be questioned or face anger, mocking Demoralizing to go to restaurant, grocery store (can’t eat 90%) How to approach neighbors or family who view a gluten-free diet as too restrictive for kids Ensure that kids are healthy, thriving Let them know ‘not missing out’ The psychology of denial Some celiac patients believe okay to cheat Bread crumb, dusting of flour can cause autoimmune response Nadine’s opposition to a gluten challenge Can cause organ damage Some never recover The genes that indicate a predisposition to celiac disease HLA-DQ2 HLA-DQ8 Resources: Connect with Nadine: /episode/index/show/glutenfreern/id/5835180

Gluten Free RN

TOPICS