loader from loading.io

A Nurse’s Story of Celiac Disease from 1953 EP074

Gluten Free RN

Release Date: 06/21/2018

A Nurse’s Story of Celiac Disease from 1953 EP074 show art A Nurse’s Story of Celiac Disease from 1953 EP074

Gluten Free RN

What did we know about celiac disease in 1953? The truth is, we knew quite a bit about sensitivity to gluten 65 years ago when Matilda Babbitz’s son Bobby was diagnosed with celiac disease. A nurse by profession, Matilda carefully observed her baby and kept detailed records of his reactions to foods, working with doctors to determine an appropriate diet for Bobby. Today, the Gluten Free RN is sharing an written by Matilda herself. She covers how Bobby presented with celiac disease at six months of age and the dramatic change in his health and behavior after a diet change. Nadine discusses...

info_outline
Musings & Truths From the Gluten Free RN EP073 show art Musings & Truths From the Gluten Free RN EP073

Gluten Free RN

‘Know your own truth and let that guide you.’ How do you cut through the noise and misinformation around gluten sensitivity and celiac disease in order to make the best choices for your health and happiness? By tapping into your intuition and asking WHY when the answers don’t feel right—and reaching out to the right people for support when you need it. Today, the Gluten Free RN is sharing her Top 10 Musings and Truths for health and wellbeing, empowering you to be self-protective and surround yourself with the people who genuinely care enough to speak up for—and with you. She shares...

info_outline
African Americans & Celiac Disease EP072 show art African Americans & Celiac Disease EP072

Gluten Free RN

Much existing propaganda claims that African Americans do not suffer from celiac disease. Even the Gluten Free RN was surprised to find out that her adopted daughter had a genetic predisposition to the disease back in 2006, as research available at the time regarded the HLA-DQ2 and HLA-DQ8 genes to be primarily Caucasian traits. And until we take steps to conduct a mass screening, we simply don’t know how common celiac disease is among people of African descent. Today, the Gluten Free RN is exploring celiac disease in the African American population. She covers a 2006 study out of Columbia...

info_outline
Celiac Disease & Why No One Should Have Belly Pain EP071 show art Celiac Disease & Why No One Should Have Belly Pain EP071

Gluten Free RN

Approximately 50% of ER visits are associated with abdominal pain, and the vast majority of those patients are given a diagnosis of ‘abdominal pain of an unknown origin’ and directed to come back if the condition gets worse. This is little comfort to people suffering from severe discomfort who need answers around the cause of their belly pain, not just medication to mask it temporarily. Could undiagnosed celiac disease be the source of their suffering? Today, the Gluten Free RN is diving into the issue of belly pain and undiagnosed celiac disease, discussing the expensive testing often...

info_outline
Blood Disorders and Celiac Disease EP070 show art Blood Disorders and Celiac Disease EP070

Gluten Free RN

If you are being treated for a blood disorder, it is time to look deeper and explore the underlying cause. Rather than simply addressing iron- or B12-deficiency anemia in isolation, ask WHY you have a deficiency in the first place. It is possible that damage to your intestines caused by gluten is preventing your body from absorbing the nutrients necessary to grow your red blood cells and keep your immune system healthy. And anemia is not the only blood disorder associated with celiac disease and non-celiac gluten sensitivity! The Gluten Free RN is taking a closer look at the hematologic...

info_outline
Eosinophilic Esophagitis and Celiac Disease EP069 show art Eosinophilic Esophagitis and Celiac Disease EP069

Gluten Free RN

Your gastrointestinal tract is approximately 30 feet long, and it runs from your mouth all the way to the anus! We know that celiac disease can impact any part of the digestive tract. But there is another disease that wreaks havoc on the GI tract as well, a condition called eosinophilic esophagitis or EoE. The Gluten Free RN is explaining the fundamentals of eosinophilic esophagitis, from its characteristic inflammation of the esophagus and elevated eosinophils in the blood to the common symptoms of vomiting and upper abdominal pain. She walks us through the treatment for EoE, an elimination...

info_outline
Why No Dairy on a Gluten-Free Diet? EP068 show art Why No Dairy on a Gluten-Free Diet? EP068

Gluten Free RN

If you’re just getting used to eliminating gluten from your diet, it may feel like a burden to remove dairy as well—especially if you’re a fan of comfort foods like cheese and ice cream. Why exactly do many practitioners recommend a gluten- AND dairy-free diet to patients diagnosed with celiac disease and non-celiac gluten sensitivity? The Gluten Free RN is walking us through the similarities between gliadin and casein, explaining how the proteins found in gluten, milk and cheese impact our brains. She discusses how Marsh 1 damage from celiac disease leads to an inability to break down...

info_outline
Indigenous Populations, Celiac Disease and NCGS EP067 show art Indigenous Populations, Celiac Disease and NCGS EP067

Gluten Free RN

‘Globally, indigenous peoples suffer from poorer health, are more likely to experience disability and reduced quality of life, and ultimately die younger than their non-indigenous counterparts.’ A on the health of indigenous peoples points to a significant problem, but the question is WHY? Why are native populations more prone to autoimmune disorders and type 1 diabetes? Why do they have a higher incidence of alcoholism and drug addiction? And why the lower life expectancy? The Gluten Free RN is exploring the role of food in health outcomes for indigenous populations around the world. She...

info_outline
How to Easily Go Gluten-Free or Paleo EP066 show art How to Easily Go Gluten-Free or Paleo EP066

Gluten Free RN

‘It’s too hard.’ ‘It’s too expensive.’ ‘It’s time-consuming.’ ‘My family won’t support me.’ There are lots of excuses why you can’t go gluten-free or Paleo, but the Gluten Free RN argues that if it’s hard, you’re doing it wrong. And today, she’s prepared to explain how to easily go gluten-free or Paleo and either maintain or regain your health. Nadine begins with a discussion of the connection between food and pain or discomfort. She explains how the processed, non-food that most people consume causes damage that prevents us from absorbing the nutrients our...

info_outline
Russia and Celiac Disease EP065 show art Russia and Celiac Disease EP065

Gluten Free RN

As stories about Russia continue to dominate the news cycle, you are probably familiar with the recent sanctions against the country, Vladimir Putin’s reelection, and even the expulsion of Russian diplomats from the EU and US. But what do you know about celiac disease in Russia? The Gluten Free RN is taking a closer look at the limited information about celiac disease in Russia, giving us an overview of the country’s size and population and the likely number of celiac cases based on the global tendency. She discusses the thriving wheat production industry in Russia as well as the...

info_outline
 
More Episodes

What did we know about celiac disease in 1953?

The truth is, we knew quite a bit about sensitivity to gluten 65 years ago when Matilda Babbitz’s son Bobby was diagnosed with celiac disease. A nurse by profession, Matilda carefully observed her baby and kept detailed records of his reactions to foods, working with doctors to determine an appropriate diet for Bobby.

Today, the Gluten Free RN is sharing an article published in the March 1953 edition of the American Journal of Nursing written by Matilda herself. She covers how Bobby presented with celiac disease at six months of age and the dramatic change in his health and behavior after a diet change.

Nadine discusses the systematic approach Bobby’s healthcare team took in creating a custom diet, the relationship between the baby’s irritability and his inability to digest food, and his growth and development before and after treatment. She also addresses the misunderstanding that children will ‘grow out of’ celiac disease, explaining that we’ve since learned patients must adhere to a 100% gluten-free diet for life. Listen in for insight around what we can learn from past case studies of celiac disease and understand what we already knew about celiac disease back when Eisenhower was president and Gentlemen Prefer Blondes was on the big screen!

What’s Discussed:

How Bobby presented with celiac disease at six months of age

  • Sudden attack of diarrhea, upper respiratory infection
  • History of GI difficulty + distended abdomen, increased gas
  • Marked irritability, weight loss, inability to move arms/legs

The dramatic change in Bobby’s behavior after a diet change

  • Symptoms of diarrhea, vomiting and weakness disappeared
  • Irritability subsided with shift to skim milk

The new pediatrician’s approach when Bobby’s progress stalled

  • Shift to goat’s milk, added complete multivitamin supplement

The relationship between irritable behavior and the inability to digest foods

  • Nurse/mom kept detailed records of foods eaten, reactions

Bobby’s growth and development before and after diagnosis

  • Lost ability to perform gross motor activity prior to diagnosis
  • Caught up with age group after diet change (walked at 18 months)

How Bobby’s mother dealt with social pressure to eat with others

  • Replaced cookies and ice cream with sherbet and lollipops
  • Kept away from parties so not conscious of being left out

The chronic nature of celiac disease

  • No one ‘grows out of’ being celiac
  • 100% gluten-free diet for life

Nadine’s insight around what we knew about celiac disease in 1953

  • Many celiac patients unable to digest cow’s milk
  • Need supplementation with vitamins, certain fats
  • Recognized impairment of immune system

Resources

‘Bobby Has Celiac Disease’ in the American Journal of Nursing

Connect with Nadine:

Instagram

Facebook

Contact via Email

‘Your Skin on Gluten’ on YouTube

Melodies of the Danube Gluten-Free Cruise with Nadine

Books by Nadine:

Dough Nation: A Nurse's Memoir of Celiac Disease from Missed Diagnosis to Food and Heal

Subscribe to The Gluten Free RN Podcast:

iTunes

Stitcher

Google Play