Getting Outdoors With IBD Featuring Jonathan Stewart of EverGreen Adventures
About IBD
Jonathan Stewart, co-founder of Evergreen Adventures, a nonprofit focused on connecting the chronic illness community with outdoor activities, shares his journey with type one diabetes, ulcerative colitis, and sarcoidosis. Jonathan emphasizes the importance of staying active despite health challenges, describes the need for planning outdoor adventures, and encourages everyone to find joy in nature, no matter the circumstances. Concepts discussed on this episode: Personal experiences with chronic illnesses, including ulcerative colitis and type one diabetes. The journey of...
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GetYourBellyOut: Picturing Hope for IBD Featuring Victoria Marie
About IBD
In this episode, Victoria, founder of GetYourBellyOut, shares her journey with ulcerative colitis and the importance of community support for those with inflammatory bowel disease (IBD). She discusses her diagnosis experience, the challenges of navigating healthcare, and the need for better patient advocacy. Victoria highlights the organization's growth, its initiatives like the IBD Nurse Helpline leaflets, and the significance of connecting patients with healthcare providers. She emphasizes the importance of funding to expand their services and create more opportunities for support, while...
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How Tech is Changing Gastroenterology
About IBD
Amber and gastroenterologist Dr Neil Parikh discuss technology’s impact on IBD management. Dr Parikh emphasizes the importance of patient diaries and open communication between patients and providers. They also address concerns about data privacy, integrating holistic approaches in patient care, and the potential of wearable technology in gastroenterology. Find Neil D. Parikh, MD at: Web: LinkedIn: Find The Gut Doctor Podcast at: Find Amber J Tresca at: : Verywell: Facebook: Twitter: Pinterest: Instagram: YouTube: Threads: ...
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Reclaiming Joy in Eating with IBD Featuring Stacey Collins, MA, RDN/LDN
About IBD
People with Crohn's disease or ulcerative colitis (forms of inflammatory bowel disease, or IBD) were told for many decades that diet didn't affect the disease. Even today, some patients are still told this, even though there is now significant evidence that diet absolutely matters in IBD. Stacey Collins, MA, RDN/LDN describes how her journey with ulcerative colitis led to j-pouch surgery. Her philosophy as a registered dietician is one of “nutrition by addition" rather than by dietary restriction. Stacey also focuses on the emotional aspects of eating with IBD, including the understandable...
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Infusion Hero: Stylish Hoodies for Young Patients Featuring Rachel Bee
About IBD
IBD patients are innovative, resilient, and powerful. My guest, Rachel Bee, is an incredible example of all these virtues. Rachel is a remarkable 17-year-old entrepreneur who was diagnosed with Crohn's disease at just 13 years old. She turned her experiences with IBD into a mission to help others by founding Infusion Hero, a company that designs innovative hoodies specifically for young patients receiving infusions. Infusion Hero hoodies provide comfort and feature a unique design that allows for easy access during medical treatments. Rachel shares her story of navigating the challenges...
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Freelancing Freedom: Crafting Your Career While Caring for Your Health
About IBD
It's not easy to manage both a career and chronic illness like inflammatory bowel disease (IBD, Crohn's disease, or ulcerative colitis). We need tools and tips in order to keep everything moving and succeed at work while caring for ourselves. I talk with Jen Hubley Luckwaldt about how freelancing can be a valid way of meeting both goals. Jen shares her journey from traditional employment to freelancing, including how it offers her flexibility in balancing work, health, and family. We talk about the importance of setting boundaries with clients, how to identify your marketable skills, and...
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Declutter Your Life While Living with Chronic Illness
About IBD
Do you find it difficult to find the time and energy to deal with mental or physical clutter? Lisa Zawrotny, a productivity coach and founder of Positively Productive Systems, helps us learn how to manage clutter, even when flaring. We discuss practical strategies for decluttering both your physical space and mental load, and how to celebrate even the smallest victories in your day-to-day life. Plus, Lisa reveals her insights on creating systems that work for you, no matter your circumstances. If you’ve ever felt weighed down by expectations or struggled to find balance, this episode is...
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Embracing Life with an Ostomy Featuring Danielle Barlieb
About IBD
Danielle Barlieb was diagnosed with Crohn's disease in childhood. She discusses her experiences with diagnosis, surgeries, and becoming a mother, including the challenges of a permanent ileostomy. Danielle emphasizes the importance of mental health, sharing her struggles and the support she received from her family. She also talks about dating with an ostomy, encouraging others not to let fear hold them back. Finally, she highlights her son's interests and the joy he brings to her life, along with resources for women with inflammatory bowel disease. Information and resources discussed...
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Why Representation Matters for the LGBTQ+ Community
About IBD
There's a need for more research addressing social determinants of health in the inflammatory bowel disease (IBD) community. Cass Condray, an IBD researcher who also lives with an IBD, points out the lack of information and resources focused on the unique experiences of LGBTQ patients. Cass also talks about the significance of representation in research, and the impact that intersecting identities have on people's health outcomes. Plus, we talk about Cass' web site, PrideAndPoop.com, what his hopes are for the future, and what there is to do in Oklahoma. Find Cass Condray at: Web: ...
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How to Thrive as a Parent with IBD Featuring Jaime Holland
About IBD
Amber hands over hosting duties to Jamie Holland, a patient advocate with Crohn's disease. They discuss their personal experiences with inflammatory bowel disease (IBD). They focus on Amber's decision to have j-pouch surgery after being diagnosed with dysplasia and the effects it had on her fertility. Jamie asks Amber to share about the emotional and physical challenges of motherhood with IBD, including fatigue and guilt. They also touch on the possibility of passing IBD on to children and the importance of community and support. Concepts discussed on this episode: Xue M, Leibovitzh...
info_outline- Web: Connecticut GI
- LinkedIn: Neil D. Parikh, MD
- Verywell: Verywell Health
- Facebook: @aboutIBD
- Twitter: @aboutIBD
- Pinterest: @aboutibd
- Instagram: @about_IBD
- YouTube: @AboutIBD
- Threads: @about_IBD
- Facebook: @maccooneycomposer
- Instagram: @maccooneycomposer
- Web: Cooney Studio
- YouTube: @MacCooneyComposer
- Theme music, IBD Dance Party, is from ©Cooney Studio.