About IBD
Crohn's disease and ulcerative colitis (collectively known as inflammatory bowel disease) are about more than diarrhea: they affect the whole person. About IBD focuses on health and lifestyle issues important to people living with Crohn's or colitis. IBD patients, doctors, therapists, and care partners give their tips and advice on topics including diet, nutrition, treatments, mental health, family dynamics, and sexuality as it relates to living with IBD.
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Freelancing Freedom: Crafting Your Career While Caring for Your Health
03/25/2025
Freelancing Freedom: Crafting Your Career While Caring for Your Health
It's not easy to manage both a career and chronic illness like inflammatory bowel disease (IBD, Crohn's disease, or ulcerative colitis). We need tools and tips in order to keep everything moving and succeed at work while caring for ourselves. I talk with Jen Hubley Luckwaldt about how freelancing can be a valid way of meeting both goals. Jen shares her journey from traditional employment to freelancing, including how it offers her flexibility in balancing work, health, and family. We talk about the importance of setting boundaries with clients, how to identify your marketable skills, and building a supportive community. Jen emphasizes the value of an abundance mindset in freelancing and offers practical tips for finding work and managing time effectively. If you've ever wondered how you can manage to work while still making it to infusions and appointments: we have a roadmap for you. Episode highlights: Managing a career while living with inflammatory bowel disease (IBD) Challenges of maintaining traditional full-time employment with chronic illness Advantages of freelancing, including flexibility and work-life balance Importance of setting boundaries with clients Identifying marketable skills for freelancing The role of community and support in a freelance career Strategies for effective communication and feedback in professional settings Tools and resources for freelancers to enhance productivity The concept of an abundance mindset in freelancing Find Jen Hubley Luckwaldt and The Job Hopper at: The Job Hopper: Bluesky: Old Mom Things: LinkedIn: Find Amber J Tresca at: : Verywell: Facebook: Twitter: Pinterest: Instagram: YouTube: Threads: Find Mac Cooney (mix, sound design, and theme music) at: Facebook: Instagram: Web: YouTube: Theme music, , is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD 171 These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.
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Declutter Your Life While Living with Chronic Illness
03/11/2025
Declutter Your Life While Living with Chronic Illness
Do you find it difficult to find the time and energy to deal with mental or physical clutter? Lisa Zawrotny, a productivity coach and founder of Positively Productive Systems, helps us learn how to manage clutter, even when flaring. We discuss practical strategies for decluttering both your physical space and mental load, and how to celebrate even the smallest victories in your day-to-day life. Plus, Lisa reveals her insights on creating systems that work for you, no matter your circumstances. If you’ve ever felt weighed down by expectations or struggled to find balance, this episode is packed with valuable takeaways that can help you reclaim your time and energy. Key points: Intersection of productivity and chronic illness Challenges faced by caregivers and individuals with chronic conditions Personal journey of caregiving and its impact on productivity coaching Importance of compassion and realistic approaches to productivity Strategies for managing stress and clutter Prioritization of tasks and setting boundaries Techniques for decluttering and energy management Celebrating small wins and acknowledging achievements The role of journaling in emotional healing and reflection Building community and support for individuals with chronic illnesses Episode sponsored by . Find Lisa Zawrotny of Positively Productive Systems at: Web: LinkedIn: Facebook: Twitter: Instagram: YouTube: Tik Tok: Pinterest: Find Amber J Tresca at: : Verywell: Facebook: Twitter: Pinterest: Instagram: YouTube: Threads: Find Mac Cooney (mix, sound design, and theme music) at: Facebook: Instagram: Web: YouTube: Theme music, , is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD170 These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.
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Embracing Life with an Ostomy Featuring Danielle Barlieb
02/25/2025
Embracing Life with an Ostomy Featuring Danielle Barlieb
Danielle Barlieb was diagnosed with Crohn's disease in childhood. She discusses her experiences with diagnosis, surgeries, and becoming a mother, including the challenges of a permanent ileostomy. Danielle emphasizes the importance of mental health, sharing her struggles and the support she received from her family. She also talks about dating with an ostomy, encouraging others not to let fear hold them back. Finally, she highlights her son's interests and the joy he brings to her life, along with resources for women with inflammatory bowel disease. Information and resources discussed on this episode include: Find Danielle Barlieb at: Tik Tok: Instagram: Find Amber J Tresca at: : Verywell: Facebook: Twitter: Pinterest: Instagram: YouTube: Threads: Find Mac Cooney (mix, sound design, and theme music) at: Facebook: Instagram: Web: YouTube: Theme music, , is from ©Cooney Studio. Episode transcript and more information at: These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.
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Why Representation Matters for the LGBTQ+ Community
02/11/2025
Why Representation Matters for the LGBTQ+ Community
There's a need for more research addressing social determinants of health in the inflammatory bowel disease (IBD) community. Cass Condray, an IBD researcher who also lives with an IBD, points out the lack of information and resources focused on the unique experiences of LGBTQ patients. Cass also talks about the significance of representation in research, and the impact that intersecting identities have on people's health outcomes. Plus, we talk about Cass' web site, PrideAndPoop.com, what his hopes are for the future, and what there is to do in Oklahoma. Find Cass Condray at: Web: Bluesky: LinkedIn: Google Scholar: Find Amber J Tresca at: : Verywell: Facebook: Twitter: Pinterest: Instagram: YouTube: Threads: Find Mac Cooney (mix, sound design, and theme music) at: Facebook: Instagram: Web: YouTube: Theme music, , is from ©Cooney Studio. Episode transcript and more information at: These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.
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How to Thrive as a Parent with IBD Featuring Jaime Holland
01/28/2025
How to Thrive as a Parent with IBD Featuring Jaime Holland
Amber hands over hosting duties to Jamie Holland, a patient advocate with Crohn's disease. They discuss their personal experiences with inflammatory bowel disease (IBD). They focus on Amber's decision to have j-pouch surgery after being diagnosed with dysplasia and the effects it had on her fertility. Jamie asks Amber to share about the emotional and physical challenges of motherhood with IBD, including fatigue and guilt. They also touch on the possibility of passing IBD on to children and the importance of community and support. Concepts discussed on this episode: Xue M, Leibovitzh H, Jingcheng S, et al. . Clin Gastroenterol Hepatol. 2024;22(9):1889-1897.e12. doi:10.1016/j.cgh.2024.03.049. Singh N, Bernstein CN. . United European Gastroenterol J. 2022;10(10):1047-1053. doi:10.1002/ueg2.12319. Oh SJ, Kim HJ, Lee CK; Big Data Research Group (BDRG) of the Korean Society of Gastroenterology. . Aliment Pharmacol Ther. 2023;58(2):191-206. doi:10.1111/apt.17542 Find Jaime Holland at: Facebook: Instagram: Tik Tok: Bluesky: Find Amber J Tresca at: : Verywell: Facebook: Twitter: Pinterest: Instagram: YouTube: Threads: Find Mac Cooney (mix, sound design, and theme music) at: Facebook: Instagram: Web: YouTube: Theme music, , is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD167 These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.
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Navigating Hernia Surgery Featuring Mike Tresca
01/07/2025
Navigating Hernia Surgery Featuring Mike Tresca
Amber is joined by her husband, Mike, who recently underwent robotic hernia surgery. In this candid conversation, they explore the entire experience—from the initial discovery of the hernia to the surgery itself and the recovery process that followed. Mike shares his insights on the challenges he faced, including unexpected pain, dietary adjustments, and the importance of having a supportive caregiver. They also discuss the nuances of patient-provider communication and how to navigate the complexities of post-surgery life. Whether you’re considering surgery or simply curious about the process, this episode offers valuable lessons and firsthand experiences that might resonate with you. Episode transcript and more information at: Find Michael Tresca at World of Welstar: Twitter: Instagram: Facebook: MeWe: Threads: Bluesky: Amazon: EN World: Drive Through RPG: Patreon: Find Amber J Tresca at: : Verywell: Facebook: Twitter: Pinterest: Instagram: YouTube: Threads: Find Mac Cooney (mix, sound design, and theme music) at: Facebook: Instagram: Web: YouTube: Theme music, , is from ©Cooney Studio. These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.
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Amber's 2024 in Books
12/22/2024
Amber's 2024 in Books
Amber shares some of the books she read over the previous year including biographies, young adult fiction, bestsellers, and romance. Hear about Amber's reading list from 2024, which was truly a mixed bag. The good news is that it contains something for everyone. Plus: learn about how you can read or listen to books for free using your local library — maybe without even leaving your house. Library apps mentioned in this episode: Books mentioned in this episode: by Rumaan Alam by Lois Lowry by Angeline Boulley by Britney Spears by Oyinkan Braithwaite by R. F. Kuang by Shari Lapena by Katy Hays by Rebel Wilson by Erika L. Sanchez by Charlotte McConaghy by Molly Shannon by Leslie Jones by Nicola Yoon by Emily Henry by Soyoung Park Find Katie Connelly and the Chronically Ch(ill) Book Club at: Find Amber J Tresca at: : Verywell: Facebook: Twitter: Pinterest: Instagram: YouTube: Threads: Find Mac Cooney (mix, sound design, and theme music) at: Facebook: Instagram: Web: YouTube: Theme music, , is from ©Cooney Studio. Episode transcript and more information at: These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.
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"Fine" Dining With Crohn's Disease Featuring Michael Ornelas
12/10/2024
"Fine" Dining With Crohn's Disease Featuring Michael Ornelas
What's the difference between ulcerative colitis and Crohn's disease? We talk about them like they're two distinct sides of a spectrum, but there are people who don't have a firm place on that continuum. Amber Tresca talks with Michael Ornelas, host of the "Fine" Dining podcast, about his journey with IBD. Michael was first diagnosed with proctitis, then Crohn's disease, and later, maybe, with ulcerative colitis. Michael shares his experiences with symptoms, treatments, and the impact IBD has on life. But it's not all serious! Michael also talks about his comedy podcast, "Fine" Dining, which encompasses the search for mediocrity in chain restaurants. Maybe an unexpected choice for a project for person with IBD, so they also discuss Michael's unique perspectives on food. Find Michael Ornelas and the "Fine" Dining Podcast at: Web: Tik Tok: Instagram: YouTube: Spotify: Apple Podcasts: Find Amber J Tresca at: : Verywell: Facebook: Twitter: Pinterest: Instagram: YouTube: Threads: Find Mac Cooney (mix, sound design, and theme music) at: Facebook: Instagram: Web: YouTube: Theme music, , is from ©Cooney Studio. Episode transcript and more information at: These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.
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"3 Kidneys, No Colon" With Dave Piontkowski
11/26/2024
"3 Kidneys, No Colon" With Dave Piontkowski
For people living with inflammatory bowel disease (IBD), the path to pursuing our dreams can look different from that of our peers. Stand-up comedian Dave Piontkowski, lives with not only ulcerative colitis, but also chronic kidney disease. He developed a one-man show called "Three Kidneys, No Colon," which describes his journey with both of these conditions. Dave talks about how and why his comedy actually improved while he was fighting for his life with kidney disease. He also tells us how his comedy is connecting the chronic illness community, but there are some audience members who find it can be too much. Find Dave Piontkowski at: YouTube: Instagram (check his bio for show tickets): (The Commodore, 811 E. 7th Ave. Tampa, FL 33602) Find Amber J Tresca at: AboutIBD.com: Verywell Health: Facebook: Twitter: Pinterest: Instagram: YouTube: https://www.threads.net/@about_ibd Find Mac Cooney (mix, sound design, and theme music) at: Facebook: Instagram: YouTube: Web: Theme music, , is from ©Cooney Studio. Episode transcript and more information at: These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.
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The Hosts of Bowel Moments
11/12/2024
The Hosts of Bowel Moments
Alicia and Robin, co-hosts of the "Bowel Moments" podcast, join Amber for a discussion about podcasting in the IBD community. Robin shares her IBD journey, including her diagnosis of ulcerative colitis, the complications that led to an ileal anal anastomosis, the later diagnosis of Crohn's disease, and evebtyak J-pouch surgery. They also talk about the challenges of producing the podcast, the importance of therapy, and keeping up a social media presence. The conversation highlights the emotional and logistical aspects of creating a podcast about IBD. Select episodes of Bowel Moments: : Get to know your co-host Robin and Alicia! : A Tale of 2 Surgeries : Meet Robin's Daughters - Logan & Baylee! Find Robin and Alicia on Bowel Moments at: Web: Facebook: Twitter: Instagram: LinkedIn: Find Amber J Tresca at: : Verywell: Facebook: Twitter: Pinterest: Instagram: YouTube: Threads: Find Mac Cooney (mix, sound design, and theme music) at: Facebook: Instagram: Web: YouTube: Theme music, , is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD162 These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.
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Finding the Balance - Honoring Veteran's Day With Stephanie Gish
10/29/2024
Finding the Balance - Honoring Veteran's Day With Stephanie Gish
Stephanie Gish, host of the Crohn's Fitness Food podcast, gives the details of her journey with Crohn's disease and IGA nephropathy. Stephanie's Crohn's symptoms began in 2003, but she was initially misdiagnosed with an anal fissure. After being discharged from the Army for medical reasons unrelated to IBD, she went through years of fragmented care, and finally received a Crohn's diagnosis in 2009. Stephanie brought her knowledge of health and fitness to bear in managing Crohn's, but the diagnosis of IGA nephropathy had her changing course and rethinking her approach. Buy "Crohn's, Fitness, Food and My Rock Road to Health" at Amazon: Find Stephanie Gish at: Web: Facebook: Podcast: LinkedIn: Instagram: Find Amber J Tresca at: AboutIBD.com: Verywell Health: Facebook: Twitter: Pinterest: Instagram: YouTube: https://www.threads.net/@about_ibd Find Mac Cooney (mix, sound design, and theme music) at: Facebook: Instagram: YouTube: Web: Theme music, , is from ©Cooney Studio. Episode transcript and more information at: These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.
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Parenting With IBD (With Alison McGauley)
10/15/2024
Parenting With IBD (With Alison McGauley)
Amber interviews Alison McGauley, a teacher and author of "Kenzie's Little Tree," a children's book about a girl whose mother lives with chronic illness. Alison shares her journey with ulcerative colitis, irritable bowel syndrome (IBS), and ankylosing spondylitis, and how her hospitalization impacted her two daughters. She emphasizes the importance of talking about illness with children to help them process their emotions. Alison’s book, set to release in March 2025, aims to provide a narrative for families dealing with chronic illness. Pre-orders are available, with proceeds donated to Crohn's and Colitis Canada and the Arthritis Society. Buy Alison's book: Find Alison McGauley at: Web: Facebook: Twitter: YouTube: Instagram: Find Amber J Tresca at: AboutIBD.com: Verywell Health: Facebook: Twitter: Pinterest: Instagram: YouTube: https://www.threads.net/@about_ibd Find Mac Cooney (mix, sound design, and theme music) at: Facebook: Instagram: YouTube: Web: Theme music, , is from ©Cooney Studio. Episode transcript and more information at: These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.
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Choosing Ostomy Surgery With Hannah Martin-Spencer
10/01/2024
Choosing Ostomy Surgery With Hannah Martin-Spencer
Is it surprising to learn that some people living with IBD choose to have ostomy surgery? Hannah, a 24-year-old woman, shares her journey through the initial symptoms of IBD at the age of 15, to getting a diagnosis of ulcerative colitis. She describes how her symptoms worsened after diagnosis, including bleeding, bowel urgency, and fatigue, which led to multiple hospitalizations. Hannah advocated for surgery to treat her pancolitis, despite an initial difference of opinion with her medical team. After surgery, Hannah's symptoms were significantly improved and she regained a sense of normalcy in her life. Hannah discusses the pros and cons of choosing an ostomy over a J-pouch, the importance of quality of life, and how surgery could impact her future fertility. Concepts discussed on this episode: Yang X, He M, Tang Q, et al. Assessment of anti-inflammatory efficacy of acupuncture in patients with inflammatory bowel disease: A systematic review and meta-analysis. Complement Ther Med. 2023;74:102946. doi:. Bao C, Wu L, Wang D, et al. Acupuncture improves the symptoms, intestinal microbiota, and inflammation of patients with mild to moderate Crohn's disease: A randomized controlled trial. EClinicalMedicine. 2022;45:101300. doi:. Bae JH, Kang SY, You SE, Jeong HI, Jang S, Kim KH. The Effects of Acupuncture on Crohn's Disease: a systematic review and meta-analysis. J Pharmacopuncture. 2023;26(3):211-226. doi:. Find Hannah Martin-Spencer on: Instagram: Find Amber J Tresca at: AboutIBD.com: Verywell Health: Facebook: Twitter: Pinterest: Instagram: YouTube: https://www.threads.net/@about_ibd Find Mac Cooney (mix, sound design, and theme music) at: Facebook: Instagram: YouTube: Web: Theme music, , is from ©Cooney Studio. Episode transcript and more information at: These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.
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Starting College After a Crohn’s Diagnosis
09/17/2024
Starting College After a Crohn’s Diagnosis
Christina King shares her journey with being diagnosed with Crohn's disease in 2021. She was misdiagnosed with gastritis and hemorrhoids, until her severe symptoms of rectal bleeding and weight loss, plus multiple trips to the emergency department led to a hospitalization. An in-patient colonoscopy finally led to a diagnosis of Crohn's, and she was finally able to get treatment and improve. She was unable to go to school with her high school graduating class, and is now ready to start pursuing her dream of becoming a nurse. Christina tells Amber where she went for information in the early days after diagnosis and how she's approaching accommodations for IBD as she begins school. Find Christina King at: Twitter: Instagram: SnapChat: @christinaking16 Find Amber J Tresca at: AboutIBD.com: Verywell Health: Facebook: Twitter: Instagram: YouTube: Threads: Find Mac Cooney (mix, sound design, and theme music) at: Facebook: Instagram: YouTube: Web: Theme music, , is from ©Cooney Studio. Episode transcript and more information at: These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.
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IBD and the Patient-Physician Relationship
08/13/2024
IBD and the Patient-Physician Relationship
The relationship between patient and physician in inflammatory bowel disease (IBD, Crohn's disease, ulcerative colitis) is so critical to the success of the management of the disease. Both the patient and the physician have roles to play in developing and maintaining a good working relationship. One such example of a truly special and inspirational patient-physician relationship is illustrated here between Dr Julie Spivack, a gastroenterologist with Connecticut GI, and Rosa, her patient. Rosa and Dr Spivack discuss their close bond and how the listening, empathy, honesty, and open-mindedness work to build trust and achieve successful outcomes in patient-physician relationships Find Julie Spivack, MD at: Web: Find Amber J Tresca at: AboutIBD.com: Verywell: Facebook: Twitter: Pinterest: Instagram: YouTube: Find Mac Cooney (mix, sound design, and theme music) at: Facebook: Instagram: YouTube: Web: Theme music, , is from ©Cooney Studio. Episode transcript and more information at: These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.
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IBD and Accommodations at Work With Katie Connelly
07/30/2024
IBD and Accommodations at Work With Katie Connelly
Amber Tresca and Katie Connelly discuss the challenges and importance of workplace accommodations for individuals with inflammatory bowel disease (IBD). Katie has been through the process of asking for accommodations with different employers and shares her personal experience, emphasizing the need for understanding the Americans with Disabilities Act (ADA). She relates her experience and gives advice to both employers and employees on how to manage the accommodation journey. Plus, she gives the resources that she found most helpful to help her learn about her rights as an employee. Find Katie Connelly at: Spotify: Web: LinkedIn: Instagram: Find Amber J Tresca at: AboutIBD.com: Verywell: Facebook: Twitter: Pinterest: Instagram: YouTube: Find Mac Cooney (mix, sound design, and theme music) at: Facebook: Instagram: YouTube: Web: Theme music, , is from ©Cooney Studio. Episode transcript and more information at: These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.
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Connecting to Cure Crohn's and Colitis With Stacy Dylan
07/09/2024
Connecting to Cure Crohn's and Colitis With Stacy Dylan
Amber is joined by Stacy Dylan, co-founder and executive director of Connecting to Cure Crohn's and Colitis (CtoC). CtoC is a patient advocacy group focused on addressing unmet needs in the IBD community. Stacy founded CtoC to help other families after her son was diagnosed with Crohn's disease. CtoC offers support groups, mentorship programs, and gut-friendly workouts. Stacy offers advice to parents of children with IBD, encouraging them to take things one step at a time and not be overwhelmed by information from the internet. Follow Connecting to Cure: Web: Twitter: Facebook: Follow Stacy’s Medium page at: . Find Amber J Tresca at: AboutIBD.com: Verywell: Facebook: Twitter: Pinterest: Instagram: YouTube: Find Mac Cooney (mix, sound design, and theme music) at: Facebook: Instagram: YouTube: Web: Theme music, , is from ©Cooney Studio. Episode transcript and more information at: These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.
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Men's Health and IBD
06/25/2024
Men's Health and IBD
There tend to be more women than men who share their journey with inflammatory bowel disease (IBD, Crohn's disease, ulcerative colitis). The reasons are challenging to uncover, but what's clear is that more can be done to raise the visibility of men living with an IBD, ostomy, or other digestive condition. My guest is Jordan William Henry Aggen, also known as Crohn's Trooper. Jordan emphasizes the importance of open communication, pre-planning, and finding support from friends, family, and social media to cope with the disease. Concepts discussed on this episode: Find Jordan William Henry Aggen at: Facebook: Instagram: Find Amber J Tresca at: AboutIBD.com: Verywell: Facebook: Twitter: Pinterest: Instagram: YouTube: Find Mac Cooney (mix, sound design, and theme music) at: Facebook: Instagram: YouTube: Web: Theme music, , is from ©Cooney Studio. Episode transcript and more information at: These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.
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"Boo Can't Poo!" With Iris Wang, MD
06/04/2024
"Boo Can't Poo!" With Iris Wang, MD
Dr Iris Wang, assistant professor in the division of Gastroenterology and Hepatology and the Associate Program Director of the GI fellowship at Mayo Clinic in Rochester, Minnesota and Amber Tresca discuss the stigma surrounding gut health and poop. Dr Wang shares the experience of writing a children's book focused on preventing and managing constipation titled "Boo Can't Poo!" They also discuss the challenges of publishing a book on gut health and the potential benefits of talking about poop and toileting, emphasizing the importance of open communication and personalized treatment. Listen to learn about where you can get "Boo Can't Poo!" and how parents with IBD can manage their anxiety around the idea of their kids developing IBD. Order "Boo Can't Poo!" ISBN 9798887701431: Find Xiao Jing "Iris" Wang, MD at: Twitter: LinkedIn: Instagram: Find Amber J Tresca at: AboutIBD.com: Verywell: Facebook: Twitter: Pinterest: Instagram: YouTube: Find Mac Cooney (mix, sound design, and theme music) at: Facebook: Instagram: YouTube: Web: Theme music, , is from ©Cooney Studio. Episode transcript and more information at: These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.
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The GEM Project With Chantel Wicks
05/14/2024
The GEM Project With Chantel Wicks
What is being done to help prevent inflammatory bowel disease (IBD) in the next generation? The Genetic, Environmental, Microbial (GEM) Project is a research study from Crohn's and Colitis Canada (CCC) focused on finding possible causes for Crohn’s disease by following healthy people who are at a higher risk for developing the disease. To talk about GEM, Amber interviews CCC volunteer Chantel Wicks. Chantel is the chapter president for the Durham Region in Ontario and the Chair of their Gutsy Walk, which is a fundraiser and event that takes place every year in the first weekend of June. Learn more about how the GEM Project is uncovering important information on the development of IBD and how to get involved in CCC and The Gutsy Walk. Find Chantel Wicks on the Guts and Glory Podcast at: Web: Facebook: Twitter: Instagram: Find Crohn's and Colitis Canada at: Web: The Gutsy Walk: Facebook: Twitter: Instagram: Find Amber J Tresca at: AboutIBD.com: Verywell: Facebook: Twitter: Pinterest: Instagram: Find Mac Cooney (mix, sound design, and theme music) at: Facebook: Instagram: Web: Theme music, , is from ©Cooney Studio. Episode transcript and more information at: These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.
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The Harms of Copay Accumulators
04/30/2024
The Harms of Copay Accumulators
Did you notice that suddenly one year you started paying more for your healthcare? Crohn's disease and ulcerative colitis are sometimes treated with medications that are expensive. Manufacturers create programs to help patients afford these drugs. In the beginning, these payments from assistance programs counted toward a yearly health insurance deductible. Then, suddenly: they stopped counting. Overnight, patients found themselves responsible for more costs, while insurance carriers received what amounts to double payments. A 2023 court ruling says that this practice should be reversed again, but it's not happening. Amber McCown tells her story of how a copay accumulator program took her by surprise and why she's partnering with the HIV+Hepatitis Policy Institute and working with legislators and agencies to advocate for change. Aimed Alliance. How a Loophole in the Patient Protection and Affordable Care Act Can Impact Access To Your Necessary Treatments: Patient Protection and Affordable Care Act; HHS Notice of Benefit and Payment Parameters for 2021; Notice Requirement for Non-Federal Governmental Plans: https://www.federalregister.gov/documents/2020/05/14/2020-10045/patient-protection-and-affordable-care-act-hhs-notice-of-benefit-and-payment-parameters-for-2021 Copay Accumulator Programs: State Insurance Departments: https://content.naic.org/state-insurance-departments From the HIV+Hepatitis Policy Institute: In 2022,, two diabetes groups, and individual chronic disease patients filed a lawsuit in the U.S. District Court for the District of Columbia challenging the federal rule that allowed "copay accumulators." Insurers use "copay accumulator" programs to avoid counting the value of copay coupons that patients get from drug manufacturers toward a patient's deductible and out-of-pocket costs -- effectively double charging the patients. In 2023, of the plaintiffs and struck down the federal rule that had allowed health insurers to avoid counting copay assistance from drug manufacturers toward a patient's out-of-pocket cost. But the government isn't enforcing the court's ruling, so patients are still subject to copay accumulator schemes. . Far worse is the fact that patients are still being unjustly subjected to copay accumulators that prevent them from being able to afford their prescription drugs as a result. Patients need the federal government to issue a new rule ASAP. Find Amber J Tresca at: : Verywell: Facebook: Twitter: Pinterest: Instagram: Find Mac Cooney (mix, sound design, and theme music) at: Facebook: Instagram: Web: Theme music, , is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD151 These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.
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IBD and Somatic Therapy With Abri Bernstein
04/16/2024
IBD and Somatic Therapy With Abri Bernstein
People with IBD are more likely to live with anxiety, depression, or other mood disorders than people who don't live with one of these conditions. For that reason, caring for mental health is as important as caring for physical health. But it doesn't always work out that way, as patients may not know how important their mental health is to their physical health, or may not have access to a mental health professional. Abri Bernstein shares her personal journey with ulcerative colitis (UC) and how somatic psychotherapy helped her cope with living with the disease. Abri explains somatic psychotherapy as a holistic approach to healing that focuses on the body and nervous system regulation. She describes various modalities, such as somatic experiencing, sensorimotor psychotherapy, and acceptance and commitment therapy (ACT), emphasizing the importance of addressing trauma stored in the body for healing to occur. Resources and information discussed in this episode: Find Abri Bernstein at: Web: LinkedIn: Email: Find Amber J Tresca at: AboutIBD.com: Verywell: Facebook: Twitter: Pinterest: Instagram: Find Mac Cooney (mix, sound design, and theme music) at: Facebook: Instagram: Web: Theme music, , is from ©Cooney Studio. Episode transcript and more information at: These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.
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Colorectal Cancer Awareness Month With Dan "Dry Dock" Shockley
03/26/2024
Colorectal Cancer Awareness Month With Dan "Dry Dock" Shockley
Diagnosed with attenuated familial adenomatous polyposis (AFAP), retired Navy veteran Dan "Dry Dock" Shockley shares his remarkable journey of service, diagnosis, and advocacy. Following his diagnosis, Shockley became a passionate advocate for early detection and reducing the stigma associated with living with an ostomy. He emphasizes the importance of proactive medical care and maintaining a positive attitude in the face of adversity. Through his advocacy work and personal journey, Shockley serves as an inspiration, demonstrating resilience, determination, and a commitment to making a difference for others. Find Dan "Dry Dock" Shockley at: Twitter: Instagram: LinkedIn: Find Amber J Tresca at: : Verywell: Facebook: Twitter: Pinterest: Instagram: Find Mac Cooney (mix, sound design, and theme music) at: Facebook: Instagram: Web: Theme music, , is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD149 These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.
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Making Crohn's Disease Funny With Matt Nagin
02/13/2024
Making Crohn's Disease Funny With Matt Nagin
We can hold two truths: Crohn’s disease is funny. It is also not funny. I speak with Matt Nagin, who has many talents, but we focus on his work as a comedian and actor living with Crohn’s disease. Our discussion focuses on how people need laughter and comedy in their lives. Yet, living with an illness like inflammatory bowel disease (IBD), it can be challenging to find those comedic moments. Especially when most people don’t know what IBD is, and even among those who do, they kind of don’t want to hear about it sometimes. Get tips from Matt on how to form a sense of humor about illness, keep people from getting burned out on you, and think outside the box when it comes to symptoms. Find Matt Nagin at: Web: Facebook: Twitter: Instagram: TikTok: LinkedIn: Find Amber J Tresca at: : Verywell: Facebook: Twitter: Pinterest: Instagram: Find Mac Cooney (mix, sound design, and theme music) at: Facebook: Instagram: Web: LinkedIn: Theme music, , is from ©Cooney Studio. These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.
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Amber's Year in Books 2023
01/30/2024
Amber's Year in Books 2023
What did you read over the past year? If you made a reading goal: did you hit it? The books I read in 2023 included biographies, fantasy, fiction, and romance. Plus, I had several authors who live with Crohn’s disease or ulcerative colitis on the show this year, so I read their books as well. Hear more about some of the books I enjoyed in 2023, how you can hear more from authors with IBD, and ways that you can hit those reading goals this year. IBD Author Episodes: Books mentioned in this episode: Find Amber J Tresca at: : Verywell: Facebook: Twitter: Pinterest: Instagram: Find Mac Cooney (mix, sound design, and theme music) at: Facebook: Instagram: Web: LinkedIn: Theme music, , is from ©Cooney Studio. These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.
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IBD Connect With Lisa Fournier
01/16/2024
IBD Connect With Lisa Fournier
A diagnosis of inflammatory bowel disease (Crohn’s disease, ulcerative colitis, IBD) affects the entire family. When it’s a child that’s diagnosed, it changes so many things and brings a host of challenges. Families experience many unmet needs related to IBD. My guest is Lisa Fournier of IBD Connect. Lisa is the mother of two children who live with IBD. Her experiences in helping them manage IBD at different stages in life compelled her to be a support for others. She worked with her local hospital to start a support group and eventually founded IBD Connect. Learn about the programs IBD Connect offers and how the community can support their important mission. Concepts on this episode: Find IBD Connect at: Instagram: Facebook: Web: Find Amber J Tresca at: : Verywell: Facebook: Twitter: Pinterest: Instagram: Find Mac Cooney (mix, sound design, and theme music) at: Facebook: Instagram: Web: Theme music, , is from ©Cooney Studio. Episode transcript and more information at: These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.
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Post-Traumatic Stress Disorder and IBD With Stephanie Brenner, LCSW, MSW
12/19/2023
Post-Traumatic Stress Disorder and IBD With Stephanie Brenner, LCSW, MSW
My guest is Stephanie Brenner of Chronic Illness Psychotherapy. Stephanie is a Licensed Clinical Social Worker who has experience in working with clients with chronic illnesses. She has also taken on a variety of roles in GI space, including previously serving on both the advisory team for the Pediatric Crohn’s Guidebook and the recruitment committee for the Rome Foundation’s GastroPsych organization. Stephanie lives with Crohn’s disease and a permanent ileostomy and is also a cancer survivor. I asked her to help us better understand PTSD and PTS as they relate to having a chronic illness like IBD. She defines PTSD and why it can happen with IBD, what some of the signs and symptoms might look like, and what patients can do to address their mental health. Episode transcript and more information at: Find Stephanie Brenner, LCSW, MSW at: Web: Facebook: Concepts discussed: An Overview of Rectovaginal Fistula: An Overview of Anal or Rectal Abscess: Proctectomy Surgery for Inflammatory Bowel Disease: Sacha McBain, PhD: What Is Post-Traumatic Stress Disorder (PTSD)?: The Psychology of the Sickbed: Taft TH, Quinton S, Jedel S, Simons M, Mutlu EA, Hanauer SB. Posttraumatic Stress in Patients With Inflammatory Bowel Disease: Prevalence and Relationships to Patient-Reported Outcomes. Inflamm Bowel Dis. 2022;28(5):710-719. doi:10.1093/ibd/izab152 What Is EMDR Therapy?: Understanding Diaphragmatic Breathing: All About Grounding: Techniques to Connect to Nature: Self-Report PTSD Checklist for DSM-5 (PCL-5): (other checklists ) Rome Foundation: Samantha Irby: Tig Notoro: Hannah Gatsby: Cameron Esposito: Find Amber J Tresca at: : Verywell: Facebook: Twitter: Pinterest: Instagram: Find Mac Cooney (mix, sound design, and theme music) at: Facebook: Instagram: Web: LinkedIn: Theme music, , is from ©Cooney Studio. These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.
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IBD in the Hispanic Community With Oriana Damas, MD
12/05/2023
IBD in the Hispanic Community With Oriana Damas, MD
As an assistant professor of medicine in the Division of Gastroenterology at the University of Miami Miller School of Medicine, and the Director of Translational Studies for the Crohn’s and Colitis Center, Dr. Damas sheds light on the misconception that IBD only affects certain ethnicities. Her extensive research explores the connection between of environment and genetics in the development of IBD, with a special focus on its impact on immigrants from Latin America. Dr. Damas shares insights into the challenges of studying the role of diet in IBD, revealing key findings from her research and explaining how her work is reshaping our understanding of these diseases. Find Oriana Damas, MD at: University of Miami: Twitter: Dr Damas' Research: Find Amber J Tresca at: AboutIBD.com: Verywell: Facebook: Twitter: Pinterest: Instagram: Find Mac Cooney (mix, sound design, and theme music) at: Facebook: Instagram: Web: Theme music, , is from ©Cooney Studio. Episode transcript and more information at: These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.
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Positivity Beats IBD With Josef Miller
11/28/2023
Positivity Beats IBD With Josef Miller
What is it like to be a teen living with Crohn’s disease? If you’re like Josef Miller, you channel the challenges of the diagnosis and management of IBD into action. Josef has written a book about his experiences, entitled "The Purple Rose," and created an initiative called "Positivity Beats IBD," which creates inspirational cards for people living with IBD and other conditions. Learn about Josef's journey with Crohn's, his multicultural background, and how and why he decided to write a book. Find Josef Miller at: Instagram — Positivity Beats IBD: Instagram — Josef Miller: Book: Book: Find Amber J Tresca at: AboutIBD.com: Verywell: Facebook: Twitter: Pinterest: Instagram: Find Mac Cooney (mix, sound design, and theme music) at: Facebook: Instagram: Web: Theme music, , is from ©Cooney Studio. Episode transcript and more information at: These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.
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Designer $hit: A Microbiome Love Story With Saffron Cassaday
11/14/2023
Designer $hit: A Microbiome Love Story With Saffron Cassaday
What options are you wiling to try to manage your ulcerative colitis or Crohn’s disease? How about putting someone else’s stool into your own colon? Fecal microbiota transplants (FMTs) — using stool from a donor to repopulate bacteria in the colon — are being studied for use in treating inflammatory bowel disease (IBD). Filmmaker Saffron Cassady decided to try do-it-yourself FMT to treat her ulcerative colitis, using stool from the healthiest person she could find: her husband. The journey is captured in her film, Designer $hit, which explores both the science and potential behind FMT. Learn about why she decided to take a chance on FMT, how it has impacted her life, and where you can see Designer $hit. Learn where you can attend a screening: Episode transcript and more information at: Find Saffron Cassaday and Designer $hit at: Web: Twitter: TikTok: YouTube: Facebook: Instagram: Find Amber J Tresca at: : Verywell: Facebook: Twitter: Pinterest: Instagram: Find Mac Cooney (mix, sound design, and theme music) at: Facebook: Instagram: Web: LinkedIn: Theme music, , is from ©Cooney Studio. These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.
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