The Truth About How IBD Affects Families With Adam and Brandon Sikes
About IBD
Adam Sikes was diagnosed with ulcerative colitis at 18 and later with stage 1 colon cancer. Along with his son Brandon, Adam shares how his family supported him through decades of illness, surgery, and recovery with a J-pouch. Adam and Brandon highlight how IBD affects families, the importance of screening, and the power of community support through groups such as Connecting to Cure. Transcript and more information available at: Chapters: [00:02:12] — Adam discusses his diagnosis of ulcerative colitis at age 18. [00:04:05] — Adam describes his colon resection surgery after a...
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Powerful Lessons: How Women Experience Life With IBD Featuring Alicia Aiello of Girls With Guts
About IBD
Episode transcript and more information at: https://bit.ly/AIBD207 Alicia Aiello, president of Girls With Guts, shares her journey with IBD, which began in childhood. She discusses major surgeries, including a proctectomy that resulted in an unexpected loss of her fallopian tubes and an ovary, and the early onset of perimenopause. Alicia opens up about navigating rectovaginal fistulas, feeling dismissed, and the importance of knowing when to switch providers. What you’ll learn: The impact of inflammatory bowel disease (IBD) on women’s health. Why proctectomy surgery might be used, how it...
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Hidden Ways IBD Affects You Over a Lifetime With Puja Khanna, MD
About IBD
The truth about inflammatory bowel disease (IBD) is that it goes beyond the gut. In this first ever live recording of About IBD, Amber talks with Dr. Puja Khanna from Cedars-Sinai to explore the extra-intestinal impacts of IBD, from skin conditions and eye inflammation to debilitating fatigue. Learn how sex-specific factors affect women and why building a multi-disciplinary care team is the best strategy for long-term health. Episode transcript and more information at: Chapters: (00:01): Amber introduces the first-ever live recording of the "About IBD" podcast, recorded at an event in Los...
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How to Navigate ER Visits and Avoid Fragmented Care With Dr Stephen Lupe
About IBD
Emergency room visits are a source of stress and can lead to fragmented care. Amber speaks with psychologist Dr Stephen Lupe to learn why inflammatory bowel disease (IBD) patients avoid the ER, the reality of medical trauma, and how a multi-disciplinary approach like the IBD Medical Home can revolutionize patient care. Transcript and more information at: Sponsored by: Johnson & Johnson: Find Stephen Lupe, PsyD at: Cleveland Clinic: Twitter: LinkedIn: Resources mentioned: Cleveland Clinic's Digestive Disease & Surgery Institute: Explore the...
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Brown Note: Helping People with IBD Find Hope and Support With Andrew Giffin
About IBD
Amber Tresca talks with Andrew Giffin, a product manager in Toronto who was diagnosed with Crohn's disease at 19 after years of symptoms in high school. Andrew shares his experience navigating three major surgeries, adjusting his career path away from law enforcement, and learning to manage stress as part of living with a chronic illness. He also discusses developing apps, including Brown Note, a free, anonymous peer-support app for people with digestive diseases. Brown Note was inspired by his own feelings of isolation while preparing for his third surgery and is available on Apple, Android,...
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Insider Secrets to Fearless Travel with IBD
About IBD
Certified travel advisor, business owner, and ulcerative colitis patient Sarah McGovern joins Amber to give tips and tricks on traveling with IBD. Sarah relates her IBD journey, including a rare medication side effect that landed her in the hospital. Now in remission, Sarah breaks down her blueprint for traveling with an invisible illness. On this episode, you'll learn concrete, practical strategies for traveling with IBD and how a travel advisor can help you relax on your next trip. Transcript and more information at: https://bit.ly/AIBD203 Chapters: 00:04 — Introduction to...
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The Powerful Impact of the IBD Community Featuring Katie Neu
About IBD
Episode transcript and more information at: Katie Neu and Amber Tresca talk over the results of the IBD Social Circle white paper, "The Power of Community in Inflammatory Bowel Disease." A survey of more than 500 patients puts a spotlight on the ways IBD affects body image, relationships, intimacy, and mental health. Amber and Katie discuss masking symptoms, the difficulties of working a corporate job, and why having community is critical. Chapters 00:05 — Host Amber Tresca introduces the podcast and her guest, Katie Neu, who lives with Crohn's disease. 01:25 — Amber and Katie...
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Yoga Therapy for IBD: Why Acceptance is the Best Teacher With Bari Gratton
About IBD
After a devastating Crohn’s disease flare, marketing executive Bari Gratton traded a high-stress career for the healing path of yoga therapy in California. Bari joins Amber Tresca to discuss the "Five Layers of Being," the toxicity of "pushing through," and how she is building community for the next generation of IBD patients. Episode transcript and more information at: Key Chapters & Timestamps: [00:00:00] – Welcome to About IBD with Amber Tresca [00:04:40] – Diagnosis in the late 90s: Life as a teen with Crohn’s [00:12:35] – The 2017 Crisis: Three surgeries and a temporary...
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Is Your Eye Pain Actually an IBD Flare?
About IBD
Did you know that inflammatory bowel disease (IBD) isn't only a digestive condition? It can also attack your vision. Your host, Amber J Tresca, breaks down some of the most common eye-related extra-intestinal manifestations (EIMs) of Crohn's disease and ulcerative colitis. Learn how to identify the warning signs of episcleritis, uveitis, and scleritis, and find out when you need to see an ophthalmologist right away to protect your eyesight. Episode transcript and more information at: Key Chapters & Timestamps 00:00 - Introduction: Protecting your vision with IBD 02:07 - What are...
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How to Fuel Athletic Performance In Chronic Illness Featuring T.L. Wright (The IBD Athlete)
About IBD
T.L. Wright, known as The IBD Athlete and author of The SCD Athlete Cookbook, tells Amber about her frustrating decades-long journey to a Crohn's disease diagnosis. She explains the health reasons behind her pivot from triathlons and Ironman races to competitive bodybuilding. You'll leave this episode with a better understanding of how to fuel for your sport or workout while managing an immune-mediated condition. Episode transcript and more information at: The SCD Athlete Cookbook: and Chapters: 00:00 - Introduction to the IBD Athlete 02:39 - A Lifetime of Unexplained Symptoms 04:18 - The...
info_outlineThe truth about inflammatory bowel disease (IBD) is that it goes beyond the gut. In this first ever live recording of About IBD, Amber talks with Dr. Puja Khanna from Cedars-Sinai to explore the extra-intestinal impacts of IBD, from skin conditions and eye inflammation to debilitating fatigue. Learn how sex-specific factors affect women and why building a multi-disciplinary care team is the best strategy for long-term health.
Episode transcript and more information at: https://bit.ly/AIBD206
Chapters:
- (00:01): Amber introduces the first-ever live recording of the "About IBD" podcast, recorded at an event in Los Angeles.
- (01:31): Amber and guest expert Dr. Puja Khanna are introduced, detailing their backgrounds and expertise in the IBD space.
- (03:26): Dr. Khanna discusses common extra-intestinal manifestations of IBD, including issues with the eyes, liver, skin, and joints.
- (05:45): A discussion on how women are uniquely affected by IBD, including hormonal influences during puberty, pregnancy, and menopause.
- (06:30): Dr. Khanna explains the importance of a multidisciplinary care team and open communication with your gastroenterologist about all symptoms.
- (08:00): The importance of discussing reproductive health early, even in adolescence, to gather information and make informed decisions later.
- (10:18): Dr. Khanna offers advice on managing fatigue by addressing sleep, mood, nutrition, and energy conservation, even when labs are normal.
- (14:23): Amber and Dr. Khanna discuss the fine line between pushing through illness and recognizing one's capacity to avoid overexertion.
- (15:47): Dr. Khanna advises focusing on trends rather than daily details to avoid anxiety while still providing useful data to doctors.
- (20:04): Guidance on when to send a portal message versus seeking immediate care, emphasizing that patients should not hesitate to reach out.
- (22:41): How patients can understand that issues like joint pain or eye problems can be connected to their IBD.
- (26:01): Dr. Khanna explains the detective work involved in distinguishing between medication side effects and extra-intestinal manifestations of IBD.
- (30:00): Dr. Khanna discusses a multidisciplinary treatment approach that incorporates nutrition, mental health, and physical therapy alongside medication.
- (32:27): A discussion on the long-term safety of modern IBD medications and the genetic risk of passing Crohn's to children.
- (35:34): Dr. Khanna explains the role of diet, the microbiome, and specialized nutrition in managing IBD for human patients.
- (38:31): Dr. Khanna shares personal details about her family, her life in Southern California, and her experience as a triathlete.
Concepts discussed:
- Women Experience IBD Differently Than Men: Why It Matters
- Inflammatory bowel disease's gender bias
- 5 ways inflammatory bowel disease affects women differently
Find Dr Puja Khanna at:
- Twitter: @PujaKhannaMD
- Bluesky: @pujakhannamd.bsky.social
- LinkedIn: Puja Khanna, MD
- Instagram: @pujakhannamd
- Cedars Sinai: Dr Khanna
Find Amber J Tresca at:
- AboutIBD.com: About IBD
- Verywell Health: Verywell Health
- Facebook: @aboutIBD
- Twitter: @aboutIBD
- Instagram: @about_IBD
- YouTube: @AboutIBD
- Threads: @about_ibd
Find Mac Cooney (mix, sound design, and theme music) at:
- Facebook: @maccooneycomposer
- Instagram: @maccooneycomposer
- YouTube: @MacCooneyComposer
- Web: Cooney Studio
- Theme music, IBD Dance Party, is from ©Cooney Studio.
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