Losing a Child: Always Andy's Mom
I am quite sure I have never spoken with a parent whose child had their own Wikipedia page, but Erin's son, , does. Certainly, when Keenan was born, Erin did not ever imagine that someday, he would become an internet celebrity. From an early age, Erin worried about Keenan and his growth and development. When Keenan was 12 months old, Erin mentioned her concerns to Keenan's pediatrician. Keenan was diagnosed with Mucopolysaccharidosis Type VI. The disease was not curable, but was treatable. He underwent a bone marrow transplant to slow the progression. Erin was told that his life expectancy was...
info_outlineLosing a Child: Always Andy's Mom
When today's guest, Danielle, went into her 21-month-old daughter Lydia's room to wake her from a nap on Christmas Day 2022, she noted how peaceful Lydia looked. She began to gently rub her back to rouse her gradually, but Lydia did not move. Danielle started to jostle her a bit more and soon realized that something was very wrong. Lydia was not waking up. Danielle screamed for her husband's help and quickly called 911. Even as she drove to the hospital, Danielle says she did not realize the gravity of the situation. Lydia had died. They learned from Lydia's autopsy that she had a rare...
info_outlineLosing a Child: Always Andy's Mom
Andy always loved dogs. I think he loved dogs so much because his personality was similar to a puppy's. He was always on the move and always excited to meet new people and to see new places. Over the years, Andy tried in vain to talk Eric into getting us a family dog. Eric came from a cat family. I came from a dog family. I am allergic to cats and Eric did not really like dogs, so our poor children ended up with pet fish instead. Once, when Andy was young, he asked me, 'If Dad dies, can we get a dog?' I was caught completely off guard but eventually had to answer that we could likely get a...
info_outlineLosing a Child: Always Andy's Mom
Adlai Stevenson famously eulogized Eleanor Roosevelt, saying, 'She would rather light a candle than curse the darkness.' When today's guest, Sherri, first heard this quote, she knew that she wanted it to apply to her life as well. Sherri's youngest daughter, Conni, battled through addiction and mental illness for 10 years. Sherri stayed by her side for all of that time, supporting her through the good years as well as the bad. She attended 12-step meetings with Conni and learned about addiction during Conni's low moments and celebrated with her when it seemed she was beating the addiction at...
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When Larry lost his son, Rob, to suicide six years ago, Larry was devasted. He immediately found a grief counselor and signed up to be in a grief support group. After two months of waiting, he attended his first support group meeting. He said he did not expect to like being in a support group, but, shortly after starting, Larry realized that he had found 'his people'. Larry felt like they could speak a language that 'ordinary' parents could not understand. When one of the other parents in his support group wished out loud that there was a guidebook for bereaved parents, Larry felt...
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I have been told that my podcast is an important part of the therapy process for many grieving parents. Today is the first time, however, that I have interviewed someone whose therapist instructed her to reach out to me and be on my podcast as a guest. When Robyn's son, Drew (Andrew), was killed in a motorcycle accident in 2021, she was 'shocked, but not surprised.' She certainly had that shock of losing Drew, but Drew was a daredevil most of his life. He had no fewer than three accidents in the months before his death that could have taken his life, but he had miraculously walked away...
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This week's podcast was supposed to be from a Livestream I had planned to do with Gwen earlier this week. If you follow me on Facebook, you already know that the Livestream was canceled. Gwen got very sick with Influenza A, making it impossible for her to do the Livestream. I told her not to worry at all and that I would just 'wing it' so to speak. (By the way, Gwen assures me she is beginning to feel better.) This made me think of the saying, 'When life gives you lemons, make lemonade.' Thinking back over the past six years since Andy died, I realize I have been forced to make a lot of...
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I was so touched by talking with today's guest. Erin has been an elementary school music teacher for more than 10 years. Music was an important part of Andy's life, whether he was singing in the choir or playing the piano, drums, or French Horn. I often wonder how music would have shaped his future growing up. Although Andy said he wanted to be a pilot, Eric always felt he would have become a music teacher instead. Music touched him in such a special way. Andy's elementary school music teacher was important in introducing him to his love for music, so I felt drawn to Erin immediately. ...
info_outlineLosing a Child: Always Andy's Mom
None of us want to be bereaved parents. We love the idea of being a new parent. It is a title we wear proudly. We love the first time our children call us mama or dada. Although many thoughts go through our minds when welcoming our new baby, the average parent certainly does not think that they could ever be a bereaved parent. Our children aren't supposed to die before us, so those thoughts don't enter our minds. When talking to Hollis's mom, Amanda, she is quick to admit that she does not want to be a bereaved parent. She wants to continue to be Hollis's mom, but she wants to be a regular...
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Can TikTok be therapy? After today's guest, Lindsay's 2-year-old son, Mason, died in his sleep due to complications from a febrile seizure, Lindsay felt lost. She didn't know what to do. She tried seeing two different therapists early on in her grief, but at the time, that didn't feel right to her. Lindsay says that she couldn't even begin to process her grief. That is when Lindsay turned to an unusual place. She turned to TikTok. Lindsay () began making videos about Mason, showing him running around and giggling. Mason was never going to meet new people who would see his fun personality, but...
info_outlineToday's guest, Lorraine's young son, AJ, had a smile that would light up a room. Although a heart murmur had been noted at birth, it was thought to have resolved. He was growing and feeding well, and Lorraine had no idea that serious heart abnormality was worsening. The murmur was again noted after a fall at 7 months of age, and AJ was sent to Cardiology where it was determined that AJ suffered from a condition called aortic stenosis. He was scheduled for a cardiac cath to assess the severity of the stenosis.
On the drive to the hospital that morning, Lorraine turned around and AJ gave her one of his famous smiles. That was one of his last smiles because, during the procedure, young AJ's heart stopped. Despite medical interventions, they were unable to save her sweet boy. To say that AJ's parents were horrified would be a vast understatement. The last thing that Lorraine wanted to do was leave her baby boy in a cold hospital morgue.
This is when Martin House Children's Hospice stepped in. When I think of hospice, I think of organizations that help support families whose loved ones are dying. Martin House certainly does this, but it is so much more. The staff from Martin House came to the hospital to take AJ's little body and keep it cool. They allowed his family to stay with him for a full week until they were ready to put him to rest. They offered grief support to Lorraine and her family for a full year. They were everything Lorraine needed when her whole world was falling apart.
In addition to Martin House, Lorraine began listening to the podcast only one month after AJ's death. She says the parents who told their stories on the podcast became her friends and support system. She felt less alone as she listened and she felt herself ever so slowly begin to heal. Now two years after AJ's death, Lorraine works to help other bereaved parents just as she was helped. She is a resource for Martin House helping them learn more about helping parents and now she shares her own story with Always Andy's Mom listeners so they too know that they are not alone.